Skip to main content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 4/2018

04-12-2017

Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors

Auteurs: Émilie Cappe, Nathalie Poirier, Carol Sankey, Andréa Belzil, Carmen Dionne

Gepubliceerd in: Quality of Life Research | Uitgave 4/2018

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

This study aimed to investigate the quality of life of parents of a child with autism spectrum disorder in Quebec.

Methods

Seventy-seven participants completed a questionnaire with socio-biographic information and five self-assessed scales, to measure perceived stress, social support and control, coping strategies, and quality of life.

Results

Perception of their child’s autonomy level, of the severity of the disorder, of the family’s income, as well as changes in their professional or familial organization influenced parents’ quality of life. Perceiving their situation as a threat predicted poor quality of life, whereas satisfaction of social support predicted good quality of life. In addition, parents who used problem solving and support-seeking coping strategies had a better relationship with their child, whereas those who used more emotion-centered coping strategies struggled. Lastly, parents who felt they had the power to contribute to their child’s development were more satisfied and less disturbed.

Conclusions

Beyond the parents’ actual situation, our results underscore the importance of paying attention to their own perception of the situation in order to provide them with appropriate support.
Literatuur
1.
go back to reference American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders. (5th edn.). Washington, DC: American Pschiatric Publishing CrossRef American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders. (5th edn.). Washington, DC: American Pschiatric Publishing CrossRef
4.
go back to reference Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. PubMedCrossRef Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. PubMedCrossRef
5.
go back to reference The WHOQOL Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef The WHOQOL Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef
9.
go back to reference Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems. Preview. Journal on Developmental Disabilities, 11, 31–46. ( Special issue on families of individuals with DD). Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems. Preview. Journal on Developmental Disabilities, 11, 31–46. ( Special issue on families of individuals with DD).
17.
go back to reference Järbrink, K. (2007). The economic consequences of autistic spectrum disorder among children in Swedish municipality. Autism, 11(5), 453–463. PubMedCrossRef Järbrink, K. (2007). The economic consequences of autistic spectrum disorder among children in Swedish municipality. Autism, 11(5), 453–463. PubMedCrossRef
18.
go back to reference Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mother’s experiences and cognitions. Research in Autism Spectrum Disorders, 4(4), 661–669. CrossRef Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mother’s experiences and cognitions. Research in Autism Spectrum Disorders, 4(4), 661–669. CrossRef
19.
go back to reference des Rivières-Pigeon, C., Courcy, I., & Dunn, M. (2014). Les parents d’enfants ayant un TSA au Québec, Portrait de la situation. In C. des Rivières-Pigeon & I. Courcy (Eds.), Autisme et TSA: Quelles réalités pour les parents au Québec ? (pp. 9–32). Québec, QC: Presses de l’Université du Québec. des Rivières-Pigeon, C., Courcy, I., & Dunn, M. (2014). Les parents d’enfants ayant un TSA au Québec, Portrait de la situation. In C. des Rivières-Pigeon & I. Courcy (Eds.), Autisme et TSA: Quelles réalités pour les parents au Québec ? (pp. 9–32). Québec, QC: Presses de l’Université du Québec.
21.
go back to reference Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34(2), 142–152. PubMedCrossRef Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34(2), 142–152. PubMedCrossRef
22.
go back to reference Lin, L.-Y., Orsmond, G. I., Coster, W. J., & Cohn, E. S. (2011). Families of adolescents and adults with autism spectrum disorders in Taiwan: The role of social support and coping in family adaptation and maternal well-being. Research in Autism Spectrum Disorders, 5(1), 144–156. CrossRef Lin, L.-Y., Orsmond, G. I., Coster, W. J., & Cohn, E. S. (2011). Families of adolescents and adults with autism spectrum disorders in Taiwan: The role of social support and coping in family adaptation and maternal well-being. Research in Autism Spectrum Disorders, 5(1), 144–156. CrossRef
25.
go back to reference Brown, R. L., Macadam-Crisp, J., Wang, M., & Iarocci, G. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 238–245. CrossRef Brown, R. L., Macadam-Crisp, J., Wang, M., & Iarocci, G. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 238–245. CrossRef
26.
go back to reference Poirier, N., & des Rivières-Pigeon, C. (2013). Les aspects positifs et les difficultés de la vie des parents d’enfants ayant un TSA. Revue québécoise de psychologie, 34(3), 1–18. Poirier, N., & des Rivières-Pigeon, C. (2013). Les aspects positifs et les difficultés de la vie des parents d’enfants ayant un TSA. Revue québécoise de psychologie, 34(3), 1–18.
27.
go back to reference Des Rivières-Pigeon, C., Courcy, I., Boucher, C., Laroche, G., Poirier, N., & Galerand, E. (2015). Le travail domestique et de soin réalisé par les mères et les pères d’enfants présentant un trouble du spectre de l’autisme (TSA) au Québec. Québec: Rapport de recherche final préparé pour l’Office des personnes handicapées du Québec (OPHQ), Drummondville. Des Rivières-Pigeon, C., Courcy, I., Boucher, C., Laroche, G., Poirier, N., & Galerand, E. (2015). Le travail domestique et de soin réalisé par les mères et les pères d’enfants présentant un trouble du spectre de l’autisme (TSA) au Québec. Québec: Rapport de recherche final préparé pour l’Office des personnes handicapées du Québec (OPHQ), Drummondville.
32.
go back to reference Allik, H., Larsson, J.-O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4(1), 1–8. PubMedCrossRefPubMedCentral Allik, H., Larsson, J.-O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4(1), 1–8. PubMedCrossRefPubMedCentral
37.
go back to reference Yamada, A., Kato, M., Suzuki, M., Suzuki, M., Watanabe, N., Akechi, T., et al. (2012). Quality of life of parents raising children with pervasive developmental disorders. BMC Psychiatry, 12, 119–126. PubMedCrossRefPubMedCentral Yamada, A., Kato, M., Suzuki, M., Suzuki, M., Watanabe, N., Akechi, T., et al. (2012). Quality of life of parents raising children with pervasive developmental disorders. BMC Psychiatry, 12, 119–126. PubMedCrossRefPubMedCentral
39.
go back to reference Liu, X., Hubbard, J. A., Fabes, R. A., & Adam, J. B. (2006). Sleep disturbances and correlates of children with autism spectrum disorders. Child Psychiatry and Human Development, 37(2), 179–191. PubMedCrossRef Liu, X., Hubbard, J. A., Fabes, R. A., & Adam, J. B. (2006). Sleep disturbances and correlates of children with autism spectrum disorders. Child Psychiatry and Human Development, 37(2), 179–191. PubMedCrossRef
40.
go back to reference Kerwin, M. E., Eicher, P. S., & Gelsinger, J. (2005). Parental report of eating problems and gastrointestinal symptoms in children with pervasive developmental disorders. Children’s Health Care, 34(3), 221–234. CrossRef Kerwin, M. E., Eicher, P. S., & Gelsinger, J. (2005). Parental report of eating problems and gastrointestinal symptoms in children with pervasive developmental disorders. Children’s Health Care, 34(3), 221–234. CrossRef
42.
go back to reference Ghanizadeh, A., Alishahi, M.-J., & Ashkani, H. (2009). Helping families for caring children with autistic spectrum disorders. Archives of Iranian Medicine, 12(5), 478–482. PubMed Ghanizadeh, A., Alishahi, M.-J., & Ashkani, H. (2009). Helping families for caring children with autistic spectrum disorders. Archives of Iranian Medicine, 12(5), 478–482. PubMed
43.
go back to reference Hutchison, L., Feder, M., Abar, B., & Winsler, A. (2016). Relations between parenting stress, parenting style, and child executive functioning for children with ADHD or autism. Journal of Child and Family Studies, 25(12), 3644–3656. CrossRef Hutchison, L., Feder, M., Abar, B., & Winsler, A. (2016). Relations between parenting stress, parenting style, and child executive functioning for children with ADHD or autism. Journal of Child and Family Studies, 25(12), 3644–3656. CrossRef
44.
go back to reference Zablotsky, B., Anderson, C., & Law, P. (2013). The association between child autism symptomatology, maternal quality of life, and risk for depression. Journal of Autism and Developmental Disorders, 43, 1946–1955. PubMedCrossRef Zablotsky, B., Anderson, C., & Law, P. (2013). The association between child autism symptomatology, maternal quality of life, and risk for depression. Journal of Autism and Developmental Disorders, 43, 1946–1955. PubMedCrossRef
48.
go back to reference Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31(1), 1–12. PubMedCrossRef Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31(1), 1–12. PubMedCrossRef
53.
go back to reference Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254. PubMedCrossRef Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254. PubMedCrossRef
54.
go back to reference Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. PubMedCrossRef Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. PubMedCrossRef
58.
go back to reference Courcy, I., & des Rivières-Pigeon, C. (2014). L’emploi, le travail et l’ «ouvrage». In C. des, Rivières-Pigeon & I. Courcy (dir.), Autisme et TSA : Quelles réalités pour les parents au Québec ? (pp. 33–52). Québec, QC: Presses de l’Université du Québec. Courcy, I., & des Rivières-Pigeon, C. (2014). L’emploi, le travail et l’ «ouvrage». In C. des, Rivières-Pigeon & I. Courcy (dir.), Autisme et TSA : Quelles réalités pour les parents au Québec ? (pp. 33–52). Québec, QC: Presses de l’Université du Québec.
59.
go back to reference Bruchon-Schweitzer, M., & Boujut, E. (2014). Psychologie de la santé. Modèles, concepts et méthodes. Paris: Dunod. CrossRef Bruchon-Schweitzer, M., & Boujut, E. (2014). Psychologie de la santé. Modèles, concepts et méthodes. Paris: Dunod. CrossRef
60.
go back to reference Lazarus, R. S., & Folkman, S. (1984). Coping and adaptation.In: W. D. Gentry (Ed.), The handbook of behavioral medicine, pp. 282–325. New York: Guilford Lazarus, R. S., & Folkman, S. (1984). Coping and adaptation.In: W. D. Gentry (Ed.), The handbook of behavioral medicine, pp. 282–325. New York: Guilford
61.
go back to reference Cappe, E. (2009). Qualité de vie et processus d’adaptation de parents d’un enfant ayant un trouble autistique ou un syndrome d’Asperger. Thèse de doctorat inédite, Université Paris Descartes, Paris Descartes. Cappe, E. (2009). Qualité de vie et processus d’adaptation de parents d’un enfant ayant un trouble autistique ou un syndrome d’Asperger. Thèse de doctorat inédite, Université Paris Descartes, Paris Descartes.
62.
go back to reference Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279–1294. PubMedCrossRef Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279–1294. PubMedCrossRef
63.
go back to reference Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2012). Étude de la qualité de vie et des processus d’adaptation des parents d’un enfant ayant un trouble autistique ou un syndrome d’Asperger: Effet de plusieurs variables socio-biographiques parentales et caractéristiques liées à l’enfant. L’Évolution Psychiatrique, 77, 181–199. CrossRef Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2012). Étude de la qualité de vie et des processus d’adaptation des parents d’un enfant ayant un trouble autistique ou un syndrome d’Asperger: Effet de plusieurs variables socio-biographiques parentales et caractéristiques liées à l’enfant. L’Évolution Psychiatrique, 77, 181–199. CrossRef
65.
go back to reference Ferguson, E., Matthews, G., & Cox, T. (1999). The appraisal of life events (ALE) scale: Reliability, and validity. British Journal of Health Psychology, 4, 97–116. CrossRef Ferguson, E., Matthews, G., & Cox, T. (1999). The appraisal of life events (ALE) scale: Reliability, and validity. British Journal of Health Psychology, 4, 97–116. CrossRef
66.
go back to reference Pruyn, J. F. A., Van Den Borne, H. W., De Reuver, R. S. M., De Boer, M. F., Bosman, L. J., & De Jong, P. C. (1988). The locus of control scale for cancer patients. Tijdschift Woor Sociales Gezondheidszorj, 66, 404–408. Pruyn, J. F. A., Van Den Borne, H. W., De Reuver, R. S. M., De Boer, M. F., Bosman, L. J., & De Jong, P. C. (1988). The locus of control scale for cancer patients. Tijdschift Woor Sociales Gezondheidszorj, 66, 404–408.
67.
go back to reference Cousson-Gélie, F., Irachabal, S., Bruchon-Schweitzer, M., Dilhuydy, J. M., & Lakdja, F. (2005). Dimensions of cancer locus of control scale as predictors of psychological adjustment and survival in breast cancer patients. Psychological Reports, 97(3), 699–711. PubMedCrossRef Cousson-Gélie, F., Irachabal, S., Bruchon-Schweitzer, M., Dilhuydy, J. M., & Lakdja, F. (2005). Dimensions of cancer locus of control scale as predictors of psychological adjustment and survival in breast cancer patients. Psychological Reports, 97(3), 699–711. PubMedCrossRef
68.
go back to reference Koleck, M. (2000). Rôle de certains facteurs psychosociaux dans l’évolution des lombalgies communes. Une étude semi-prospective en psychologie de la santé. Thèse de doctorat inédite, Université de Bordeaux, Bordeaux. Koleck, M. (2000). Rôle de certains facteurs psychosociaux dans l’évolution des lombalgies communes. Une étude semi-prospective en psychologie de la santé. Thèse de doctorat inédite, Université de Bordeaux, Bordeaux.
69.
go back to reference Vitaliano, P. P., Russo, J., Carr, J. E., Maiuro, R. D., & Becker, J. (1985). The ways of coping checklist: Revision and psychometric properties. Multivariate Behavioral Research, 20(1), 3–26. PubMedCrossRef Vitaliano, P. P., Russo, J., Carr, J. E., Maiuro, R. D., & Becker, J. (1985). The ways of coping checklist: Revision and psychometric properties. Multivariate Behavioral Research, 20(1), 3–26. PubMedCrossRef
70.
go back to reference Cousson, F., Bruchon-Schweitzer, M., Quintard, B., Nuissier, J., & Rascle, N. (1996). Analyse multidimensionnelle d’une échelle de coping : Validation française de la W.C.C. ( ways of coping checklist). Psychologie Française, 141(2), 155–164. Cousson, F., Bruchon-Schweitzer, M., Quintard, B., Nuissier, J., & Rascle, N. (1996). Analyse multidimensionnelle d’une échelle de coping : Validation française de la W.C.C. ( ways of coping checklist). Psychologie Française, 141(2), 155–164.
71.
go back to reference Cohen, L.S., (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Erlbaum. Cohen, L.S., (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Erlbaum.
72.
go back to reference Dancey, C., & Reidy, J. (2014). Statistics without maths for psychology (6th edn.). Essex: Pearson. Dancey, C., & Reidy, J. (2014). Statistics without maths for psychology (6th edn.). Essex: Pearson.
73.
go back to reference Howell, D. C. (2012). Statistical methods for psychology (8th edn.). Belmont, CA: Wadsworth. Howell, D. C. (2012). Statistical methods for psychology (8th edn.). Belmont, CA: Wadsworth.
74.
go back to reference Institut national d’excellence en santé et en services sociaux (INESSS). (2014). L’efficacité des interventions de réadaptation et des traitements pharmacologiques pour les enfants de 2 à 12 ans ayant un trouble du spectre de l’autisme (TSA). Québec: Gouvernement du Québec. Institut national d’excellence en santé et en services sociaux (INESSS). (2014). L’efficacité des interventions de réadaptation et des traitements pharmacologiques pour les enfants de 2 à 12 ans ayant un trouble du spectre de l’autisme (TSA). Québec: Gouvernement du Québec.
75.
go back to reference Benson, P. (2006). The impact of child symptom severity on depressed mood among parent of children with ASD: The mediating role of stress proliferation. Journal on Autism and Developmental Disorders, 36(5), 685–695. CrossRef Benson, P. (2006). The impact of child symptom severity on depressed mood among parent of children with ASD: The mediating role of stress proliferation. Journal on Autism and Developmental Disorders, 36(5), 685–695. CrossRef
76.
go back to reference Lyons, A., Leon, S.C., Phelps, C. E., & Dunleavy, A.M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal on Child Family Studies, 19(4), 516–524. CrossRef Lyons, A., Leon, S.C., Phelps, C. E., & Dunleavy, A.M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal on Child Family Studies, 19(4), 516–524. CrossRef
77.
go back to reference Hall, H.R., & Graff, J. (2010). Parenting challenges in families of children with autism: A pilot study. Issues in Comprehensive Pediatric Nursing, 34(1), 4–25. CrossRef Hall, H.R., & Graff, J. (2010). Parenting challenges in families of children with autism: A pilot study. Issues in Comprehensive Pediatric Nursing, 34(1), 4–25. CrossRef
78.
go back to reference Sharpe, D. L., & Baker, D. L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28(2), 247–264. CrossRef Sharpe, D. L., & Baker, D. L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28(2), 247–264. CrossRef
79.
go back to reference Tehee, E., Honan, R., & Hevey, D. (2009). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22(1), 34–42. CrossRef Tehee, E., Honan, R., & Hevey, D. (2009). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22(1), 34–42. CrossRef
80.
go back to reference Kapp, L., & Brown, O. (2011). Resilience in families adapting to autism spectrum disorder. Journal of Psychology in Africa, 21(3), 459–463. Kapp, L., & Brown, O. (2011). Resilience in families adapting to autism spectrum disorder. Journal of Psychology in Africa, 21(3), 459–463.
81.
go back to reference Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). My greatest joy and my greatest heart ache: ”Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives”. Research in Autism Spectrum Disorders, 3, 670–684. CrossRef Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). My greatest joy and my greatest heart ache: ”Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives”. Research in Autism Spectrum Disorders, 3, 670–684. CrossRef
82.
go back to reference Phelps, K. W., Cammon, S. L., Wuensch, K. L., & Golden, J. A. (2009). Enrichment, stress, and growth from parenting an individual with autism spectrum disorder. Journal of Intellectuel and Developmental Disability, 34(2), 133–141. CrossRef Phelps, K. W., Cammon, S. L., Wuensch, K. L., & Golden, J. A. (2009). Enrichment, stress, and growth from parenting an individual with autism spectrum disorder. Journal of Intellectuel and Developmental Disability, 34(2), 133–141. CrossRef
83.
go back to reference Granger, S., des Rivières-Pigeon, C., Sabourin, G., & Forget, J. (2010). Mothers’ reports of their involvement in early intensive behavioral intervention. Topics in Early Childhood Special Education, 20(10), 1–10. Granger, S., des Rivières-Pigeon, C., Sabourin, G., & Forget, J. (2010). Mothers’ reports of their involvement in early intensive behavioral intervention. Topics in Early Childhood Special Education, 20(10), 1–10.
84.
go back to reference De Montigny, F., & Lacharité, C. (2005). Perceived parental efficacy: Concept analysis. Journal of Advanced Nursing, 49(4), 387–396. PubMedCrossRef De Montigny, F., & Lacharité, C. (2005). Perceived parental efficacy: Concept analysis. Journal of Advanced Nursing, 49(4), 387–396. PubMedCrossRef
85.
go back to reference Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564–575. PubMedCrossRef Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564–575. PubMedCrossRef
88.
go back to reference Derguy, C., M’Bailara, K., Michel, G., Roux, S., & Bouvard, M. (2015). The need for an ecological approach to parental stress in autism spectrum disorders: The combined role of individual and environmental factors. Journal of Autism and Developmental Disorders, 46(6), 1895–1905. CrossRef Derguy, C., M’Bailara, K., Michel, G., Roux, S., & Bouvard, M. (2015). The need for an ecological approach to parental stress in autism spectrum disorders: The combined role of individual and environmental factors. Journal of Autism and Developmental Disorders, 46(6), 1895–1905. CrossRef
90.
go back to reference Dabrowska, A. (2008). Sense of coherence and coping with stress in fathers of children with developmental disabilities. Polish Psychological Bulletin, 39(1), 29–34. CrossRef Dabrowska, A. (2008). Sense of coherence and coping with stress in fathers of children with developmental disabilities. Polish Psychological Bulletin, 39(1), 29–34. CrossRef
91.
go back to reference Pelchat, D., & Lefebvre, H. (2005). Apprendre ensemble : Le PRIFAM Programme d’intervention interdisciplinaire et familiale. Montréal: Chenelière/McGraw-Hill. Pelchat, D., & Lefebvre, H. (2005). Apprendre ensemble : Le PRIFAM Programme d’intervention interdisciplinaire et familiale. Montréal: Chenelière/McGraw-Hill.
92.
go back to reference Sabourin, G., des Rivières-Pigeon, C., & Granger, S. (2014). Mères et intervenantes: Une relation privilégiée. In C. des Rivières-Pigeon & I. Courcy (Eds.), Autisme et TSA : Quelles réalités pour les parents au Québec? (pp. 89–110). Québec, QC: Presses de l’Université du Québec. Sabourin, G., des Rivières-Pigeon, C., & Granger, S. (2014). Mères et intervenantes: Une relation privilégiée. In C. des Rivières-Pigeon & I. Courcy (Eds.), Autisme et TSA : Quelles réalités pour les parents au Québec? (pp. 89–110). Québec, QC: Presses de l’Université du Québec.
93.
go back to reference Stipanicic, A., Couture, G., Rivest, C., & Rousseau, M. (2014). Développement des modèles théoriques d’un programme destiné à des parents d’enfants présentant un trouble du spectre de l’autisme. Le Journal sur les handicaps de développement, 20(3), 19–29. Stipanicic, A., Couture, G., Rivest, C., & Rousseau, M. (2014). Développement des modèles théoriques d’un programme destiné à des parents d’enfants présentant un trouble du spectre de l’autisme. Le Journal sur les handicaps de développement, 20(3), 19–29.
94.
go back to reference Thermidor, G. (2011). Programme d’intervention pour les parents d’enfants autistes âgés de 2 à 6 ans. Montreal: Mémoire de maîtrise inédit, Université de Montréal. Thermidor, G. (2011). Programme d’intervention pour les parents d’enfants autistes âgés de 2 à 6 ans. Montreal: Mémoire de maîtrise inédit, Université de Montréal.
95.
go back to reference Cappe, E., Poirier, N., Dionne, C., & Nader-Grosbois, N. (2014). Trouble du spectre de l’autisme: qualité de vie et processus d’ajustement de parents français, québécois et belges. Beaune: Communication présentée au XIIIème congrès international de l’AIRHM, Beaune. Cappe, E., Poirier, N., Dionne, C., & Nader-Grosbois, N. (2014). Trouble du spectre de l’autisme: qualité de vie et processus d’ajustement de parents français, québécois et belges. Beaune: Communication présentée au XIIIème congrès international de l’AIRHM, Beaune.
Metagegevens
Titel
Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors
Auteurs
Émilie Cappe
Nathalie Poirier
Carol Sankey
Andréa Belzil
Carmen Dionne
Publicatiedatum
04-12-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1757-4

Andere artikelen Uitgave 4/2018

Quality of Life Research 4/2018 Naar de uitgave