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Journal of Autism and Developmental Disorders
Gepubliceerd in: Journal of Autism and Developmental Disorders 8/2020

10-02-2020 | Original Paper

Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support

Auteurs: Evangelia Koukouriki, Sryridon-Georgios Soulis

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2020

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Abstract

Health-Related Quality of Life (HRQOL) and anxiety were measured in 233 school-age siblings of individuals with Autism Spectrum Disorders (ASD) and siblings of Typically Developing (TD) children in Greece. The aim of the study was to investigate for any association between siblings’ HRQOL or anxiety and parental mental health, perceived social support as well as major demographic factors. It was found that the disability group (ASD-sibs) showed elevated anxiety levels and poorer HRQOL than controls. In hierarchical multiple regression models, the anxiety of ASD-sibs was significantly associated with parental anxiety independent of parental perceived social support and demographic factors, whereas the HRQOL of ASD-sibs was associated with perceived social support independent of parental physical and mental health and demographic factors.
vorige artikel Impact of Selective Eating on Social Domains Among Transition-Age Youth with Autism Spectrum Disorder: A Qualitative Study
volgende artikel Pain Modulation Mechanisms in ASD Adults
Literatuur
Ajuwon, P. M., & Brown, I. (2012). Family quality of life in Nigeria. Journal of Intellectual Disability Research,56, 61–70.PubMed
American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Arlington, VA: American Psychiatric Association.
Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, United States, 2014. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 67(6), 1–23.
Bitsika, V., Sharpley, C. F., & Mailli, R. (2015). The influence of gender, age, psychological resilience and family interaction factors upon anxiety and depression in non-autism spectrum disorder siblings of children with an autism spectrum disorder. British Journal of Guidance and Counselling,43(2), 216–228.
Boelsma, F., Caubo-Damen, I., Schippers, A., Dane, M., & Abma, T. A. (2017). Rethinking FQoL: The dynamic interplay between Individual and Family Quality of Life. Journal of Policy and Practice in Intellectual Disabilities,14(1), 31–38.
Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing,37(3), 153–163.PubMed
Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Developmental Disabilities,17, 208–215.
Broderick, P. C., & Blewitt, P. (2015). The Life Span: Human Development for Helping Professionals (4th ed.). London: Pearson Education.
Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism,8(4), 409–423.PubMed
Canty-Mitchell, J., & Zimet, G. D. (2000). Psychometric properties of the multidimensional scale of perceived social support in urban adolescents. American Journal of Community Psychology,28(3), 91–400.
Cassimos, C. D., Syriopoulou-Delli, K. C., Tripsianis, I. G., & Tsikoulas, I. (2016). Perinatal and parental risk factors in an epidemiological study of children with autism spectrum disorder. International Journal of Developmental Disabilities,62(2), 108–116.
Chin, R., & Lee, B. Y. (2008). Analysis of data, In Principles and practice of clinical trial medicine. San Diego: Academic Press Elsevier Inc.
Chung, E. L., Burke, M. M., Arnold, C. K., & Owen, A. (2019). Comparing differences in support needs as perceived by parents of adult offspring with Down syndrome, autism spectrum disorder and cerebral palsy. Journal of Applied Research in Intellectual Disabilities,32(1), 194–205.
Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin,98(2), 310–357.PubMed
Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress Health,31, 5–12.PubMed
Davies, D. (2004). Social work practice with children and families. Child development: A practitioner’s guide (2nd ed.). New York: Guilford Press.
Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders,38(7), 1278–1291.PubMed
Davis, K., & Gavidia-Payne, S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability,34(2), 153–162.PubMed
Del Giudice, M. (2014). Middle childhood: An evolutionary-developmental synthesis. Child Developmental Perspectives,8(4), 1–8.
Del Giudice, M., Angeleri, R., & Manera, V. (2009). The juvenile transition: A developmental switch point in human life history. Developmental Review,29, 1–31.
Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff- Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal,37, 39–52.PubMed
Eapen, V., & Guan, J. (2016). Parental quality of life in autism spectrum disorder: Current status and future directions. Acta Psychopathologica,2(5), 1–4.
Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., … Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research: Official Journal of the International Society for Autism Research, 5(3), 160–179.
Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., et al. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development,35, 133–138.PubMed
Faul, F., Erdfelder, E., Buchner, A., & Lang, A.-G. (2009). Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods,41, 1149–1160.PubMed
Faul, F., Erdfelder, E., Lang, A.-G., & Buchner, A. (2007). G*Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods,39, 175–191.
Fayes, P. M., & Machin, D. (2000). Quality of life: Assessment, analysis, and interpretation. New York: Wiley.
Ferreira-Marciano, A. R., & Scheuer, C. L. (2005). Quality of life in siblings of autistic patients. Revista Brasileira de Psiquiatria,27(1), 67–69.
Garyfallos, G., Karastergiou, A., Adamopoulou, A., Moutzoukis, C., Alagiozidou, E., Mala, D., et al. (1991). Greek version of the General Health Questionnaire: accuracy of translation and validity. Acta Psychiatrica Scandinavica,84, 371–378.PubMed
Georgas, J. (1999). Psychological consequences of family structure and function: A cross-cultural approach. Psicologia Italiana,17, 38–42.
Georgas, J. (2000). Psychodynamic of family in Greece: Similarities and differences with other countries. In A. Kalantzi-Azizi & I. Besevengis (Eds.), Issues of training and sensitization of workers in Centers for Mental Health of children and adolescents (pp. 231–251). Athens: Greek Letters. [in Greek].
Giallo, R., & Gavidia-Payne, S. (2006). Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research,50(12), 937–948.PubMed
Gika, D., Artemiadis, K. A., Alexopoulos, C. E., Darviri, C., Papanikolaou, A., & Chrousos, P. G. (2012). Use of a relaxation technique by mothers of children with autism: A case-series study. Psychological Reports,111(3), 797–804.PubMed
Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to autism child symptoms and care related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders,60, 36–47.
Goldberg, D. P., & Hillier, V. F. (1979). A scaled version of the General Health Questionnaire. Psychological Medicine,9, 139–145.PubMed
Goldberg, D., & Williams, P. (1988). A user’s guide to the General Health Questionnaire. Windsor: NFER-Nelson.
Goodman, S. H., Rouse, M. H., Connell, A. M., Broth, M. R., Hall, C. M., & Heyward, D. (2011). Maternal depression and child psychopathology: A meta-analytic review. Clinical Child and Family Psychological Review,14(1), 1–27.
Hall, S. A., & Rossetti, Z. (2018). The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities,31(3), 423–434.PubMed
Hastings, R. P. (2003). Behavioral Adjustment of Siblings of Children with Autism Engaged in Applied Behavior Analysis Early Intervention Programs: The Moderating Role of Social Support. Journal of Autism and Developmental Disorders,33(2), 141–150.PubMed
Hastings, R. P. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities. Journal of Autism and Developmental Disorders,37(8), 1485–1492.PubMed
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders,43(3), 629–642.PubMed
Hodapp, R. M., & Urbano, R. C. (2007). Adult siblings of individuals with Down syndrome versus with autism: findings from a large-scale US survey. Journal of Intellectual Disability Research,51(12), 1018–1029.PubMed
Hoefman, R., Payakachat, N., van Exel, J., Kuhlthau, K., Kovacs, E., Pyne, J., et al. (2014). Caring for a child with autism spectrum disorder and parents’ quality of life: Application of the CarerQol. Journal of Autism and Developmental Disorders,44(8), 1933–1945.PubMedPubMedCentral
Hu, X., Wang, M., & Fei, X. (2012). Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research,56, 30–44.PubMed
IBM Corp. (2011). Released 2011. IBM SPSS Statistics for Windows, Version 20.0. Armonk, NY: IBM Corp.
Jokiranta-Olkoniemi, E., Cheslack-Postava, K., Sucksdorff, D., Suominen, A., Gyllenberg, D., Chudal, R., … Sourander, A. (2016). Risk of psychiatric and neurodevelopmental disorders among siblings of probands with autism spectrum disorders. JAMA Psychiatry, 73(6), 622–629.
Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. The Journal of Child Psychology and Psychiatry,43(2), 225–232.PubMed
Karaivazoglou, K., Papadaki, E., Iconomou, G., Touliatos, G., Kotsopoulos, S., & Assimakopoulos, K. (2019). Psychological distress and health-related quality of life in parents of children referred to an outpatient service for children with developmental disorders. Australasian Psychiatry,27(2), 152–156.PubMed
Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychological Review,15(3), 247–277.
Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders,41, 1214–1227.PubMed
Kheir, N., Ghoneim, O., Sandridge, A. L., Al-Ismail, M., Hayder, S., & Al-Rawi, F. (2012). Quality of life of caregivers of children with autism in Qatar. Autism,16(3), 293–298.PubMed
Kokkinis, N., Galanaki, E., & Malikiosi-Loizos, M. (2017). Factor structure and internal consistency of the Greek version of the General Health Questionnaire-28 (GHQ-28). Mental Health and Prevention,7, 21–27.
Konstantareas, M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry,30, 459–470.PubMed
Konstantareas, M. M., & Papageorgiou, V. (2006). Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD. Autism,10(6), 593–607.PubMed
Kovshoff, H., Cebula, K., Tsai, H.-W. J., & Hastings, R. P. (2017). Siblings of children with autism: the Siblings Embedded Systems Framework. Current Developmental Disorders Reports,4(2), 37–45.PubMedPubMedCentral
Kuru, N., & Piyal, B. (2018). Perceived social support and quality of life of parents of children with autism. Nigerian Journal of Clinical Practice,21(9), 1182–1189.PubMed
Kutner, M. H., Nachtsheim, C. J., & Neter, J. (2004). Applied linear regression models (4th ed.). New York: Mcgraw-Hill Irwin.
Leijdesdorff, S., van Doesum, K., Popma, A., Klaassen, R., & van Amelsvoort, T. (2017). Prevalence of psychopathology in children of parents with mental illness and/or addiction: an up to date narrative review. Current Opinion in Psychiatry,30(4), 312–317.PubMed
Lin, N., Woelfel, M. W., & Light, S. C. (1985). The buffering effect of social support subsequent to an important life event. Journal of Health and Social Behavior,26(3), 247–263.PubMed
Lovell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities,49, 226–234.PubMed
Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders,37(6), 1060–1067.PubMed
Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health-related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value Health,7(1), 79–92.PubMed
Mavropoulou, S. (2007). Developing pilot befriending schemes for people with autism spectrum disorders in a region of Greece: Lessons from Practice. Child and Adolescent Mental Health,12(3), 138–142.
McClure, E. B., Brennan, P. A., Hammen, C., & Le Brocque, R. M. (2001). Parental anxiety disorders, child anxiety disorders, and the perceived parent–child relationship in an Australian high-risk sample. Journal of Abnormal Child Psychology,1, 1–10.
McGraw-Hill, I., & Sheather, S. (2009). A modern approach to regression with R. New York: Springer.
McLaughlin, K., Gadermann, A., Hwang, I., Sampson, N., Al-Hamzawi, A., Andrade, L., et al. (2012). Parent psychopathology and offspring mental disorders: Results from the WHO World Mental Health Surveys. British Journal of Psychiatry,200(4), 290–299.PubMed
McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Maternal stress and family quality of life in response to raising a child with autism: From preschool to adolescence. Research in Developmental Disabilities,35, 3119–3130.PubMed
Moyson, T., & Roeyers, H. (2011). The quality of life of siblings of children with autism spectrum disorder. Exceptional Children,78, 41–55.
Mugno, D., Ruta, L., D’Arrigo, V. G., & Mazzone, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes,5, 22.PubMedPubMedCentral
Neece, C. L., Blacher, J., & Baker, B. L. (2010). Impact on siblings of children with intellectual disability: The role of child behavior problems. American Journal on Intellectual and Developmental Disabilities.,115(4), 291–306.PubMed
Ntre, V., Papanikolaou, K., Triantafyllou, K., Giannakopoulos, G., Kokkosi, M., & Kolaitis, G. (2018). Psychosocial and financial needs, burdens and support, and major concerns among Greek families with children with Autism Spectrum Disorder (ASD). International Journal of Caring Sciences,11(2), 985–995.
Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders,48(4), 1199–1209.PubMed
O’Neill, L. P., & Murray, L. E. (2016). Anxiety and depression symptomatology in adult siblings of individuals with different developmental disability diagnoses. Research in Developmental Disabilities,51, 116–125.PubMed
Orsmond, G. I., & Seltzer, M. M. (2009). Adolescent siblings of individuals with an autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders,39(7), 1053–1065.PubMedPubMedCentral
Papageorgiou, V., & Kalyva, E. (2010). Self-reported needs and expectations of parents of children with Autism Spectrum Disorders who participate in support groups. Research in Autism Spectrum Disorders,4, 653–660.
Petalas, M. A., Hastings, R. P., & Nash, S. (2012). Rsychological adjustment and sibling relationships in siblings of children with autism spectrum disorders: Environmental stressors and the broad autism phenotype. Research in Autism Spectrum Disorders,6, 546–555.
Pilowsky, T., Yirmina, N., Doppelt, S. O., Gross- Tsur, V., & Dhalev, R. S. (2004). Social and emotional adjustment of siblings of children with autism. Journal of Child Psychology and Psychiatry,45, 855–865.PubMed
Pisula, E., & Ziegart-Sadowska, K. (2015). Broader autism phenotype in siblings of children with ASD–a review. International Journal of Molecular Sciences,16(6), 13217–13258.PubMedPubMedCentral
Plass-Christl, A., Haller, A.-C., Otto, C., Barkmann, C., Wiegand-Grefe, S., Holling, H… Klasen, F. (2017). Parents with mental health problems and their children in a German population based sample: Results of the BELLA study. PLoS ONE, 12(7), e0180410.
Pozo, P., Sarria, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research,58, 442–458.PubMed
Psychountaki, M., Zervas, Y., Karteroliotis, K., & Spielberger, C. (2003). Reliability and validity of the Greek version of STAIC. European Journal of Psychological Assessment,19(2), 124–130.
Quintero, N., & McIntyre, L. L. (2010). Sibling adjustment and maternal well-being: An examination of families with and without a child with an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities,25(1), 37–46.PubMedPubMedCentral
Rana, P., & Mishra, D. (2015). Quality of life of unaffected siblings of children with chronic neurological disorder. Indian Journal of Pediatrics,82, 545–548.PubMed
Rankin, J. A., Tomeny, T. S., & Barry, T. D. (2017). Multi-informant assessment of siblings of youth with autism spectrum disorder: Parent-child discrepancies in at-risk classification. Research on Developmental Disability,68, 78–87.
Ravens-Sieberer, U., Auquier, P., Erhart, M. Gosch, A., Rajmil, J., Bruil, J.,… European KIDSCREEN Group. (2007). The KIDSCREEN-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research, 16(8), 1347–1356.
Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W.,…, European KIDSCREEN Group. (2005). KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Review of Pharmacoeconomics & Outcomes Research, 5(3), 353–364.
Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics,119(Supplement 1), 114–121.
Senel, H. G., & AkkoK, F. (1995). Stress levels and attitudes of normal siblings of children with disabilities. International Journal for the Advancement of Counselling,18(2), 61–68.
Shephard, E., Milosavljevic, B., Pasco, G., Jones, E. J., Gliga, T., Happé, F., …, BASIS Team (2017). Mid-childhood outcomes of infant siblings at familial high-risk of autism spectrum disorder. Autism Research: Official Journal of the International Society for Autism Research, 10(3), 546–557.
Shivers, C. M., Deisenroth, L. K., & Taylor, J. L. (2013). Patterns and predictors of anxiety among siblings of children with autism spectrum disorders. Journal of Autism and Developmental Disorders,43, 1336–1346.PubMedPubMedCentral
Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019a). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical Child and Family Psychology Review,22(2), 172–196.PubMed
Shivers, C. M., McGregor, C., & Hough, A. (2019b). Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome. Autism,23(1), 112–122.PubMed
Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders,38(5), 876–889.PubMedPubMedCentral
Spielberger, C. D. (1989). State-Trait Anxiety Inventory: Bibliography (2nd ed.). Palo Alto, CA: Consulting Psychologists Press.
Spielberger, C. D., Edwards, C. D., Lushene, R. E., Montuori, J., & Platzek, D. (1973). Preliminary manual for the state-trait anxiety inventory for children. Palo Alto, CA: Consulting Psychologists Press.
Stampoltzis, A., Defingou, G., Antonopoulou, K., Couvava, S., & Polychronopoulou, S. (2014). Psycho-social characteristics of children and adolescents with siblings on the autistic spectrum. European Journal of Special Needs Education,29(4), 474–490.
Steel, R., Poppe, L., Vandevelde, S., Hove, G., & Claes, C. (2011). Family quality of life in 25 Belgian families: Quantitative and qualitative exploration of social and professional support domains. Journal of Intellectual Disability Research,55, 1123–1135.PubMed
Theofilou, P. (2014). Translation and cultural adaptation of the Multidimensional Scale of Perceived Social Support for Greece. Health Psychology Research,2, 45–47.
Tomeny, T. S., Ellis, B. M., Rankin, J. A., & Barry, T. D. (2017). Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability without autism. Research in Developmental Disabilities,62, 104–114.PubMed
Tomeny, T. S., Rankin, J. A., Baker, T. D., Eldred, S. W., & Barry, T. D. (2019). Discrepancy in perceived social support among typically developing siblings of youth with autism spectrum disorder. Autism,23(3), 594–606.PubMed
Tsamparli, A., Tsibidaki, A., & Roussos, P. (2011). Siblings in Greek families: Raising a child with disabilities. Scandinavian Journal of Disability Research,13(1), 1–19.
Tsibidaki, A., & Tsamparli, A. (2007). Support networks for the Greek family with preschool or school age disabled children. Electronic Journal of Research in Educational Psychology,5(2), 283–306.
Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders,23, 36–49.
Veroni, E. (2019). The social stigma and the challenges of raising a child with Autism Spectrum Disorders (ASD) in Greece. Exchanges: The Interdisciplinary Research Journal,6(2), 1–29.
Verte’, S., Roeyers, H., & Buysse, A. (2003). Behavioural problems, social competence and self-concept in siblings of children with autism. Child: Care. Health and Development,29, 193–205.
Vieira, C. B., & Fernandes, F. D. (2013). Quality of life of siblings of children included in the autism spectrum. CodAS.,25, 120–127.PubMed
Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism,6, 115–130.PubMed
WHOQOL Group. (1993). Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Quality of Life Research,2(2), 153–159.
Yamada, A., Suzuki, M., Kato, M., Suzuki, M., Tanaka, S., Shindo, T….Furukawa, T. A. (2007). Emotional distress and its correlates among parents of children with pervasive developmental disorders. Psychiatry and Clinical Neuroscience, 61(6), 651–657.
Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with Autism Spectrum Disorder and psychological distress in their parents: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders,48(10), 3393–3415.PubMedPubMedCentral
Zablotsky, B., Anderson, C., & Law, P. (2013). The association between child autism symptomatology, maternal quality of life, and risk for depression. Journal of Autism and Developmental Disorders,43, 1946–1955.PubMed
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment,52, 30–41.
Zuna, N., Brown, I., & Brown, R. I. (2014). Family quality of life in intellectual and developmental disabilities: A support-based framework to enhance quality of life of other families. In R. I. Brown & R. M. Faragher (Eds.), Quality of life & disability: Knowledge application to other social and educational challenges. New York: Nova Science Publishers Inc.
Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X., & Xu, S. (2010). Theorizing about family quality of life. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 241–278). Dordrecht: Springer.
Metagegevens
Titel
Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support
Auteurs
Evangelia Koukouriki
Sryridon-Georgios Soulis
Publicatiedatum
10-02-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 8/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04395-6

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