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17-09-2019 | Original Paper

Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder

Auteurs: Serene Habayeb, Sarah Dababnah, Aesha John, Brendan Rich

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2020

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Abstract

Research on families’ experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families.
Literatuur
go back to reference Abadeh, H. (2006). Perceptions of Arab American parents with children with special needs regarding home-school communications. Unpublished Doctoral Dissertation, 141. Abadeh, H. (2006). Perceptions of Arab American parents with children with special needs regarding home-school communications. Unpublished Doctoral Dissertation, 141.
go back to reference Abu-Ras, W. (2016). Pscyhological wellbeing: Undersanting risk and protective factors. In M. Amer & G. H. Awad (Eds.), Handbook of Arab American psychology (pp. 175–187). New York: Routledge. Abu-Ras, W. (2016). Pscyhological wellbeing: Undersanting risk and protective factors. In M. Amer & G. H. Awad (Eds.), Handbook of Arab American psychology (pp. 175–187). New York: Routledge.
go back to reference Almansour, M. A., Alateeq, M. A., Alzahrani, M. K., Algeffari, M. A., & Alhomaidan, H. T. (2013). Depression and anxiety among parents and caregivers of autistic spectral disorder children. Neurosciences,18(1), 58–63.PubMed Almansour, M. A., Alateeq, M. A., Alzahrani, M. K., Algeffari, M. A., & Alhomaidan, H. T. (2013). Depression and anxiety among parents and caregivers of autistic spectral disorder children. Neurosciences,18(1), 58–63.PubMed
go back to reference Amer, M. (2014). Arab American acculturation and ethnic identity across the lifespan: Sociodemographic correlates and psychological outcomes. In S. Nassar-McMillan, K. Ajrouch, & J. Hakim-Larson (Eds.), Biopsychosocial perspectives on Arab Americans (pp. 153–175). Boston: Springer.CrossRef Amer, M. (2014). Arab American acculturation and ethnic identity across the lifespan: Sociodemographic correlates and psychological outcomes. In S. Nassar-McMillan, K. Ajrouch, & J. Hakim-Larson (Eds.), Biopsychosocial perspectives on Arab Americans (pp. 153–175). Boston: Springer.CrossRef
go back to reference Amin, A. H. (2000). Cultural adaptation and psychological adjustment among Arab American College students (Order No. 9994603). Available from ProQuest Dissertations & Theses Global. (304613844). Retrieved June 12, 2017, from http://proxycu.wrlc.org/login. Amin, A. H. (2000). Cultural adaptation and psychological adjustment among Arab American College students (Order No. 9994603). Available from ProQuest Dissertations & Theses Global. (304613844). Retrieved June 12, 2017, from http://​proxycu.​wrlc.​org/​login.
go back to reference Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., … Dowling, N. F. (2018). Prevalence of Autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries,67(6), 1–23. https://doi.org/10.15585/mmwr.ss6706a1.CrossRef Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., … Dowling, N. F. (2018). Prevalence of Autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries,67(6), 1–23. https://​doi.​org/​10.​15585/​mmwr.​ss6706a1.CrossRef
go back to reference Birman, D., & Simon, C. D. (2014). Acculturation research: Challenges, complexities, and possibilities. In F. T. L. Leong, G. C. Nagamaya Hall, V. C. McLoyd, & J. E. Trimble (Eds.), APA handbook of multicultural psychology (pp. 207–230). Washington, DC: American Psychological Association.CrossRef Birman, D., & Simon, C. D. (2014). Acculturation research: Challenges, complexities, and possibilities. In F. T. L. Leong, G. C. Nagamaya Hall, V. C. McLoyd, & J. E. Trimble (Eds.), APA handbook of multicultural psychology (pp. 207–230). Washington, DC: American Psychological Association.CrossRef
go back to reference Corbin, J., & Strauss, A. (1990). Grounded theory research: Procedures, canons, and evaluative criteria. Qualitative Sociology,13(1), 3–21.CrossRef Corbin, J., & Strauss, A. (1990). Grounded theory research: Procedures, canons, and evaluative criteria. Qualitative Sociology,13(1), 3–21.CrossRef
go back to reference Goforth, A. N. (2015). Multicultural affairs: Considerations for school psychologists working with Arab American children and families. National Association of School Psychologists Communique,39(6), 1–8. Goforth, A. N. (2015). Multicultural affairs: Considerations for school psychologists working with Arab American children and families. National Association of School Psychologists Communique,39(6), 1–8.
go back to reference Haboush, K. L., & Barakat, N. (2014). Education and employment among Arab American: Pathways to individual identity and community resilience. In S. C. Nassar-McMillan, K. J. Ajrouch, & J. Hakim-Larson (Eds.), Biopsychosocial perspectives on Arab Americans (pp. 229–256). Boston: Springer. https://doi.org/10.1007/978-1-4614-8238-3.CrossRef Haboush, K. L., & Barakat, N. (2014). Education and employment among Arab American: Pathways to individual identity and community resilience. In S. C. Nassar-McMillan, K. J. Ajrouch, & J. Hakim-Larson (Eds.), Biopsychosocial perspectives on Arab Americans (pp. 229–256). Boston: Springer. https://​doi.​org/​10.​1007/​978-1-4614-8238-3.CrossRef
go back to reference Hakim-Larson, J., & Menna, R. (2016). Acculturation and enculturation: Ethnic identity socialization processes. In M. Amer & G. A. Awad (Eds.), Handbook of Arab American psychology (pp. 34–47). New York: Routledge. Hakim-Larson, J., & Menna, R. (2016). Acculturation and enculturation: Ethnic identity socialization processes. In M. Amer & G. A. Awad (Eds.), Handbook of Arab American psychology (pp. 34–47). New York: Routledge.
go back to reference Jaber, L. (2003). Barriers and strategies for research in Arab Americans. Diabetes Care,26(2), 514–515.CrossRef Jaber, L. (2003). Barriers and strategies for research in Arab Americans. Diabetes Care,26(2), 514–515.CrossRef
go back to reference Kuaidar, S. M. (2005). Ecocultural study of Arab American families of children with disabilities (Master’s Thesis). California State University, Long Beach. Kuaidar, S. M. (2005). Ecocultural study of Arab American families of children with disabilities (Master’s Thesis). California State University, Long Beach.
go back to reference Miller-Gairy, S., & Mofya, S. (2015). Elements of culture and tradition that shape the perceptions and expectations of Somali refugee mothers about autism. International Journal of Child and Adolescent Health,8(3), 335–349. Miller-Gairy, S., & Mofya, S. (2015). Elements of culture and tradition that shape the perceptions and expectations of Somali refugee mothers about autism. International Journal of Child and Adolescent Health,8(3), 335–349.
go back to reference Nassar-McMillan, S., & Hakim-Larson, J. (2003). Counseling considerations among Arab Americans. Journal of Counseling and Development,81, 150–159.CrossRef Nassar-McMillan, S., & Hakim-Larson, J. (2003). Counseling considerations among Arab Americans. Journal of Counseling and Development,81, 150–159.CrossRef
go back to reference Rosenblum-Fishman, S. D. (2013). Maternal self-efficacy and perceived stigma among mothers of children with ASD, ADHD, and typically developing children. Graduate Doctoral Dissertations. Rosenblum-Fishman, S. D. (2013). Maternal self-efficacy and perceived stigma among mothers of children with ASD, ADHD, and typically developing children. Graduate Doctoral Dissertations.
go back to reference Tami, S. H., Reed, D. B., Boylan, M., & Zvonkovic, A. (2012). Assessment of the effect of acculturation on dietary and physical activity behaviors of Arab mothers in Lubbock, Texas. Ethnicity and Disease,22(2), 192–197.PubMed Tami, S. H., Reed, D. B., Boylan, M., & Zvonkovic, A. (2012). Assessment of the effect of acculturation on dietary and physical activity behaviors of Arab mothers in Lubbock, Texas. Ethnicity and Disease,22(2), 192–197.PubMed
Metagegevens
Titel
Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder
Auteurs
Serene Habayeb
Sarah Dababnah
Aesha John
Brendan Rich
Publicatiedatum
17-09-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-04218-3