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Journal of Autism and Developmental Disorders

Gepubliceerd in:

14-07-2022 | S:I: .Developmental Approach and Targeted Treatment of Sensory Alterations

Designing a Sensory Kit to Improve the Environment for Children with Autism Spectrum Disorder in the Pediatric Emergency Department

Auteurs: Sasha Litwin, Kate Sellen

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2023

Abstract

Children with autism spectrum disorder (ASD) have more frequent use of healthcare services, including visits to the emergency department (ED). Medical care for children with ASD can be adversely affected by the highly stimulating environment of the ED. In this study, we gained insights from stakeholders with lived experience (parents of children with ASD, children with ASD, and ED healthcare providers) to create and implement a sensory equipment kit. The kit was evaluated and iteratively improved based on observations of children using the sensory equipment, satisfaction surveys from their parents, and interviews with healthcare providers in the ED. Findings from this study can be used to guide other EDs in creating their own ASD sensory kit.

vorige artikel Challenging Behavior and Parental Depression: The Effects of Everyday Stressors and Benefit Finding for Parents of Children with Autism Spectrum Disorder

volgende artikel Characterizing Accommodations by Parents of Young Children with Autism: A Mixed Methods Analysis

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Al Sharif, S., & Ratnapalan, S. (2016). Managing children with autism spectrum disorders in emergency departments. Pediatric Emergency Care, 32(2), 101–103.CrossRefPubMed

Beaver, C. (2011). Designing environments for children and adults on the autism spectrum. Good Autism Practice (GAP), 12(1), 7–11.

Boston Medical Center. (2021). Sensory accommodations. Retrieved from https://www.bmc.org/visiting-us/autism-friendly-initiative/sensory-accommodations.

Brosnan, M., Parsons, S., Good, J., & Yuill, N. (2016). How can participatory design inform the design and development of innovative technologies for autistic communities? Journal of Assistive Technologies, 10(2), 115–120.CrossRef

Cermak, S. A., Stein Duker, L. I., Williams, M. E., Lane, C. J., Dawson, M. E., Borreson, A. E., & Polido, J. C. (2015). Feasibility of a sensory-adapted dental environment for children with autism. The American Journal of Occupational Therapy, 69(3), 6903220020p1-6903220020p10.CrossRefPubMedPubMedCentral

Cineplex. (2022). Sensory friendly screenings. Retrieved from https://www.cineplex.com/Theatres/SensoryFriendly.

Cohen-Silver, J. H., Muskat, B., & Ratnapalan, S. (2014). Autism in the emergency department. Clinical Pediatrics, 53(12), 1134–1138.CrossRefPubMed

Dahlhauser, S., & Frolek, H. (2010). On the go: Sensory kit manuals for families of children with autism spectrum disorders. Occupational Therapy Capstones, 49, 1.

Drake, J., Johnson, N., Stoneck, A. V., Martinez, D. M., & Massey, M. (2012). Evaluation of a coping kit for children with challenging behaviors in a pediatric hospital. Pediatric Nursing, 38(4), 215–221.PubMed

Gabriels, R. L., Agnew, J. A., Beresford, C., Morrow, M. A., Mesibov, G., & Wamboldt, M. (2012). Improving psychiatric hospital care for pediatric patients with autism spectrum disorders and intellectual disabilities. Autism Research and Treatment, 2012, 1–7.CrossRef

Giarelli, E., Nocera, R., Turchi, R., Hardie, T. L., Pagano, R., & Yuan, C. (2014). Sensory stimuli as obstacles to emergency care for children with autism spectrum disorder. Advanced Emergency Nursing Journal, 36(2), 145–163.CrossRefPubMed

Greenhalgh, T., Jackson, C., Shaw, S., & Janamian, T. (2016). Achieving research impact through co-creation in community-based health services: Literature review and case study. The Milbank Quarterly, 94(2), 392–429.CrossRefPubMedPubMedCentral

Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism: National Survey of Children’s Health. Archives of Pediatrics & Adolescent Medicine, 160(8), 825–830.CrossRef

Harpaz, B.J. (2017). Quiet rooms for autistic children popping up at airports. The Associated Press. Retrieved April 12, 2017, from https://www.ctvnews.ca/lifestyle/quiet-rooms-for-autistic-children-popping-up-at-airports-1.3365703

Hudson, J. (2006). Prescription for success: Supporting children with autism spectrum disorders in the medical environment. Autism Asperger Publishing Company.

Leekam, S. R., Nieto, C., Libby, S. J., Wing, L., & Gould, J. (2007). Describing the sensory abnormalities of children and adults with autism. Journal of Autism and Developmental Disorders, 37(5), 894–910.CrossRefPubMed

Liu, G., Pearl, A. M., Kong, L., Leslie, D. L., & Murray, M. J. (2017). A profile on emergency department utilization in adolescents and young adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 47(2), 347–358.CrossRefPubMed

Lunsky, Y., Paquette-Smith, M., Weiss, J. A., & Lee, J. (2015). Predictors of emergency service use in adolescents and adults with autism spectrum disorder living with family. Emergency Medicine Journal, 32(10), 787–792.CrossRefPubMed

Marquez, J. J., Downey, A., & Clement, R. (2015). Walking a mile in the user’s shoes: Customer journey mapping as a method to understanding the user experience. Internet Reference Services Quarterly, 20(3–4), 135–150.CrossRef

Miller, M.E. & Flowers, E. (2016). The difference between a journey map and a service blueprint. Medium. Retrieved from https://blog.practicalservicedesign.com/the-difference-between-a-journey-map-and-a-service-blueprint-31a6e24c4a6c

Mrklas, K. J., Barber, T., Campbell-Scherer, D., Green, L. A., Li, L. C., Marlett, N., & Marshall, D. A. (2020). Co-design in the development of a mobile health app for the management of knee osteoarthritis by patients and physicians: Qualitative study. JMIR mHealth and uHealth, 8(7), e17893.CrossRefPubMedPubMedCentral

Muskat, B., Burnham Riosa, P., Nicholas, D. B., Roberts, W., Stoddart, K. P., & Zwaigenbaum, L. (2015). Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals. Autism, 19(4), 482–490.CrossRefPubMed

Nicholas, D. B., Zwaigenbaum, L., Muskat, B., Craig, W. R., Newton, A. S., Kilmer, C., & Cohen-Silver, J. (2016a). Experiences of emergency department care from the perspective of families in which a child has autism spectrum disorder. Social Work in Health Care, 55(6), 409–426.CrossRefPubMed

Nicholas, D. B., Zwaigenbaum, L., Muskat, B., Craig, W. R., Newton, A. S., Cohen-Silver, J., & Kilmer, C. (2016b). Toward practice advancement in emergency care for children with autism spectrum disorder. Pediatrics, 137(Supplement_2), S205–S211.CrossRefPubMed

O’Hagan, B., Bays-Muchmore, C., Friedman, A., Bartolotti, L., & King, S. (2019). Building an autism-friendly hospital: How we started, what we have accomplished, and where we go from here. Association of University Centers on Disabilities. Retrieved from https://www.aucd.org/template/news.cfm?news_id=14472&id=17.

Scott, I. (2009). Designing learning spaces for children on the autism spectrum. Good Autism Practice (GAP), 10(1), 36–51.

Sesame Place. (2018). Autism center—Activities & theme park resources: Sesame place. Retrieved April 5, from https://sesameplace.com/philadelphia/help/autism-resources/

Sonis, J. D., Aaronson, E. L., Lee, R. Y., Philpotts, L. L., & White, B. A. (2018). Emergency department patient experience: A systematic review of the literature. Journal of Patient Experience, 5(2), 101–106.CrossRefPubMed

Souders, M. C., Freeman, K. G., DePaul, D., & Levy, S. E. (2002). Caring for children and adolescents with autism who require challenging procedures. Pediatric Nursing 28(6), 555–562.PubMed

Spinuzzi, C. (2005). The methodology of participatory design. Technical Communication, 52(2), 163–174.

Thomas, D. R. (2006). A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 27(2), 237–246.CrossRef

Toronto Symphony Orchestra. (2022). Relaxed performances. Retrieved from https://www.tso.ca/concerts-and-events/relaxed-performances/

Vivanti, G., Kasari, C., Green, J., Mandell, D., Maye, M., & Hudry, K. (2018). Implementing and evaluating early intervention for children with autism: Where are the gaps and what should we do? Autism Research, 11(1), 16–23.CrossRefPubMed

Zwaigenbaum, L., Nicholas, D. B., Muskat, B., Kilmer, C., Newton, A. S., Craig, W. R., Ratnapalan, S., Cohen-Silver, J., Greenblatt, A., Roberts, W., & Sharon, R. (2016). Perspectives of health care providers regarding emergency department care of children and youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(5), 1725–1736.CrossRefPubMed

Titel: Designing a Sensory Kit to Improve the Environment for Children with Autism Spectrum Disorder in the Pediatric Emergency Department
Auteurs: Sasha Litwin
Kate Sellen
Publicatiedatum: 14-07-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 9/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05651-7

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