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Gepubliceerd in: Quality of Life Research 4/2022

05-09-2021 | Review

Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life

Auteurs: Marisa Garcia Rodrigues, Matilde Monteiro Soares, José Daniel Rodrigues, Luís Filipe Azevedo, Pedro Pereira Rodrigues, José Carlos Areias, Maria Emília Areias

Gepubliceerd in: Quality of Life Research | Uitgave 4/2022

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Abstract

Purpose

To quantify and understand how to assess the quality of life and health-related QoL of parents with children with congenital abnormalities.

Methods

We conducted a systematic review with meta-analysis. The search was carried out in 5 bibliographic databases and in ClinicalTrials.gov. No restriction on language or date of publication was applied. This was complemented by references of the studies found and studies of evidence synthesis, manual search of abstracts of relevant congresses/scientific meetings and contact with experts.
We included primary studies (observational, quasi-experimental and experimental studies) on parents of children with CA reporting the outcome quality of life (primary outcome) of parents, independently of the intervention/exposure studied.

Results

We included 75 studies (35 observational non-comparatives, 31 observational comparatives, 4 quasi-experimental and 5 experimental studies). We identified 27 different QoL instruments. The two most frequently used individual QoL instruments were WHOQOL-Bref and SF-36. Relatively to family QoL tools identified, we emphasized PedsQL FIM, IOFS and FQOL. Non-syndromic congenital heart defects were the CA most frequently studied. Through the analysis of comparative studies, we verified that parental and familial QoL were impaired in this population.

Conclusions

This review highlights the relevance of assessing QoL in parents with children with CA and explores the diverse QoL assessment tools described in the literature. Additionally, results indicate a knowledge gap that can help to draw new paths to future research. It is essential to assess QoL as a routine in healthcare providing and to implement strategies that improve it.
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Metagegevens
Titel
Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life
Auteurs
Marisa Garcia Rodrigues
Matilde Monteiro Soares
José Daniel Rodrigues
Luís Filipe Azevedo
Pedro Pereira Rodrigues
José Carlos Areias
Maria Emília Areias
Publicatiedatum
05-09-2021
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2022
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-021-02986-z