Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Mindfulness
Gepubliceerd in: Mindfulness 4/2017

07-02-2017 | ORIGINAL PAPER

Trait Mindfulness Attenuates the Adverse Psychological Impact of Stigma on Parents of Children with Autism Spectrum Disorder

Auteurs: Kevin Ka Shing Chan, Chun Bun Lam

Gepubliceerd in: Mindfulness | Uitgave 4/2017

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Stigma attached to autism spectrum disorder (ASD) is prevalent, but few studies have examined its psychological impact on parents of children with ASD and the potential protective factors in this family context. The present study aimed to test the associations of public stigma and courtesy stigma with depression, anxiety, and caregiving burden among parents of children with ASD and to explore whether trait mindfulness would moderate these associations. Cross-sectional questionnaire data were collected from 424 parents of children with ASD residing in Hong Kong, China. Hierarchical regressions revealed significant interactions between public stigma and trait mindfulness and between courtesy stigma and trait mindfulness in predicting depression, anxiety, and caregiving burden. Our findings contributed to the theoretical literature by highlighting the adverse impact of both public stigma and courtesy stigma on the mental health and caregiving experience of parents of children with ASD, as well as the potential protective effects of trait mindfulness in such processes. Our findings also had important practical implications for the design of effective interventions for this stigmatized group of families.
vorige artikel Exploring Mindful Eating and Weight Status Among Underserved Youth and Their Parents Living in Public Housing
volgende artikel Improving the Precision of the Five Facet Mindfulness Questionnaire Using a Rasch Approach
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Newbury Park: Sage.
Arch, J. J., & Craske, M. G. (2006). Mechanisms of mindfulness: Emotion regulation following a focused breathing induction. Behaviour Research and Therapy, 44, 1849–1858.
Baer, R. A., Smith, G. T., Lykins, E., Button, D., Krietemeyer, J., Sauer, S., et al. (2008). Construct validity of the five facet mindfulness questionnaire in meditating and nonmeditating samples. Assessment, 15, 329–342.CrossRefPubMed
Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. The Gerontologist, 41, 652–657.
Beer, M., Ward, L., & Moar, K. (2013). The relationship between mindful parenting and distress in parents of children with an autism spectrum disorder. Mindfulness, 4, 102–112.CrossRef
Bekhet, A. K., Johnson, N. L., & Zauszniewski, J. A. (2012). Effects of resilience of caregivers of persons with autism spectrum disorder: The role of positive cognitions. Journal of the American Psychiatric Nurses Association, 18, 337–344.
Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48, 1476–1487.CrossRefPubMed
Bergomi, C., Tschacher, W., & Kupper, Z. (2013). The assessment of mindfulness with self-report measures: Existing scales and open issues. Mindfulness, 4, 191–202.
Bishop, S. R., Lau, M., Shapiro, S., Carlson, L., Anderson, N. D., Carmody, J., et al. (2004). Mindfulness: A proposed operational definition. Clinical Psychology: Science and Practice, 11, 230–241.
Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28, 1–18.CrossRef
Brown, K. W., & Ryan, R. M. (2003). The benefits of being present: Mindfulness and its role in psychological well-being. Journal of Personality and Social Psychology, 84, 822–848.
Brown-Iannuzzi, J. L., Adair, K. C., Payne, B. K., Richman, L. S., & Fredrickson, B. L. (2014). Discrimination hurts, but mindfulness may help: Trait mindfulness moderates the relationship between perceived discrimination and depressive symptoms. Personality and Individual Differences, 56, 201–205.
Bryant, F. B., & Smith, J. L. (2015). Appreciating life in the midst of adversity: Savoring in relation to mindfulness, reappraisal, and meaning. Psychological Inquiry, 26, 315–321.
Butler, R. C., & Gillis, J. M. (2011). The impact of labels and behaviors on the stigmatization of adults with Asperger’s disorder. Journal of Autism and Developmental Disorders, 41, 741–749.CrossRefPubMed
Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59, 948–957.CrossRefPubMed
Carmody, J., & Baer, R. A. (2008). Relationships between mindfulness practice and levels of mindfulness, medical and psychological symptoms and well-being in a mindfulness-based stress reduction program. Journal of Behavioral Medicine, 31, 23–33.CrossRefPubMed
Chan, K. K. S., & Lam, C. B. (2016). Parental maltreatment of children with autism spectrum disorder: A developmental-ecological analysis. Research in Autism Spectrum Disorders, 32, 106–114.
Chan, K. K. S., & Lam, C. B. (2017). Self-stigma among parents of children with autism spectrum disorder, in press.
Coffey, K. A., Hartman, M., & Fredrickson, B. L. (2010). Deconstructing mindfulness and constructing mental health: Understanding mindfulness and its mechanisms of action. Mindfulness, 1, 235–253.
Conner, C. M., & White, S. W. (2014). Stress in mothers of children with autism: Trait mindfulness as a protective factor. Research in Autism Spectrum Disorders, 8, 617–624.
Corrigan, P. W., & Watson, A. C. (2002). The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice, 9, 35–53.
Corrigan, P. W., Rafacz, J., & Rüsch, N. (2011). Examining a progressive model of self-stigma and its impact on people with serious mental illness. Psychiatry Research, 189, 339–343.CrossRefPubMedPubMedCentral
de Bruin, E. I., Blom, R., Smit, F. M., van Steensel, F. J., & Bögels, S. M. (2014). MYmind: Mindfulness training for youngsters with autism spectrum disorders and their parents. Autism, 19, 906–914.
Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health and Illness, 31, 1011–1027.
Feldman, G., Hayes, A., Kumar, S., Greeson, J., & Laurenceau, J. P. (2007). Mindfulness and emotion regulation: The development and initial validation of the Cognitive and Affective Mindfulness Scale-Revised (CAMS-R). Journal of Psychopathology and Behavioral Assessment, 29, 177–190.
Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: Feasibility and preliminary outcome data. Mindfulness, 4, 89–101.
Frazier, P. A., Tix, A. P., & Barron, K. E. (2004). Testing moderator and mediator effects in counseling psychology research. Journal of Counseling Psychology, 51, 115–134.CrossRef
Garland, E., Gaylord, S., & Park, J. (2009). The role of mindfulness in positive reappraisal. Explore: The Journal of Science and Healing, 5, 37–44.CrossRef
Gatzoyia, D., Kotsis, K., Koullourou, I., Goulia, P., Carvalho, A. F., Soulis, S., & Hyphantis, T. (2014). The association of illness perceptions with depressive symptoms and general psychological distress in parents of an offspring with autism spectrum disorder. Disability and Health Journal, 7, 173–180.CrossRefPubMed
Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York, NY: Simon and Schuster.
Graham, J. R., West, L. M., & Roemer, L. (2013). The experience of racism and anxiety symptoms in an African-American sample: Moderating effects of trait mindfulness. Mindfulness, 4, 332–341.
Gray, D. E. (1993). Perceptions of stigma: The parents of autistic children. Sociology of Health and Illness, 15, 102–120.
Gray, D. E. (1994). Coping with autism: Stresses and strategies. Sociology of Health and Illness, 16, 275–300.
Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health and Illness, 24, 734–749.
Green, S. E. (2001). ‘Oh, those therapists will become your best friends’: Maternal satisfaction with clinics providing physical, occupational and speech therapy services to children with disabilities. Sociology of Health and Illness, 23, 798–828.
Green, S. E. (2003). “What do you mean ‘what’s wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science and Medicine, 57, 1361–1374.
Green, S. E. (2007). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64, 150–163.
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.
Helps, S., Newsom-Davis, I. C., & Callias, M. (1999). Autism: The teacher’s view. Autism, 3, 287–298.
Kabat-Zinn, J. (1994). Wherever you go, there you are: Mindfulness meditation in everyday life. New York, NY: Hyperion.
Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice, 10, 144–156.
Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46, 942–953.CrossRefPubMed
Kroenke, K., Spitzer, R., & Williams, J. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.CrossRefPubMed
Lillis, J., Hayes, S. C., Bunting, K., & Masuda, A. (2009). Teaching acceptance and mindfulness to improve the lives of the obese: A preliminary test of a theoretical model. Annals of Behavioral Medicine, 37, 58–69.
Ling, C. Y., Mak, W. W., & Cheng, J. N. (2010). Attribution model of stigma towards children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 23, 237–249.CrossRef
Luoma, J. B., Kohlenberg, B. S., Hayes, S. C., Bunting, K., & Rye, A. K. (2008). Reducing self-stigma in substance abuse through acceptance and commitment therapy: Model, manual development, and pilot outcomes. Addiction Research and Theory, 16, 149–165.
Lyons, A. (2016). Mindfulness attenuates the impact of discrimination on the mental health of middle-aged and older gay men. Psychology of Sexual Orientation and Gender Diversity, 3, 227–235.CrossRef
Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21, 532–545.CrossRef
Mak, W. W. S., & Cheung, R. Y. M. (2010). Self-stigma among concealable minorities in Hong Kong: Conceptualization and unified measurement. American Journal of Orthopsychiatry, 80, 267–281.
Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine, 70, 2045–2051.CrossRefPubMed
Mak, W. W. S., Poon, C. Y. M., Pun, L. Y. K., & Cheung, S. F. (2007). Meta-analysis of stigma and mental health. Social Science and Medicine, 65, 245–261.CrossRefPubMed
Mittal, D., Sullivan, G., Chekuri, L., Allee, E., & Corrigan, P. W. (2012). Empirical studies of self-stigma reduction strategies: A critical review of the literature. Psychiatric Services, 63, 974–981.
Neely-Barnes, S. L., Hall, H. R., Roberts, R. J., & Graff, J. C. (2011). Parenting a child with an autism spectrum disorder: Public perceptions and parental conceptualizations. Journal of Family Social Work, 14, 208–225.
Nissenbaum, M. S., Tollefson, N., & Reese, R. M. (2002). The interpretative conference: Sharing a diagnosis of autism with families. Focus on Autism and Other Developmental Disabilities, 17, 30–43.
Rapgay, L., & Bystrisky, A. (2009). Classical mindfulness: An introduction to its theory and practice for clinical application. Annals of the New York Academy of Sciences, 1172, 148–162.
Ruiz-Robledillo, N., Sariñana-González, P., Pérez-Blasco, J., González-Bono, E., & Moya-Albiol, L. (2015). A mindfulness-based program improves health in caregivers of people with autism spectrum disorder: A pilot study. Mindfulness, 6, 767–777.
Rutter, M., Bailey, A., & Lord, C. (2003). Social Communication Questionnaire (SCQ). Los Angeles: Western Psychological Services.
Singh, N. N., Lancioni, G. E., Winton, A. S., Karazsia, B. T., Myers, R. E., Latham, L. L., & Singh, J. (2014). Mindfulness-based positive behavior support (MBPBS) for mothers of adolescents with autism spectrum disorder: Effects on adolescents’ behavior and parental stress. Mindfulness, 5, 646–657.
Spitzer, R. L., Kroenke, K., Williams, J. B., & Löwe, B. (2006). A brief measure for assessing generalized anxiety disorder: The GAD-7. Archives of Internal Medicine, 166, 1092–1097.
Staniland, J. J., & Byrne, M. K. (2013). The effects of a multicomponent higher-functioning autism anti-stigma program on adolescent boys. Journal of Autism and Developmental Disorders, 43, 2816–2829.CrossRefPubMed
Struening, E. L., Perlick, D. A., Link, B. G., Hellman, F., Herman, D., & Sirey, J. A. (2001). Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families. Psychiatric Services, 52, 1633–1638.
Teasdale, J. D., Moore, R. G., Hayhurst, H., Pope, M., Williams, S., & Segal, Z. V. (2002). Metacognitive awareness and prevention of relapse in depression: Empirical evidence. Journal of Consulting and Clinical Psychology, 70, 275–287.
Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34, 4103–4114.
Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59, 272–283.CrossRefPubMed
Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083.
Yadavaia, J. E., & Hayes, S. C. (2012). Acceptance and commitment therapy for self-stigma around sexual orientation: A multiple baseline evaluation. Cognitive and Behavioral Practice, 19, 545–559.
Metagegevens
Titel
Trait Mindfulness Attenuates the Adverse Psychological Impact of Stigma on Parents of Children with Autism Spectrum Disorder
Auteurs
Kevin Ka Shing Chan
Chun Bun Lam
Publicatiedatum
07-02-2017
Uitgeverij
Springer US
Gepubliceerd in
Mindfulness / Uitgave 4/2017
Print ISSN: 1868-8527
Elektronisch ISSN: 1868-8535
DOI
https://doi.org/10.1007/s12671-016-0675-9

Andere artikelen Uitgave 4/2017

Mindfulness 4/2017 Naar de uitgave

ORIGINAL PAPER

A Brief Mindfulness Practice Increases Self-Reported Calmness in Young Children: a Pilot Study

ORIGINAL PAPER

Mechanisms of Action in Concurrent Parent-Child Mindfulness Training: a Qualitative Exploration

ORIGINAL PAPER

A Longitudinal Study on the Association Between Facets of Mindfulness and Disinhibited Eating

ORIGINAL PAPER

Exploratory Structural Equation Modeling Analysis of the Self-Compassion Scale

ORIGINAL PAPER

Examining the Acute Effects of Hatha Yoga and Mindfulness Meditation on Executive Function and Mood

ORIGINAL PAPER

The Relationship Between Mindfulness and Negative Emotion Differentiation: a Test of Multiple Mediation Pathways