Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

Tip

Swipe om te navigeren naar een ander artikel

14-12-2018 | Original Paper

Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016

Tijdschrift:: Journal of Autism and Developmental Disorders

Auteurs:: Arun Karpur, Angela Lello, Thomas Frazier, Pamela J. Dixon, Andy J. Shih

» Toegang tot de volledige tekst krijgen

Belangrijke opmerkingen

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Abstract

Utilizing the 2016 National Survey of Children’s Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen’s Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijft u als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen uw vak. Met het online abonnement heeft u toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kunt u op uw gemak en wanneer het u het beste uitkomt verdiepen in uw vakgebied.

Meer informatie

Allin, S., Grignon, M., & Le Grand, J. (2010). Subjective unmet need and utilization of health care services in Canada: What are the equity implications? Social Science & Medicine, 70(3), 465–472. https://doi.org/10.1016/j.socscimed.2009.10.027. CrossRef

American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine. (2002). A consensus statement on health care transitions for young adults with special health care needs. Pediatrics, 110, 1304–1306.

Andersen, R. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36(1), 1–10. CrossRef

Arias, V. B., Gomez, L. E., Moran, M. L., Alcedo, M. A., Monsalve, A., & Fontanil, Y. (2018). Does quality of life differ for children with autism spectrum disorder and intellectual disability compared to peers without autism? Journal of Autism and Developmental Disorders, 48(1), 123–136. https://doi.org/10.1007/s10803-017-3289-8. CrossRefPubMed

Barham, V., Bataineh, H., & Devlin, R. A. (2017). Unmet health care and health care utilization. (WORKING PAPER #1716E).

Barry, C. L., Epstein, A. J., Marcus, S. C., Kennedy-Hendricks, A., Candon, M. K., Xie, M., & Mandell, D. S. (2017). Effects of state insurance mandates on health care use and spending for autism spectrum disorder. Health Affairs (Millwood), 36(10), 1754–1761. https://doi.org/10.1377/hlthaff.2017.0515. CrossRef

Benevides, T. W., Carretta, H. J., & Lane, S. J. (2016a). Unmet need for therapy among children with autism spectrum disorder: Results from the 2005–2006 and 2009–2010 National Survey of Children with special health care needs. Maternal and Child Health Journal, 20(4), 878–888. https://doi.org/10.1007/s10995-015-1876-x. CrossRefPubMed

Benevides, T. W., Carretta, H. J., & Mandell, D. S. (2016b). Differences in perceived need for medical, therapeutic, and family support services among children with ASD. Pediatrics, 137(Suppl 2), S176–S185. https://doi.org/10.1542/peds.2015-2851P. CrossRefPubMed

Berg, K. L., Shiu, C. S., Acharya, K., Stolbach, B. C., & Msall, M. E. (2016). Disparities in adversity among children with autism spectrum disorder: A population-based study. Developmental Medicine & Child Neurology, 58(11), 1124–1131. https://doi.org/10.1111/dmcn.13161. CrossRef

Bethell, C. D., Kogan, M. D., Strickland, B. B., Schor, E. L., Robertson, J., & Newacheck, P. W. (2011). A national and state profile of leading health problems and health care quality for US children: Key insurance disparities and across-state variations. Acad Pediatrics, 11(3 Suppl), 22–33. https://doi.org/10.1016/j.acap.2010.08.011. CrossRef

Bethell, C. D., Lindly, O., Kogan, M., & Zuckerman, K. (2014). Health care quality for children: The position of autism spectrum disorder. In V. Patel, V. Preedy, & C. Martin (Eds.), Comprehensive guide to autism (pp. 139–165). New York: Springer CrossRef

Bishop-Fitzpatrick, L., & Kind, A. J. H. (2017). A scoping review of health disparities in autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(11), 3380–3391. https://doi.org/10.1007/s10803-017-3251-9. CrossRefPubMedPubMedCentral

Call, N. A., Delfs, C. H., Reavis, A. R., & Mevers, J. L. (2015). Factors influencing treatment decisions by parents for their children with autism spectrum disorder. Research in Autism Spectrum Disorders, 15–16, 10–20. https://doi.org/10.1016/j.rasd.2015.04.001. CrossRef

Casagrande, K. A., & Ingersoll, B. R. (2017). Service delivery outcomes in ASD: Role of parent education, empowerment, and professional partnerships. Journal of Child and Family Studies, 26(9), 2386–2395. https://doi.org/10.1007/s10826-017-0759-8. CrossRef

Center on Developing Child. (2010). The foundations of lifelong health are Built in early childhood. Cambridge, MA: Center on Developing Child.

Cheak-Zamora, N. C., & Farmer, J. E. (2015). The impact of the medical home on access to care for children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(3), 636–644. https://doi.org/10.1007/s10803-014-2218-3. CrossRefPubMed

Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091. https://doi.org/10.1007/s10995-011-0833-6. CrossRefPubMed

Deavenport-Saman, A., Lu, Y., Smith, K., & Yin, L. (2016). Do children with autism overutilize the emergency department? Examining visit urgency and subsequent hospital admissions. Maternal and Child Health Journal, 20(2), 306–314. https://doi.org/10.1007/s10995-015-1830-y. CrossRefPubMed

Elder, J. H., Brasher, S., & Alexander, B. (2016). Identifying the barriers to early diagnosis and treatment in underserved individuals with autism spectrum disorders (ASD) and their families: A qualitative study. Issues in Mental Health Nursing, 37(6), 412–420. https://doi.org/10.3109/01612840.2016.1153174. CrossRefPubMed

Enayati, H., & Karpur, A. (2018). Impact of participation in school-to-work programs on postsecondary outcomes for youth with disabilities from low-income families. Journal of Disability Policy Studies. https://doi.org/10.1177/1044207318789419. CrossRef

Eskow, K. G., Chasson, G. S., & Summers, J. A. (2015). A cross-sectional cohort study of a large, statewide Medicaid home and community-based services autism waiver program. Journal of Autism and Developmental Disorders, 45(3), 626–635. https://doi.org/10.1007/s10803-014-2217-4. CrossRefPubMed

Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., & Law, P. A. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18(3), 672–680. https://doi.org/10.1007/s10995-013-1292-z. CrossRefPubMed

Frazier, T. W., Dawson, G., Murray, D., Shih, A., Sachs, J. S., & Geiger, A. (2018). Brief Report: A survey of autism research priorities across a diverse community of stakeholders. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-018-3642-6. CrossRefPubMed

Frazier, T. W., Shattuck, P. T., Narendorf, S. C., Cooper, B. P., Wagner, M., & Spitznagel, E. L. (2011). Prevalence and correlates of psychotropic medication use in adolescents with an autism spectrum disorder with and without caregiver-reported attention-deficit/hyperactivity disorder. Journal of Child and Adolescent Psychopharmacology, 21(6), 571–579. https://doi.org/10.1089/cap.2011.0057. CrossRefPubMedPubMedCentral

GAO. (2016). Youth with autism: Round table views of service needed during the transition into adulthood. Washington, DC: GAO.

Greenlee, J. L., Winter, M. A., & Diehl, J. J. (2018). Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review. Research in Autism Spectrum Disorders, 53, 41–52. https://doi.org/10.1016/j.rasd.2018.06.002. CrossRef

Hargreaves, D. S., Elliott, M. N., Viner, R. M., Richmond, T. K., & Schuster, M. A. (2015). Unmet health care need in US adolescents and adult health outcomes. Pediatrics, 136(3), 513–520. https://doi.org/10.1542/peds.2015-0237. CrossRefPubMed

Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bolte, S. (2016). Premature mortality in autism spectrum disorder. British Journal of Psychiatry, 208(3), 232–238. https://doi.org/10.1192/bjp.bp.114.160192. CrossRefPubMed

Hull, L., Mandy, W., & Petrides, K. V. (2017). Behavioural and cognitive sex/gender differences in autism spectrum condition and typically developing males and females. Autism, 21(6), 706–727. https://doi.org/10.1177/1362361316669087. CrossRefPubMed

Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M. C., & Mandy, W. (2017). “Putting on My Best Normal”: Social camouflaging in adults with autism spectrum conditions. Journal of Autism and Developmental Disorders, 47(8), 2519–2534. https://doi.org/10.1007/s10803-017-3166-5. CrossRefPubMedPubMedCentral

Karp, E. A., Dudovitz, R., Nelson, B. B., Shih, W., Gulsrud, A., Orlich, F., et al. (2018). Family characteristics and children’s receipt of autism services in low-resourced families. Pediatrics, 141(s4), S280–S286. https://doi.org/10.1542/peds.2016-4300D. CrossRefPubMed

Kerns, C., & Lee, B. (2015). The relationship between adverse childhood experiences and autism spectrum disorder in an epidemiological sample from the United States. European Psychiatry. https://doi.org/10.1016/s0924-9338(15)30585-x. CrossRef

Kerns, C. M., Newschaffer, C. J., Berkowitz, S., & Lee, B. K. (2017). Brief Report: Examining the association of autism and adverse childhood experiences in the National Survey of Children’s Health: The important role of income and co-occurring mental health conditions. Journal of Autism and Developmental Disorders, 47(7), 2275–2281. https://doi.org/10.1007/s10803-017-3111-7. CrossRefPubMedPubMedCentral

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. https://doi.org/10.1542/peds.2008-1057. CrossRefPubMed

Kurzius-Spencer, M., Zahorodny, W., Rosenberg, C. R., White, T., Durkin, M. S., Imm, P., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. Morbidity and Mortality Weekly Report, 67(6), 1–23.

Kvalseth, T. O. (1985). Cautionary note about R2. The American Statistician, 39(4), 279–285.

Leslie, D. L., Iskandarani, K., Dick, A. W., Mandell, D. S., Yu, H., Velott, D., et al. (2017). The effects of medicaid home and community-based services waivers on unmet needs among children with autism spectrum disorder. Medical Care, 55(1), 57–63. https://doi.org/10.1097/MLR.0000000000000621. CrossRefPubMedPubMedCentral

Leslie, D. L., Iskandarani, K., Velott, D. L., Stein, B. D., Mandell, D. S., Agbese, E., & Dick, A. W. (2017). Medicaid waivers targeting children with autism spectrum disorder reduce the need for parents to stop working. Health Affairs (Millwood), 36(2), 282–288. https://doi.org/10.1377/hlthaff.2016.1136. CrossRef

Magana, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012). Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Journal of Intellectual and Developmental Disability, 50(4), 287–299. https://doi.org/10.1352/1934-9556-50.4.287. CrossRef

Magana, S., Parish, S. L., & Son, E. (2015). Have racial and ethnic disparities in the quality of health care relationships changed for children with developmental disabilities and ASD? American Journal on Intellectual and Developmental Disabilities, 120(6), 504–513. https://doi.org/10.1352/1944-7558-120.6.504. CrossRefPubMed

Markowitz, L. A., Reyes, C., Embacher, R. A., Speer, L. L., Roizen, N., & Frazier, T. W. (2016). Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders. Autism, 20(7), 832–844. https://doi.org/10.1177/1362361315611382. CrossRefPubMed

Medical Home Initiatives for Children With Special Needs Project Advisory Committee. (2002). The medical home. Pediatrics, 10(1), 184–186. CrossRef

Mire, S. S., Gealy, W., Kubiszyn, T., Burridge, A. B., & Goin-Kochel, R. P. (2015). Parent perceptions about autism spectrum disorder influence treatment choices. Focus on Autism and Other Developmental Disabilities, 32(4), 305–318. https://doi.org/10.1177/1088357615610547. CrossRef

Mistry, K. B., Minkovitz, C. S., Riley, A. W., Johnson, S. B., Grason, H. A., Dubay, L. C., & Guyer, B. (2012). A new framework for childhood health promotion: The role of policies and programs in building capacity and foundations of early childhood health. American Journal of Public Health, 102(9), 1688–1696. https://doi.org/10.2105/AJPH.2012. CrossRefPubMedPubMedCentral

Neumeyer, A. M., Anixt, J., Chan, J., Perrin, J., Murray, D., Coury, D. L., et al. (2018). Identifying associations among co-occurring medical conditions in children with autism spectrum disorders. Academic Pediatrics. https://doi.org/10.1016/j.acap.2018.06.014. CrossRefPubMed

Ng, T., Stone, J., & Harrington, C. (2015). Medicaid home and community-based services: How consumer access is restricted by state policies. Journal of Aging & Social Policy, 27(1), 21–46. https://doi.org/10.1080/08959420.2015.969078. CrossRef

Parish, S. L., Thomas, K. C., Williams, C. S., & Crossman, M. K. (2015). Autism and families’ financial burden: The association with health insurance coverage. American Journal on Intellectual and Developmental Disabilities, 120(2), 166–175. https://doi.org/10.1352/1944-7558-120.2.166. CrossRefPubMed

Rigles, B. (2017). The relationship between adverse childhood events, resiliency and health among children with autism. Journal of Autism and Developmental Disorders, 47(1), 187–202. https://doi.org/10.1007/s10803-016-2905-3. CrossRefPubMed

Shea, L. L., Xie, M., Turcotte, P., Marcus, S., Field, R., Newschaffer, C., & Mandell, D. (2018). Brief Report: Service use and associated expenditures among adolescents with autism spectrum disorder transitioning to adulthood. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-018-3563-4. CrossRefPubMed

Sobotka, S. A., Francis, A., & Vander, P., & Booth, K. (2016). Associations of family characteristics with perceptions of care among parents of children with autism. Child: Care, Health and Development, 42(1), 135–140. https://doi.org/10.1111/cch.12290. CrossRef

Stein, J. A., Andersen, R., & Gelberg, L. (2007). Applying the Gelberg-Andersen behavioral model for vulnerable populations to health services utilization in homeless women. Journal of Health Psychology, 12(5), 791–804. https://doi.org/10.1177/1359105307080612. CrossRefPubMed

Tint, A., Weiss, J. A., & Lunsky, Y. (2017). Identifying the clinical needs and patterns of health service use of adolescent girls and women with autism spectrum disorder. Autism Research, 10(9), 1558–1566. https://doi.org/10.1002/aur.1806. CrossRefPubMed

Tjur, T. (2009). Coefficients of determination in logistic regression models—A new proposal: The coefficient of discrimination. The American Statistician, 63(4), 366–372. CrossRef

Turcotte, P., Mathew, M., Shea, L. L., Brusilovskiy, E., & Nonnemacher, S. L. (2016). Service needs across the lifespan for individuals with autism. Journal of Autism and Developmental Disorders, 46(7), 2480–2489. https://doi.org/10.1007/s10803-016-2787-4. CrossRefPubMed

Velott, D. L., Agbese, E., Mandell, D., Stein, B. D., Dick, A. W., Yu, H., & Leslie, D. L. (2016). Medicaid 1915(c) Home- and Community-Based Services waivers for children with autism spectrum disorder. Autism, 20(4), 473–482. https://doi.org/10.1177/1362361315590806. CrossRefPubMed

Wilson, M., Hamilton, D., Whelan, T., & Pilkington, P. (2018). A systematic review of factors related to parents’ treatment decisions for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 48, 17–35. https://doi.org/10.1016/j.rasd.2018.01.004. CrossRef

Zablotsky, B., Pringle, B. A., Colpe, L. J., Kogan, M. D., Rice, C., & Blumberg, S. J. (2015). Service and treatment use among children diagnosed with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 36(2), 98–105. https://doi.org/10.1097/DBP.0000000000000127. CrossRefPubMedPubMedCentral

Titel: Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016
Auteurs:: Arun Karpur
Angela Lello
Thomas Frazier
Pamela J. Dixon
Andy J. Shih
Publicatiedatum: 14-12-2018
DOI: https://doi.org/10.1007/s10803-018-3862-9
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

Bohn Stafleu van Loghum