Development of a Video-based Evaluation Tool in Rett Syndrome
- 01-10-2007
- Original Paper
Gepubliceerd in:
- Auteurs
-
S. Fyfe
S. Fyfe
- Curtin University of Technology, Perth, Australia
-
J. Downs
J. Downs
- Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, 6872, West Perth, Australia
-
O. McIlroy
O. McIlroy
- Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, 6872, West Perth, Australia
-
B. Burford
B. Burford
- Section of Psychological Medicine, University of Glasgow, Glasgow, UK
-
J. Lister
J. Lister
- Curtin University of Technology, Perth, Australia
-
S. Reilly
S. Reilly
- Faculty of Health Sciences, Murdoch Children’s Research Institute, La Trobe University, Melbourne, Australia
-
C. L. Laurvick
C. L. Laurvick
- Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, 6872, West Perth, Australia
-
C. Philippe
C. Philippe
- Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, 6872, West Perth, Australia
-
M. Msall
M. Msall
- Pritzker School of Medicine, University of Chicago, Chicago, USA
- Developmental and Behavioral Pediatrics, Comer Children’s and LaRabida Children’s Hospitals, Chicago, USA
-
W. E. Kaufmann
W. E. Kaufmann
- Center for Genetic Disorders of Cognition and Behavior, Kennedy Krieger Institute, Johns Hopkins University School of Medicine, Baltimore, USA
-
C. Ellaway
C. Ellaway
- Discipline of Paediatrics and Child Health, University of Sydney, Sydney, Australia
- Western Sydney Genetics Program, Children’s Hospital at Westmead, Sydney, Australia
-
H. Leonard
Corresponderende auteur H. Leonard
- Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, 6872, West Perth, Australia
- Gepubliceerd in
- Journal of Autism and Developmental Disorders | Uitgave 9/2007
Abstract
This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT.
- Titel
- Development of a Video-based Evaluation Tool in Rett Syndrome
- Auteurs
-
S. Fyfe
J. Downs
O. McIlroy
B. Burford
J. Lister
S. Reilly
C. L. Laurvick
C. Philippe
M. Msall
W. E. Kaufmann
C. Ellaway
H. Leonard
- Publicatiedatum
- 01-10-2007
- Uitgeverij
- Springer US
- Gepubliceerd in
-
Journal of Autism and Developmental Disorders / Uitgave 9/2007
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432 - DOI
- https://doi.org/10.1007/s10803-006-0293-9
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