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Gepubliceerd in: Quality of Life Research 5/2015

01-05-2015 | Patient Engagement Special Section

Embedding the perceptions of people with dementia into quantitative research design

Auteurs: Ph.D., R.N. Hannah M. O’Rourke, Ph.D., R.N. Wendy Duggleby, Ph.D., R.N. Kimberly D. Fraser

Gepubliceerd in: Quality of Life Research | Uitgave 5/2015

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Abstract

Purpose

Patient perspectives about quality of life are often found in the results of qualitative research and could be applied to steer the direction of future research. The purpose of this paper was to describe how findings from a body of qualitative research on patient perspectives about quality of life were linked to a clinical administrative dataset and then used to design a subsequent quantitative study.

Methods

Themes from two systematic reviews of qualitative evidence (i.e., metasyntheses) identified what affects quality of life according to people with dementia. Selected themes and their sub-concepts were then mapped to an administrative dataset (the Resident Assessment Instrument 2.0) to determine the study focus, formulate nine hypotheses, and select a patient-reported outcome. A literature review followed to confirm existence of a knowledge gap, identify adjustment variables, and support design decisions.

Results

A quantitative study to test the association between conflict and sadness for people with dementia in long-term care was derived from metasynthesis themes. Challenges included (1) mapping broad themes to the administrative dataset; (2) decisions associated with inclusion of variables not identified by people with dementia from the qualitative research; and (3) selecting a patient-reported outcome, when the dataset lacked a valid subjective quality-of-life measure.

Conclusions

Themes derived from a body of qualitative research capturing a target populations’ perspective can be linked to administrative data and used to design a quantitative study. Using this approach, the quantitative findings will be meaningful with respect to the quality of life of the target population.
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Metagegevens
Titel
Embedding the perceptions of people with dementia into quantitative research design
Auteurs
Ph.D., R.N. Hannah M. O’Rourke
Ph.D., R.N. Wendy Duggleby
Ph.D., R.N. Kimberly D. Fraser
Publicatiedatum
01-05-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 5/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-0967-x

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