Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

19-01-2016 | Original Paper

Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder

Auteurs: Lonnie Zwaigenbaum, David B. Nicholas, Barbara Muskat, Christopher Kilmer, Amanda S. Newton, William R. Craig, Savithiri Ratnapalan, Justine Cohen-Silver, Andrea Greenblatt, Wendy Roberts, Raphael Sharon

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2016

Abstract

This study aimed to characterize the perspectives of health professionals who care for children with autism spectrum disorder (ASD) in the emergency department (ED) and to determine what strategies could optimize care. Ten physicians and twelve nurses were interviewed individually. Questions related to experiences, processes, clinical decision-making and outcomes of children with ASD recently seen in the ED. Interviews were audio recorded, transcribed, and analyzed using a qualitative framework. Participants identified factors that facilitated effective care, including communication strategies, parental involvement and teamwork. Barriers identified included child characteristics, the ED environment, and competing demands. Recommendations included additional staff training and stakeholder engagement. However, making accommodations was often described as being at odds with how the ED functioned, with implications for future service planning.

vorige artikel The Influence of Prior Knowledge on Perception and Action: Relationships to Autistic Traits

volgende artikel Increasing Responsive Parent–Child Interactions and Joint Engagement: Comparing the Influence of Parent-Mediated Intervention and Parent Psychoeducation

Achenbach, T. M. (1991). Manual for child behavior checklist/4-18 and 1991 profile. Burlington, VT: Univeristy of Vermont Department of Psychiatry.

Chun, T. H., & Berrios-Candelaria, R. (2012). Caring for autistic children in emergencies. Contemporary Pediatrics, 29(9), 56–65. Retrieved from http://contemporarypediatrics.modernmedicine.com/.

Cohen-Silver, J. H., Muskat, B., & Ratnapalan, S. (2014). Autism in the emergency department. Clinical Pediatrics, 53(12), 1134–1138.CrossRefPubMed

Constantino, J., & Gruber, C. P. (2005). Social responsiveness scale. Los Angeles, CA: Western Psychological Services.

Corbin, J., & Strauss, A. (2014). Basics of qualitative research: Techniques and procedures for developing grounded theory (4th ed.). Thousand Oaks, CA: Sage Publications Inc.

Coury, D. (2010). Medical treatment of autism spectrum disorders. Current Opinion in Neurology, 23(2), 131–136. doi:10.1097/WCO.0b013e32833722fa.CrossRefPubMed

Erlandson, D. A., Harris, E., Skipper, B. L., & Allen, D. S. (1993). Quality criteria for a naturalistic study. In D. A. Erlandson (Ed.), Doing naturalistic inquiry (pp. 131–161). Newbury Park, CA: Sage Publications Inc.

Giarelli, E., Nocera, R., Turchi, R., Hardie, T. L., Pagano, R., & Yuan, C. (2014). Sensory stimuli as obstacles to emergency care for children with autism spectrum disorder. Advanced Emergency Nursing Journal, 36(2), 145–163. doi:10.1097/TME.0000000000000013.CrossRefPubMed

Hyman, S. L., & Johnson, J. K. (2012). Autism and pediatric practice: Toward a medical home. Journal of Autism and Developmental Disorders, 42(6), 1156–1164. doi:10.1007/s10803-012-1474-3.CrossRefPubMed

Keating, C. B. (2000). A systems-based methodology for structural analysis of health care operations. Journal of Management in Medicine, 14(3–4), 179–198. doi:10.1108/02689230010359183.CrossRefPubMed

Kopecky, K., Broder-Fingert, S., Iannuzzi, D., & Connor, S. (2013). The needs of hospitalized patients with autism spectrum disorders: A parent survey. Clinical Pediatrics, 52(7), 652–660. doi:10.1177/0009922813485974.CrossRefPubMed

Krebel, M. S., Clayton, C., & Graham, C. (1996). Child life programs in the pediatric emergency department. Pediatric Emergency Care, 12(1), 13–15. doi:10.1097/00006565-199602000-00004.CrossRefPubMed

Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage Publications Inc.

Mazzone, L., Postorino, V., De Peppo, L., Fatta, L., Lucarelli, V., Reale, L., & Vicari, S. (2013). Mood symptoms in children and adolescents with autism spectrum disorders. Research in Developmental Disabilities, 34(11), 3699–3708. doi:10.1016/j.ridd.2013.07.034.CrossRefPubMed

McGonigle, J. J., Migyanka, J. M., Glor-Scheib, S. J., Cramer, R., Fratangeli, J. J., Hegde, G. G., & Venkat, A. (2014a). Development and evaluation of educational materials for pre-hospital and emergency department personnel on the care of patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1252–1259. doi:10.1007/s10803-013-1962-0.CrossRefPubMed

McGonigle, J. J., Venkat, A., Beresford, C., Campbell, T. P., & Gabriels, R. L. (2014b). Management of agitation in individuals with autism spectrum disorders in the emergency department. Child and Adolescent Psychiatric Clinics of North America, 23(1), 83–95. doi:10.1016/j.chc.2013.08.003.CrossRefPubMed

Muskat, B., Burnham Riosa, P., Nicholas, D. B., Roberts, W., Stoddart, K., & Zwaigenbaum, L. (2015). Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals. Autism, 19(4), 482–490. doi:10.1177/1362361314531341.CrossRefPubMed

Owley, T. B. (2004). Treatment of individuals with autism spectrum disorders in the emergency department: Special considerations. Clinical Pediatric Emergency Medicine, 5(3), 187–192. doi:10.1016/j.cpem.2004.05.003.CrossRef

Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage Publications Inc.

Pratt, K., Baird, G., & Gringras, P. (2012). Ensuring successful admission to hospital for young people with learning difficulties, autism and challenging behaviour: A continuous quality improvement and change management programme. Child Care, Health, and Development, 38(6), 789–797. doi:10.1111/j.1365-2214.2011.01335.x.CrossRef

Quirantes, D. (2009). Collaborative approach to autism: A parent’s perspective. Journal for Specialists in Pediatric Nursing, 14(3), 203–205. doi:10.1111/j.1744-6155.2009.00199.x.CrossRefPubMed

Richdale, A. L., Baker, E., Short, M., & Gradisar, M. (2014). The role of insomnia, pre-sleep arousal and psychopathology symptoms in daytime impairment in adolescents with high-functioning autism spectrum disorder. Sleep Medicine, 15(9), 1082–1088. doi:10.1016/j.sleep.2014.05.005.CrossRefPubMed

Sakai, C., Miller, K., Brussa, A. K., MacPherson, C., & Augustyn, M. (2014). Challenges of autism in the inpatient setting. Journal of Developmental and Behavioural Pediatrics, 35(1), 82–84. doi:10.1097/DBP.0000000000000024.CrossRef

Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8(3), 27–37. Retrieved from http://journals.lww.com/advancesinnursingscience/pages/default.aspx.

Seid, M., Sherman, M., & Seid, A. B. (1997). Perioperative psychosocial interventions for autistic children undergoing ENT surgery. International Journal of Pediatric Otorhinolaryngology, 40(2–3), 107–113. doi:10.1016/S0165-5876(97)01507-3.CrossRefPubMed

Souders, M. C., DePaul, D., Freeman, K. G., & Levy, S. E. (2002). Adolescents with autism who requires challenging procedures. Pediatric Nursing, 28(6), 555–562. Retrieved from http://www.pediatricnursing.net/.

Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland II: A revision of the Vineland adaptive behavior scales: I survey/caregiver form. Circle Pines, MN: American Guidance Service.

Van Der Walt, J. H., & Moran, C. (2001). An audit of perioperative management of autistic children. Paediatric Anaesthsia, 11(4), 401–408. doi:10.1046/j.1460-9592.2001.00688.x.CrossRef

Vaz, I. (2010). Improving the management of children with learning disability and autism spectrum disorder when they attend hospital. Child Care, Health, and Development, 36(6), 753–755. doi:10.1111/j.1365-2214.2010.01144.x.CrossRef

Wu, C. M., Kung, P. T., Li, C. I., & Tsai, W. C. (2014). The difference in medical utilization and associated factors between children and adolescents with and without autism spectrum disorders. Research in Developmental Disabilities, 36, 78–86. doi:10.1016/j.ridd.2014.09.019.CrossRef

Zwaigenbaum, L., Bryson, S., Lord, C., Rogers, S., Carter, A., Carver, L., & Yirmiya, N. (2009). Clinical assessment and management of toddlers with suspected autism spectrum disorder: insights from studies of high-risk infants. Pediatrics, 123(5), 1383–1391. doi:10.1542/peds.2008-1606.CrossRefPubMedPubMedCentral

Titel: Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder
Auteurs: Lonnie Zwaigenbaum
David B. Nicholas
Barbara Muskat
Christopher Kilmer
Amanda S. Newton
William R. Craig
Savithiri Ratnapalan
Justine Cohen-Silver
Andrea Greenblatt
Wendy Roberts
Raphael Sharon
Publicatiedatum: 19-01-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 5/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2703-y

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 5/2016

Mechanism of Developmental Change in the PLAY Project Home Consultation Program: Evidence from a Randomized Control Trial

Do Individuals with High-Functioning Autism Who Speak a Tone Language Show Intonation Deficits?

The Longitudinal Effects of Network Characteristics on the Mental Health of Mothers of Children with ASD: The Mediating Role of Parent Cognitions

How Sensory Experiences Affect Adolescents with an Autistic Spectrum Condition within the Classroom

Sensory Symptoms and Processing of Nonverbal Auditory and Visual Stimuli in Children with Autism Spectrum Disorder

Increasing Responsive Parent–Child Interactions and Joint Engagement: Comparing the Influence of Parent-Mediated Intervention and Parent Psychoeducation