Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel Readers with Autism Can Produce Inferences, but...

volgende artikel Body Constraints on Motor Simulation in Autism ...

Tip

Swipe om te navigeren naar een ander artikel

12-11-2015 | Original Paper | Uitgave 3/2016

Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 3/2016

Auteurs:: Clara M. Lajonchere, Barbara Y. Wheeler, Thomas W. Valente, Cary Kreutzer, Aron Munson, Shrikanth Narayanan, Abe Kazemzadeh, Roxana Cruz, Irene Martinez, Sheree M. Schrager, Lisa Schweitzer, Tara Chklovski, Darryl Hwang

» Toegang tot de volledige tekst krijgen

Abstract

Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90 % wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijf je als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen jouw vak. Met het online abonnement heb je toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kun je op je gemak en wanneer het jou het beste uitkomt verdiepen in jouw vakgebied.

Meer informatie

Agency for Healthcare Research and Quality. (2004). Literacy and health outcomes. Evidence report/technology assessment no. p 87.

Andrulis, D., & Brach, C. (2007). Integrating literacy, culture, and language to improve health care quality for diverse populations. American Journal of Health Behavior, 31(Supplement 1), 122–133. CrossRef

Autism Intervention Research Network—Physical Health (AIR-P). (2015). Retrieved from http://www.airpnetwork.org/site/c.7oJGLPPsFiJYG/b.8303871/k.D117/Research.htm

Blacher, J., & Widaman, K. (2004). Purchase of service study II: Determination of service variation across regional centers: Implications for clients and policy. A report to the legislature. Sacramento, CA: DDS.

Centers for Disease Control. (2009). Prevalence of Autism Spectrum Disorders—Autism and developmental disabilities monitoring network, United States, 2006. CDC Morbidity and Mortality Weekly Report, Surveillance Summaries, 58, 1–20.

Centers for Disease Control. (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, US, 2010. CDC morbidity and mortality weekly report, surveillance summaries (Vol. 63, pp. 1–21).

Cooper, L. A., Hill, M. N., & Powe, N. R. (2002). Designing and evaluating interventions to eliminate racial and ethnic disparities in health care. Journal of General Internal Medicine, 17(6), 477–486. PubMedCentralCrossRefPubMed

Fernandez, A., Schillinger, D., Grumbach, K., Rosenthal, A., Stewart, A. L., Wang, F., & Perez-Stable, E. J. (2004). Physician language ability and cultural competence: An exploratory study of communication with Spanish-speaking patients. Journal of General Internal Medicine, 19, 167–174. PubMedCentralCrossRefPubMed

Flesch, R. (1949). The art of readable writing. New York, NY: Harper and Brothers.

Flores, G., Milagros, A., Olivar, M. A., & Kastner, B. (1998). Access barriers to health care for Latino children. Archives of Pediatric and Adolescent Medicine, 152, 1119–1125. CrossRef

Fry, E. B. (1977). Elementary reading instruction. New York, NY: McGraw Hill.

Gannotti, M., Kaplan, L., Handwerker, W. P., & Groce, N. E. (2004). Cultural influences on health care use: Differences in perceived unmet needs and expectations of providers by Latino and Euro-American parents of children with special healthcare needs. Journal of Developmental Pediatrics, 25(3), 156–165. CrossRef

Graham, E. A., Jacobs, T. A., Kwan-Gett, T. S., & Cover, J. (2008). Health services utilization by low-income limited English proficient adults. Journal of Immigrant and Minority Health, 10, 207–217. CrossRefPubMed

Holbrook, A. L., Krosnick, J. A., & Pfent, A. (2008). The causes and consequences of response rates in surveys by the news media and government contractor survey research firms. In J. M. Lepkowski, C. Tucker, J. M. Brick, E. de Leeuw, L. Japec, & P. J. Lavrakas (Eds.), Advances in telephone survey methodology (pp. 499–528). Hoboken, NJ: Wiley.

Holbrook, J., & Rannikmae, M. (2009). The meaning of scientific literacy. International Journal of Environmental and Science Education, 4, 275–288.

Huhman, M., Berkowitz, J. M., Wong, F. L., Prosper, E., Gray, M., Prince, D., & Yuen, J. (2008). The VERB™ campaign’s strategy for reaching African-American, Hispanic, Asian, and American Indian children and parents. American Journal of Preventive Medicine, 34(6), S194–S209. CrossRefPubMed

Institute of Medicine. (2004). Health literacy: A prescription to end confusion. Washington, DC: National Academies Press.

Kreps, G. L., & Sparks, L. (2008). Meeting the health literacy needs of immigrant populations. Patient Education and Counseling, 71(3), 328–332. doi: 10.1016/j.pec.2008.03.001. CrossRefPubMed

Kripalani, S., Henderson, L. E., Chiu, E. Y., Robertson, R., Kolm, P., & Jacobson, T. A. (2006). Predictors of medication self-management skill in low-literacy population. Journal of General Internal Medicine, 21(8), 852–856. PubMedCentralCrossRefPubMed

Kutner, M., Greenberg, E., Jin, Y., & Paulsen, C. (2006). The health literacy of America’s adults: Results from the 2003 National Assessment of Adult Literacy (NCES 2006–483). US Department of Education. Washington, DC: National Center for Education Statistics.

Magaña, S., Lopez, K., Aguinaga, A., & Morton, H. (2013). Access to diagnosis and treatment services among Latino children with Autism Spectrum Disorders. Intellectual and Developmental Disabilities, 51(3), 141–153. doi: 10.1352/1934-9556-51.3.141. CrossRefPubMed

Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., & Kirby, R. S. (2009). Racial/ethnic disparities in the identification of children with ASD. American Journal of Public Health, 99, 493–498. PubMedCentralCrossRefPubMed

McKee, M., & Paasche-Orlow, M. (2012). Health literacy and the disenfranchised: The importance of collaboration between limited English proficiency and health literacy researchers. Journal of Health Communication, 17(sup3), 7–12. doi: 10.1080/10810730.2012.712627. PubMedCentralCrossRefPubMed

McLaughlin, G. H. (1969). SMOG grading—A new readability formula. Journal of Reading, 12, 639–646.

McLaughlin, G. H. (2008). SMOG readability calculator. Retrieved from http://www.harrymclaughlin.com/SMOG.htm

Mosenthal, P. G., & Kirsch, I. (1998). A new measure for assessment of document complexity: The PMOSE/IKIRSCH document readability formula. Journal of Adolescent and Adult Literacy, 41(8), 638–657.

Parish, S., Magaña, S., Rose, R., Timberlake, M., & Swaine, J. G. (2012). Health care of Latino children with autism and other developmental disabilities: Quality of provider interaction mediates utilization. American Journal of Intellectual and Developmental Disabilities, 117(4), 304–315. CrossRef

Passel, J. S., & Cohn, D. V. (2011). Unauthorized immigrant population: National and state trends, 2010. Retrieved from http://www.pewhispanic.org/files/reports/133.pdf

Peters, E., Dieckmann, N., Dixon, A., Hibbard, J. H., & Mertz, C. K. (2007). Less is more in presenting quality information to consumers. Medical Care Research and Review, 64(2), 169–190. CrossRefPubMed

Portes, A. (1998). Social capital: Its origins and applications in modern sociology. Annual Review of Sociology, 24, 1–24. CrossRef

Raval, D., Subramanian, B., & Raval, B. (2007). Application of the relationship paradigm to social marketing. Competition Forum, 5, 1–8.

Ridpath, J. G. (2006). The center for health studies readability toolkit (2nd ed.). Seattle, WA: Group Health Center for Health Studies.

Ronsaville, D. S., & Hakim, R. B. (2000). Well child care in the US: Racial differences. American Journal of Public Health, 90, 1436–1443. PubMedCentralCrossRefPubMed

Sheridan, S., Halpern, D., Viera, A., Berkman, N., Donahue, K., & Crotty, K. (2011). Interventions for individuals with low health literacy: A systematic review. Journal of Health Communication, 16(sup3), 30–54. doi: 10.1080/10810730.2011.604391. CrossRefPubMed

Shin Kim, Y., Levanthal, B. L., Koh, Y., Frombonne, E., Laska, E., Lim, E., & Grinker, R. R. (2011). Prevalence of Autism Spectrum Disorders in a total population sample. American Journal of Psychiatry, 168, 904–912. CrossRef

Sudore, R. L., Landefeld, C. S., Perez-Stable, E. J., Bibbins-Domingo, K., Williams, B. A., & Schillinger, D. (2009). Unraveling the relationship between literacy, language proficiency, and patient–physician communication. Patient Education and Counseling, 75, 398–402. PubMedCentralCrossRefPubMed

Tait, A. R., Voepel-Lewis, T., Zigmund-Fisher, B. J., & Fagerlin, A. (2010). Presenting research risks and benefits to parents: Does format matter? Anesthesia and Analgesia, 111(3), 718–723. PubMedCentralCrossRefPubMed

Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902–1912. CrossRefPubMed

Travers, J., Krezmien, M., Mulcahy, C., & Tincani, M. (2012). Racial disparity in administrative Autism identification across the United States during 2000 and 2007. The Journal of Special Education, 48(3), 155–166. doi: 10.1177/0022466912454014. CrossRef

Umpierre, M., Meyers, L., Ortiz, A., Paulino, A., Rodriguez, A., Miranda, A., et al. (2014). Understanding Latino parents’ child mental health literacy: Todos a bordo/all aboard. Research on Social Work Practice. doi: 10.1177/1049731514547907. PubMedCentral

US Census Bureau. (2010). Language use in the United States: 2007. American Community Survey reports. Retrieved from http://www.census.gov/prod/2010pubs/acs-12.pdf

US Department of Health and Human Services. (2000). Healthy people 2010: Understanding and improving health (2nd ed.). Washington, DC: US Government Printing Office.

US Department of Health and Human Services. (2013). Computations for the 2013 poverty guidelines. Washington DC: Office of the Assistant Secretary for Planning and Evaluation. Retrieved from http://aspe.hhs.gov/computations-2013-poverty-guidelines

Von Wagner, C., Steptoe, A., Wolf, M. S., & Wardle, J. (2008). Health literacy and health actions: A review and a framework from health psychology. Health Education and Behavior, 36, 860–877. CrossRef

Wilson, E., Chen, A. H., Grumbach, K., Wang, F., & Fernandez, A. (2005). Effects of limited English proficiency and physician language on health care comprehension. Journal of General Internal Medicine, 20(9), 800–806. PubMedCentralCrossRefPubMed

Yin, H. S., Johnson, M., Mendelsohn, A. L., Abrams, M. A., Sanders, L. M., & Dreyer, B. P. (2009). The health literacy of parents in the US: A nationally representative study. Pediatrics, 124, S289–S298. CrossRefPubMed

Zuckerman, K., Sinche, B., Cobian, M., Cervantes, M., Mejia, A., Becker, T., & Nicolaidis, C. (2014). Conceptualization of Autism in the Latino community and its relationship with early diagnosis. Journal of Developmental and Behavioral Pediatrics, 35(8), 522–532. doi: 10.1097/dbp.0000000000000091. PubMedCentralCrossRefPubMed

Titel: Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents
Auteurs:: Clara M. Lajonchere
Barbara Y. Wheeler
Thomas W. Valente
Cary Kreutzer
Aron Munson
Shrikanth Narayanan
Abe Kazemzadeh
Roxana Cruz
Irene Martinez
Sheree M. Schrager
Lisa Schweitzer
Tara Chklovski
Darryl Hwang
Publicatiedatum: 12-11-2015
DOI: https://doi.org/10.1007/s10803-015-2649-5
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 3/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Andere artikelen Uitgave 3/2016

Health Services Utilization Among Children With and Without Autism Spectrum Disorders

The Generality of Interview-Informed Functional Analyses: Systematic Replications in School and Home

Using the Autism-Spectrum Quotient to Measure Autistic Traits in Anorexia Nervosa: A Systematic Review and Meta-Analysis

Language Differences at 12 Months in Infants Who Develop Autism Spectrum Disorder

Brief Report: Two Day-Date Processing Methods in an Autistic Savant Calendar Calculator

Knowledge Gaps in ASD Research: Short and Long Term Implications for Policy