Swipe om te navigeren naar een ander artikel
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Health coverage of early intensive behavioral intervention (EIBI) for children with autism spectrum disorder is expanding. Yet there is no longitudinal research on patterns of or inequities in utilization of EIBI. We integrated state administrative records with Medicaid and Census data for children enrolled in an EIBI Medicaid waiver (N = 730) to identify and describe the type and prevalence of treatment utilization trajectories, and to examine the association between trajectory types and (a) child race-ethnicity and (b) neighborhood racial composition, poverty, affluence, and urbanicity. We identified four utilization trajectories (Low, Low-Moderate, Moderate, and High users). Race-ethnicity and neighborhood affluence were associated with trajectory membership. As coverage expands, policy makers should consider strategies to improve overall treatment utilization and enhance equity.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Andersen, R. M., Davidson, P. L., & Baumeister. (2013). Improving access to care. In G. F. Kominski (Ed.), Changing the U.S. Health Care System: Key Issues in Health Services Policy and Management (pp. 33–64). New York: Wiley.
Auchincloss, A. H., Van Nostrand, J. F., & Ronsaville, D. (2001). Access to health care for older persons in the United States: Personal, structural, and neighborhood characteristics. Journal of Aging and Health, 13(3), 329–354. CrossRef
Autism Speaks. (2014). The Affordable Care Act and Autism. Retrieved from https://www.autismspeaks.org/sites/default/files/docs/gr/aca_ehb_11.2014.pdf.
Centers for Medicare and Medicaid Services. (2014). Medicaid and CHIP FAQs: Services to Address Autism. Department of Health and Human Services. Retrieved from http://www.medicaid.gov/federal-policy-guidance/downloads/faq-09-24-2014.pdf.
Cooper, L. A., Powe, N. R., & Fund, C. (2004). Disparities in patient experiences, health care processes, and outcomes: the role of patient-provider racial, ethnic, and language concordance. Commonwealth Fund New York, NY. Retrieved from http://www.commonwealthfund.org/programs/minority/cooper_raceconcordance_753.pdf.
Daniels, A. M., & Mandell, D. S. (2013). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism, 18(5), 1–15. https://doi.org/10.1177/1362361313480277.
Florence, J. E., Pack, R., Southerland, J., & Wykoff, R. (2012). The depth of rural health disparities in America: The ABCDEs. In R. A. Crosby (Ed.), Rural Populations and Health (p. 51).
Granpeesheh, D., Dixon, D. R., Tarbox, J., Kaplan, A. M., & Wilke, A. E. (2009). The effects of age and treatment intensity on behavioral intervention outcomes for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(4), 1014–1022. https://doi.org/10.1016/j.rasd.2009.06.007. CrossRef
Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27(1), 70–84. https://doi.org/10.1016/j.ridd.2004.12.002. CrossRef
Haitovsky, Y. (1968). Missing data in regression analysis. Journal of the Royal Statistical Society, 30(1), 67–82.
Hallam, R. A., Rous, B., Grove, J., & LoBianco, T. (2009). Level and intensity of early intervention services for infants and toddlers with disabilities: The impact of child, family, system, and community-level factors on service provision. Journal of Early Intervention, 31(2), 179–196. https://doi.org/10.1177/1053815109331914. CrossRef
Interagency Autism Coordinating Committee (IACC). (2017). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan For Autism Spectrum Disorder. U.S. Department of Health and Human Services Interagency Autism Coordinating Committee. Retrieved from https://iacc.hhs.gov/publications/strategic-plan/2017/.
Kim, C., Disare, K., Pfeiffer, M., Kerker, B., & McVeigh, K. (2009). Effects of individual and neighborhood characteristics on timeliness of provider designation for early intervention services in New York City. Journal of Developmental & Behavioral Pediatrics, 30(1), 38–49. CrossRef
Kirby, J. B., & Kaneda, T. (2005). Neighborhood socioeconomic disadvantage and access to health care. Journal of Health and Social Behavior, 46(1), 15–31. CrossRef
Krieger, N., Chen, J. T., Waterman, P. D., Rehkopf, D. H., & Subramanian, S. V. (2005). Painting a truer picture of US socioeconomic and racial-ethnic health inequalities—geocoding.pdf. American Journal of Public Health, 95(2), 312–323. CrossRef
Leventhal, T., & Brooks-Gunn, J. (2003). Children and youth in neighborhood contexts. Current Directions in Psychological Service, 12(1), 27–31. CrossRef
Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental & Behavioral Pediatrics, 29(3), 152–160. CrossRef
Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012). Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Intellectual and Developmental Disabilities, 50(4), 287–299. https://doi.org/10.1352/1934-9556-50.4.287. CrossRef
Maglione, M. A., Kadiyala, S., Kress, A. M., Hastings, J. L., & O’Hanlon, C. E. (2016). TRICARE Applied Behavior Analysis (ABA) Benefit: Comparison with Medicaid and Commercial Benefits. Santa Monica, CA: RAND Corporation. Retrieved from https://www.rand.org/pubs/research_reports/RR1334.html.
Makrygianni, M. K., & Reed, P. (2010). A meta-analytic review of the effectiveness of behavioural early intervention programs for children with Autistic Spectrum Disorders. Research in Autism Spectrum Disorders, 4(4), 577–593. https://doi.org/10.1016/j.rasd.2010.01.014. CrossRef
Matson, J. L., & Goldin, R. L. (2014). Early Intensive Behavioral Interventions: Selecting behaviors for treatment and assessing treatment effectiveness. Research in Autism Spectrum Disorders, 8(2), 138–142. https://doi.org/10.1016/j.rasd.2013.11.005. CrossRef
McManus, B. M., Robert, S., Albanese, A., Sadek-Badawi, M., & Palta, M. (2013). Predictors of receiving therapy among very low birth weight 2-year olds eligible for Part C early intervention in Wisconsin. BMC Pediatrics, 13(1), 106. CrossRef
Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11. CrossRef
Parish, S., Magaña, S., Rose, R., Timberlake, M., & Swaine, J. G. (2012). Health care of Latino children with autism and other developmental disabilities: Quality of provider interaction mediates utilization. American Journal on Intellectual and Developmental Disabilities, 117(4), 304–315. https://doi.org/10.1352/1944-7558-117.4.304. CrossRef
Perry, A., Cummings, A., Dunn Geier, J., Freeman, N. L., Hughes, S., LaRose, L., Managhan, T., Reitzel, J.A., Williams, J. (2008). Effectiveness of intensive behavioral intervention in a large, community-based program. Research in Autism Spectrum Disorders, 2(4), 621–642. https://doi.org/10.1016/j.rasd.2008.01.002. CrossRef
Reed, P., & Osborne, L. (2012). Impact of severity of autism and intervention time-input on child outcomes: Comparison across several early interventions. British Journal of Special Education, 39(3), 130–136. https://doi.org/10.1111/j.1467-8578.2012.00549.x. CrossRef
Reichow, B., Barton, E., Boyd, B., & Hume, K. (2014). Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD): A systematic review. Campbell Systematic Reviews. Retrieved from http://www.campbellcollaboration.org/lib/project/338/.
Shen, M. J., Peterson, E. B., Costas-Muñiz, R., Hernandez, M. H., Jewell, S. T., Matsoukas, K., & Bylund, C. L. (2018). The effects of race and racial concordance on patient-physician communication: A systematic review of the literature. Journal of Racial and Ethnic Health Disparities, 5(1), 117–140. https://doi.org/10.1007/s40615-017-0350-4. CrossRef
Siller, M., Reyes, N., Hotez, E., Hutman, T., & Sigman, M. (2014). Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions. Autism, 18(4), 433–446. https://doi.org/10.1177/1362361313476766. CrossRef
South Carolina Department of Disabilities and Special Needs. (2012). PDD parent handbook. Retrieved from http://www.ddsn.sc.gov/consumers/Documents/PDD%20Parent%20Handbook%20CS6.pdf.
Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (2005). Vineland-II adaptive behavior scales: Survey forms manual. Circle Pines: American Guidance Service.
Strauss, K., Vicari, S., Valeri, G., D’Elia, L., Arima, S., & Fava, L. (2012). Parent inclusion in early intensive behavioral intervention: The influence of parental stress, parent treatment fidelity and parent-mediated generalization of behavior targets on child outcomes. Research in Developmental Disabilities, 33(2), 688–703. https://doi.org/10.1016/j.ridd.2011.11.008. CrossRef
Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2006). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829. CrossRef
United States Department of Agriculture. (2016). Rural–urban commuting area codes. Retrieved from https://www.ers.usda.gov/data-products/rural-urban-commuting-area-codes/.
Virués-Ortega, J. (2010). Applied behavior analytic intervention for autism in early childhood: Meta-analysis, meta-regression and dose–response meta-analysis of multiple outcomes. Clinical Psychology Review, 30(4), 387–399. https://doi.org/10.1016/j.cpr.2010.01.008. CrossRef
White, K., Haas, J. S., & Williams, D. R. (2012). Elucidating the role of place in health care disparities: The example of racial/ethnic residential segregation. Health Services Research, 47(3pt2), 1278–1299. https://doi.org/10.1111/j.1475-6773.2012.01410.x. CrossRef
Williams, D. R., & Collins, C. (2001). Racial residential segregation: A fundamental cause of racial disparities in health. Public Health Reports, 116(5), 404. CrossRef
World Health Organization (WHO). (2013). Comprehensive and coordinated efforts for the management of autism spectrum disorders (133rd session No. EB133/4). Geneva: World Health Organization.
Yingling, M. E., Hock, R. M., & Bell, B. A. (2018a). Time-lag between diagnosis of autism spectrum disorder and onset of publicly-funded EIBI: Do race-ethnicity and neighborhood matter? Journal of Autism and Developmental Disorders, 48(2), 561–571. https://doi.org/10.1007/s10803-017-3354-3. CrossRef
Yingling, M. E., Hock, R. M., Cohen, A., & McCaslin, E. (2018b). Perceived challenges to treatment utilization in a publicly-funded behavioral intervention program for children with autism spectrum disorder. International Journal of Developmental Disabilities, 64(4–5), 272–282.
Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 11. CrossRef
- Treatment Utilization Trajectories among Children with Autism Spectrum Disorder: Differences by Race-Ethnicity and Neighborhood
Marissa E. Yingling
Bethany A. Bell
Robert M. Hock
- Springer US