Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2019

13-02-2019 | Original Paper

Healthcare Providers’ Experiences with Autism: A Scoping Review

Auteurs: Rae Morris, Andrea Greenblatt, Michael Saini

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 studies including (1) complexity beyond usual role, (2) limited knowledge and resources, (3) training/prior experience, (4) communication and collaboration, (5) need for information and training, and (6) need for care coordination and systemic changes. The results of this review have implications for future research and practice and should be considered when reflecting on opportunities to enhance research and service provision with individuals with autism.
Literatuur
go back to reference Anderson, S., Allen, P., Peckham, S., & Goodwin, N. (2008). Asking the right questions: Scoping studies in the commissioning of research on the organization and delivery of health services. Health Research Policy and Systems, 6, 7–19.PubMedPubMedCentralCrossRef Anderson, S., Allen, P., Peckham, S., & Goodwin, N. (2008). Asking the right questions: Scoping studies in the commissioning of research on the organization and delivery of health services. Health Research Policy and Systems, 6, 7–19.PubMedPubMedCentralCrossRef
go back to reference Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.CrossRef Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.CrossRef
go back to reference Atun-Einy, O., & Ben-Sasson, A. (2018). Pediatric allied healthcare professionals’ knowledge and self-efficacy regarding ASD. Research in Autism Spectrum Disorders, 47, 1–13.CrossRef Atun-Einy, O., & Ben-Sasson, A. (2018). Pediatric allied healthcare professionals’ knowledge and self-efficacy regarding ASD. Research in Autism Spectrum Disorders, 47, 1–13.CrossRef
go back to reference Baldwin, S., & Costley, D. (2015). The experiences and needs of female adults with high-functioning autism spectrum disorder. Autism, 20(4), 483–495.PubMedCrossRef Baldwin, S., & Costley, D. (2015). The experiences and needs of female adults with high-functioning autism spectrum disorder. Autism, 20(4), 483–495.PubMedCrossRef
go back to reference Barber, C. (2017). Meeting the healthcare needs of adults on the autism spectrum. British Journal of Nursing, 26(7), 420–425.PubMedCrossRef Barber, C. (2017). Meeting the healthcare needs of adults on the autism spectrum. British Journal of Nursing, 26(7), 420–425.PubMedCrossRef
go back to reference Bradley, E., Summers, A., Wood, H. L., & Bryson, S. E. (2004). Comparing rates of psychiatric and behaviour disorders in adolescents and young adults with severe intellectual disability with and without autism. Journal of Autism and Developmental Disorders, 34(2), 151–161.PubMedCrossRef Bradley, E., Summers, A., Wood, H. L., & Bryson, S. E. (2004). Comparing rates of psychiatric and behaviour disorders in adolescents and young adults with severe intellectual disability with and without autism. Journal of Autism and Developmental Disorders, 34(2), 151–161.PubMedCrossRef
go back to reference Broder-Fingert, S., Ferrone, C. F., Giauque, A., & Connors, S. L. (2014). Residents’ knowledge and comfort with caring for children with autism spectrum disorder. Clinical Pediatrics, 53(14), 1390–1392.PubMedCrossRef Broder-Fingert, S., Ferrone, C. F., Giauque, A., & Connors, S. L. (2014). Residents’ knowledge and comfort with caring for children with autism spectrum disorder. Clinical Pediatrics, 53(14), 1390–1392.PubMedCrossRef
go back to reference Bruder, M. B., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012). Brief report: The medical care of adults with autism spectrum disorders: Identifying the needs. Journal of Autism and Developmental Disorders, 42(11), 2498–2504.PubMedCrossRef Bruder, M. B., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012). Brief report: The medical care of adults with autism spectrum disorders: Identifying the needs. Journal of Autism and Developmental Disorders, 42(11), 2498–2504.PubMedCrossRef
go back to reference Buck, T. R., Viskochil, J., Farley, M., Coon, H., McMahon, W. M., Morgan, J., & Bilder, D. A. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 3063–3071.PubMedPubMedCentralCrossRef Buck, T. R., Viskochil, J., Farley, M., Coon, H., McMahon, W. M., Morgan, J., & Bilder, D. A. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 3063–3071.PubMedPubMedCentralCrossRef
go back to reference Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324.PubMedCrossRef Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324.PubMedCrossRef
go back to reference Carbone, P. S., Murphy, N. A., Norlin, C., Azor, V., Sheng, X., & Young, P. C. (2013). Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(4), 964–972.PubMedCrossRef Carbone, P. S., Murphy, N. A., Norlin, C., Azor, V., Sheng, X., & Young, P. C. (2013). Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(4), 964–972.PubMedCrossRef
go back to reference Cerier, E., Beal, E. W., Chakedis, J., Chen, Q., Paredes, A., Sun, S., … Pawlik, T. M. (2018). Patient-provider relationships and health outcomes among hepatopancreatobiliary patients. Journal of Surgical Research, 228(3), 290–298.CrossRef Cerier, E., Beal, E. W., Chakedis, J., Chen, Q., Paredes, A., Sun, S., … Pawlik, T. M. (2018). Patient-provider relationships and health outcomes among hepatopancreatobiliary patients. Journal of Surgical Research, 228(3), 290–298.CrossRef
go back to reference Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091.PubMedCrossRef Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091.PubMedCrossRef
go back to reference Christensen, D. L., Baio, J., Braun, K. V., Bilder, D., Charles, J., Constantino, J. N., … Yeargin-Allsopp, M. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR, 65(3), 1–23.PubMedCrossRefPubMedCentral Christensen, D. L., Baio, J., Braun, K. V., Bilder, D., Charles, J., Constantino, J. N., … Yeargin-Allsopp, M. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR, 65(3), 1–23.PubMedCrossRefPubMedCentral
go back to reference Cummings, J. R., Lynch, F. L., Rust, K. C., Coleman, K. J., Madden, J. M., Owen-Smith, A. A.,… Croen, L. A. (2016). Health services utilization among children with and without autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(3), 910–920.PubMedPubMedCentralCrossRef Cummings, J. R., Lynch, F. L., Rust, K. C., Coleman, K. J., Madden, J. M., Owen-Smith, A. A.,… Croen, L. A. (2016). Health services utilization among children with and without autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(3), 910–920.PubMedPubMedCentralCrossRef
go back to reference Daley, T. C., & Sigman, M. D. (2002). Diagnostic conceptualization of autism among Indian psychiatrists, psychologists, and pediatricians. Journal of Autism and Developmental Disorders, 32(1), 13–23.PubMedCrossRef Daley, T. C., & Sigman, M. D. (2002). Diagnostic conceptualization of autism among Indian psychiatrists, psychologists, and pediatricians. Journal of Autism and Developmental Disorders, 32(1), 13–23.PubMedCrossRef
go back to reference Dern, S., & Sappok, T. (2016). Barriers to healthcare for people on the autism spectrum. Advances in Autism, 2(1), 2–11.CrossRef Dern, S., & Sappok, T. (2016). Barriers to healthcare for people on the autism spectrum. Advances in Autism, 2(1), 2–11.CrossRef
go back to reference Elmensdorp, S. T. (2011). Training physicians on the early behavioral characteristics of autism: The use of a brief, group didactic training module. Doctoral dissertation. Proquest (3456129). Elmensdorp, S. T. (2011). Training physicians on the early behavioral characteristics of autism: The use of a brief, group didactic training module. Doctoral dissertation. Proquest (3456129).
go back to reference Elsabbagh, M., Divan, G., Koh, Y., Kim, Y. S., Kauchali, S., Marcin, C.,… Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.PubMedPubMedCentralCrossRef Elsabbagh, M., Divan, G., Koh, Y., Kim, Y. S., Kauchali, S., Marcin, C.,… Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.PubMedPubMedCentralCrossRef
go back to reference Eseigbe, E. E., Nuhu, F. T., Sheikh, T. L., Eseigbe, P., & Olisah, V. O. (2015). Knowledge of childhood autism and challenges of management among medical doctors in Kaduna State, Northwest Nigeria. Autism Research and Treatment, 2015(892301), 1–6.CrossRef Eseigbe, E. E., Nuhu, F. T., Sheikh, T. L., Eseigbe, P., & Olisah, V. O. (2015). Knowledge of childhood autism and challenges of management among medical doctors in Kaduna State, Northwest Nigeria. Autism Research and Treatment, 2015(892301), 1–6.CrossRef
go back to reference Fenikile, T. S., Ellerbeck, K., Filippi, M. K., & Daley, C. M. (2015). Barriers to autism screening in family medicine practice: A qualitative study. Primary Health Care Research & Development, 16(4), 356–366.CrossRef Fenikile, T. S., Ellerbeck, K., Filippi, M. K., & Daley, C. M. (2015). Barriers to autism screening in family medicine practice: A qualitative study. Primary Health Care Research & Development, 16(4), 356–366.CrossRef
go back to reference Garg, P., Lillystone, D., Dossetor, D., Kefford, C., & Chong, S. (2014). An exploratory survey for understanding perceptions, knowledge, and educational needs of general practitioners regarding autistic disorders in New South Wales (NSW), Australia. Journal of Clinical and Diagnostic Research, 8(7), PC01–PC09.PubMedCentral Garg, P., Lillystone, D., Dossetor, D., Kefford, C., & Chong, S. (2014). An exploratory survey for understanding perceptions, knowledge, and educational needs of general practitioners regarding autistic disorders in New South Wales (NSW), Australia. Journal of Clinical and Diagnostic Research, 8(7), PC01–PC09.PubMedCentral
go back to reference Halpin, J. (2016). What do nurses think they are doing in pre-school autism assessment. British Journal of Nursing, 25(6), 319–323.PubMedCrossRef Halpin, J. (2016). What do nurses think they are doing in pre-school autism assessment. British Journal of Nursing, 25(6), 319–323.PubMedCrossRef
go back to reference Havercamp, S. M., Ratliff-Schaub, K., Macho, P. N., Johnson, C. N., Bush, K. L., & Souders, H. T. (2016). Preparing tomorrow’s doctors to care for patients with autism spectrum disorder. Intellectual and Developmental Disabilities, 54(3), 202–216.PubMedCrossRef Havercamp, S. M., Ratliff-Schaub, K., Macho, P. N., Johnson, C. N., Bush, K. L., & Souders, H. T. (2016). Preparing tomorrow’s doctors to care for patients with autism spectrum disorder. Intellectual and Developmental Disabilities, 54(3), 202–216.PubMedCrossRef
go back to reference Heidgerken, A. D., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330.PubMedCrossRef Heidgerken, A. D., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330.PubMedCrossRef
go back to reference Holmes, L. G., Himle, M. B., Sewell, K. K., Carbone, P. S., Strassberg, D. S., & Murphy, N. A. (2014). Addressing sexuality in youth with autism spectrum disorders: Current pediatric practices and barriers. Journal of Developmental & Behavioral Pediatrics, 35(3), 172–178.CrossRef Holmes, L. G., Himle, M. B., Sewell, K. K., Carbone, P. S., Strassberg, D. S., & Murphy, N. A. (2014). Addressing sexuality in youth with autism spectrum disorders: Current pediatric practices and barriers. Journal of Developmental & Behavioral Pediatrics, 35(3), 172–178.CrossRef
go back to reference Hubner, L. M., Feldman, H. M., & Huffman, L. C. (2016). Parent-reported shared decision making: Autism spectrum disorder and other neurodevelopmental disorders. Journal of Developmental & Behavioral Pediatrics, 37(1), 20–32.CrossRef Hubner, L. M., Feldman, H. M., & Huffman, L. C. (2016). Parent-reported shared decision making: Autism spectrum disorder and other neurodevelopmental disorders. Journal of Developmental & Behavioral Pediatrics, 37(1), 20–32.CrossRef
go back to reference James, L. W., Pizur-Barnekow, K. A., & Schefkind, S. (2014). Online survey examining practitioners’ perceived preparedness in the early identification of autism. The American Journal of Occupational Therapy, 68(1), e13–e20.PubMedPubMedCentralCrossRef James, L. W., Pizur-Barnekow, K. A., & Schefkind, S. (2014). Online survey examining practitioners’ perceived preparedness in the early identification of autism. The American Journal of Occupational Therapy, 68(1), e13–e20.PubMedPubMedCentralCrossRef
go back to reference Joseph-Kent, K. E. (2016). Autism spectrum disorders and the healthcare experiences of aging adults. Doctoral dissertation. Proquest (10306806). Joseph-Kent, K. E. (2016). Autism spectrum disorders and the healthcare experiences of aging adults. Doctoral dissertation. Proquest (10306806).
go back to reference Kalb, L. G., Stuart, E. A., Mandell, D. S., Olfson, M., & Vasa, R. A. (2017). Management of mental health crises among youths with and without ASD: A national survey of child psychiatrists. Psychiatric Services, 68(10), 1039–1045.PubMedCrossRef Kalb, L. G., Stuart, E. A., Mandell, D. S., Olfson, M., & Vasa, R. A. (2017). Management of mental health crises among youths with and without ASD: A national survey of child psychiatrists. Psychiatric Services, 68(10), 1039–1045.PubMedCrossRef
go back to reference Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158.PubMedCrossRef Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158.PubMedCrossRef
go back to reference Kuhlthau, K. A., Warfield, M. E., Hurson, J., Delahaye, J., & Crossman, M. K. (2015). Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions. Autism, 19(3), 262–271.PubMedCrossRef Kuhlthau, K. A., Warfield, M. E., Hurson, J., Delahaye, J., & Crossman, M. K. (2015). Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions. Autism, 19(3), 262–271.PubMedCrossRef
go back to reference Levy, S. E., Frasso, R., Colantonio, S., Reed, H., Stein, G., Barg, F. K., Mandell, D. S., & Fiks, A. G. (2016). Shared decision making and treatment decisions for young children with autism spectrum disorder. Academic Pediatrics, 16(6), 571–578.PubMedCrossRef Levy, S. E., Frasso, R., Colantonio, S., Reed, H., Stein, G., Barg, F. K., Mandell, D. S., & Fiks, A. G. (2016). Shared decision making and treatment decisions for young children with autism spectrum disorder. Academic Pediatrics, 16(6), 571–578.PubMedCrossRef
go back to reference Lewis, L. F. (2017). A mixed methods study of barriers to formal diagnosis of autism spectrum disorder in adults. Journal of Autism and Developmental Disorders, 47(8), 2410–2424.PubMedCrossRef Lewis, L. F. (2017). A mixed methods study of barriers to formal diagnosis of autism spectrum disorder in adults. Journal of Autism and Developmental Disorders, 47(8), 2410–2424.PubMedCrossRef
go back to reference Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M.,… Risi, S. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313.PubMedCrossRef Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M.,… Risi, S. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313.PubMedCrossRef
go back to reference Lucarelli, J., Welchons, L., Sideridis, G., Sullivan, N. R., Chan, E., & Weissman, L. (2018). Development and evaluation of an educational initiative to improve hospital personnel preparedness to care for children with autism spectrum disorder. Journal of Developmental & Behavioral Pediatrics, 39(5), 358–364.CrossRef Lucarelli, J., Welchons, L., Sideridis, G., Sullivan, N. R., Chan, E., & Weissman, L. (2018). Development and evaluation of an educational initiative to improve hospital personnel preparedness to care for children with autism spectrum disorder. Journal of Developmental & Behavioral Pediatrics, 39(5), 358–364.CrossRef
go back to reference Lum, M., Garnett, M., & O’Connor, E. (2014). Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder. Research in Autism Spectrum Disorders, 8(12), 1713–1721.CrossRef Lum, M., Garnett, M., & O’Connor, E. (2014). Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder. Research in Autism Spectrum Disorders, 8(12), 1713–1721.CrossRef
go back to reference Lynch, F., Cummings, J., Rust, K., Owen-Smith, A., Coleman, K., Madden, J., Yau, V., … Croen, L. (2014). PS1-39: Health care utilization for children with and without autism spectrum disorders in five large health systems. Clinical Medicine and Research, 12(1–2), 83.CrossRefPubMedCentral Lynch, F., Cummings, J., Rust, K., Owen-Smith, A., Coleman, K., Madden, J., Yau, V., … Croen, L. (2014). PS1-39: Health care utilization for children with and without autism spectrum disorders in five large health systems. Clinical Medicine and Research, 12(1–2), 83.CrossRefPubMedCentral
go back to reference Mattingly, T. J., Tom, S. E., Stuart, B., & Onukwugha, E. (2017). Examining patient-provider relationship (PPR) quality and patient activation in the Medicare population. Aging Clinical and Experimental Research, 29(3), 543–548.PubMedCrossRef Mattingly, T. J., Tom, S. E., Stuart, B., & Onukwugha, E. (2017). Examining patient-provider relationship (PPR) quality and patient activation in the Medicare population. Aging Clinical and Experimental Research, 29(3), 543–548.PubMedCrossRef
go back to reference Mazurek, M. O., Brown, R., Curran, A., & Sohl, K. (2016). ECHO Autism: A new model for training primary care providers in best-practice care for children with autism. Clinical Pediatrics, 56(3), 247–256.PubMedCrossRef Mazurek, M. O., Brown, R., Curran, A., & Sohl, K. (2016). ECHO Autism: A new model for training primary care providers in best-practice care for children with autism. Clinical Pediatrics, 56(3), 247–256.PubMedCrossRef
go back to reference McGonigle, J. J., Migyanka, J. M., Glor-Scheib, S. J., Cramer, R., Fratangeli, J. J., Hegde, G. G.,… Venkat, A. (2014). Development and evaluation of educational materials for pre-hospital and emergency department personnel on the care of patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1252–1259.PubMedCrossRef McGonigle, J. J., Migyanka, J. M., Glor-Scheib, S. J., Cramer, R., Fratangeli, J. J., Hegde, G. G.,… Venkat, A. (2014). Development and evaluation of educational materials for pre-hospital and emergency department personnel on the care of patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1252–1259.PubMedCrossRef
go back to reference Morris, R., Muskat, B., & Greenblatt, A. (2018). Working with children with autism and their families. Pediatric social worker perceptions of family needs and the role of social work. Social Work in Health Care, 57(7), 483–501.PubMedCrossRef Morris, R., Muskat, B., & Greenblatt, A. (2018). Working with children with autism and their families. Pediatric social worker perceptions of family needs and the role of social work. Social Work in Health Care, 57(7), 483–501.PubMedCrossRef
go back to reference Moseley, D. S., Tonge, B. J., Brereton, A. V., & Einfeld, S. L. (2011). Psychiatric comorbidity in adolescents and young adults with autism. Journal of Mental Health Research in Intellectual Disabilities, 4(4), 229–243.CrossRef Moseley, D. S., Tonge, B. J., Brereton, A. V., & Einfeld, S. L. (2011). Psychiatric comorbidity in adolescents and young adults with autism. Journal of Mental Health Research in Intellectual Disabilities, 4(4), 229–243.CrossRef
go back to reference Muskat, B., Brownstone, D., & Greenblatt, A. (2017). The experiences of pediatric social workers providing end-of-life care. Social Work in Health Care., 56(6), 505–523.PubMedCrossRef Muskat, B., Brownstone, D., & Greenblatt, A. (2017). The experiences of pediatric social workers providing end-of-life care. Social Work in Health Care., 56(6), 505–523.PubMedCrossRef
go back to reference Muskat, B., Burnham Riosa, P., Nicholas, D. B., Roberts, W., Stoddart, K., & Zwaiganbaum, L. (2015). Autism comes to the hospital: Experiences of hospital care from the perspectives of children and adolescents with Autism Spectrum Disorders, their parents and health care providers. Autism, 19(4), 482–490.PubMedCrossRef Muskat, B., Burnham Riosa, P., Nicholas, D. B., Roberts, W., Stoddart, K., & Zwaiganbaum, L. (2015). Autism comes to the hospital: Experiences of hospital care from the perspectives of children and adolescents with Autism Spectrum Disorders, their parents and health care providers. Autism, 19(4), 482–490.PubMedCrossRef
go back to reference Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769.PubMedCrossRef Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769.PubMedCrossRef
go back to reference Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E. V., Kapp, S. K., Weiner, M., & Boisclair, W. C. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824–831.PubMedPubMedCentralCrossRef Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E. V., Kapp, S. K., Weiner, M., & Boisclair, W. C. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824–831.PubMedPubMedCentralCrossRef
go back to reference Peacock, G., Amendah, D., Ouyang, L., & Grosse, S. D. (2012). Autism spectrum disorders and health care expenditures: The effects of co-occurring conditions. Journal of Developmental and Behavioral Pediatrics, 33(1), 2–8.PubMedCrossRef Peacock, G., Amendah, D., Ouyang, L., & Grosse, S. D. (2012). Autism spectrum disorders and health care expenditures: The effects of co-occurring conditions. Journal of Developmental and Behavioral Pediatrics, 33(1), 2–8.PubMedCrossRef
go back to reference Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770.PubMedPubMedCentralCrossRef Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770.PubMedPubMedCentralCrossRef
go back to reference Raymaker, D. M., McDonald, K. E., Ashkenazy, E., Gerrity, M., Baggs, A. M., Kripke, C.,… Nicolaidis, C. (2017). Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities. Autism, 21(8), 972–984.PubMedCrossRef Raymaker, D. M., McDonald, K. E., Ashkenazy, E., Gerrity, M., Baggs, A. M., Kripke, C.,… Nicolaidis, C. (2017). Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities. Autism, 21(8), 972–984.PubMedCrossRef
go back to reference Shawahna, R., Fahed, B., Qadri, D., Sharawi, L., Soroghli, M., & Dweik, M. (2017). Awareness and knowledge of autism spectrum disorders among pharmacists: A cross-sectional study in Palestinian pharmacy practice. Journal of Autism and Developmental Disorders, 47(6), 1618–1627.PubMedCrossRef Shawahna, R., Fahed, B., Qadri, D., Sharawi, L., Soroghli, M., & Dweik, M. (2017). Awareness and knowledge of autism spectrum disorders among pharmacists: A cross-sectional study in Palestinian pharmacy practice. Journal of Autism and Developmental Disorders, 47(6), 1618–1627.PubMedCrossRef
go back to reference Silverman, C. (2011). Understanding autism: Parents, doctors, and the history of a disorder. Princeton: Princeton University Press.CrossRef Silverman, C. (2011). Understanding autism: Parents, doctors, and the history of a disorder. Princeton: Princeton University Press.CrossRef
go back to reference Solomon, O., Heritage, J., Yin, L., Maynard, D. W., & Bauman, M. L. (2016). ‘What brings him here today?’: Medical problem presentation involving children with autism spectrum disorders and typically developing children. Journal of Autism and Developmental Disorders, 46(2), 378–393.PubMedPubMedCentralCrossRef Solomon, O., Heritage, J., Yin, L., Maynard, D. W., & Bauman, M. L. (2016). ‘What brings him here today?’: Medical problem presentation involving children with autism spectrum disorders and typically developing children. Journal of Autism and Developmental Disorders, 46(2), 378–393.PubMedPubMedCentralCrossRef
go back to reference Strunk, J. A., Pickler, R., McCain, N. L., Ameringer, S., & Myers, B. J. (2014). Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience. Families, Systems, & Health, 32(3), 328–337.CrossRef Strunk, J. A., Pickler, R., McCain, N. L., Ameringer, S., & Myers, B. J. (2014). Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience. Families, Systems, & Health, 32(3), 328–337.CrossRef
go back to reference Tint, A., Weiss, J. A., & Lunsky, Y. (2017). Identifying the clinical needs and patterns of health service use of adolescent girls and women with autism spectrum disorder. Autism Research, 10(9), 1558–1566.PubMedCrossRef Tint, A., Weiss, J. A., & Lunsky, Y. (2017). Identifying the clinical needs and patterns of health service use of adolescent girls and women with autism spectrum disorder. Autism Research, 10(9), 1558–1566.PubMedCrossRef
go back to reference Trembath, D., Hawtree, R., Arciuli, J., & Caithness, T. (2016). What do speech-language pathologists think parents expect when treating their children with autism spectrum disorder? International Journal of Speech-Language Pathology, 18(3), 250–258.PubMedCrossRef Trembath, D., Hawtree, R., Arciuli, J., & Caithness, T. (2016). What do speech-language pathologists think parents expect when treating their children with autism spectrum disorder? International Journal of Speech-Language Pathology, 18(3), 250–258.PubMedCrossRef
go back to reference Unigwe, S., Buckley, C., Crane, L., Kenny, L., Remington, A., & Pellicano, E. (2017). GPs confidence in caring for their patients on the autism spectrum: An online self-report study. British Journal of General Practice, 67(659), e445–e452.CrossRef Unigwe, S., Buckley, C., Crane, L., Kenny, L., Remington, A., & Pellicano, E. (2017). GPs confidence in caring for their patients on the autism spectrum: An online self-report study. British Journal of General Practice, 67(659), e445–e452.CrossRef
go back to reference Verhoeff, B. (2013). Autism in flux: A history of the concept from Leo Kanner to DSM-5. History of Psychiatry, 24(4), 442–458.PubMedCrossRef Verhoeff, B. (2013). Autism in flux: A history of the concept from Leo Kanner to DSM-5. History of Psychiatry, 24(4), 442–458.PubMedCrossRef
go back to reference Vogan, V., Lake, J. K., Tint, A., Weiss, J. A., & Lunsky, Y. (2017). Tracking health care service use and the experiences of adults with autism spectrum disorder without intellectual disability: A longitudinal study of service rates, barriers and satisfaction. Disability and Health Journal, 10(2), 264–270.PubMedCrossRef Vogan, V., Lake, J. K., Tint, A., Weiss, J. A., & Lunsky, Y. (2017). Tracking health care service use and the experiences of adults with autism spectrum disorder without intellectual disability: A longitudinal study of service rates, barriers and satisfaction. Disability and Health Journal, 10(2), 264–270.PubMedCrossRef
go back to reference Wachob, D., & Pesci, L. J. (2017). Brief report: Knowledge and confidence of emergency medical service personnel involving treatment of an individual with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(3), 887–891.PubMedCrossRef Wachob, D., & Pesci, L. J. (2017). Brief report: Knowledge and confidence of emergency medical service personnel involving treatment of an individual with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(3), 887–891.PubMedCrossRef
go back to reference Warfield, M. E., Crossman, M. K., Delahaye, J., Weerd, D., E., & Kuhlthau, K. A. (2015). Physician perspectives on providing primary medical care to adults with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(7), 2209–2217.PubMedCrossRef Warfield, M. E., Crossman, M. K., Delahaye, J., Weerd, D., E., & Kuhlthau, K. A. (2015). Physician perspectives on providing primary medical care to adults with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(7), 2209–2217.PubMedCrossRef
go back to reference Weil, T. N., Bagramian, R. A., Inglehart, M. R., & Habil, P. (2011). Treating patients with autism spectrum disorder—SCDA members’ attitudes and behavior. Special Care Dentistry, 31(1), 8–17.CrossRef Weil, T. N., Bagramian, R. A., Inglehart, M. R., & Habil, P. (2011). Treating patients with autism spectrum disorder—SCDA members’ attitudes and behavior. Special Care Dentistry, 31(1), 8–17.CrossRef
go back to reference Weil, T. N., Inglehart, M. R., & Habil, P. (2010). Dental education and dentists’ attitudes and behavior concerning patients with autism. Journal of Dental Education, 74(12), 1294–1307.PubMed Weil, T. N., Inglehart, M. R., & Habil, P. (2010). Dental education and dentists’ attitudes and behavior concerning patients with autism. Journal of Dental Education, 74(12), 1294–1307.PubMed
go back to reference Weiss, J. A., Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C., & Lunsky, Y. (2018). Health concerns and health service utilization in a population cohort of young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(1), 36–44.PubMedCrossRef Weiss, J. A., Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C., & Lunsky, Y. (2018). Health concerns and health service utilization in a population cohort of young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(1), 36–44.PubMedCrossRef
go back to reference Will, D., Barnfather, J., & Lesley, M. (2013). Self-perceived autism competency of primary care nurse practitioners. The Journal for Nurse Practitioners, 9(6), 350–355.CrossRef Will, D., Barnfather, J., & Lesley, M. (2013). Self-perceived autism competency of primary care nurse practitioners. The Journal for Nurse Practitioners, 9(6), 350–355.CrossRef
go back to reference Wilson, S. A., & Peterson, C. C. (2018). Medical care experiences of children with autism and their parents: A scoping review. Child: Care, Health and Development, 44(6), 807–817. Wilson, S. A., & Peterson, C. C. (2018). Medical care experiences of children with autism and their parents: A scoping review. Child: Care, Health and Development, 44(6), 807–817.
go back to reference Zerbo, O., Massolo, M. L., Qian, Y., & Croen, L. A. (2015). A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders, 45(12), 4002–4014.PubMedCrossRef Zerbo, O., Massolo, M. L., Qian, Y., & Croen, L. A. (2015). A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders, 45(12), 4002–4014.PubMedCrossRef
go back to reference Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.PubMedPubMedCentralCrossRef Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.PubMedPubMedCentralCrossRef
go back to reference Zwaigenbaum, L., Nicholas, D. B., Muskat, B., Kilmer, C., Newton, A. S., Craig, W. R.,… Sharon, R. (2016). Perspectives of health care providers regarding emergency department care of children and youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(5), 1725–1736.PubMedCrossRef Zwaigenbaum, L., Nicholas, D. B., Muskat, B., Kilmer, C., Newton, A. S., Craig, W. R.,… Sharon, R. (2016). Perspectives of health care providers regarding emergency department care of children and youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(5), 1725–1736.PubMedCrossRef
Metagegevens
Titel
Healthcare Providers’ Experiences with Autism: A Scoping Review
Auteurs
Rae Morris
Andrea Greenblatt
Michael Saini
Publicatiedatum
13-02-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-03912-6

Andere artikelen Uitgave 6/2019

Journal of Autism and Developmental Disorders 6/2019 Naar de uitgave