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Quality of Life Research

Uitgave 5/2015

Inhoudsopgave (25 Artikelen)


Introduction to special section on patient engagement

Carolyn E. Schwartz, Dennis A. Revicki

Open Access Patient Engagement Special Section

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

Lori Frank, Laura Forsythe, Lauren Ellis, Suzanne Schrandt, Sue Sheridan, Jason Gerson, Kristen Konopka, Sarah Daugherty

Patient Engagement Special Section

Data collection challenges in community settings: insights from two field studies of patients with chronic disease

Richard J. Holden, Amanda M. McDougald Scott, Peter L. T. Hoonakker, Ann S. Hundt, Pascale Carayon

Patient Engagement Special Section

Building new roles and relationships in research: a model of patient engagement research

Nancy Marlett, Svetlana Shklarov, Deborah Marshall, Maria Jose Santana, Tracy Wasylak

Patient Engagement Special Section

Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium

Kirstie Haywood, Jo Brett, Sam Salek, Nancy Marlett, Colin Penman, Svetlana Shklarov, Colleen Norris, Maria Jose Santana, Sophie Staniszewska

Patient Engagement Special Section

Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes

K. Absolom, P. Holch, B. Woroncow, E. P. Wright, G. Velikova

Patient Engagement Special Section

Engaging patients to recover life projectuality: an Italian cross-disease framework

Serena Barello, Guendalina Graffigna

Patient Engagement Special Section

Engaging stakeholders to develop a depression management decision support tool in a tribal health system

Helene Starks, Jennifer L. Shaw, Vanessa Hiratsuka, Denise A. Dillard, Renee Robinson

Patient Engagement Special Section

Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention

Christina L. Rush, Margaret Darling, Maria Gloria Elliott, Ivis Febus-Sampayo, Charlene Kuo, Juliana Muñoz, Ysabel Duron, Migdalia Torres, Claudia Campos Galván, Florencia Gonzalez, Larisa Caicedo, Anna Nápoles, Roxanne E. Jensen, Emily Anderson, Kristi D. Graves

Open Access Patient Engagement Special Section

Low-income minority patient engagement with automated telephonic depression assessment and impact on health outcomes

Irene Vidyanti, Brian Wu, Shinyi Wu

Patient Engagement Special Section

Obese subjects involvement in a population-based survey: the use of information and communication technologies (ICT) to avoid stigmatization

Benoit Pétré, Anne-Françoise Donneau, Céline Crutze, Eddy Husson, André Scheen, Michèle Guillaume

Patient Engagement Special Section

Gaps between patients’ reported current and preferred abilities versus clinicians’ emphases during an episode of care: Any agreement?

Diane D. Allen, Carolina Talavera, Stephen Baxter, Kimberly Topp

Patient Engagement Special Section

Embedding the perceptions of people with dementia into quantitative research design

Hannah M. O’Rourke, Wendy Duggleby, Kimberly D. Fraser


Genetic variations underlying self-reported physical functioning: a review

Melissa S. Y. Thong, Mirjam A. G. Sprangers, Jeff A. Sloan, Donald L. Patrick, Ping Yang, Cornelis J. F. van Noorden


Evaluation of cross-cultural adaptation and measurement properties of breast cancer-specific quality-of-life questionnaires: a systematic review

Indiara Soares Oliveira, Lucíola da Cunha Menezes Costa, Felipe Ribeiro Cabral Fagundes, Cristina Maria Nunes Cabral

Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients’ supportive care needs

Claire F. Snyder, Amanda L. Blackford, Jonathan Sussman, Daryl Bainbridge, Doris Howell, Hsien Y. Seow, Michael A. Carducci, Albert W. Wu

Predicting participation in meaningful activity for older adults with cancer

Mackenzi Pergolotti, Malcolm P. Cutchin, Hyman B. Muss

Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)

J. E. Lutomski, N. J. A. van Exel, G. I. J. M. Kempen, E. P. Moll van Charante, W. P. J. den Elzen, A. P. D. Jansen, P. F. M. Krabbe, B. Steunenberg, E. W. Steyerberg, M. G. M. Olde Rikkert, R. J. F. Melis