Skip to main content
Log in

Examining Services for Young Children with Autism Spectrum Disorder: Parent Satisfaction and Predictors of Service Utilization

  • Published:
Early Childhood Education Journal Aims and scope Submit manuscript

Abstract

Autism spectrum disorder (ASD) is the fastest growing group of neurodevelopmental disorders in childhood. Earlier detection means an increased need for early intervention and other educational services. This study examined what services a sample of young children with ASD received, what variables predicted service utilization, and how satisfied parents were with the services. Sixty children (2–7 years) and their families from the Northwestern United States participated in the study. Results suggest that, on average, children received 13 h of educational and therapeutic services per week, with younger children receiving fewer services than older children. Child age, atypical behavior, and family income predicted number of service hours received. Children’s adaptive behavior and autism symptoms did not predict service hours. Although services received were, by most standards, minimal and far below best practice recommendations, parents reported high satisfaction, especially for their toddlers and preschool-aged children. Implications and future directions are described.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th edn.). Arlington, VA: American Psychiatric Publishing.

    Book  Google Scholar 

  • Bagnato, S. J., Neisworth, J. T., Salvia J., & Hunt F. (1999). Temperament and atypical behavior scale: Early childhood indicators of developmental dysfunction. Baltimore, MD: Paul H. Brookes Publishing.

    Google Scholar 

  • Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders, 38, 1509–1517. doi:10.1007/s10803-007-0531-9.

    Article  Google Scholar 

  • Blankenship, K., Erickson, C. A., Stigler, K. A., Posey, D. J., & McDougle, C. J. (2010). Aripiprazole for irritability associated with autistic disorder in children and adolescents aged 6–17 years. Pediatric Health, 4(4), 375–387. doi:10.2217/phe.10.45.

    Article  Google Scholar 

  • Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumber, S. J., Yeargin-Allsopp, M., … Kogan, M. D. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127, 1034–1042. doi:10.1542/peds.2010-2989.

    Article  Google Scholar 

  • Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years: Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, Surveillance Summaries, 63(SS02), 1–21.

    Google Scholar 

  • Downs, R. C., & Downs, A. (2010). Practices in early intervention for children with autism comparison with the national research council recommended practices. Education and Training in Autism and Developmental Disabilities, 45(1), 150–159.

    Google Scholar 

  • Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., … Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5, 160–179. doi:10.1002/aur.239.

    Article  Google Scholar 

  • Fenske, E. C., Zalenski, S., Krantz, P. J., & McClannahan, L. E. (1985). Age at intervention and treatment outcome for autistic children in a comprehensive treatment program. Analysis and Intervention in Developmental Disabilities, 5, 49–58. doi:10.1016/S0270-4684(85)80005-7.

    Article  Google Scholar 

  • Hahler, E., & Elsabbagh, M. (2015). Autism: A global perspective. Current Developmental Disorders Report, 2(1), 58–64. doi:10.1007/s40474-014-0033-3.

    Article  Google Scholar 

  • Harris, S. L., & Handleman, J. S. (2000). Age and I.Q. at intake as predictors of placement for young children with autism: A 4- to 6-year follows up. Journal of Autism and Developmental Disorders, 30(2), 137–142. doi:10.1023/A:1005459606120.

    Article  Google Scholar 

  • Irvin, D. W., McBee, M., Boyd, B. A., Hume, K., & Odom, S. L. (2012). Child and family factors associated with the use of services for preschoolers with autism spectrum disorder. Research in Autism Spectrum Disorders, 6(1), 565–572. doi:10.1016/j.rasd.2011.07.018.

    Article  Google Scholar 

  • Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55(1), 3–9. doi:10.1037/0022-006X.55.1.3.

    Article  Google Scholar 

  • National Autism Center. (2009). National standards project, phase 1. Randolph, MA: National Autism Center.

    Google Scholar 

  • National Autism Center. (2015). Findings and conclusions: National standards project, phase 2. Randolph, MA: National Autism Center.

    Google Scholar 

  • National Research Council. (2001). Educating children with autism committee on educational interventions for children with autism. In C. Lord & J. P. McGee (Eds.), Division of behavioral and social sciences and education. Washington, DC: National Academy Press

    Google Scholar 

  • Odom, S. L., Boyd, B. A., Hall, L. J., & Hume, K. (2010a). Evaluation of comprehensive treatment models for individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40, 425–436. doi:10.1007/s10803-009-0825-1.

  • Odom, S. L., Collett-Klingenberg, L., Rogers, S. J., & Hatton, D. D. (2010b). Evidence-based practices in interventions for children with autism spectrum disorders. Preventing School Failure, 54(4), 275–282. doi:10.1080/10459881003785506.

  • Peters-Scheffer, N., Didden, R., Korzilius, H., & Sturmey, P. (2010). A meta-analytic study on the effectiveness of comprehensive ABA-based early intervention programs for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 60–69. doi:10.1016/j.rasd.2010.03.011.

    Article  Google Scholar 

  • Rogers, S. J., & Vismara, L. A. (2008). Evidence-Based comprehensive treatments for early autism. Journal of Clinical and Adolescent Psychology, 37(1), 8–38. doi:10.1080/15374410701817808.

    Article  Google Scholar 

  • Rossignol, D. A., & Frye, R. E. (2014). Melatonin in autism spectrum disorders. Current Clinical Pharmacology, 9(4), 326–334.

    Article  Google Scholar 

  • Schopler, E., Van Bourgondien, M. E., Wellman, G. J., & Love, S. R. (2010). Childhood autism rating scale, 2nd ed. (CARS-2). Los Angeles, CA: Western Psychological Services. doi:10.1080/15374410701817808.

    Google Scholar 

  • Shattuck, P. T., & Grosse, S. D. (2007). Issues related to the diagnosis and treatment of autism spectrum disorder. Mental Retardation and Developmental Disabilities Research Reviews, 13, 129–135. doi:10.1002/mrdd.20143.

    Article  Google Scholar 

  • Siller, M., Reyes, N., Hotez, E., Hutman, T., & Sigman, M. (2014). Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions. The International Journal of Research and Practice, 18(4), 433–436. doi:10.1177/1362361313476766.

    Article  Google Scholar 

  • Spann, S. J., Kohler, F. W., & Soenksen, D. (2003). Examining parents’ involvement in and perceptions of special education services: An interview with families in a parent support group. Focus on Autism and Other Developmental Disabilities, 18(4), 228–237. doi:10.1177/10883576030180040401.

    Article  Google Scholar 

  • Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland adaptive behavior scales (2nd edn.). Circle Pines, MN: American Guidance Service.

    Google Scholar 

  • Stahmer, A. C., Collings, N. M., & Palinkas, L. A. (2005). Early intervention practices for children with autism: Descriptions from community providers. Focus on Autism and Other Developmental Disabilities, 20(2), 66–79. doi:10.1177/10883576050200020301.

    Article  Google Scholar 

  • Stahmer, A. C., & Mandell, D. S. (2007). State infant/toddler program policies for eligibility and services provision for young children with autism. Administration and Policy in Mental Health Services Research, 34(1), 29–37. doi:10.1007/s10488-006-0060-4.

    Article  Google Scholar 

  • Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37(10), 1902–1912. doi:10.1007/s10803-006-0323-7.

    Article  Google Scholar 

  • Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. H., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127(5), 1303–1311. doi:10.1542/peds.2011-0426.

    Article  Google Scholar 

  • Wise, M. D., Little, A., Holliman, J., Wise, P. H., & Wang, J. C. (2010). Can state early intervention programs meet the increased demands of children suspected of having autism spectrum disorders? Journal of Developmental and Behavioral Pediatrics, 31(6), 469–476. doi:10.1097/DBP.0b013e3181e56db2.

    Google Scholar 

Download references

Funding

This research was funded in part by a grant from the Fairway Foundation and the National Institutes of Health (R01 HD059838) awarded to the first author.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Laura Lee McIntyre.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

McIntyre, L.L., Zemantic, P.K. Examining Services for Young Children with Autism Spectrum Disorder: Parent Satisfaction and Predictors of Service Utilization. Early Childhood Educ J 45, 727–734 (2017). https://doi.org/10.1007/s10643-016-0821-y

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10643-016-0821-y

Keywords

Navigation