Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

08-12-2018 | Original Paper

Addressing a Gap in Healthcare Access for Transition-Age Youth with Autism: A Pilot Educational Intervention for Family Nurse Practitioner Students

Auteurs: Dorothea Iannuzzi, Patricia Rissmiller, Susan M. Duty, Susan Feeney, Maura Sullivan, Carol Curtin

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2019

Abstract

A mixed-methods randomized controlled trial pilot study evaluated an educational curriculum focused on the medical needs of transition-age youth (TAY) with autism (ASD) for family nurse practitioner students. Fourteen out of a cohort of 16 (87.5%) nursing students consented to participate in the study and were randomly assigned to either a waitlist control group (WLC) (n = 8) or an intervention group (INT) (n = 6). Three measures were used to determine pre- and post-intervention levels of self-efficacy, knowledge, and attitudes. Quantitative and qualitative data provide preliminary support that participation in intervention may improve and enhance knowledge and level of self-efficacy in working with TAY with ASD.

vorige artikel Attentional Patterns to Emotional Faces Versus Scenes in Children with Autism Spectrum Disorders

volgende artikel Discrepancies When Assessing Interpersonal Problem-Solving Skills in Autism Spectrum Disorder: A Diagnostic Indicator

Aylott, J. (2010). Improving access to health and social care for people with autism. Nursing Standard, 24(27), 47–56.CrossRefPubMed

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., et al. (2018). Prevalence of autism spectrum disorder among children ages years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MWWR Surveillance Summary, 67, 1–23.CrossRef

Bambini, D., Washburn, J., & Perkins, R. (2009). Outcomes of clinical simulation for novice nursing students: Communication, confidence, clinical judgment. Nursing Education Perspectives, 30(2), 79–82.PubMed

Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavior change. Psychological Review, 84(2), 191–215.CrossRefPubMed

Bandura, A. (1994). Self-efficacy. In V. S. Ramachaudran (Ed.), Encyclopedia of human behavior (Vol. 4, pp. 71–81). New York: Academic Press. Retrieved from http://www.des.emory.edu/mfp/BanEncycy.html.

Bauman, M. L. (2010). Medical comorbidities in autism: Challenges to diagnosis and treatment. Neurotherapeutics, 7(3), 320–327.CrossRefPubMedPubMedCentral

Betz, C. L. (2013). Health transition for adolescents with special health care needs: Where is nursing? Nursing Outlook, 61(5), 258–265. https://doi.org/10.1016/j.outlook.2012.08009.CrossRefPubMed

Birden, H., Glass, N., Wilson, I., Harrison, M., Usherwood, T., & Naas, D. (2013). Teaching professionalism in medical education: A Best Evidence Medical Education (BEME) systematic review. BEME Guide No. 25. Medical Teacher, 35(7), e1252–e1266. https://doi.org/10.3109/0142159X.2013.789132.CrossRefPubMed

Bruder, M. B., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012). Brief report: The medical care of adults with autism spectrum disorders: Identifying the needs. Journal of Autism and Developmental Disorders, 42(11), 2498–2504.CrossRefPubMed

Buie, T., Campbell, D., Fuchs, G., Furuta, G., Levy, J., Van de Water, J., et al. (2010). Evaluation, diagnosis and treatment of gastrointestinal disorders in individuals with ASDs: A consensus report. Pediatrics, 125(Suppl 1), S1–S18.CrossRefPubMed

Cooley, W. C. (2013). Adolescent health care transition in transition. Journal of the American Medical Association (JAMA) Pediatrics, 167(10), 897–899.

Corrigan, P. W., Morris, S. B., Michaels, P. J., Rafacz, J. D., & Rüsch, N. (2012). Challenging the public stigma of mental illness: A meta-analysis of outcome studies. Psychiatric Services, 63(10), 963–973.CrossRefPubMed

Croen, L. A. (2006). A comparison of healthcare utilization costs of children with and without autism spectrum disorders in a large group model health plan. Pediatrics, 118(4), 1203–1211.CrossRef

Flood, L. N., Bulgrin, A., & Morgan, B. L. (2013). Piecing together the puzzle: Development of the societal attitudes towards autism (SATA) scale. Journal of Research in Special Education, 13(2), 121–128. https://doi.org/10.1111/j.1471-3802.2011.01224.x.CrossRef

Goldenberg D., Andrusyszyn, M. A., & Iwasiw, C. (2005). The effect of classroom simulation on nursing students’ self-efficacy related to health teaching. Journal of Nursing Education, 44(7), 310–314.PubMed

Hansen, L. K. (2015). Development and validation of a survey of knowledge of autism spectrum disorder (master’s thesis). Paper 141. Retrieved from https://aquila.usm.edu/masters_theses/141/.

Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research Electronic Data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Information, 42(2), 377–381.CrossRef

Havercamp, S. M., Ratliff-Schaub, K., Navas-Macho, P., Johnson, C. N., Bush, K. L., & Souders, H. T. (2016). Preparing tomorrow’s doctors to care for patients with autism spectrum disorder. Intellectual and Developmental Disabilities, 54(3), 202–216.CrossRefPubMed

Iannuzzi, D. A., Cheng, E. R., Broder-Fingert, S., & Bauman, M. L. (2014). Brief report: Emergency department utilization by individuals with autism. Journal of Autism and Developmental Disorders, 45(4), 1096–1102. https://doi.org/10.1007/s10803-014-2251-2.CrossRef

Isacksen, J., Bryn, V., Diseth, T. H., Heiberg, A., Schjølberg, S., & Skjeldal, O. H. (2012). Children with autism spectrum disorders—The importance of medical investigations. European Journal of Paediatric Neurology, 17(1), 68–76.CrossRef

Kenney, J. W. (2006). Theory-based advanced nursing practice. In W. K. Cody (Ed.), Philosophical and theoretical perspectives for advanced nursing practice (pp. 295–309). Sudbury: Jones and Bartlett.

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), 1149–1158.CrossRef

Kolb, D. A. (1984). Experiential learning. Experience as the source of learning and development. Englewood Cliffs: Prentice Hall.

Kuiper, R. A., Murdock, N., & Grant, N. (2010). Thinking strategies of baccalaureate nursing students prompted by self-regulated learning strategies. Journal of Nursing Education, 49(8), 429–436.CrossRefPubMed

Leslie, D. L., & Martin, A. (2007). Health care expenditures associated with autism spectrum disorders. Archives of Pediatric and Adolescent Medicine, 161(4), 350–355.CrossRef

Liptak, G. S. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care, 20(4), 245–252.CrossRefPubMed

Lisko, S. A., & O’Dell, V. (2010). Integration of theory and practice: Experiential theory and nursing education. Nursing Education Perspectives, 31(3), 106–108.PubMed

Long-Bellil, L. M., Robey, K. L., Graham, C. L., Minihan, P. M., Smeltzer, S. C., & Kahn, P., & Alliance for Disability in Health Care Education (2011). Teaching medical students about disability: The use of standardized patients. Academic Medicine, 86(9), 1163–1170.CrossRefPubMed

Lotstein, D. S., Inkelas, M., Hays, R. D., Halfron, N., & Brook, R. (2008). Access to care for youth with special health care needs in the transition to adulthood. Journal of Adolescent Health, 43(1), 23–29.CrossRefPubMed

Malow, B., Adkins, K. W., McGrew, S. G., Wang, L., Goldman, S. E., Fawkes, D., & Burnette, C. (2012). Melatonin for sleep in children with autism: A controlled clinical trial examining dose, tolerability and outcomes. Journal of Autism and Developmental Disorders, 42(8), 1729–1737. https://doi.org/10.1007/s00431-011-1669-1.CrossRefPubMedPubMedCentral

Mann, K., Gordon, J., & MacLeod, A. (2009). Reflection and reflective practice in health professions education: A systematic review. Advanced Health Science Education, 14(4), 595–621.CrossRef

Mazurek, M. O., Brown, R., Curran, A., & Sohl, K. (2016). ECHO autism: A new model. Pediatrics, 56(3), 247–256. https://doi.org/10.1177/0009922816648288.CrossRef

Microsoft Corporation (2018). Description of the RAND function in Excel. n.d. Retrieved from https://support.microsoft.com/en- us/help/description-of-the-rand-function-in-excel.

Newacheck, P. W., & Kim, S. E. (2005). A national profile of health care utilization and expenditures for children with special health care needs. Archives of Pediatric and Adolescent Medicine, 159(1), 10–17.CrossRef

Operation House Call: Families Teaching Health Professionals (2018). A program of the ARC of MA. Retrieved from http://www.operationhousecall.com.

Oswald, D. P., Gilles, D. L., Cannady, M. S., Wenzel, D. B., Willis, J. H., & Bordurtha, J. N. (2013). Youth with special healthcare needs: Transition to adult health care services. Maternal and Child Health, 17(10), 1744–1752.CrossRef

Patel, M. S., & O’Hare, K. (2010). Residency training in transition of youth with childhood-onset chronic disease. Pediatrics, 126(Suppl 3), S190–S193.CrossRefPubMed

Piven, J., & Lewis, J. (2011). Autism spectrum disorders in older adults: Toward defining a research agenda. Journal of the American Geriatrics Society, 59(11), 2151–2155.CrossRefPubMed

Robb, M. (2012). Self-efficacy with application to nursing education: A concept analysis. Nursing Forum, 47(3), 166–172. https://doi.org/10.1111/j.1744-6198.2012.00267.x.CrossRefPubMed

Sandelowski, M. (2000). Whatever happened to qualitative descriptions? Research in Nursing and Health, 23, 334–340.CrossRefPubMed

Sanders, J. (2009). The use of reflection in medical education: AMEE Guide No. 44. Medical Teacher, 31, 685–695.CrossRef

Sargeant, J. M., Mann, K. V., van der Vleuten, C. P., & Metsemakers, J. F. (2009). Reflection: A link between receiving and using assessment feedback. Advances in Health Science Education, 14(3), 399–410.CrossRef

Scarpinato, N., Bradley, J., Kurbjun, K., Bateman, X., Holtzer, B., & Ely, B. (2010). Caring for the child with an ASD in the acute care setting. Journal for Specialists in Pediatric Nursing, 15(3), 244–254.CrossRefPubMed

Smeltzer, S. C., Blunt, E., Marozsan, H., & Wetzel-Effinger, L. (2014). Inclusion of disability related content in nurse practitioner curricula. Journal of the American Association of Nurse Practitioners, 27(4), 213–221.CrossRefPubMed

Souders, M. C. (2002). Caring for children and adolescents with autism who require challenging procedures. Pediatric Nursing, 28(6), 555–562.PubMed

Stata Corporation. (2017). Stata Statistical Software: Release 15. College Station: StataCorp LLC.

The WITH Foundation (2017) Formerly known as The Special Hope Foundation: Vision and Mission. Retrieved from http://www.withfoundation.org.

Voelker, R. (2002). Putting mental retardation and mental illness on health care professionals’ radar screen. Journal of the American Medical Association, 208(4), 433–435.

Warfield, M. E., & Gulley, S. (2006). Unmet need and problems accessing specialty medical and related services among children with special health care needs. Maternal and Child Health Journal, 10(2), 201–216.CrossRefPubMed

Will, D., Barnfather, J., & Lesley, M. (2013). Self-perceived autism competency of primary care nurse practitioners. The Journal of Nurse Practitioners, 9(6), 350–355.CrossRef

Yuker, H. E., Block, J. R., & Young, J. H. (1966). The measurement of attitudes towards Disabled persons [Monograph]. Retrieved from https://files.eric.ed.gov/fulltext/ED044853.pdf.

Titel: Addressing a Gap in Healthcare Access for Transition-Age Youth with Autism: A Pilot Educational Intervention for Family Nurse Practitioner Students
Auteurs: Dorothea Iannuzzi
Patricia Rissmiller
Susan M. Duty
Susan Feeney
Maura Sullivan
Carol Curtin
Publicatiedatum: 08-12-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-018-3846-9

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 4/2019

Brief Report: Challenging Behaviors in Toddlers and Preschoolers with Angelman, Prader–Willi, and Williams Syndromes

Parent-Reported Communication Abilities of Children with Sotos Syndrome: Evidence from the Children’s Communication Checklist-2

Attentional Patterns to Emotional Faces Versus Scenes in Children with Autism Spectrum Disorders

The Interactive Trauma Scale: A Web-Based Measure for Children with Autism

Sex Differences in Social Attention in Infants at Risk for Autism

When Are We Sure? Predictors of Clinician Certainty in the Diagnosis of Autism Spectrum Disorder