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Gepubliceerd in: Journal of Autism and Developmental Disorders 5/2012

01-05-2012 | Original Paper

Service and Wider Societal Costs of Very Young Children with Autism in the UK

Auteurs: Barbara Barrett, Sarah Byford, Jessica Sharac, Kristelle Hudry, Kathy Leadbitter, Kathryn Temple, Catherine Aldred, Vicky Slonims, Jonathan Green, PACT Consortium

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2012

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Abstract

Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24–60 months with autism, report family out-of-pocket expenses and productivity losses, and explore the relationship between family characteristics and costs. Children received a wide range of hospital and community services including relatively high levels of contact with speech and language therapists and paediatricians. Total service costs varied greatly (mean £430 per month; range £53 to £1,116), with some families receiving little statutory support. Higher costs were associated with increasing age and symptom severity.
Literatuur
go back to reference Barber, J. A., & Thompson, S. G. (1998). Analysis and interpretation of cost data in randomised controlled trials: Review of published studies. British Medical Journal, 317, 1195–1200. PubMedCrossRef Barber, J. A., & Thompson, S. G. (1998). Analysis and interpretation of cost data in randomised controlled trials: Review of published studies. British Medical Journal, 317, 1195–1200. PubMedCrossRef
go back to reference Blough, D. K., Madden, C. W., & Hornbrook, M. C. (1999). Modeling risk using generalized linear models. Journal of Health Economics, 18, 153–171. PubMedCrossRef Blough, D. K., Madden, C. W., & Hornbrook, M. C. (1999). Modeling risk using generalized linear models. Journal of Health Economics, 18, 153–171. PubMedCrossRef
go back to reference British Medical Association and Royal Pharmaceutical Society of Great Britain. (2007). British National Formulary. London: BMJ Books/Pharmaceutical Press. British Medical Association and Royal Pharmaceutical Society of Great Britain. (2007). British National Formulary. London: BMJ Books/Pharmaceutical Press.
go back to reference Byford, S., Barrett, B., Roberts, C., Wilkinson, P., Dubicka, B., Kelvin, R. G., et al. (2007). Cost-effectiveness of selective serotonin reuptake inhibitors and routine specialist care with and without cognitive behavioural therapy in adolescents with major depression. British Journal of Psychiatry, 191, 521–527. PubMedCrossRef Byford, S., Barrett, B., Roberts, C., Wilkinson, P., Dubicka, B., Kelvin, R. G., et al. (2007). Cost-effectiveness of selective serotonin reuptake inhibitors and routine specialist care with and without cognitive behavioural therapy in adolescents with major depression. British Journal of Psychiatry, 191, 521–527. PubMedCrossRef
go back to reference Byford, S., Fiander, M., Torgerson, D. J., Barber, J. A., Thompson, S. G., Burns, T., et al. (2000). Cost-effectiveness of intensive v. standard case management for severe psychotic illness. UK700 case management trial. British Journal of Psychiatry, 176, 537–543. CrossRef Byford, S., Fiander, M., Torgerson, D. J., Barber, J. A., Thompson, S. G., Burns, T., et al. (2000). Cost-effectiveness of intensive v. standard case management for severe psychotic illness. UK700 case management trial. British Journal of Psychiatry, 176, 537–543. CrossRef
go back to reference Charman, T., & Baird, G. (2002). Assessment and diagnosis of autism spectrum disorders in pre-school years. Journal of Child Psychology and Psychiatry, 43, 289–305. PubMedCrossRef Charman, T., & Baird, G. (2002). Assessment and diagnosis of autism spectrum disorders in pre-school years. Journal of Child Psychology and Psychiatry, 43, 289–305. PubMedCrossRef
go back to reference Curtis, L. (2007). Unit costs of health and social care. Canterbury: Personal Social Services Research Unit. Curtis, L. (2007). Unit costs of health and social care. Canterbury: Personal Social Services Research Unit.
go back to reference Daycare Trust. (2008). Childcare costs survey. London: Daycare Trust. Daycare Trust. (2008). Childcare costs survey. London: Daycare Trust.
go back to reference Department of Health. (2004). National service framework for children, young people and maternity services autism exemplar. London: Department of Health. Department of Health. (2004). National service framework for children, young people and maternity services autism exemplar. London: Department of Health.
go back to reference Department of Health. (2008). NHS reference costs. London: Department of Health. Department of Health. (2008). NHS reference costs. London: Department of Health.
go back to reference Flanders, S. C., Engelhart, L., Whitworth, J., Hussein, M. A., Vanderpoel, D. R., & Sandman, T. (2006). The economic burden of pervasive developmental disorders in a privately insured population. Managed Care Interface, 19, 39–45. PubMed Flanders, S. C., Engelhart, L., Whitworth, J., Hussein, M. A., Vanderpoel, D. R., & Sandman, T. (2006). The economic burden of pervasive developmental disorders in a privately insured population. Managed Care Interface, 19, 39–45. PubMed
go back to reference Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., et al. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. Lancet, 375, 2152–2160. PubMedCrossRef Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., et al. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. Lancet, 375, 2152–2160. PubMedCrossRef
go back to reference Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13, 317–336. PubMedCrossRef Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13, 317–336. PubMedCrossRef
go back to reference Koopmanschap, M. A., & Rutten, F. (1996). A practical guide for calculating indirect costs of disease. Pharmacoeconomics, 10, 460–466. PubMedCrossRef Koopmanschap, M. A., & Rutten, F. (1996). A practical guide for calculating indirect costs of disease. Pharmacoeconomics, 10, 460–466. PubMedCrossRef
go back to reference Le Couteur, A. (2003). National autism plan for children (NAP-C). London: The National Autistic Society. Le Couteur, A. (2003). National autism plan for children (NAP-C). London: The National Autistic Society.
go back to reference Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29, 152–160. PubMedCrossRef Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29, 152–160. PubMedCrossRef
go back to reference Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., et al. (2000). The autism diagnostic observation schedule—Generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205–223. PubMedCrossRef Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., et al. (2000). The autism diagnostic observation schedule—Generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205–223. PubMedCrossRef
go back to reference Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685. PubMedCrossRef Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685. PubMedCrossRef
go back to reference Mandell, D. S., Cao, J., Ittenbach, R., & Pinto-Martin, J. (2006). Medicaid expenditures for children with autism spectrum disorders: 1994 to 1999. Journal of Autism and Developmental Disorders, 36, 475–485. PubMedCrossRef Mandell, D. S., Cao, J., Ittenbach, R., & Pinto-Martin, J. (2006). Medicaid expenditures for children with autism spectrum disorders: 1994 to 1999. Journal of Autism and Developmental Disorders, 36, 475–485. PubMedCrossRef
go back to reference Mullen, E. M. (1995). Mullen scales of early learning. Circle Pines, MN: American Guidance Service. Mullen, E. M. (1995). Mullen scales of early learning. Circle Pines, MN: American Guidance Service.
go back to reference Office for National Statistics. (2009). Key population and vital statistics 2007. Newport: Office for National Statistics. Office for National Statistics. (2009). Key population and vital statistics 2007. Newport: Office for National Statistics.
go back to reference Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902–1912. PubMedCrossRef Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902–1912. PubMedCrossRef
Metagegevens
Titel
Service and Wider Societal Costs of Very Young Children with Autism in the UK
Auteurs
Barbara Barrett
Sarah Byford
Jessica Sharac
Kristelle Hudry
Kathy Leadbitter
Kathryn Temple
Catherine Aldred
Vicky Slonims
Jonathan Green
PACT Consortium
Publicatiedatum
01-05-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1306-x

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