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2019 | OriginalPaper | Hoofdstuk

3. Reproductive medicine: ethical reflections

Auteurs : Guido M. W. R. de Wert, Dr Wybo J. Dondorp

Gepubliceerd in: Textbook of Obstetrics and Gynaecology

Uitgeverij: Bohn Stafleu van Loghum

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Summary

In this chapter we focus on the ethics of current developments in the context of human reproduction, ranging from preconception care to assisted reproduction, and from embryo selection to foetal therapy. What makes the ethical debate in this field so challenging is that many issues arise from the fact that the interests of several stakeholders beyond the patient may need to be taken into account. For instance: lifestyle choices in pregnancy are not just a matter of women’s autonomy, but also of parental responsibility. And in decision-making concerning genomic information the interests of family members may be at stake as well. Many of the issues that will be discussed in this chapter require further research of relevant empirical questions (preferences, impacts, etc.) as well as ethical analysis and societal debate. Although in some of these debates societal concerns about the ‘acceptability per se’ of a new development, such as germline genome editing (GLGE), may have to be addressed, ethical reflection and debate should not be regarded as limited to such questions. Beyond issues of acceptability, challenging ethical questions relate to the conditions under which a specific technology or intervention (such as preconception carrier screening) can responsibly be introduced and offered. In these debates, the input of all stakeholders (patients, professionals, society at large) is essential.
Woordenlijst
Prevention view
The view that the aim of reproductive genetic counselling and reproductive genetic screening is to reduce the number of children born with genetic disorders
Autonomy view
The view that the aim of reproductive genetic counselling and reproductive genetic screening is to provide prospective parents, at higher risk, with opportunities for meaningful reproductive choice
Medicalization
The tendency that ever more aspects of life are brought under a ‘medical gaze’ and defined as requiring medical control and intervention – a tendency mostly considered to be problematic
Standard of ‘reasonable welfare’
This standard requires professionals to refrain from assisted reproduction in situations entailing a high risk of conceiving a child with a seriously diminished quality of life
Proportionality principle
This principle requires that for a practice to be justified, the possible benefits should clearly outweigh the possible drawbacks/risks
‘Enhancement’
Refers to the application of e.g. gene editing for non-medical reasons, especially for the improvement of normal human traits
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Metagegevens
Titel
Reproductive medicine: ethical reflections
Auteurs
Guido M. W. R. de Wert
Dr Wybo J. Dondorp
Copyright
2019
Uitgeverij
Bohn Stafleu van Loghum
DOI
https://doi.org/10.1007/978-90-368-2131-5_3