Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2022

21-01-2022 | Original Paper

Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers

Auteurs: Monica L. Gordillo, Andrea Chu, Kristin Long

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2022

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore how Latina and non-Latina mothers experience similar encounters with autism services. Twenty Latina and non-Latina mothers completed semi-structured interviews regarding their experiences accessing services. Data were analyzed using applied thematic analysis. Ethnicity-based differences emerged in mothers’ service-use motivations (i.e., desiring ongoing support vs. eventual departure), service evaluations (i.e., dissatisfaction vs. satisfaction), and service-seeking approaches (i.e., proactive vs. reactive). Findings illustrate how these processes underlying service engagement may contribute to service disparities for Latino children.
Voetnoten
1
The term, “individuals on the autism spectrum” is used throughout as a middle ground between the person-first language recommended by the APA style guide and the identity-first language preferred by autistic self-advocates (Kenny et al., 2016).
 
Literatuur
go back to reference Angell, A. M., Empey, A., & Zuckerman, K. E. (2018). A review of diagnosis and service disparities among children with autism from racial and ethnic minority groups in the United States. International Review of Research in Developmental Disabilities, 55, 145–180.CrossRef Angell, A. M., Empey, A., & Zuckerman, K. E. (2018). A review of diagnosis and service disparities among children with autism from racial and ethnic minority groups in the United States. International Review of Research in Developmental Disabilities, 55, 145–180.CrossRef
go back to reference Brantlinger, E., Jimenez, R., Klingner, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71(2), 195–207.CrossRef Brantlinger, E., Jimenez, R., Klingner, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71(2), 195–207.CrossRef
go back to reference Bronfenbrenner, U. (1992). Ecological systems theory. In R. Vasta (Ed.), Six theories of child development: Revised formulations and current issues (pp. 187–249). Jessica Kingsley Publishers. Bronfenbrenner, U. (1992). Ecological systems theory. In R. Vasta (Ed.), Six theories of child development: Revised formulations and current issues (pp. 187–249). Jessica Kingsley Publishers.
go back to reference Committee on National Statistics, Division of Behavioral and Social Sciences and Education, National Academies of Sciences, Engineering, and Medicine. (2017). The economic and fiscal consequences of immigration. National Academies Press. Committee on National Statistics, Division of Behavioral and Social Sciences and Education, National Academies of Sciences, Engineering, and Medicine. (2017). The economic and fiscal consequences of immigration. National Academies Press.
go back to reference Constantino, J. N., Davis, S. A., Todd, R. D., Schindler, M. K., Gross, M. M., Brophy, S. L., … Reich, W. (2003). Validation of a brief quantitative measure of autistic traits: Comparison of the social responsiveness scale with the autism diagnostic interview-revised. Journal of Autism and Developmental Disorders, 33(4), 427–433. Constantino, J. N., Davis, S. A., Todd, R. D., Schindler, M. K., Gross, M. M., Brophy, S. L., … Reich, W. (2003). Validation of a brief quantitative measure of autistic traits: Comparison of the social responsiveness scale with the autism diagnostic interview-revised. Journal of Autism and Developmental Disorders, 33(4), 427–433.
go back to reference Feinberg, E., Abufhele, M., Sandler, J., Augustyn, M., Cabral, H., Chen, N., et al. (2016). Reducing disparities in timely autism diagnosis through family navigation: Results from a randomized pilot trial. Psychiatric Services, 67(8), 912–915.CrossRefPubMed Feinberg, E., Abufhele, M., Sandler, J., Augustyn, M., Cabral, H., Chen, N., et al. (2016). Reducing disparities in timely autism diagnosis through family navigation: Results from a randomized pilot trial. Psychiatric Services, 67(8), 912–915.CrossRefPubMed
go back to reference Feinberg, E., Augustyn, M., Fitzgerald, E., Sandler, J., Suarez, Z. F. C., Chen, N., et al. (2014). Improving maternal mental health after a child’s diagnosis of autism spectrum disorder: Results from a randomized clinical trial. JAMA Pediatrics, 168(1), 40–46.CrossRefPubMed Feinberg, E., Augustyn, M., Fitzgerald, E., Sandler, J., Suarez, Z. F. C., Chen, N., et al. (2014). Improving maternal mental health after a child’s diagnosis of autism spectrum disorder: Results from a randomized clinical trial. JAMA Pediatrics, 168(1), 40–46.CrossRefPubMed
go back to reference Feinberg, E., Kuhn, J., Eilenberg, J. S., Levinson, J., Patts, G., Cabral, H., & Broder-Fingert, S. (2020). Improving family navigation for children with autism: A comparison of two pilot randomized controlled trials. Academic Pediatrics, 21, 265.CrossRefPubMedPubMedCentral Feinberg, E., Kuhn, J., Eilenberg, J. S., Levinson, J., Patts, G., Cabral, H., & Broder-Fingert, S. (2020). Improving family navigation for children with autism: A comparison of two pilot randomized controlled trials. Academic Pediatrics, 21, 265.CrossRefPubMedPubMedCentral
go back to reference Finke, E., Drager, K., & Serpentine, E. C. (2015). “It’s not humanly possible to do everything”: Perspectives on intervention decision-making processes of parents of children with autism spectrum disorders. Perspectives on Language Learning and Education, 22(1), 13–21. https://doi.org/10.1044/lle22.1.13CrossRef Finke, E., Drager, K., & Serpentine, E. C. (2015). “It’s not humanly possible to do everything”: Perspectives on intervention decision-making processes of parents of children with autism spectrum disorders. Perspectives on Language Learning and Education, 22(1), 13–21. https://​doi.​org/​10.​1044/​lle22.​1.​13CrossRef
go back to reference Flores, G. (2010). Racial and ethnic disparities in the health and health care of children. Pediatrics, 125(4), e979–e1020.CrossRefPubMed Flores, G. (2010). Racial and ethnic disparities in the health and health care of children. Pediatrics, 125(4), e979–e1020.CrossRefPubMed
go back to reference Gonzalez-Barrera, A. (2020). The ways Hispanics describe their identity vary across immigrant generations. Pew Research Center. Gonzalez-Barrera, A. (2020). The ways Hispanics describe their identity vary across immigrant generations. Pew Research Center.
go back to reference Guerrero, A. D., Rodriguez, M. A., & Flores, G. (2011). Disparities in provider elicitation of parents’ developmental concerns for US children. Pediatrics, 128(5), 901–909.CrossRefPubMed Guerrero, A. D., Rodriguez, M. A., & Flores, G. (2011). Disparities in provider elicitation of parents’ developmental concerns for US children. Pediatrics, 128(5), 901–909.CrossRefPubMed
go back to reference Guest, G., MacQueen, K., & Namey, E. (2012). Applied thematic analysis. Sage Publications.CrossRef Guest, G., MacQueen, K., & Namey, E. (2012). Applied thematic analysis. Sage Publications.CrossRef
go back to reference Hennink, M., Hutter, I., & Bailey, A. (2020). Qualitative research methods. Sage Publications. Hennink, M., Hutter, I., & Bailey, A. (2020). Qualitative research methods. Sage Publications.
go back to reference Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442–462.CrossRefPubMed Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442–462.CrossRefPubMed
go back to reference Lopez, K., Xu, Y., Magana, S., & Guzman, J. (2018). Mother’s reaction to autism diagnosis: A qualitative analysis comparing Latino and White parents. Journal of Rehabilitation, 84(1), 41. Lopez, K., Xu, Y., Magana, S., & Guzman, J. (2018). Mother’s reaction to autism diagnosis: A qualitative analysis comparing Latino and White parents. Journal of Rehabilitation, 84(1), 41.
go back to reference Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1.CrossRefPubMedCentral Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1.CrossRefPubMedCentral
go back to reference Magaña, S., Lopez, K., Salkas, K., Iland, E., Morales, M. A., Garcia Torres, M., Zeng, W., & Machalicek, W. (2020). A randomized waitlist-control group study of a culturally tailored parent education intervention for Latino parents of children with ASD. Journal of Autism and Developmental Disorders, 50(1), 250–262. https://doi.org/10.1007/s10803-019-04252-1CrossRefPubMed Magaña, S., Lopez, K., Salkas, K., Iland, E., Morales, M. A., Garcia Torres, M., Zeng, W., & Machalicek, W. (2020). A randomized waitlist-control group study of a culturally tailored parent education intervention for Latino parents of children with ASD. Journal of Autism and Developmental Disorders, 50(1), 250–262. https://​doi.​org/​10.​1007/​s10803-019-04252-1CrossRefPubMed
go back to reference Morse, J. M., Barrett, M., Mayan, M., Olson, K., & Spiers, J. (2002). Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods, 1(2), 13–22.CrossRef Morse, J. M., Barrett, M., Mayan, M., Olson, K., & Spiers, J. (2002). Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods, 1(2), 13–22.CrossRef
go back to reference Mulvaney-Day, N. E., Alegria, M., & Sribney, W. (2007). Social cohesion, social support, and health among Latinos in the United States. Social Science & Medicine, 64(2), 477–495.CrossRef Mulvaney-Day, N. E., Alegria, M., & Sribney, W. (2007). Social cohesion, social support, and health among Latinos in the United States. Social Science & Medicine, 64(2), 477–495.CrossRef
go back to reference Stahmer, A. C., Vejnoska, S., Iadarola, S., Straiton, D., Segovia, F. R., Luelmo, P., Morgan, E. H., Lee, H. S., Javed, A., Bronstein, B., Hochheimer, S., Cho, E., Aranbarri, A., Mandell, D., Hassrick, E. M., Smith, T., & Kasari, C. (2019). Caregiver voices: Cross-cultural input on improving access to autism services. Journal of Racial and Ethnic Health Disparities, 6(4), 752–773. https://doi.org/10.1007/s40615-019-00575-yCrossRefPubMedPubMedCentral Stahmer, A. C., Vejnoska, S., Iadarola, S., Straiton, D., Segovia, F. R., Luelmo, P., Morgan, E. H., Lee, H. S., Javed, A., Bronstein, B., Hochheimer, S., Cho, E., Aranbarri, A., Mandell, D., Hassrick, E. M., Smith, T., & Kasari, C. (2019). Caregiver voices: Cross-cultural input on improving access to autism services. Journal of Racial and Ethnic Health Disparities, 6(4), 752–773. https://​doi.​org/​10.​1007/​s40615-019-00575-yCrossRefPubMedPubMedCentral
go back to reference Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.CrossRefPubMedPubMedCentral Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.CrossRefPubMedPubMedCentral
Metagegevens
Titel
Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers
Auteurs
Monica L. Gordillo
Andrea Chu
Kristin Long
Publicatiedatum
21-01-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05403-z

Andere artikelen Uitgave 12/2022

Journal of Autism and Developmental Disorders 12/2022 Naar de uitgave