Swipe om te navigeren naar een ander artikel
Researchers commonly report that families of children with autism spectrum disorder (ASD) experience more parenting stress than families of typically developing (TD) children or those diagnosed with other disabilities [e.g., Down syndrome (DS), cerebral palsy, intellectual disability]. The authors reexamined the research using comparison groups to investigate parenting stress and conducted a meta-analysis to pool results across studies. The experience of stress in families of children with ASD versus families of TD children resulted in a large effect size. Comparisons between families of children of ASD and families with other disabilities also generated a large effect size however, this result should be interpreted with caution as it may be associated with the specific experience of parenting a child with DS.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
References marked with an asterisk (*) indicate studies included in the meta-analysis.
Abidin, R. R. (1983). Parenting Stress Index-manual. Charlottesville, VA: Pediatric Psychology Press.
Abidin, R. R. (1995). Parenting stress index third edition: Professional manual. Lutz, FL: Psychological Assessment Resources, Inc.
Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication. Journal of Autism Developmental Disorders, 39, 350–362. CrossRef
Borenstein, M., Hedges, L., & Rothstein, H. (2007). Introduction to meta- analysis. Retrieved from www.meta-analysis.com.
*Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38–49. CrossRef
Cameron, S. J., Dobson, L. A., & Day, D. M. (1991). Stress in parents of developmentally delayed and non-delayed preschool children. Canada’s Mental Health, 39(1), 13–17.
Carpenter, B. N., & Steffen, P. R. (2004). Stress. In L. J. Haas (Ed.), Handbook of primary care psychology (pp. 563–577). New York, NY: Oxford University Press.
Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism Developmental Disorders, 38, 1278–1291. CrossRef
Deater-Deckard, K. (1998). Parenting stress and child adjustment: Some old hypotheses and new questions. Clinical Psychology, Science and Practice, 5, 314–332. CrossRef
Donenberg, G., & Baker, B. L. (1993). The impact of young children with externalizing behaviors on their families. Journal of Abnormal Child Psychology, 21(2), 178–198. CrossRef
Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2(2), 97–110. CrossRef
Field, A. P., & Gillett, R. (2009). How to do a meta- analysis. Retrieved from http://www.statisticshell.com/meta_analysis/How_To_Do_Meta-Analysis.html.
Friedrich, W. N., Greenberg, M. T., & Crnic, K. (1983). A short form of the Questionnaire on Resources and Stress. American Journal of Mental Deficiency, 88, 41–48. PubMed
*Guess, P. E. (1996). Parental perceptions of stress and coping: Families of preschoolers with and without disabilities (Doctoral dissertation). Available from ProQuest Dissertations and Theses database. (UMI No. 9823088).
Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19, 417–425. CrossRef
Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 269–275. CrossRef
Hedges, L. V., & Olkin, I. (1985). Statistical methods for meta-analysis. Orlando, FL: Academic Press, Inc.
Hedges, L. V., & Vevea, J. L. (1998). Fixed- and random-effects models in meta-analysis. Psychological Methods, 3, 486–504. CrossRef
*Hoffman, C. D., Sweeney, D. P., Hodge, D., Lopez-Wagner, M. C., & Looney, L. (2009). Parenting stress and closeness: Mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24(3), 178–787. CrossRef
Holroyd, J. (1974). The Questionnaire on Resources and Stress: An instrument to measure family response to a handicapped family member. Journal of Community Psychology, 2, 92–94. CrossRef
Holroyd, J. (1987). Questionnaire on Resources and Stress for families with chronically ill or handicapped members. Brandon, VT: Clinical Psychology Publishing Company, Inc.
Huedo-Medina, T., Sanchez-Meca, J., Marin-Martinez, F., & Botella, J. (2006). Assessing heterogeneity in metaanalysis: Q statistic or I 2 index? Center for Health, Intervention, and Prevention Documents. Paper 19. Retrieved from http://digitalcommons.uconn.edu/chip_docs/19.
Kayfitz, A. D., Gragg, M. N., & Orr, R. R. (2010). Positive experiences of mothers and fathers of children with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337–343. CrossRef
Kim, J. A., Szatmari, P., Bryson, S. E., Streiner, D. L., & Wilson, F. J. (2000). The prevalence of anxiety and mood problems among children with autism and Asperger syndrome. Autism, 4(2), 117–132. CrossRef
Konstantareas, M. M., Homatidis, S., & Plowright, C. M. S. (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s Questionnaire on Resources and Stress. Journal of Autism and Developmental Disorders, 22, 217–234. PubMedCrossRef
*Lee, G. K., Lopata, C., Volker, M. A., Thomeer, M. L., Nida, R. E., Toomey, J. A., et al. (2009). Health-related quality of life of parents of children with high-functioning autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24(4), 227–239. CrossRef
*Markham, E. V. (2000). Parenting stress in a clinical sample: Assessment and implications (Doctoral dissertation). Available from ProQuest Dissertations and Theses database. (UMI No. 3000484).
Mayes, S. D., Calhoun, S. L., Murray, M. J., Ahuja, M., & Smith, L. A. (2011). Anxiety, depression, and irritability in children with autism relative to other neuropsychiatric disorders and typical development. Research in Autism Spectrum Disorders, 5, 474–485. CrossRef
Minnes, P. (1988). Family stress associated with a developmentally handicapped child. International Review of Research in Mental Retardation, 15, 195–226. CrossRef
Pisula, E. (2003). Parents of children with autism—review of current research. Archives of Psychiatry and Psychotherapy, 5(4), 51–63.
Pisula, E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down’s syndrome. Journal of Applied Research in Intellectual Disabilities, 20, 274–278. CrossRef
Quintero, N., & McIntyre, L. L. (2010). Sibling adjustment and maternal well-being: An examination of families with and without an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 25(1), 37–46. PubMed
*Richardson, L. L. (2010). The relationship of repetitive behavior and sensory behavior to parenting stress in mothers of boys with autism and mothers of boys with fragile X syndrome. (Doctoral dissertation). Available from ProQuest Dissertations and Theses database. (UMI No. 3402825).
Rosenthal, R. (1991). Meta-analysis: A review. Psychosomatic Medicine, 53, 247–271. PubMed
Rosenthal, R. (1995). Writing meta-analytic reviews. Psychological Bulletin, 118(2), 183–192. CrossRef
Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19(4), 15–32. CrossRef
Scott, R. L., Thompson, B., & Sexton, D. (1989). Structure of a short form of the Questionnaire on Resources and Stress: A bootstrap factor analysis. Educational and Psychological Measurement, 49, 409–419. CrossRef
Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). New York, NY: The Guilford Press.
Sexton, D., Burrell, B., Thompson, B., & Sharpton, W. R. (1992). Measuring stress in families of children with disabilities. Early Education and Development, 3(1), 60–66. CrossRef
Sheras, P. R., Abidin, R. R., & Konaold, T. R. (1998). Stress index for parents of adolescents. Odessa, FL: Psychological Assessment Resources.
Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008). Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry, 47, 921–929. PubMedCrossRef
Sloman, L., & Konstantareas, M. M. (1990). Why families of children with biological deficits require a systems approach. Family Processes, 29, 417–429. CrossRef
Stainton, T., & Besser, H. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual & Developmental Disability, 23(1), 57–70. CrossRef
Taunt, H. M., & Hastings, R. P. (2002). Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities, 37, 410–420.
Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. CrossRef
Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. PubMedCrossRef
*Watson, S. L., Coons, K., & Hayes, S. A. (2012). Autism and Fetal Alcohol Spectrum Disorder Part I: A comparison of parenting stress. (Manuscript submitted for publication).
Watson, S. L., Hayes, S. A., & Radford-Paz, E. (2011). ‘Diagnose me please!’: A review of research about the journey and initial impact of parents seeking a diagnosis of developmental disability for their child. International Review of Research in Developmental Disabilities, 41, 31–72. CrossRef
Webster-Stratton, C. (1990). Stress: A potential disruptor of parent perceptions and family interactions. Journal of Clinical Child Psychology, 19, 302–312. CrossRef
Ylvén, R., Björck-Åkesson, E., & Granlund, M. (2006). Literature review of positive functioning with children with a disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 253–270. CrossRef
Zaidman-Zait, A., Mirenda, P., Zumbo, B. D., Wellington, S., Dua, V., & Kalynchuk, K. (2010). An item response theory analysis of the parenting stress index-short form with parents of children with autism spectrum disorders. The Journal of Child Psychology and Psychiatry, 51, 1269–1277. CrossRef
- The Impact of Parenting Stress: A Meta-analysis of Studies Comparing the Experience of Parenting Stress in Parents of Children With and Without Autism Spectrum Disorder
Stephanie A. Hayes
Shelley L. Watson
- Springer US