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Journal of Autism and Developmental Disorders

Gepubliceerd in:

24-02-2021 | Original Paper

Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder

Auteurs: Randy Zhu, Dianna Hardy, Trina Myers

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2022

Abstract

Adolescents with ASD face challenges in forming positive friendships due to their ASD condition. This study developed a social networking platform based on the needs of a small group of ASD adolescents and their parents/carers and examined what potential benefits such a system could provide. We conducted seven co-design workshops with six adolescents with ASD over eight months. The team exchanged ideas and communicated through group discussions and drawings. The findings suggest that: (1) participants demonstrated self-advocacy skills through an iterative co-design process; (2) a safe and familiar environment encourages active participation from adolescents with ASD as co-designers; and (3) parents, community group and fellow participants play a pivotal role in engaging adolescents with ASD on a social-network.

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Alarcon-Licona, S., Loke, L., & Ahmadpour, N. From autism educators to game designers: integrating teaching strategies into game design for autism education support. In Proceedings of the 30th Australian Conference on Computer-Human Interaction, 2018 (pp. 58-62): ACM

Asperger, H. (1944). Die Autistischen Psychopathen im Kindesalter. Archiv für Psychiatrie und Nervenkrankheiten, 117(1), 76–136. https://doi.org/10.1007/bf01837709.CrossRef

Attwood, T. (1997). Asperger's syndrome: A guide for parents and professionals: Jessica Kingsley Publishers.

Benton, L., Johnson, H., Ashwin, E., Brosnan, M., & Grawemeyer, B. Developing IDEAS: supporting children with autism within a participatory design team. In Proceedings of the SIGCHI conference on Human factors in computing systems, 2012 (pp. 2599-2608): ACM

Bossavit, B., & Parsons, S. This is how I want to learn: High functioning autistic teens co-designing a serious game. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, 2016 (pp. 1294-1299): ACM

Braun, V., Clarke, V., Hayfield, N., & Terry, G. (2019). Thematic analysis. Handbook of Research Methods in Health Social Sciences, 843-860.

Brinckerhoff, L. C. (1994). Developing effective self-advocacy skills in college-bound students with learning disabilities. Intervention in School and Clinic, 29(4), 229–237.CrossRef

Cappadocia, M. C., Weiss, J. A., & Pepler, D. (2012). Bullying experiences among children and youth with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(2), 266–277.CrossRef

Carrington, S., Campbell, M., Saggers, B., Ashburner, J., Vicig, F., Dillon-Wallace, J., et al. (2017). Recommendations of school students with autism spectrum disorder and their parents in regard to bullying and cyberbullying prevention and intervention. International Journal of Inclusive Education, 21(10), 1045–1064.CrossRef

Duncan, A. W., & Bishop, S. L. (2015). Understanding the gap between cognitive abilities and daily living skills in adolescents with autism spectrum disorders with average intelligence. Autism, 19(1), 64–72. https://doi.org/10.1177/1362361313510068.CrossRefPubMed

Francis, P., Balbo, S., & Firth, L. (2009). Towards co-design with users who have autism spectrum disorders. Universal Access in the Information Society, 8(3), 123–135.CrossRef

Frauenberger, C., Good, J., & Alcorn, A. Challenges, opportunities and future perspectives in including children with disabilities in the design of interactive technology. In Proceedings of the 11th International Conference on Interaction Design and Children, 2012 (pp. 367-370): ACM

Frauenberger, C., Good, J., & Keay-Bright, W. (2011). Designing technology for children with special needs: bridging perspectives through participatory design. CoDesign, 7(1), 1–28. https://doi.org/10.1080/15710882.2011.587013.CrossRef

Frauenberger, C., Makhaeva, J., & Spiel, K. (2016). Designing smart objects with autistic children: Four design exposès. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (pp. 130–139).

Fuad-Luke, A. (2013). Design activism: beautiful strangeness for a sustainable world: Routledge.

Gabriels, R. L., & Hill, D. E. (2010). Growing up with autism: Working with school-age children and adolescents: Guilford Press.

Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–253.

Khan, M. S., Mohamadali, N. A. K., Maher, Z. A., Nisa, S. Q., Shaikh, H., & Shah, A. Information Technology (IT) Based Intervention Among Individuals with ASD (Autism Spectrum Disorder): A Review. In 2019 IEEE International Conference on Innovative Research and Development (ICIRD), 2019 (pp. 1-3): IEEE

Madden, D., Cadet-James, Y., Atkinson, I., & Watkin Lui, F. (2014). Probes and prototypes: A participatory action research approach to codesign. CoDesign, 10(1), 31–45. https://doi.org/10.1080/15710882.2014.881884.CrossRef

Madsen, M., Kaliouby, R. e., Eckhardt, M., Hoque, M. E., Goodwin, M. S., & Picard, R. (2009). Lessons from participatory design with adolescents on the autism spectrum. Paper presented at the CHI '09 Extended Abstracts on Human Factors in Computing Systems, Boston, MA, USA,

Mazurek, M. O. (2013). Social media use among adults with autism spectrum disorders. Computers in Human Behavior, 29(4), 1709–1714.CrossRef

Nastasi, B. K., Varjas, K., Sarkar, S., & Jayasena, A. (1998). Participatory model of mental health programming: Lessons learned from work in a developing country. School Psychology Review, 27, 260–276.CrossRef

Neale, H., Cobb, S., & Kerr, S. (2003). An inclusive design toolbox for development of educational Virtual Environments. Include2003, Royal College of Art, London, 25-28.

O’Keeffe, G. S., & Clarke-Pearson, K. (2011). The impact of social media on children, adolescents, and families. Pediatrics, 127(4), 800–804.CrossRef

Ostmeyer, K., & Scarpa, A. (2012). Examining school-based social skills program needs and barriers for students with high-functioning autism spectrum disorders using participatory action research. Psychology in the Schools, 49(10), 932–941.CrossRef

Ploog, B. O., Scharf, A., Nelson, D., & Brooks, P. J. (2013). Use of computer-assisted technologies (CAT) to enhance social, communicative, and language development in children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(2), 301–322.CrossRef

Rowley, E., Chandler, S., Baird, G., Simonoff, E., Pickles, A., Loucas, T., et al. (2012). The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement. Research in Autism Spectrum Disorders, 6(3), 1126–1134.CrossRef

Scherer, M. J. (2002). Assistive technology: Matching device and consumer for successful rehabilitation: American Psychological Association.

Silva, S., & Teixeira, A. (2019). Design and development for individuals with ASD: fostering multidisciplinary approaches through personas. Journal of Autism and Developmental Disorders, 49(5), 2156–2172.CrossRef

Soysa, A. I., & Mahmud, A. A. Assessing tablet applications focused on social interactions: what functionalities do Sri Lankan practitioners want for children with ASD? In Proceedings of the 30th Australian Conference on Computer-Human Interaction, 2018 (pp. 32-41): ACM

Spinuzzi, C. (2005). The methodology of participatory design. Technical communication, 52(2), 163–174.

Steen, M. (2013). Co-design as a process of joint inquiry and imagination. Design Issues, 29(2), 16–28.CrossRef

Tanaka, A., Parkinson, A., Settel, Z., & Tahiroglu, K. A Survey and Thematic Analysis Approach as Input to the Design of Mobile Music GUIs. In NIME, 2012: Citeseer

Weidle, B., Bolme, B., & Hoeyland, A. L. (2006). Are peer support groups for adolescents with asperger’s syndrome helpful? Clinical Child Psychology and Psychiatry, 11(1), 45–62. https://doi.org/10.1177/1359104506059119.CrossRefPubMed

White, S. W., & Roberson-Nay, R. (2009). Anxiety, social deficits, and loneliness in youth with autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(7), 1006–1013.CrossRef

Wilson, C., Brereton, M., Ploderer, B., & Sitbon, L. Co-Design Beyond Words: 'Moments of Interaction'with Minimally-Verbal Children on the Autism Spectrum. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, 2019 (pp. 1-15)

Titel: Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder
Auteurs: Randy Zhu
Dianna Hardy
Trina Myers
Publicatiedatum: 24-02-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-04918-9

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