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Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2022

03-01-2022 | Original Paper

Autistic Adults’ Experiences of Diagnosis Disclosure

Auteurs: Yunhe Huang, Ye In (Jane) Hwang, Samuel R. C. Arnold, Lauren P. Lawson, Amanda L. Richdale, Julian N. Trollor

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2022

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Abstract

As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults’ experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17–83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts.
Literatuur
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go back to reference Flower, R. L., Lawson, L. P., Haschek, A., Cai, R. Y., Uljarevic, M., & Richdale, A. L. (2021). Health status and service use of transition-age autistic youth in Australia: The Study of Australian school leavers with autism (SASLA) [Manuscript submitted for publication]. Olga Tennison Autism Research Centre, La Trobe University. Flower, R. L., Lawson, L. P., Haschek, A., Cai, R. Y., Uljarevic, M., & Richdale, A. L. (2021). Health status and service use of transition-age autistic youth in Australia: The Study of Australian school leavers with autism (SASLA) [Manuscript submitted for publication]. Olga Tennison Autism Research Centre, La Trobe University.
go back to reference Harper, D. (2012). Choosing a qualitative research method. In D. Harper & A. R. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: A guide for students and practitioners (1st ed., pp. 84–97). Wiley Harper, D. (2012). Choosing a qualitative research method. In D. Harper & A. R. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: A guide for students and practitioners (1st ed., pp. 84–97). Wiley
go back to reference Wood-Downie, H., Wong, B., Kovshoff, H., Cortese, S., & Hadwin, J. A. (2021). Research review: A systematic review and meta-analysis of sex/gender differences in social interaction and communication in autistic and nonautistic children and adolescents. Journal of Child Psychology and Psychiatry, 62(8), 922–936. https://​doi.​org/​10.​1111/​jcpp.​13337 CrossRefPubMed Wood-Downie, H., Wong, B., Kovshoff, H., Cortese, S., & Hadwin, J. A. (2021). Research review: A systematic review and meta-analysis of sex/gender differences in social interaction and communication in autistic and nonautistic children and adolescents. Journal of Child Psychology and Psychiatry, 62(8), 922–936. https://​doi.​org/​10.​1111/​jcpp.​13337 CrossRefPubMed
Metagegevens
Titel
Autistic Adults’ Experiences of Diagnosis Disclosure
Auteurs
Yunhe Huang
Ye In (Jane) Hwang
Samuel R. C. Arnold
Lauren P. Lawson
Amanda L. Richdale
Julian N. Trollor
Publicatiedatum
03-01-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05384-z

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