Skip to main content
Top
Gepubliceerd in:

01-05-2015 | Patient Engagement Special Section

Engaging stakeholders to develop a depression management decision support tool in a tribal health system

Auteurs: Helene Starks, Jennifer L. Shaw, Vanessa Hiratsuka, Denise A. Dillard, Renee Robinson

Gepubliceerd in: Quality of Life Research | Uitgave 5/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

Southcentral Foundation, an Alaska Native tribal health organization, has had a depression screening program in primary care since 2001. Program monitoring identified gaps in antidepressant refills and patients’ follow-up with behavioral health services. With extensive stakeholder participation, we developed an electronic, patient-centered, depression-management decision support tool (DM-DST). Quality of life and other outcomes are being assessed in a separate study; this case study reports on the multi-year stakeholder engagement process.

Methods

Data sources included interviews with patients and providers from integrated primary care teams, notes from research meetings, steering committee meetings, and consultations with tribal health system leadership, human subjects review committees, providers, and software designers, and a pilot test of the DS-DMT with patients and providers. We analyzed these sources using qualitative methods to assess the impact of stakeholder input on project processes and outcomes.

Results

One comprehensive, iPad-based tool was originally planned to facilitate discussions about depression management. Stakeholder input emphasized the role of family and cultural context of depression and management and improving the usability of the DM-DST. Stakeholder direction led us to split the DM-DST into: (1) a brief iPad-based tool to facilitate conversations between patients and providers during clinic visits; and (2) a complementary Web site that provides detailed information and allows patients flexibility and time to learn more about depression and share information and preferences with family and friends.

Conclusions

Stakeholder input across the project substantially modified the DM-DST to ensure cultural applicability to patients and providers and facilitate integration into clinics.
Literatuur
1.
go back to reference Clinical and Translational Science Awards Consortium, Community Engagement Key Function Committee Task Force. (2011). Principles of community engagement (pp. 11–7782). Bethesda: NIH Publication no. Clinical and Translational Science Awards Consortium, Community Engagement Key Function Committee Task Force. (2011). Principles of community engagement (pp. 11–7782). Bethesda: NIH Publication no.
2.
go back to reference Tapp, H., & Dulin, M. (2010). The science of primary health-care improvement: Potential and use of community-based participatory research by practice-based research networks for translation of research into practice. Experimental Biology and Medicine, 235, 290–299. Tapp, H., & Dulin, M. (2010). The science of primary health-care improvement: Potential and use of community-based participatory research by practice-based research networks for translation of research into practice. Experimental Biology and Medicine, 235, 290–299.
3.
go back to reference Campinha-Bacote J. (2011). Delivering patient-centered care in the midst of a cultural conflict: The role of cultural competence. Online Journal of Issues in Nursing, 16(2), Manuscript 5. Campinha-Bacote J. (2011). Delivering patient-centered care in the midst of a cultural conflict: The role of cultural competence. Online Journal of Issues in Nursing, 16(2), Manuscript 5.
5.
go back to reference Grundy, P., Hagan, K. R., Hansen, J. C., & Grumbach, K. (2010). The multi-stakeholder movement for primary care renewal and reform. Health Affairs (Millwood), 29, 791–798.CrossRef Grundy, P., Hagan, K. R., Hansen, J. C., & Grumbach, K. (2010). The multi-stakeholder movement for primary care renewal and reform. Health Affairs (Millwood), 29, 791–798.CrossRef
6.
7.
go back to reference Dillard, D. A., & Christopher, D. (2007). The Southcentral Foundation Depression Collaborative. International Journal of Circumpolar Health, 66, 45–53.PubMed Dillard, D. A., & Christopher, D. (2007). The Southcentral Foundation Depression Collaborative. International Journal of Circumpolar Health, 66, 45–53.PubMed
8.
go back to reference Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.CrossRefPubMedCentralPubMed Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.CrossRefPubMedCentralPubMed
9.
go back to reference Kroenke, K., Spitzer, R. L., Williams, J. B., & Lowe, B. (2010). The patient health questionnaire somatic, anxiety, and depressive symptom scales: A systematic review. General Hospital Psychiatry, 32, 345–359.CrossRefPubMed Kroenke, K., Spitzer, R. L., Williams, J. B., & Lowe, B. (2010). The patient health questionnaire somatic, anxiety, and depressive symptom scales: A systematic review. General Hospital Psychiatry, 32, 345–359.CrossRefPubMed
10.
go back to reference Gerring, J. (2004). What is a case study and what is it good for? American Political Science Review, 98, 341–354.CrossRef Gerring, J. (2004). What is a case study and what is it good for? American Political Science Review, 98, 341–354.CrossRef
11.
go back to reference Yin R. K. (2009). Case study research: Design and methods. Thousand Oaks. Yin R. K. (2009). Case study research: Design and methods. Thousand Oaks.
12.
go back to reference Begoray D. L., & Banister E. L. (2010). Reflexivity. In A. J. Mills, G. Durepos, & E. Wiebe (Ed.), Encyclopedia of Case Study Research. L-Z Index: Sage. Begoray D. L., & Banister E. L. (2010). Reflexivity. In A. J. Mills, G. Durepos, & E. Wiebe (Ed.), Encyclopedia of Case Study Research. L-Z Index: Sage.
13.
go back to reference Carman, K. L., Dardess, P., Maurer, M., Sofaer, S., Adams, K., et al. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs (Millwood), 32, 223–231.CrossRef Carman, K. L., Dardess, P., Maurer, M., Sofaer, S., Adams, K., et al. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs (Millwood), 32, 223–231.CrossRef
14.
go back to reference Pinto R. M., Spector A., Rahman R., & Gastolomendo J. D. (2013). Research advisory board members’ contributions and expectations in the USA. Health Promotion International. [Epub ahead of print]. Pinto R. M., Spector A., Rahman R., & Gastolomendo J. D. (2013). Research advisory board members’ contributions and expectations in the USA. Health Promotion International. [Epub ahead of print].
15.
go back to reference Elwyn, G., O’Connor, A. M., Bennett, C., Newcombe, R. G., Politi, M., et al. (2009). Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS One, 4, e4705.CrossRefPubMedCentralPubMed Elwyn, G., O’Connor, A. M., Bennett, C., Newcombe, R. G., Politi, M., et al. (2009). Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS One, 4, e4705.CrossRefPubMedCentralPubMed
16.
go back to reference O’Connor A.M., Bennett C. L., Stacey D., Barry M., Col N. F., et al. (2009). Decision aids for people facing health treatment or screening decisions. Cochrane Database System Review: CD001431. O’Connor A.M., Bennett C. L., Stacey D., Barry M., Col N. F., et al. (2009). Decision aids for people facing health treatment or screening decisions. Cochrane Database System Review: CD001431.
17.
go back to reference Legare, F., Turcotte, S., Stacey, D., Ratte, S., Kryworuchko, J., et al. (2012). Patients’ perceptions of sharing in decisions: A systematic review of interventions to enhance shared decision making in routine clinical practice. Patient, 5, 1–19.CrossRefPubMed Legare, F., Turcotte, S., Stacey, D., Ratte, S., Kryworuchko, J., et al. (2012). Patients’ perceptions of sharing in decisions: A systematic review of interventions to enhance shared decision making in routine clinical practice. Patient, 5, 1–19.CrossRefPubMed
18.
go back to reference Sepucha, K. R., Borkhoff, C. M., Lally, J., Levin, C. A., Matlock, D. D., et al. (2013). Establishing the effectiveness of patient decision aids: Key constructs and measurement instruments. BMC Medical Informatics and Decision Making, 13(Suppl 2), S12.CrossRefPubMedCentralPubMed Sepucha, K. R., Borkhoff, C. M., Lally, J., Levin, C. A., Matlock, D. D., et al. (2013). Establishing the effectiveness of patient decision aids: Key constructs and measurement instruments. BMC Medical Informatics and Decision Making, 13(Suppl 2), S12.CrossRefPubMedCentralPubMed
19.
go back to reference Stacey, D., Kryworuchko, J., Belkora, J., Davison, B. J., Durand, M. A., et al. (2013). Coaching and guidance with patient decision aids: A review of theoretical and empirical evidence. BMC Medical Informatics and Decision Making, 13(Suppl 2), S11.CrossRefPubMedCentralPubMed Stacey, D., Kryworuchko, J., Belkora, J., Davison, B. J., Durand, M. A., et al. (2013). Coaching and guidance with patient decision aids: A review of theoretical and empirical evidence. BMC Medical Informatics and Decision Making, 13(Suppl 2), S11.CrossRefPubMedCentralPubMed
20.
go back to reference Gottlieb, K., Sylvester, I., & Eby, D. (2008). Transforming your practice: What matters most. Family Practice Management, 15, 32–38.PubMed Gottlieb, K., Sylvester, I., & Eby, D. (2008). Transforming your practice: What matters most. Family Practice Management, 15, 32–38.PubMed
21.
go back to reference Johnson, C., Gunn, J., & Kokanovic, R. (2009). Depression recovery from the primary care patient’s perspective: ‘Hear it in my voice and see it in my eyes’. Mental Health in Family Medicine, 6, 49–55.PubMedCentralPubMed Johnson, C., Gunn, J., & Kokanovic, R. (2009). Depression recovery from the primary care patient’s perspective: ‘Hear it in my voice and see it in my eyes’. Mental Health in Family Medicine, 6, 49–55.PubMedCentralPubMed
22.
go back to reference Raue, P. J., Schulberg, H. C., Lewis-Fernandez, R., Boutin-Foster, C., Hoffman, A. S., et al. (2010). Shared decision-making in the primary care treatment of late-life major depression: A needed new intervention? International Journal of Geriatric Psychiatry, 25, 1101–1111.CrossRefPubMedCentralPubMed Raue, P. J., Schulberg, H. C., Lewis-Fernandez, R., Boutin-Foster, C., Hoffman, A. S., et al. (2010). Shared decision-making in the primary care treatment of late-life major depression: A needed new intervention? International Journal of Geriatric Psychiatry, 25, 1101–1111.CrossRefPubMedCentralPubMed
23.
go back to reference Barratt, A. (2008). Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care. Patient Education and Counseling, 73, 407–412.CrossRefPubMed Barratt, A. (2008). Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care. Patient Education and Counseling, 73, 407–412.CrossRefPubMed
24.
go back to reference Barry, M. J. (2012). Shared decision making: informing and involving patients to do the right thing in health care. The Journal of Ambulatory Care Management, 35, 90–98.CrossRefPubMed Barry, M. J. (2012). Shared decision making: informing and involving patients to do the right thing in health care. The Journal of Ambulatory Care Management, 35, 90–98.CrossRefPubMed
Metagegevens
Titel
Engaging stakeholders to develop a depression management decision support tool in a tribal health system
Auteurs
Helene Starks
Jennifer L. Shaw
Vanessa Hiratsuka
Denise A. Dillard
Renee Robinson
Publicatiedatum
01-05-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 5/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0810-9

Andere artikelen Uitgave 5/2015

Quality of Life Research 5/2015 Naar de uitgave