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Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2020

12-10-2019 | Original Paper

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Auteurs: Álvaro Bejarano-Martín, Ricardo Canal-Bedia, María Magán-Maganto, Clara Fernández-Álvarez, María Victoria Cilleros-Martín, María Cruz Sánchez-Gómez, Patricia García-Primo, Mary Rose-Sweeney, Andrew Boilson, Renata Linertová, Herbert Roeyers, Sara Van der Paelt, Diana Schendel, Christine Warberg, Susanne Cramer, Antonio Narzisi, Filippo Muratori, María Luisa Scattoni, Irma Moilanen, Anneli Yliherva, Evald Saemundsen, Sigríður Loa Jónsdóttir, Magdalena Efrim-Budisteanu, Aurora Arghir, Sorina Mihaela Papuc, Astrid Vicente, Celia Rasga, Bernadette Rogé, Quentin Guillon, Sophie Baduel, Johanna Xenia Kafka, Luise Poustka, Oswald D. Kothgassner, Rafal Kawa, Ewa Pisula, Tracey Sellers, Manuel Posada de la Paz

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2020

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Abstract

Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Allison, C., Baron-Cohen, S., Wheelwright, S., Charman, T., Richler, J., Pasco, G., et al. (2008). The Q-CHAT (Quantitative CHecklist for Autism in Toddlers): A normally distributed quantitative measure of autistic traits at 18–24 months of age: preliminary report. Journal of Autism and Developmental Disorders, 38(8), 1414–1425. https://​doi.​org/​10.​1007/​s10803-007-0509-7. CrossRefPubMed Allison, C., Baron-Cohen, S., Wheelwright, S., Charman, T., Richler, J., Pasco, G., et al. (2008). The Q-CHAT (Quantitative CHecklist for Autism in Toddlers): A normally distributed quantitative measure of autistic traits at 18–24 months of age: preliminary report. Journal of Autism and Developmental Disorders, 38(8), 1414–1425. https://​doi.​org/​10.​1007/​s10803-007-0509-7. CrossRefPubMed
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Biobehavioral Reviews, 33, 1204–1214. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Biobehavioral Reviews, 33, 1204–1214.
go back to reference Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112(6), 450–461. CrossRefPubMed Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112(6), 450–461. CrossRefPubMed
go back to reference Crais, E. R., McComish, C. S., Humphreys, B. P., Watson, L. R., Baranek, G. T., Reznick, J. S., … Earls, M. (2014b). Pediatric healthcare professionals’ views on autism spectrum disorder screening at 12-18 months. Journal of Autism and Developmental Disorders, 44(9), 2311–2328. https://​doi.​org/​10.​1007/​s10803-014-2101-2. Crais, E. R., McComish, C. S., Humphreys, B. P., Watson, L. R., Baranek, G. T., Reznick, J. S., … Earls, M. (2014b). Pediatric healthcare professionals’ views on autism spectrum disorder screening at 12-18 months. Journal of Autism and Developmental Disorders, 44(9), 2311–2328. https://​doi.​org/​10.​1007/​s10803-014-2101-2.
go back to reference Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329–339. CrossRefPubMed Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329–339. CrossRefPubMed
go back to reference McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., … Williams, K. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment, 19(41), 1–506. https://​doi.​org/​10.​3310/​hta19410. McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., … Williams, K. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment, 19(41), 1–506. https://​doi.​org/​10.​3310/​hta19410.
go back to reference Pickles, A., Couteur, A. L., Leadbitter, K., Salomone, E., Cole-Fletcher, R., Tobin, H., … Green, J. (2016). Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial. Lancet, 388(10059), 2501–2509. https://​doi.​org/​10.​1016/​S0140-6736(16)31229-6. Pickles, A., Couteur, A. L., Leadbitter, K., Salomone, E., Cole-Fletcher, R., Tobin, H., … Green, J. (2016). Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial. Lancet, 388(10059), 2501–2509. https://​doi.​org/​10.​1016/​S0140-6736(16)31229-6.
go back to reference Sacrey, L.-A. R., Zwaigenbaum, L., Bryson, S., Brian, J., Smith, I. M., Roberts, W., … Armstrong, V. (2015). Can parents’ concerns predict autism spectrum disorder? A prospective study of high-risk siblings from 6 to 36 months of age. Journal of the American Academy of Child and Adolescent Psychiatry, 54(6), 470–478.  https://​doi.​org/​10.​1016/​j.​jaac.​2015.​03.​014. Sacrey, L.-A. R., Zwaigenbaum, L., Bryson, S., Brian, J., Smith, I. M., Roberts, W., … Armstrong, V. (2015). Can parents’ concerns predict autism spectrum disorder? A prospective study of high-risk siblings from 6 to 36 months of age. Journal of the American Academy of Child and Adolescent Psychiatry, 54(6), 470–478.  https://​doi.​org/​10.​1016/​j.​jaac.​2015.​03.​014.
go back to reference Salomone, E., Charman, T., McConachie, H., Warreyn, P., & Working Group 4, COST Action ‘Enhancing the Scientific Study of Early Autism’. (2015). Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. European Journal of Pediatrics, 174(10), 1277–1285. https://​doi.​org/​10.​1007/​s00431-015-2531-7. CrossRefPubMed Salomone, E., Charman, T., McConachie, H., Warreyn, P., & Working Group 4, COST Action ‘Enhancing the Scientific Study of Early Autism’. (2015). Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. European Journal of Pediatrics, 174(10), 1277–1285. https://​doi.​org/​10.​1007/​s00431-015-2531-7. CrossRefPubMed
Metagegevens
Titel
Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives
Auteurs
Álvaro Bejarano-Martín
Ricardo Canal-Bedia
María Magán-Maganto
Clara Fernández-Álvarez
María Victoria Cilleros-Martín
María Cruz Sánchez-Gómez
Patricia García-Primo
Mary Rose-Sweeney
Andrew Boilson
Renata Linertová
Herbert Roeyers
Sara Van der Paelt
Diana Schendel
Christine Warberg
Susanne Cramer
Antonio Narzisi
Filippo Muratori
María Luisa Scattoni
Irma Moilanen
Anneli Yliherva
Evald Saemundsen
Sigríður Loa Jónsdóttir
Magdalena Efrim-Budisteanu
Aurora Arghir
Sorina Mihaela Papuc
Astrid Vicente
Celia Rasga
Bernadette Rogé
Quentin Guillon
Sophie Baduel
Johanna Xenia Kafka
Luise Poustka
Oswald D. Kothgassner
Rafal Kawa
Ewa Pisula
Tracey Sellers
Manuel Posada de la Paz
Publicatiedatum
12-10-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-04253-0

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