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Journal of Autism and Developmental Disorders

Gepubliceerd in:

20-04-2022 | Original Paper

Longitudinal impact of self-stigma content and process on parental warmth and hostility among parents of children with autism spectrum disorder

Auteurs: Kevin Ka Shing Chan, Charles Chiu Hung Yip, Donald Chi Kin Leung

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2023

Abstract

This study examined whether self-stigma content and process would prospectively influence parental warmth and hostility through increasing parenting stress among parents of children with autism spectrum disorder (ASD). On three occasions across two years, 441 Hong Kong parents of children with ASD provided questionnaire data. Path analyses showed that self-stigma content and process were associated with greater parenting stress, which was, in turn, associated with reduced parental warmth and increased parental hostility. Our findings reveal the longitudinal influences of self-stigma on parenting practices and demonstrate how these influences can be explained by parenting stress. Our findings also suggest the importance of supporting parents of children with ASD to mitigate self-stigma and associated parenting stress in improving their parenting practices.

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Abidin, R. R. (1995). Parenting stress index — Manual (3rd ed.). Odessa, FL: Psychological Assessment Resources

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric AssociationCrossRef

Aubé, B., Follenfant, A., Goudeau, S., & Derguy, C. (2021). Public stigma of autism spectrum disorder at school: Implicit attitudes matter. Journal of Autism and Developmental Disorders, 51(5), 1584–1597PubMedCrossRef

Broady, T. R., Stoyles, G. J., & Morse, C. (2017). Understanding carers’ lived experience of stigma: The voice of families with a child on the autism spectrum. Health and Social Care in the Community, 25(1), 224–233PubMedCrossRef

Chan, K. K. S., & Fung, W. T. W. (2019). The impact of experienced discrimination and self-stigma on sleep and health-related quality of life among individuals with mental disorders in Hong Kong. Quality of Life Research, 28(8), 2171–2182PubMedCrossRef

Chan, K. K. S., & Lam, C. B. (2016). Parental maltreatment of children with autism spectrum disorder: A developmental-ecological analysis. Research in Autism Spectrum Disorders, 32, 106–114CrossRef

Chan, K. K. S., & Lam, C. B. (2017). Trait mindfulness attenuates the adverse psychological impact of stigma on parents of children with autism spectrum disorder. Mindfulness, 8(4), 984–994CrossRef

Chan, K. K. S., & Lam, C. B. (2018a). Self-stigma among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 48, 44–52CrossRef

Chan, K. K. S., Lam, C. B., Law, N. C. W., & Cheung, R. Y. M. (2018a). From child autistic symptoms to parental affective symptoms: A family process model. Research in Developmental Disabilities, 75, 22–31PubMedCrossRef

Chan, K. K. S., & Lam, C. B. (2018b). The impact of familial expressed emotion on clinical and personal recovery among patients with psychiatric disorders: The mediating roles of self-stigma content and process. American Journal of Orthopsychiatry, 88(6), 626–635PubMedCrossRef

Chan, K. K. S., Lee, C. W. L., & Mak, W. W. S. (2018b). Mindfulness model of stigma resistance among individuals with psychiatric disorders. Mindfulness, 9(5), 1433–1442CrossRef

Chan, K. K. S., & Leung, D. C. K. (2020). The impact of child autistic symptoms on parental marital relationship: Parenting and coparenting processes as mediating mechanisms. Autism Research, 13(9), 1516–1526PubMedCrossRef

Chan, K. K. S., Yung, C. S. W., & Nie, G. M. (2020). Self-compassion buffers the negative psychological impact of stigma stress on sexual minorities. Mindfulness, 11(10), 2338–2348CrossRef

Chan, K. K. S., & Leung, D. C. K. (2021a). Linking child autism to parental depression and anxiety: The mediating roles of enacted and felt stigma. Journal of Autism and Developmental Disorders, 51(2), 527–537PubMedCrossRef

Chan, K. K. S., & Leung, D. C. K. (2021b). The impact of mindfulness on self-stigma and affective symptoms among sexual minorities. Journal of Affective Disorders, 286, 213–219PubMedCrossRef

Chan, K. K. S., & Mak, W. W. S. (2017). The content and process of self-stigma in people with mental illness. American Journal of Orthopsychiatry, 87(1), 34–43PubMedCrossRef

Cheung, R. Y. M., Leung, S. S. W., & Mak, W. W. S. (2019). Role of mindful parenting, affiliate stigma, and parents’ well-being in the behavioral adjustment of children with autism spectrum disorder: Testing parenting stress as a mediator. Mindfulness, 10(11), 2352–2362CrossRef

Chio, F. H. N., Mak, W. W. S., Chan, R. C. H., & Tong, A. C. Y. (2018). Unraveling the insight paradox: One-year longitudinal study on the relationships between insight, self-stigma, and life satisfaction among people with schizophrenia spectrum disorders. Schizophrenia Research, 197, 124–130PubMedCrossRef

Chu, S. Y., Park, H., Lee, J., Shaharuddin, K. K. B., & Gan, C. H. (2020). Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism. Child: Care, Health and Development, 46(4), 485–494PubMedCrossRef

Čolić, M. (2021). Clarification of stigma concepts in research with families of individuals with neurodevelopmental disabilities. International Journal of Developmental Disabilities. Advance online publication

Čolić, M., Dababnah, S., & Milačić-Vidojević, I. (2021). A model of internalized stigma in parents of individuals with disabilities. International Journal of Developmental Disabilities. Advance online publication

Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical Psychology Review, 51, 1–14PubMedCrossRef

Deguchi, N. K., Asakura, T., & Omiya, T. (2021). Self-stigma of families of persons with autism spectrum disorder: A scoping review. Review Journal of Autism and Developmental Disorders, 8, 373–388CrossRef

Enders, C. K. (2010). Applied missing data analysis. New York, NY: Guilford Press

Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health and Illness, 31(7), 1011–1027PubMedCrossRef

Gray, D. E. (1993). Perceptions of stigma: The parents of autistic children. Sociology of Health and Illness, 15(1), 102–120CrossRef

Hall-Lande, J., Hewitt, A., Mishra, S., Piescher, K., & LaLiberte, T. (2015). Involvement of children with autism spectrum disorder (ASD) in the child protection system. Focus on Autism and Other Developmental Disabilities, 30(4), 237–248CrossRef

Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6(1), 1–55CrossRef

Hu, X., Han, Z. R., Bai, L., & Gao, M. M. (2019). The mediating role of parenting stress in the relations between parental emotion regulation and parenting behaviors in Chinese families of children with autism spectrum disorders: A dyadic analysis. Journal of Autism and Developmental Disorders, 49(10), 3983–3998PubMedPubMedCentralCrossRef

Hutchison, L., Feder, M., Abar, B., & Winsler, A. (2016). Relations between parenting stress, parenting style, and child executive functioning for children with ADHD or autism. Journal of Child and Family Studies, 25(12), 3644–3656CrossRef

Kabiyea, F., & Manor-Binyamini, I. (2019). The relationship between stress and stigma, somatization and parental self-efficacy among fathers of adolescents with developmental disabilities in the Bedouin community in Israel. Research in Developmental Disabilities, 90, 31–40PubMedCrossRef

Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229–241CrossRef

Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46(3), 942–953PubMedCrossRef

Lam, C. B., Chung, K. K. H., & Li, X. (2018). Parental warmth and hostility and child executive function problems: A longitudinal study of Chinese families. Frontiers in Psychology, 9, 1063PubMedPubMedCentralCrossRef

Li, X., Lam, C. B., Chung, K. K. H., & Leung, C. (2019). Linking parents’ self-stigma to the adjustment of children with disabilities. American Journal of Orthopsychiatry, 89(2), 212–221PubMedCrossRef

Liao, X., Lei, X., & Li, Y. (2019). Stigma among parents of children with autism: A literature review. Asian Journal of Psychiatry, 45, 88–94PubMedCrossRef

Ling, C. Y. M., Mak, W. W. S., & Cheng, J. N. S. (2010). Attribution model of stigma towards children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 23(3), 237–249CrossRef

Lovell, B., & Wetherell, M. A. (2019). Affiliate stigma, perceived social support and perceived stress in caregivers of children with autism spectrum disorder: A multiple mediation study. Archives of Psychiatric Nursing, 33(5), 31–35PubMedCrossRef

Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545CrossRef

Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine, 70(12), 2045–2051PubMedCrossRef

Papadopoulos, C., Lodder, A., Constantinou, G., & Randhawa, G. (2019). Systematic review of the relationship between autism stigma and informal caregiver mental health. Journal of Autism and Developmental Disorders, 49(4), 1665–1685PubMedCrossRef

Ren, Y., Hu, X., Han, Z. R., Yang, X., & Li, M. (2020). Mindful parenting and parenting practices in Chinese families of children with autism spectrum disorder. Journal of Child and Family Studies, 29(2), 559–571CrossRef

Robinson, C. C., Mandleco, B., Olsen, S. F., & Hart, C. H. (2001). The Parenting Styles and Dimensions Questionnaire (PSDQ). In B. F. Perlmutter, J. Touliatos, & G. W. Holdens (Eds.), Handbook of family measurement techniques: Vol. 3. Instruments and index (pp. 319–321). Thousand Oaks, CA: Sage

Rohner, R. P., Khaleque, A., & Cournoyer, D. E. (2005). Parental acceptance-rejection: Theory, methods, cross‐cultural evidence, and implications. Ethos, 33(3), 299–334CrossRef

Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents’ experiences of affiliate stigma when caring for a child with autism spectrum disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183PubMedCrossRef

Shrout, P. E., & Bolger, N. (2002). Mediation in experimental and nonexperimental studies: New procedures and recommendations. Psychological Methods, 7(4), 422–445PubMedCrossRef

Su, H., Cuskelly, M., Gilmore, L., & Sullivan, K. (2017). Authoritative parenting of Chinese mothers of children with and without intellectual disability. Journal of Child and Family Studies, 26(4), 1173–1183CrossRef

Torbet, S., Proeve, M., & Roberts, R. M. (2019). Self-compassion: A protective factor for parents of children with autism spectrum disorder. Mindfulness, 10(12), 2492–2506CrossRef

Weitlauf, A. S., Broderick, N., Stainbrook, J. A., Taylor, J. L., Herrington, C. G., Nicholson, A. G. … Warren, Z. E. (2020). Mindfulness-based stress reduction for parents implementing early intervention for autism: An RCT. Pediatrics, 145(Supplement 1), S81–S92PubMedCrossRef

Wong, C. C. Y., Mak, W. W. S., & Liao, K. Y. H. (2016). Self-compassion: A potential buffer against affiliate stigma experienced by parents of children with autism spectrum disorders. Mindfulness, 7(6), 1385–1395CrossRef

Yang, X., & Mak, W. W. S. (2017). The differential moderating roles of self-compassion and mindfulness in self-stigma and well-being among people living with mental illness or HIV. Mindfulness, 8(3), 595–602CrossRef

Yeh, C. H., Chen, M. L., Li, W., & Chuang, H. L. (2001). The Chinese version of the parenting stress index: A psychometric study. Acta Paediatrica, 90(12), 1470–1477PubMedCrossRef

Titel: Longitudinal impact of self-stigma content and process on parental warmth and hostility among parents of children with autism spectrum disorder
Auteurs: Kevin Ka Shing Chan
Charles Chiu Hung Yip
Donald Chi Kin Leung
Publicatiedatum: 20-04-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 7/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05529-8

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