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01-10-2007 | Original Paper

Development of a Video-based Evaluation Tool in Rett Syndrome

Auteurs: S. Fyfe, J. Downs, O. McIlroy, B. Burford, J. Lister, S. Reilly, C. L. Laurvick, C. Philippe, M. Msall, W. E. Kaufmann, C. Ellaway, H. Leonard

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2007

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Abstract

This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT.
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Metagegevens
Titel
Development of a Video-based Evaluation Tool in Rett Syndrome
Auteurs
S. Fyfe
J. Downs
O. McIlroy
B. Burford
J. Lister
S. Reilly
C. L. Laurvick
C. Philippe
M. Msall
W. E. Kaufmann
C. Ellaway
H. Leonard
Publicatiedatum
01-10-2007
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2007
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-006-0293-9