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Journal of Autism and Developmental Disorders

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21-09-2015 | Original Paper

Prevalence and Correlates of Educational Intervention Utilization Among Children with Autism Spectrum Disorder

Auteurs: Lucy A. Bilaver, Lisa S. Cushing, Ann T. Cutler

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2016

Abstract

This study examined the prevalence and correlates of educational intervention utilization among U.S. preschool aged children with autism spectrum disorder (ASD) prior to recent policy changes. The analysis was based on a nationally representative longitudinal survey of children receiving special education services during the 2003–2004 school year. All children with parent or teacher identified ASD over a 3-year study period were analyzed. Outcomes included utilization of speech therapy, occupational therapy, behavior therapy, and mental health services by service sector. The analysis revealed low rates of behavioral therapy and mental health services. Parents reported that the overwhelming majority of services were received inside school only. This study identified gaps in the provision of services for young children with ASD.

vorige artikel Randomized, Controlled Trial of a Comprehensive Program for Young Students with Autism Spectrum Disorder

volgende artikel Depression in Adolescents with ASD: A Pilot RCT of a Group Intervention

Although the term “educational intervention” is used to identify these non-medical treatments for ASD, services can be delivered both inside and outside of school.

Association of Maternal and Child Health Programs. (2012). The affordable care act and children and youth with autism spectrum disorder and other developmental disabilities (AMCHP Issue Brief).

Autism Speaks. (2015, July 29). Autism insurance reform. https://www.autismspeaks.org/state-initiatives. Accessed July 29, 2015.

Brown, H. K., Ouellette-Kuntz, H., Hunter, D., Kelley, E., & Cobigo, V. (2012). Unmet needs of families of school-aged children with an autism spectrum disorder. Journal of applied research in intellectual disabilities: JARID, 25(6), 497–508. doi:10.1111/j.1468-3148.2012.00692.x.CrossRefPubMed

Buescher, A., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatrics, 168(8), 721–728. doi:10.1001/jamapediatrics.2014.210.CrossRefPubMed

Burke, J. P., Jain, A., Yang, W., Kelly, J. P., Kaiser, M., Becker, L., et al. (2014). Does a claims diagnosis of autism mean a true case? Autism: The International Journal of Research and Practice, 18(3), 321–330. doi:10.1177/1362361312467709.CrossRef

Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324. doi:10.1007/s10803-009-0874-5.CrossRefPubMed

Carlson, E., Daley, T., Shimshak, A., Riley, J., Keller, B., Jenkins, F., & Markowitz, J. (2008). Changes in the characteristics, services, and performance of preschoolers with disabilities from 2003–2004 to 2004–2005, Wave 2 overview report from the pre-elementary education longitudinal study (No. NCSER 2008-3011). Rockville, MD: Westat.

CDC. (2012). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C.: 2002), 61(3), 1–19. Accessed April 6, 2012.

CDC. (2014). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 63(2), 1–21.

Chatterji, P., Decker, S. L., & Markowitz, S. (2015). The effects of mandated health insurance benefits for autism on out-of-pocket costs and access to treatment. Journal of Policy Analysis and Management: [the Journal of the Association for Public Policy Analysis and Management], 34(2), 328–353.CrossRef

Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091. doi:10.1007/s10995-011-0833-6.CrossRefPubMed

Cidav, Z., Marcus, S. C., & Mandell, D. S. (2012). Implications of childhood autism for parental employment and earnings. Pediatrics, 129(4), 617–623. doi:10.1542/peds.2011-2700.PubMedCentralCrossRefPubMed

Corcoran, J., Berry, A., & Hill, S. (2015). The lived experience of US parents of children with autism spectrum disorders: A systematic review and meta-synthesis. Journal of intellectual disabilities: JOID. doi:10.1177/1744629515577876

Daley, T. C., Simeonsson, R. J., & Carlson, E. (2009). Constructing and testing a disability index in a US sample of preschoolers with disabilities. Disability and Rehabilitation, 31(7), 538–552. doi:10.1080/09638280802214352.CrossRefPubMed

Education for All Handicapped Children’s Act. (1975). Pub. L. No. 94-142.

Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., & Law, P. A. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18(3), 672–680. doi:10.1007/s10995-013-1292-z.CrossRefPubMed

Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161(4), 343–349. doi:10.1001/archpedi.161.4.343.CrossRefPubMed

Holland, C. D. (2010). Autism, insurance, and the IDEA: Providing a comprehensive legal framework. Cornell Law Review, 95(6), 1253–1282. (Accessed 11 April 2011).PubMed

Hultman, C. M., Sandin, S., Levine, S. Z., Lichtenstein, P., & Reichenberg, A. (2011). Advancing paternal age and risk of autism: New evidence from a population-based study and a meta-analysis of epidemiological studies. Molecular Psychiatry, 16(12), 1203–1212. doi:10.1038/mp.2010.121.CrossRefPubMed

Hyman, S. L., & Johnson, J. K. (2012). Autism and pediatric practice: Toward a medical home. Journal of Autism and Developmental Disorders, 42(6), 1156–1164. doi:10.1007/s10803-012-1474-3.CrossRefPubMed

Individual with Disabilities Education Act. (1990). Pub. L. No. 101-476.

Individual with Disabilities Education Act. (1997). Pub. L. No. 101-157.

Interagency Autism Coordinating Committee (IACC). (2014). IACC strategic plan for autism spectrum disorder (ASD) research-2013 update. Retrived from the U.S. Deparment of Health and Human Services Interagency Autism Coordinating Committee website. http://iacc.hhs.gov/strategic-plan/2013/index.shtml

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. doi:10.1542/peds.2008-1057.CrossRefPubMed

Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: Data from U.S. national samples. Journal of Autism and Developmental Disorders, 36(7), 871–879. doi:10.1007/s10803-006-0119-9.CrossRefPubMed

Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55(1), 3–9.CrossRefPubMed

Love, J. R., Carr, J. E., Almason, S. M., & Petursdottir, A. I. (2009). Early and intensive behavioral intervention for autism: A survey of clinical practices. Research in Autism Spectrum Disorders, 3(2), 421–428. doi:10.1016/j.rasd.2008.08.008.CrossRef

Magaña, S., Lopez, K., Aguinaga, A., & Morton, H. (2013). Access to diagnosis and treatment services among latino children with autism spectrum disorders. Intellectual and Developmental Disazbilities, 51(3), 141–153. doi:10.1352/1934-9556-51.3.141.CrossRef

Mann, C. (2014). Clarification of medicaid coverage of services to children with autism (CMCS Informational Bulletin). Baltimore, MD: Centers for Medicaid & Medicaid Services. http://www.medicaid.gov/Federal-Policy-Guidance/Downloads/CIB-07-07-14.pdf

McEachin, J. J., Smith, T., & Lovaas, O. I. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation: AJMR, 97(4), 359–372. (discussion 373–391. Accessed 24 February 2011).PubMed

Montes, G., & Halterman, J. S. (2008). Association of childhood autism spectrum disorders and loss of family income. Pediatrics, 121(4), e821–e826. doi:10.1542/peds.2007-1594.CrossRefPubMed

Myers, S. M., & Johnson, C. P. (2007). Management of children with autism spectrum disorders. Pediatrics, 120(5), 1162–1182. doi:10.1542/peds.2007-2362.CrossRefPubMed

Parish, S. L., Thomas, K. C., Williams, C. S., & Crossman, M. K. (2015). Autism and families’ financial burden: The association with health insurance coverage. American Journal on Intellectual and Developmental Disabilities, 120(2), 166–175. doi:10.1352/1944-7558-120.2.166.CrossRefPubMed

Pringle, B. A., Colpe, L. J., Blumberg, S. J., Avila, R. M., & Kogan, M. D. (2012). Diagnostic history and treatment of school-aged children with autism spectrum disorder and special health care needs. NCHS Data Brief, (97). http://www.cdc.gov/nchs/data/databriefs/db97.htm. Accessed February 12, 2014.

Reichow, B., Barton, E. E., Boyd, B. A., & Hume, K. (2012). Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD). The Cochrane Database of Systematic Reviews, 10, CD009260. doi:10.1002/14651858.CD009260.pub2.PubMed

Reichow, B., & Wolery, M. (2009). Comprehensive synthesis of early intensive behavioral interventions for young children with autism based on the UCLA young autism project model. Journal of Autism and Developmental Disorders, 39(1), 23–41. doi:10.1007/s10803-008-0596-0.CrossRefPubMed

Rogers, S. J. (1998). Empirically supported comprehensive treatments for young children with autism. Journal of Clinical Child Psychology, 27(2), 168. doi:10.1207/s15374424jccp2702_4.CrossRefPubMed

Shattuck, P. T. (2006). The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics, 117(4), 1028–1037. doi:10.1542/peds.2005-1516.CrossRefPubMed

Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatrics and Adolescent Medicine, 165(2), 141–146. doi:10.1001/archpediatrics.2010.279.PubMedCentralCrossRefPubMed

Shimabukuro, T. T., Grosse, S. D., & Rice, C. (2008). Medical expenditures for children with an autism spectrum disorder in a privately insured population. Journal of Autism and Developmental Disorders, 38(3), 546–552. doi:10.1007/s10803-007-0424-y.CrossRefPubMed

Smith, T., Eikeseth, S., Klevstrand, M., & Lovaas, O. I. (1997). Intensive behavioral treatment for preschoolers with severe mental retardation and pervasive developmental disorder. American Journal of Mental Retardation: AJMR, 102(3), 238–249. doi:10.1352/0895-8017(1997)102<0238:IBTFPW>2.0.CO;2.CrossRefPubMed

United States Court of Appeals, Sixth Circuit. 9 F3d 455 Doe Doe v. Board Education Tullahoma City Schools (1993). http://openjurist.org/9/f3d/455/doe-doe-v-board-education-tullahoma-city-schools. Accessed November 3, 2014.

Velott, D. L., Agbese, E., Mandell, D., Stein, B. D., Dick, A. W., Yu, H., & Leslie, D. L. (2015). Medicaid 1915(c) Home- and community-based services waivers for children with autism spectrum disorder. Autism: The International Journal of Research and Practice. doi:10.1177/1362361315590806

Vismara, L. A., & Rogers, S. J. (2010). Behavioral treatments in autism spectrum disorder: What do we know? Annual Review of Clinical Psychology, 6, 447–468. doi:10.1146/annurev.clinpsy.121208.131151.CrossRefPubMed

Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.CrossRefPubMed

Titel: Prevalence and Correlates of Educational Intervention Utilization Among Children with Autism Spectrum Disorder
Auteurs: Lucy A. Bilaver
Lisa S. Cushing
Ann T. Cutler
Publicatiedatum: 21-09-2015
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-015-2598-z

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