Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2012

01-09-2012 | Original Paper

Social Support and Well-being at Mid-Life Among Mothers of Adolescents and Adults with Autism Spectrum Disorders

Auteurs: Leann E. Smith, Jan S. Greenberg, Marsha Mailick Seltzer

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2012

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

The present study investigated the impact of social support on the psychological well-being of mothers of adolescents and adults with ASD (n = 269). Quantity of support (number of social network members) as well as valence of support (positive support and negative support) were assessed using a modified version of the “convoy model” developed by Antonucci and Akiyama (1987). Having a larger social network was associated with improvements in maternal well-being over an 18-month period. Higher levels of negative support as well as increases in negative support over the study period were associated with increases in depressive symptoms and negative affect and decreases in positive affect. Social support predicted changes in well-being above and beyond the impact of child behavior problems. Implications for clinical practice are discussed.
Literatuur
go back to reference Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Osmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109, 237–254. PubMedCrossRef Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Osmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109, 237–254. PubMedCrossRef
go back to reference Akiyama, H., Antonucci, T., Takahashi, K., & Langfahl, E. S. (2003). Negative interactions in close relationships across the life span. Journal of Gerontology: Psychological Sciences, 58, 70–79. CrossRef Akiyama, H., Antonucci, T., Takahashi, K., & Langfahl, E. S. (2003). Negative interactions in close relationships across the life span. Journal of Gerontology: Psychological Sciences, 58, 70–79. CrossRef
go back to reference Antonucci, T. C., & Akiyama, H. (1987). Social networks in adult life and a preliminary examination of the convoy model. Journal of Gerontology, 42, 519–527. PubMed Antonucci, T. C., & Akiyama, H. (1987). Social networks in adult life and a preliminary examination of the convoy model. Journal of Gerontology, 42, 519–527. PubMed
go back to reference August, K. J., & Sorkin, D. H. (2010). Marital status and gender differences in managing a chronic illness: The function of health-related social control. Social Science and Medicine, 71, 1831–1838. PubMedCrossRef August, K. J., & Sorkin, D. H. (2010). Marital status and gender differences in managing a chronic illness: The function of health-related social control. Social Science and Medicine, 71, 1831–1838. PubMedCrossRef
go back to reference Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2010). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47, 551–561. CrossRef Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2010). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47, 551–561. CrossRef
go back to reference Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362. PubMedCrossRef Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362. PubMedCrossRef
go back to reference Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112, 450–461. PubMedCrossRef Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112, 450–461. PubMedCrossRef
go back to reference Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513. PubMedCrossRef Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513. PubMedCrossRef
go back to reference Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409–423. PubMedCrossRef Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409–423. PubMedCrossRef
go back to reference Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior-revised. Itasca, IL: Riverside. Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior-revised. Itasca, IL: Riverside.
go back to reference Carter, A. S., Martinez-Pedraza, F. L., & Gray, S. A. O. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: Maternal and child correlates. Journal of Clinical Psychology, 65, 1270–1280. PubMedCrossRef Carter, A. S., Martinez-Pedraza, F. L., & Gray, S. A. O. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: Maternal and child correlates. Journal of Clinical Psychology, 65, 1270–1280. PubMedCrossRef
go back to reference Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310–357. PubMedCrossRef Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310–357. PubMedCrossRef
go back to reference Dush, C. M. K., & Amato, P. R. (2005). Consequences of relationship status and quality for subjective well-being. Journal of Social and Personal Relationships, 22, 607–627. CrossRef Dush, C. M. K., & Amato, P. R. (2005). Consequences of relationship status and quality for subjective well-being. Journal of Social and Personal Relationships, 22, 607–627. CrossRef
go back to reference Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671. PubMedCrossRef Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671. PubMedCrossRef
go back to reference Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. PubMedCrossRef Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. PubMedCrossRef
go back to reference Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disability, 115, 234–249. CrossRef Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disability, 115, 234–249. CrossRef
go back to reference Finch, J. F., Okun, M. A., Barrera, M., Jr., Zautra, A. J., & Reich, J. W. (1989). Positive and negative social ties among older adults: Measurement models and the prediction of psychological distress and well-being. American Journal of Community Psychology, 17, 585–605. PubMedCrossRef Finch, J. F., Okun, M. A., Barrera, M., Jr., Zautra, A. J., & Reich, J. W. (1989). Positive and negative social ties among older adults: Measurement models and the prediction of psychological distress and well-being. American Journal of Community Psychology, 17, 585–605. PubMedCrossRef
go back to reference Green, S. A., & Carter, A. S. (2011). Predictors and course of daily living skills development in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders. (Online ahead of print) . doi: 10.​1007/​s10803-011-1275-0. Green, S. A., & Carter, A. S. (2011). Predictors and course of daily living skills development in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders. (Online ahead of print) . doi: 10.​1007/​s10803-011-1275-0.
go back to reference Gurney, J., Fritz, M., Ness, K., Sievers, P., Newschaffer, C., & Shapiro, E. (2003). Analysis of prevalence trends of autism spectrum disorder in Minnesota. Archives of Pediatrics and Adolescent Medicine, 157, 622–627. PubMedCrossRef Gurney, J., Fritz, M., Ness, K., Sievers, P., Newschaffer, C., & Shapiro, E. (2003). Analysis of prevalence trends of autism spectrum disorder in Minnesota. Archives of Pediatrics and Adolescent Medicine, 157, 622–627. PubMedCrossRef
go back to reference Ha, J.-H. (2010). The effects of positive and negative support from children on widowed older adults’ psychological adjustment: A longitudinal analysis. The Gerontologist, 4, 471–481. CrossRef Ha, J.-H. (2010). The effects of positive and negative support from children on widowed older adults’ psychological adjustment: A longitudinal analysis. The Gerontologist, 4, 471–481. CrossRef
go back to reference Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 269–275. CrossRef Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 269–275. CrossRef
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. PubMedCrossRef
go back to reference Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882. PubMedCrossRef Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882. PubMedCrossRef
go back to reference Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. CrossRef Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. CrossRef
go back to reference Ingersoll-Dayton, B., Morgan, D., & Antonucci, T. (1997). The effects of positive and negative social exchanges on aging adults. Journal of Gerontology: Social Sciences, 52, 190–199. CrossRef Ingersoll-Dayton, B., Morgan, D., & Antonucci, T. (1997). The effects of positive and negative social exchanges on aging adults. Journal of Gerontology: Social Sciences, 52, 190–199. CrossRef
go back to reference Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism Diagnostic Interview—Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685. PubMedCrossRef Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism Diagnostic Interview—Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685. PubMedCrossRef
go back to reference Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417. PubMedCrossRef Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417. PubMedCrossRef
go back to reference McNair, D., Lorr, M., & Droppleman, L. F. (1971). Profile of mood states. San Diego, CA: Educational and Industrial Testing Service. McNair, D., Lorr, M., & Droppleman, L. F. (1971). Profile of mood states. San Diego, CA: Educational and Industrial Testing Service.
go back to reference Merz, E.-M., & Huxhold, O. (2010). Wellbeing depends on social relationship characteristics: Comparing different types and providers of support to older adults. Ageing & Society, 30, 843–857. CrossRef Merz, E.-M., & Huxhold, O. (2010). Wellbeing depends on social relationship characteristics: Comparing different types and providers of support to older adults. Ageing & Society, 30, 843–857. CrossRef
go back to reference Pearlin, L. I. (1989). The sociological study of stress. Journal of Health and Social Behavior, 30, 241–256. PubMedCrossRef Pearlin, L. I. (1989). The sociological study of stress. Journal of Health and Social Behavior, 30, 241–256. PubMedCrossRef
go back to reference Pottie, C. G., Cohen, J., & Ingram, K. M. (2009). Parenting a child with autism: Contextual factors associated with enhanced daily parental mood. Journal of Pediatric Psychology, 34, 419–429. PubMedCrossRef Pottie, C. G., Cohen, J., & Ingram, K. M. (2009). Parenting a child with autism: Contextual factors associated with enhanced daily parental mood. Journal of Pediatric Psychology, 34, 419–429. PubMedCrossRef
go back to reference Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401. CrossRef Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401. CrossRef
go back to reference Rook, K. S. (1984). The negative side of social interaction: Impact on psychological well-being. Journal of Personality and Social Psychology, 46, 1097–1108. PubMedCrossRef Rook, K. S. (1984). The negative side of social interaction: Impact on psychological well-being. Journal of Personality and Social Psychology, 46, 1097–1108. PubMedCrossRef
go back to reference Rook, K. S. (2001). Emotional health and positive versus negative social exchanges: A daily diary analysis. Applied Developmental Science, 5, 86–97. CrossRef Rook, K. S. (2001). Emotional health and positive versus negative social exchanges: A daily diary analysis. Applied Developmental Science, 5, 86–97. CrossRef
go back to reference Seltzer, M. M., Greenberg, J. S., Hong, J., Smith, L. E., Almeida, D. M., Coe, C., et al. (2010). Maternal cortisol levels and child behavior problems in families of adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40, 457–469. PubMedCrossRef Seltzer, M. M., Greenberg, J. S., Hong, J., Smith, L. E., Almeida, D. M., Coe, C., et al. (2010). Maternal cortisol levels and child behavior problems in families of adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40, 457–469. PubMedCrossRef
go back to reference Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatric and Adolescent Medicine, 165, 141–146. CrossRef Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatric and Adolescent Medicine, 165, 141–146. CrossRef
go back to reference Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. S., Almeida, D. M., & Bishop, S. (2010). Daily experiences among mothers of adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40, 167–178. PubMedCrossRef Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. S., Almeida, D. M., & Bishop, S. (2010). Daily experiences among mothers of adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40, 167–178. PubMedCrossRef
go back to reference Smith, L. E., Seltzer, M. M., & Greenberg, J. S. (2011). Daily health symptoms of mothers of adolescents and adults with fragile X syndrome and mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders. doi: 10.​1007/​s10803-011-1422-7. Smith, L. E., Seltzer, M. M., & Greenberg, J. S. (2011). Daily health symptoms of mothers of adolescents and adults with fragile X syndrome and mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders. doi: 10.​1007/​s10803-011-1422-7.
go back to reference Stack, S., & Eshleman, J. R. (1998). Marital status and happiness: A 17-nation study. Journal of Marriage and the Family, 60, 527–536. CrossRef Stack, S., & Eshleman, J. R. (1998). Marital status and happiness: A 17-nation study. Journal of Marriage and the Family, 60, 527–536. CrossRef
go back to reference Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574. PubMedCrossRef Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574. PubMedCrossRef
go back to reference Weiss, M. L. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130. PubMedCrossRef Weiss, M. L. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130. PubMedCrossRef
go back to reference Windsor, T. D., & Anstey, K. J. (2010). Age differences in psychosocial predictors of positive and negative affect: A longitudinal investigation of young, midlife, and older adults. Psychology and Aging, 25, 641–652. PubMedCrossRef Windsor, T. D., & Anstey, K. J. (2010). Age differences in psychosocial predictors of positive and negative affect: A longitudinal investigation of young, midlife, and older adults. Psychology and Aging, 25, 641–652. PubMedCrossRef
Metagegevens
Titel
Social Support and Well-being at Mid-Life Among Mothers of Adolescents and Adults with Autism Spectrum Disorders
Auteurs
Leann E. Smith
Jan S. Greenberg
Marsha Mailick Seltzer
Publicatiedatum
01-09-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1420-9

Andere artikelen Uitgave 9/2012

Journal of Autism and Developmental Disorders 9/2012 Naar de uitgave