Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 2/2019

18-09-2018 | Original Paper

The Role of Grandparents in Supporting Families of Children with Autism Spectrum Disorders: A Family Systems Approach

Auteurs: P. Prendeville, W. Kinsella

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

A family systems approach is required to identify the needs of families of children with autism. This paper explores how grandparents support children with autism and their parents using a family systems perspective. A thematic analysis of eighteen semi-structured interviews was conducted with participants from nine families, capturing experiences of both parents’ and grandparents’. Themes identified were family recalibrating; strengthening the family system; and current needs and future concerns of grandparents. The views of families indicated the overwhelming need to acknowledge the grandparental role in supporting families that strengthen the family system by supporting the needs of a child with autism. Findings revealed that grandfathers have a calming role in these families where children have significant behavioural difficulties.
Literatuur
go back to reference Brown, K., Churchill, V., Laghaie, E., Ali, F., Fareed, S., & Immergluck, L. (2017). Grandparents raising grandchild with disabilities: Assessing health status, home environment and impact of a family support case management model. International Public Health Journal, 9(2), 181–188. Brown, K., Churchill, V., Laghaie, E., Ali, F., Fareed, S., & Immergluck, L. (2017). Grandparents raising grandchild with disabilities: Assessing health status, home environment and impact of a family support case management model. International Public Health Journal, 9(2), 181–188.
go back to reference Galvin, K. M., Dickson, F. C., & Marrow, S. R. (2005). Systems theory: Patterns and (w)holes in family communication. In D. Braithwaite & L. A. Baxter (Eds.), Engaging theories in family communication: Multiple perspectives (pp. 309–324). Thousand Oaks: SAGE. Galvin, K. M., Dickson, F. C., & Marrow, S. R. (2005). Systems theory: Patterns and (w)holes in family communication. In D. Braithwaite & L. A. Baxter (Eds.), Engaging theories in family communication: Multiple perspectives (pp. 309–324). Thousand Oaks: SAGE.
go back to reference Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., et al. (2011). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270.CrossRef Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., et al. (2011). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270.CrossRef
go back to reference Glasberg, B. A., & Harris, S. L. (1997). Grandparents and parents assess the development of their child with autism. Child and Family Behaviour Therapy, 19(2), 17–27.CrossRef Glasberg, B. A., & Harris, S. L. (1997). Grandparents and parents assess the development of their child with autism. Child and Family Behaviour Therapy, 19(2), 17–27.CrossRef
go back to reference Habib, A., Prendeville, P., Abdussabur, A., & Kinsella, W. (2017). Pakistani mothers’ experiences of parenting a child with autism spectrum disorder in Ireland. Educational and Child Psychology, 34(2), 67–79. Habib, A., Prendeville, P., Abdussabur, A., & Kinsella, W. (2017). Pakistani mothers’ experiences of parenting a child with autism spectrum disorder in Ireland. Educational and Child Psychology, 34(2), 67–79.
go back to reference Kazak, A. E., Rourke, M. T., & Navsaria, N. (2009). Families and other systems in pediatric psychology. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology. New York: Guildford Press. Kazak, A. E., Rourke, M. T., & Navsaria, N. (2009). Families and other systems in pediatric psychology. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology. New York: Guildford Press.
go back to reference Kim, H. J., Kang, H., & Johnston-Motoyana, M. (2017). The psychological well being of grandparents who provide supplementary grandchild care: A systematic review. Journal of Family Studies, 1, 118–141.CrossRef Kim, H. J., Kang, H., & Johnston-Motoyana, M. (2017). The psychological well being of grandparents who provide supplementary grandchild care: A systematic review. Journal of Family Studies, 1, 118–141.CrossRef
go back to reference King, S. V., Burgess, E. O., Akinyela, M., Counts-Spriggs, M., & Parker, N. (2008). The religious dimensions of the grandparent role in three-generation African American households. Journal of Religion, Spirituality and Aging, 19(1), 75–96.CrossRef King, S. V., Burgess, E. O., Akinyela, M., Counts-Spriggs, M., & Parker, N. (2008). The religious dimensions of the grandparent role in three-generation African American households. Journal of Religion, Spirituality and Aging, 19(1), 75–96.CrossRef
go back to reference Lunn, P., & Fahey, T. (2011). Households and family structures in Ireland-A detailed statistical analysis of Census 2006. Dublin: Economic & Social Research Institute. Lunn, P., & Fahey, T. (2011). Households and family structures in Ireland-A detailed statistical analysis of Census 2006. Dublin: Economic & Social Research Institute.
go back to reference Minuchin, P. (1988). Relationships within a family: A systems perspective on development. In R. A. Hinde & J. Stevenson-Hinde (Eds.), Relationships within families: Mutual influences. Oxford: Clarendon Press. Minuchin, P. (1988). Relationships within a family: A systems perspective on development. In R. A. Hinde & J. Stevenson-Hinde (Eds.), Relationships within families: Mutual influences. Oxford: Clarendon Press.
go back to reference Ooi, K. L., Ong, Y. S., Jacob, A. A., & Khan, T. M. (2016). A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 1–18. Ooi, K. L., Ong, Y. S., Jacob, A. A., & Khan, T. M. (2016). A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 1–18.
go back to reference Pellicano, E., Dinsmore, A., & Charman, T. (2013). A future made together: Shaping Autism research in the UK. London: Institute of Education. Pellicano, E., Dinsmore, A., & Charman, T. (2013). A future made together: Shaping Autism research in the UK. London: Institute of Education.
go back to reference Ponterotto, J. G. (2005). Qualitative research in counselling psychology: A primer on research paradigms and philosophy of science. Journal of Counselling Psychology, 52(2), 126–136.CrossRef Ponterotto, J. G. (2005). Qualitative research in counselling psychology: A primer on research paradigms and philosophy of science. Journal of Counselling Psychology, 52(2), 126–136.CrossRef
go back to reference Ratcliffe, B., Wong, M., Dossetor, D., & Hayes, S. (2015). The association between social skills and mental health in school-age children with autism spectrum disorder, with and without intellectual disability. Journal of Autism and Developmental Disabilities, 45, 2487–2496. https://doi.org/10.1007/s10803-015-2411-z.CrossRef Ratcliffe, B., Wong, M., Dossetor, D., & Hayes, S. (2015). The association between social skills and mental health in school-age children with autism spectrum disorder, with and without intellectual disability. Journal of Autism and Developmental Disabilities, 45, 2487–2496. https://​doi.​org/​10.​1007/​s10803-015-2411-z.CrossRef
go back to reference Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., et al. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality and Qunatity, 52, 1893–1907.CrossRef Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., et al. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality and Qunatity, 52, 1893–1907.CrossRef
go back to reference Schlebusch, L., & Dada, S. (2018). Positive and negative cognitive appraisal of the impact of children with autism spectrum disorder. Research in Autism Spectrum Disorder, 51, 86–93.CrossRef Schlebusch, L., & Dada, S. (2018). Positive and negative cognitive appraisal of the impact of children with autism spectrum disorder. Research in Autism Spectrum Disorder, 51, 86–93.CrossRef
go back to reference Schwandt, T. A. (1998). Constructivist, interpretivist approaches to human inquiry. In N. K. Denzin & Y. S. Lincoln (Eds.), The landscape of qualitative research: Theories and issues. Thousand Oaks: SAGE. Schwandt, T. A. (1998). Constructivist, interpretivist approaches to human inquiry. In N. K. Denzin & Y. S. Lincoln (Eds.), The landscape of qualitative research: Theories and issues. Thousand Oaks: SAGE.
go back to reference Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability. New York: The Guildford Press. Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability. New York: The Guildford Press.
go back to reference Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3(1), 86–97.CrossRef Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3(1), 86–97.CrossRef
go back to reference Timmons, L., Ekas, N. V., & Johnson, P. (2017). Thankful thinking: A thematic analysis of gratitude letters by mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 34, 19–27.CrossRef Timmons, L., Ekas, N. V., & Johnson, P. (2017). Thankful thinking: A thematic analysis of gratitude letters by mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 34, 19–27.CrossRef
go back to reference Turnbull, A. P., Turnbull, H. R., Wehmeyer, M. L., & Shogren, K. A. (2012). Exceptional lives: Special education in today’s schools. New York: Pearson. Turnbull, A. P., Turnbull, H. R., Wehmeyer, M. L., & Shogren, K. A. (2012). Exceptional lives: Special education in today’s schools. New York: Pearson.
Metagegevens
Titel
The Role of Grandparents in Supporting Families of Children with Autism Spectrum Disorders: A Family Systems Approach
Auteurs
P. Prendeville
W. Kinsella
Publicatiedatum
18-09-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3753-0

Andere artikelen Uitgave 2/2019

Journal of Autism and Developmental Disorders 2/2019 Naar de uitgave