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Quality of Life Research

Uitgave 6/2023

Inhoudsopgave (26 Artikelen)

Open Access Review

Are OMERACT recommendations followed in clinical trials on fibromyalgia? A systematic review of patient-reported outcomes and their measures

Annika Döhmen, Milan Kock, Felix Fischer, Matthias Rose, Alexander Obbarius, Christoph Paul Klapproth

Cross-sectional study examining psychometric properties of the Slovenian version of the 14-item Resilience Scale (RS-14-SL)

Špela Miroševič, Polona Selič–Zupančič, Judith Prins, Zalika Klemenc–Ketiš

Reliability and validity of the simplified Chinese version of the Functional Assessment of Cancer Therapy-Immune Checkpoint Modulator

Xiangmin Meng, Meimei Shang, Qian Wang, Rong Yan, Kai Jiang, Junai Xiang, Wenhui Liu, Jian Li, Di Wang, Juan Xu

Open Access

Development of a standard set of PROs and generic PROMs for Dutch medical specialist care

Martijn Oude Voshaar, Caroline B. Terwee, Lotte Haverman, Bas van der Kolk, Marleen Harkes, Christiaan S. van Woerden, Fenna van Breda, Stephanie Breukink, Irma de Hoop, Hester Vermeulen, Evelien de Graaf, Jan Hazelzet, Barbara van Leiden, Jozette Stienen, Marian Hoekstra, Hans Bart, Hester van Bommel, Domino Determann, Mariët Verburg, Philip van der Wees, Anna J. Beurskens

Open Access Correction

Correction: Development of a standard set of PROs and generic PROMs for Dutch medical specialist care

Martijn Oude Voshaar, Caroline B. Terwee, Lotte Haverman, Bas van der Kolk, Marleen Harkes, Christiaan S. van Woerden, Fenna van Breda, Stephanie Breukink, Irma de Hoop, Hester Vermeulen, Evelien de Graaf, Jan Hazelzet, Barbara van Leiden, Jozette Stienen, Marian Hoekstra, Hans Bart, Hester van Bommel, Domino Determann, Mariët Verburg, Philip van der Wees, Anna J. Beurskens

The relative contribution of co-morbidities to health-related quality of life of people with idiopathic pulmonary fibrosis using the Assessment of Quality of Life-8-Dimension multi-attribute utility instrument

Qiang Zheng, Ingrid A. Cox, Barbara de Graaff, Julie A. Campbell, Tamera J. Corte, Ian Glaspole, Vidya Navaratnam, Peter Hopkins, Chris Zappala, Hasnat Ahmad, Ting Zhao, Sacha Macansh, E. Haydn Walters, Andrew J. Palmer

Comparative analysis of pediatric anxiety measures in clinical sample: evaluation of the PROMIS pediatric anxiety short forms

John T. Parkhurst, Tara Von Mach, Anthony T. Vesco, Caroline E. Kerns, John V. Lavigne

Open Access

Health-related quality of life in seven European countries throughout the course of the COVID-19 pandemic: evidence from the European COvid Survey (ECOS)

Hans-Helmut König, Sebastian Neumann-Böhme, Iryna Sabat, Jonas Schreyögg, Aleksandra Torbica, Job van Exel, Pedro Pita Barros, Tom Stargardt, André Hajek

Open Access

Content validity and psychometric properties of the inFLUenza Patient-Reported Outcome Plus (FLU-PRO Plus©) instrument in patients with COVID-19

Tom J. H. Keeley, Sacha Satram, Parima Ghafoori, Carolina Reyes, Helen J. Birch, Kimberly Raymond, Heather L. Gelhorn, Mark Kosinski, Cory D. Saucier, April Mitchell Foster, Amanda Lopuski, John H. Powers III

Open Access

Establishing severity levels for patient-reported measures of functional communication, participation, and perceived cognitive function for adults with acquired cognitive and language disorders

Matthew L. Cohen, Stacy M. Harnish, Alyssa M. Lanzi, Jennifer Brello, William D. Hula, David Victorson, Ratna Nandakumar, Pamela A. Kisala, David S. Tulsky

Open Access

What is important to adults after lower limb reconstruction surgery: a conceptual framework

Heather Leggett, Arabella Scantlebury, Catherine Hewitt, Hemant Sharma, Catriona McDaid, Joy Adamson, Kim Cocks, Paul Harwood, David Ferguson, Reggie Hamdy, Nando Ferreira

Open Access

Disagreement between mothers' and fathers' rating of health-related quality of life in children with cancer

Andreas Meryk, Gabriele Kropshofer, Benjamin Hetzer, David Riedl, Jens Lehmann, Gerhard Rumpold, Alexandra Haid, Verena Schneeberger-Carta, Christina Salvador, Evelyn Rabensteiner, Maria-Sophie Rothmund, Bernhard Holzner, Roman Crazzolara

The associations between HIV stigma and mental health symptoms, life satisfaction, and quality of life among Black sexual minority men with HIV

Chenglin Hong, Ayako Miyashita Ochoa, Bianca D. M. Wilson, Elizabeth S. C. Wu, Damone Thomas, Ian W. Holloway

Open Access

Comparative evaluation of the health utilities index mark 3 and the short form 6D: evidence from an individual participant data meta-analysis of very preterm and very low birthweight adults

Corneliu Bolbocean, Peter J. Anderson, Peter Bartmann, Jeanie L. Y. Cheong, Lex W. Doyle, Dieter Wolke, Stavros Petrou

Open Access

Psychological interventions improve quality of life despite persistent pain in endometriosis: results of a 3-armed randomized controlled trial

K. E. Hansen, B. Brandsborg, U. S. Kesmodel, A. Forman, M. Kold, R. Pristed, O. Donchulyesko, D. Hartwell, L. Vase

Open Access

Development and psychometric validation of a patient-reported outcome measure of recurrent urinary tract infection impact: the Recurrent UTI Impact Questionnaire

Abigail F. Newlands, Lindsey Roberts, Kayleigh Maxwell, Melissa Kramer, Jessica L. Price, Katherine A. Finlay

Quality of life among family caregivers of people with schizophrenia in rural China

Shu-Yu Deng, Yi-Zhou Wang, Man-Man Peng, Tian-Ming Zhang, Ming Li, Wei Luo, Mao-Sheng Ran

Open Access

Comparing the effects of reduced social contact on psychosocial wellbeing before and during the COVID-19 pandemic: a longitudinal survey from two Norwegian counties

Jorid Kalseth, Marian Ådnanes, Solveig Osborg Ose, Eva Lassemo, Silje L. Kaspersen, Roshan das Nair

Mapping the EQ-5D-5L from the Spanish national health survey functional disability scale through Bayesian networks

Alba Ayala, Yolanda Ramallo-Fariña, Amaia Bilbao-Gonzalez, Maria João Forjaz

Open Access

Content validation of the SF-36v2® Health Survey Acute for use in hypoparathyroidism

Meryl Brod, Laura Tesler Waldman, Aimee D. Shu, Alden Smith

Open Access

Estimating meaningful thresholds for multi-item questionnaires using item response theory

Berend Terluin, Jaimy E. Koopman, Lisa Hoogendam, Pip Griffiths, Caroline B. Terwee, Jakob B. Bjorner