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08-01-2022 | Original Paper

Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort

Auteurs: Gabrielle F. Duhon, Andrea R. Simon, Danica L. Limon, Kelli L. Ahmed, Gabriela Marzano, Robin P. Goin-Kochel

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2023

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Abstract

We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with those of subspecialty clinics. Compared to subspecialty clinics, TCPs had higher proportions of Interested responses for patients with private insurance (60.9% vs. 46.2%), Dismissed responses for patients with public insurance (30.1% vs. 20.0%), and Interested responses for non-white patients (47.7% vs. 33.3%). A targeted BPA can help researchers access more diverse groups and improve equitable representation. However, select groups more often had their alert dismissed, suggesting possible selection bias among some pediatricians regarding who should receive information about study opportunities.
Literatuur
go back to reference Amorrortu, R. P., Arevalo, M., Vernon, S. W., Mainous, A. G., III., Diaz, V., McKee, M. D., Ford, M. E., & Tilley, B. C. (2018). Recruitment of racial and ethnic minorities to clinical trials conducted within specialty clinics: An intervention mapping approach. Trials, 19(1), 115.CrossRef Amorrortu, R. P., Arevalo, M., Vernon, S. W., Mainous, A. G., III., Diaz, V., McKee, M. D., Ford, M. E., & Tilley, B. C. (2018). Recruitment of racial and ethnic minorities to clinical trials conducted within specialty clinics: An intervention mapping approach. Trials, 19(1), 115.CrossRef
go back to reference Chhatre, S., Jefferson, A., Cook, R., Meeker, C. R., Kim, J. H., Hartz, K. M., Wong, Y., Caruson, A., Newman, D. K., Morales, K. H., & Jayadevappa, R. (2018). Patient-centered recruitment and retention for a randomized controlled study. Trials, 19(1), 205.CrossRef Chhatre, S., Jefferson, A., Cook, R., Meeker, C. R., Kim, J. H., Hartz, K. M., Wong, Y., Caruson, A., Newman, D. K., Morales, K. H., & Jayadevappa, R. (2018). Patient-centered recruitment and retention for a randomized controlled study. Trials, 19(1), 205.CrossRef
go back to reference Devoe, C., Gabbidon, H., Schussler, N., Cortese, L., Caplan, E., Gorman, C., Jethwani, K., Kvedar, J., & Agboola, S. (2019). Use of electronic health records to develop and implement a silent best practice alert notification system for patient recruitment in clinical research: Quality improvement initiative. Journal of Medical Internet Research Medical Informatics, 7(2), e10020. Devoe, C., Gabbidon, H., Schussler, N., Cortese, L., Caplan, E., Gorman, C., Jethwani, K., Kvedar, J., & Agboola, S. (2019). Use of electronic health records to develop and implement a silent best practice alert notification system for patient recruitment in clinical research: Quality improvement initiative. Journal of Medical Internet Research Medical Informatics, 7(2), e10020.
go back to reference Feliciano, P., Daniels, A. M., Green Snyder, L. A., et al. (2018). SPARK: A US cohort of 50,000 families to accelerate autism research. Neuron, 97(3), 488–493.CrossRef Feliciano, P., Daniels, A. M., Green Snyder, L. A., et al. (2018). SPARK: A US cohort of 50,000 families to accelerate autism research. Neuron, 97(3), 488–493.CrossRef
go back to reference Haley, S. J., Southwick, L. E., Parikh, N. S., Rivera, J., Farrar-Edwards, D., & Boden-Albala, B. (2017). Barriers and strategies for recruitment of racial and ethnic minorities: Perspectives from neurological clinical research coordinators. Journal of Racial and Ethnic Health Disparities, 4(6), 1225–1236.CrossRef Haley, S. J., Southwick, L. E., Parikh, N. S., Rivera, J., Farrar-Edwards, D., & Boden-Albala, B. (2017). Barriers and strategies for recruitment of racial and ethnic minorities: Perspectives from neurological clinical research coordinators. Journal of Racial and Ethnic Health Disparities, 4(6), 1225–1236.CrossRef
go back to reference Lai, Y. S., & Afseth, J. D. (2019). A review of the impact of utilising electronic medical records for clinical research recruitment. Clinical Trials, 16(2), 194–203.CrossRef Lai, Y. S., & Afseth, J. D. (2019). A review of the impact of utilising electronic medical records for clinical research recruitment. Clinical Trials, 16(2), 194–203.CrossRef
go back to reference Simon, A.R., Ahmed, K.L., Limon, D.L., Duhon, G.F., Marzano, G., & Goin-Kochel, R.P. (under review). Utilization of a best practice alert (BPA) at point-of-care for recruitment into a US-based autism research study. Journal of Autism and Developmental Disorders. Simon, A.R., Ahmed, K.L., Limon, D.L., Duhon, G.F., Marzano, G., & Goin-Kochel, R.P. (under review). Utilization of a best practice alert (BPA) at point-of-care for recruitment into a US-based autism research study. Journal of Autism and Developmental Disorders.
go back to reference Tilley, B. C., Mainous, A. G., III., Smith, D. W., et al. (2017). Design of a cluster-randomized minority recruitment trial: RECRUIT. Clinical Trials, 14(3), 286–298.CrossRef Tilley, B. C., Mainous, A. G., III., Smith, D. W., et al. (2017). Design of a cluster-randomized minority recruitment trial: RECRUIT. Clinical Trials, 14(3), 286–298.CrossRef
go back to reference Zamora, I., Williams, M. E., Higareda, M., Wheeler, B. Y., & Levitt, P. (2016). Brief report: Recruitment and retention of minority children for autism research. Journal of Autism and Developmental Disorders, 46(2), 698–703.CrossRef Zamora, I., Williams, M. E., Higareda, M., Wheeler, B. Y., & Levitt, P. (2016). Brief report: Recruitment and retention of minority children for autism research. Journal of Autism and Developmental Disorders, 46(2), 698–703.CrossRef
Metagegevens
Titel
Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort
Auteurs
Gabrielle F. Duhon
Andrea R. Simon
Danica L. Limon
Kelli L. Ahmed
Gabriela Marzano
Robin P. Goin-Kochel
Publicatiedatum
08-01-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05407-9