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01-03-2019 | OriginalPaper | Uitgave 6/2020 Open Access

Journal of Autism and Developmental Disorders 6/2020

Needs of Grandparents of Preschool-Aged Children with ASD in Sweden

Journal of Autism and Developmental Disorders > Uitgave 6/2020
Rano Zakirova Engstrand, Lise Roll-Pettersson, Mara Westling Allodi, Tatja Hirvikoski
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The online version of this article (https://​doi.​org/​10.​1007/​s10803-019-03946-w) contains supplementary material, which is available to authorized users.

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Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by the public disability services in Stockholm. The Grandparents’ Needs Survey and the SDQ Impact supplement were used to collect data. Grandparents expressed most needs in topic areas of information and childcare. No significant relations were found between grandparents’ demographics and perceptions of needs; grandparents’ needs were predicted by their perceived burden. The findings provide insight into understanding of grandparents’ needs essential for planning and provision of quality family-centered early intervention services.

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