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Gepubliceerd in: Quality of Life Research 9/2016

01-09-2016 | Review

Quality of life of individuals born preterm: a systematic review of assessment approaches

Auteurs: Martina Estevam Brom Vieira, Maria Beatriz Martins Linhares

Gepubliceerd in: Quality of Life Research | Uitgave 9/2016

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Abstract

Purpose

To review the existing literature regarding factors associated with quality of life (QoL) of individuals who were born preterm. The review focuses on assessment approaches and information sources.

Methods

A systematic review of empirical studies published in PubMed, PsycARTICLES, PsycINFO, LILACS, and SciELO databases between 2007 and 2015. Search terms were chosen that relate preterm birth to QoL.

Results

Twenty-two articles were included. Of these, ten investigated QoL in children, six investigated adolescents, and six investigated adults. All studies used generic instruments to assess QoL. There was a high rate of parental report to assess QoL in studies of children. Adolescent and adult studies most often assessed QoL through self-report. Parents of children who were born preterm reported worse QoL for their children compared with parents of children born full term. Teenagers and adults who were born preterm self-reported more positive outcomes in their QoL. The main risk factors associated with worse QoL in children who were born preterm were congenital malformations, mechanical ventilation during the neonatal phase, cognitive impairments, behavioral problems, physical disabilities, low family income, and black race.

Conclusions

Agreement between parents and children about QoL in preterm individuals was lower in younger age groups compared with older age groups. The differences in QoL throughout the different age groups may have arisen because of developmental changes or differences in the source of information used (i.e., parent report or self-report). We recommend that QoL assessments in children born preterm should consider both parent report and self-report.
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Literatuur
1.
go back to reference Bourchier, D., & Weston, P. J. (2014). Metabolic acidosis in the first 14 days of life in infants of gestation less than 26 weeks. European Journal of Pediatrics, 174, 49–54. CrossRefPubMed Bourchier, D., & Weston, P. J. (2014). Metabolic acidosis in the first 14 days of life in infants of gestation less than 26 weeks. European Journal of Pediatrics, 174, 49–54. CrossRefPubMed
2.
go back to reference Brew, N., Walker, D., & Wong, F. Y. (2014). Cerebral vascular regulation and brain injury in preterm infants. American Journal of Physiology—Regulatory, Integrative and Comparative Physiology, 306(11), R773–R786. CrossRefPubMed Brew, N., Walker, D., & Wong, F. Y. (2014). Cerebral vascular regulation and brain injury in preterm infants. American Journal of Physiology—Regulatory, Integrative and Comparative Physiology, 306(11), R773–R786. CrossRefPubMed
3.
go back to reference Fernandez, R., D’Apremont, I., Dominguez, A., & Tapia, J. L. (2014). Survival and morbidity of very low birth weight infant in a South American Neonatal Network. Archivos Argentinos de Pediatría, 112(5), 405–412. PubMed Fernandez, R., D’Apremont, I., Dominguez, A., & Tapia, J. L. (2014). Survival and morbidity of very low birth weight infant in a South American Neonatal Network. Archivos Argentinos de Pediatría, 112(5), 405–412. PubMed
4.
go back to reference Feldman, R. (2009). The development of regulatory functions from birth to 5 years: insights from premature infants. Child Development, 80(2), 544–561. CrossRefPubMed Feldman, R. (2009). The development of regulatory functions from birth to 5 years: insights from premature infants. Child Development, 80(2), 544–561. CrossRefPubMed
5.
go back to reference Woods, P. L., Rieger, I., Wocadlo, C., & Gordon, A. (2014). Predicting the outcome of specific language impairment at five years of age through early developmental assessment in preterm infants. Early Human Development, 90(10), 613–619. CrossRefPubMed Woods, P. L., Rieger, I., Wocadlo, C., & Gordon, A. (2014). Predicting the outcome of specific language impairment at five years of age through early developmental assessment in preterm infants. Early Human Development, 90(10), 613–619. CrossRefPubMed
6.
go back to reference Vieira, M. E., & Linhares, M. B. (2011). Developmental outcomes and quality of life in children born preterm at preschool- and school-age. Jornal de Pediatria (Rio de Janeiro), 87(4), 281–291. CrossRef Vieira, M. E., & Linhares, M. B. (2011). Developmental outcomes and quality of life in children born preterm at preschool- and school-age. Jornal de Pediatria (Rio de Janeiro), 87(4), 281–291. CrossRef
7.
go back to reference Michel, G., Bisegger, C., Fuhr, D. C., & Abel, T. (2009). Age and gender differences in health-related quality of life of children and adolescents in Europe: A multilevel analysis. Quality of Life Research, 18(9), 1147–1157. CrossRefPubMed Michel, G., Bisegger, C., Fuhr, D. C., & Abel, T. (2009). Age and gender differences in health-related quality of life of children and adolescents in Europe: A multilevel analysis. Quality of Life Research, 18(9), 1147–1157. CrossRefPubMed
8.
go back to reference Saigal, S., & Tyson, J. (2008). Measurement of quality of life of survivors of neonatal intensive care: Critique and implications. Seminars in Perinatology, 32(1), 59–66. CrossRefPubMed Saigal, S., & Tyson, J. (2008). Measurement of quality of life of survivors of neonatal intensive care: Critique and implications. Seminars in Perinatology, 32(1), 59–66. CrossRefPubMed
9.
go back to reference Zwicker, J. G., & Harris, S. R. (2008). Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: A systematic review. Pediatrics, 121(2), e366–e376. CrossRefPubMed Zwicker, J. G., & Harris, S. R. (2008). Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: A systematic review. Pediatrics, 121(2), e366–e376. CrossRefPubMed
10.
go back to reference Mottram, R., & Holt, J. (2010). Is gestational age a factor in determining the health-related quality of life of children and young people born preterm? A critical review of the literature. Journal of Neonatal Nursing, 16(2), 80–90. CrossRef Mottram, R., & Holt, J. (2010). Is gestational age a factor in determining the health-related quality of life of children and young people born preterm? A critical review of the literature. Journal of Neonatal Nursing, 16(2), 80–90. CrossRef
12.
go back to reference von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., Gotzsche, P. C., & Vandenbroucke, J. P. (2014). The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for reporting observational studies. International Journal of Surgery, 12, 1495–1499. CrossRef von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., Gotzsche, P. C., & Vandenbroucke, J. P. (2014). The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for reporting observational studies. International Journal of Surgery, 12, 1495–1499. CrossRef
13.
go back to reference Althabe, F., Howson, C. P., Kinney, M., & Lawn, J. (2012). Born too soon: The global action report on preterm birth. Geneva: World Health Organization. Althabe, F., Howson, C. P., Kinney, M., & Lawn, J. (2012). Born too soon: The global action report on preterm birth. Geneva: World Health Organization.
14.
go back to reference Berbis, J., Einaudi, M. A., Simeoni, M. C., Brevaut-Malaty, V., Auquier, P., d’Ercole, C., et al. (2012). Quality of life of early school-age French children born preterm: a cohort study. European Journal of Obstetrics, Gynecology, and Reproductive Biology, 162(1), 38–44. CrossRefPubMed Berbis, J., Einaudi, M. A., Simeoni, M. C., Brevaut-Malaty, V., Auquier, P., d’Ercole, C., et al. (2012). Quality of life of early school-age French children born preterm: a cohort study. European Journal of Obstetrics, Gynecology, and Reproductive Biology, 162(1), 38–44. CrossRefPubMed
15.
go back to reference Gray, P. H., O’Callaghan, M. J., & Poulsen, L. (2008). Behaviour and quality of life at school age of children who had bronchopulmonary dysplasia. Early Human Development, 84(1), 1–8. CrossRefPubMed Gray, P. H., O’Callaghan, M. J., & Poulsen, L. (2008). Behaviour and quality of life at school age of children who had bronchopulmonary dysplasia. Early Human Development, 84(1), 1–8. CrossRefPubMed
16.
go back to reference Stahlmann, N., Rapp, M., Herting, E., & Thyen, U. (2009). Outcome of extremely premature infants at early school age: Health-related quality of life and neurosensory, cognitive, and behavioral outcomes in a population-based sample in northern Germany. Neuropediatrics, 40(3), 112–119. CrossRefPubMed Stahlmann, N., Rapp, M., Herting, E., & Thyen, U. (2009). Outcome of extremely premature infants at early school age: Health-related quality of life and neurosensory, cognitive, and behavioral outcomes in a population-based sample in northern Germany. Neuropediatrics, 40(3), 112–119. CrossRefPubMed
17.
go back to reference Hack, M., Forrest, C. B., Schluchter, M., Taylor, H. G., Drotar, D., Holmbeck, G., et al. (2011). Health status of extremely low-birth-weight children at 8 years of age: Child and parent perspective. Archives of Pediatrics and Adolescent Medicine, 165(10), 922–927. CrossRefPubMedPubMedCentral Hack, M., Forrest, C. B., Schluchter, M., Taylor, H. G., Drotar, D., Holmbeck, G., et al. (2011). Health status of extremely low-birth-weight children at 8 years of age: Child and parent perspective. Archives of Pediatrics and Adolescent Medicine, 165(10), 922–927. CrossRefPubMedPubMedCentral
18.
go back to reference Petrou, S., Abangma, G., Johnson, S., Wolke, D., & Marlow, N. (2009). Costs and health utilities associated with extremely preterm birth: Evidence from the EPICure study. Value in Health, 12(8), 1124–1134. CrossRefPubMed Petrou, S., Abangma, G., Johnson, S., Wolke, D., & Marlow, N. (2009). Costs and health utilities associated with extremely preterm birth: Evidence from the EPICure study. Value in Health, 12(8), 1124–1134. CrossRefPubMed
19.
go back to reference Petrou, S., Johnson, S., Wolke, D., Hollis, C., Kochhar, P., & Marlow, N. (2010). Economic costs and preference-based health-related quality of life outcomes associated with childhood psychiatric disorders. The British Journal of Psychiatry, 197(5), 395–404. CrossRefPubMed Petrou, S., Johnson, S., Wolke, D., Hollis, C., Kochhar, P., & Marlow, N. (2010). Economic costs and preference-based health-related quality of life outcomes associated with childhood psychiatric disorders. The British Journal of Psychiatry, 197(5), 395–404. CrossRefPubMed
20.
go back to reference Wolke, D., Chernova, J., Eryigit-Madzwamuse, S., Samara, M., Zwierzynska, K., & Petrou, S. (2013). Self and parent perspectives on health-related quality of life of adolescents born very preterm. The Journal of Pediatrics, 163(4), 1020–1026.e2. CrossRef Wolke, D., Chernova, J., Eryigit-Madzwamuse, S., Samara, M., Zwierzynska, K., & Petrou, S. (2013). Self and parent perspectives on health-related quality of life of adolescents born very preterm. The Journal of Pediatrics, 163(4), 1020–1026.e2. CrossRef
21.
go back to reference Verrips, G., Brouwer, L., Vogels, T., Taal, E., Drossaert, C., Feeny, D., et al. (2012). Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight. Health and Quality of Life Outcomes, 10, 49. CrossRefPubMedPubMedCentral Verrips, G., Brouwer, L., Vogels, T., Taal, E., Drossaert, C., Feeny, D., et al. (2012). Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight. Health and Quality of Life Outcomes, 10, 49. CrossRefPubMedPubMedCentral
22.
go back to reference Gray, R., Petrou, S., Hockley, C., & Gardner, F. (2007). Self-reported health status and health-related quality of life of teenagers who were born before 29 weeks’ gestational age. Pediatrics, 120(1), e86–e93. CrossRefPubMed Gray, R., Petrou, S., Hockley, C., & Gardner, F. (2007). Self-reported health status and health-related quality of life of teenagers who were born before 29 weeks’ gestational age. Pediatrics, 120(1), e86–e93. CrossRefPubMed
23.
go back to reference Reuner, G., Hassenpflug, A., Pietz, J., & Philippi, H. (2009). Long-term development of low-risk low birth weight preterm born infants: Neurodevelopmental aspects from childhood to late adolescence. Early Human Development, 85(7), 409–413. CrossRefPubMed Reuner, G., Hassenpflug, A., Pietz, J., & Philippi, H. (2009). Long-term development of low-risk low birth weight preterm born infants: Neurodevelopmental aspects from childhood to late adolescence. Early Human Development, 85(7), 409–413. CrossRefPubMed
24.
go back to reference Roberts, G., Burnett, A. C., Lee, K. J., Cheong, J., Wood, S. J., Anderson, P. J., et al. (2013). Quality of life at age 18 years after extremely preterm birth in the post-surfactant era. The Journal of Pediatrics, 163(4), 1008–1013.e1. CrossRef Roberts, G., Burnett, A. C., Lee, K. J., Cheong, J., Wood, S. J., Anderson, P. J., et al. (2013). Quality of life at age 18 years after extremely preterm birth in the post-surfactant era. The Journal of Pediatrics, 163(4), 1008–1013.e1. CrossRef
25.
go back to reference Hallin, A. L., & Stjernqvist, K. (2011). Adolescents born extremely preterm: Behavioral outcomes and quality of life. Scandinavian Journal of Psychology, 52(3), 251–256. CrossRefPubMed Hallin, A. L., & Stjernqvist, K. (2011). Adolescents born extremely preterm: Behavioral outcomes and quality of life. Scandinavian Journal of Psychology, 52(3), 251–256. CrossRefPubMed
26.
go back to reference van Lunenburg, A., van der Pal, S. M., van Dommelen, P., van der Pal-de Bruin, K. M., Bennebroek Gravenhorst, J., & Verrips, G. H. (2013). Changes in quality of life into adulthood after very preterm birth and/or very low birth weight in the Netherlands. Health and Quality of Life Outcomes, 11, 51. CrossRefPubMedPubMedCentral van Lunenburg, A., van der Pal, S. M., van Dommelen, P., van der Pal-de Bruin, K. M., Bennebroek Gravenhorst, J., & Verrips, G. H. (2013). Changes in quality of life into adulthood after very preterm birth and/or very low birth weight in the Netherlands. Health and Quality of Life Outcomes, 11, 51. CrossRefPubMedPubMedCentral
27.
go back to reference Lund, L. K., Vik, T., Lydersen, S., Lohaugen, G. C., Skranes, J., Brubakk, A. M., et al. (2012). Mental health, quality of life and social relations in young adults born with low birth weight. Health and Quality of Life Outcomes, 10, 146. CrossRefPubMedPubMedCentral Lund, L. K., Vik, T., Lydersen, S., Lohaugen, G. C., Skranes, J., Brubakk, A. M., et al. (2012). Mental health, quality of life and social relations in young adults born with low birth weight. Health and Quality of Life Outcomes, 10, 146. CrossRefPubMedPubMedCentral
28.
go back to reference Baumgardt, M., Bucher, H. U., Mieth, R. A., & Fauchere, J. C. (2012). Health-related quality of life of former very preterm infants in adulthood. Acta Paediatrica, 101(2), e59–e63. CrossRefPubMed Baumgardt, M., Bucher, H. U., Mieth, R. A., & Fauchere, J. C. (2012). Health-related quality of life of former very preterm infants in adulthood. Acta Paediatrica, 101(2), e59–e63. CrossRefPubMed
29.
go back to reference Dalziel, S. R., Lim, V. K., Lambert, A., McCarthy, D., Parag, V., Rodgers, A., et al. (2007). Psychological functioning and health-related quality of life in adulthood after preterm birth. Developmental Medicine and Child Neurology, 49(8), 597–602. CrossRefPubMed Dalziel, S. R., Lim, V. K., Lambert, A., McCarthy, D., Parag, V., Rodgers, A., et al. (2007). Psychological functioning and health-related quality of life in adulthood after preterm birth. Developmental Medicine and Child Neurology, 49(8), 597–602. CrossRefPubMed
30.
go back to reference Ulrich, M., Mortensen, E. L., Jensen, C., & Kamper, J. (2013). On the well-being of adult expremies in Denmark. Acta Paediatrica, 102(6), 602–606. CrossRefPubMed Ulrich, M., Mortensen, E. L., Jensen, C., & Kamper, J. (2013). On the well-being of adult expremies in Denmark. Acta Paediatrica, 102(6), 602–606. CrossRefPubMed
31.
go back to reference Schiariti, V., Hoube, J. S., Lisonkova, S., Klassen, A. F., & Lee, S. K. (2007). Caregiver-reported health outcomes of preschool children born at 28 to 32 weeks’ gestation. Journal of Developmental and Behavioral Pediatrics, 28(1), 9–15. CrossRefPubMed Schiariti, V., Hoube, J. S., Lisonkova, S., Klassen, A. F., & Lee, S. K. (2007). Caregiver-reported health outcomes of preschool children born at 28 to 32 weeks’ gestation. Journal of Developmental and Behavioral Pediatrics, 28(1), 9–15. CrossRefPubMed
32.
go back to reference Ketharanathan, N., Lee, W., & de Mol, A. C. (2011). Health-related quality of life, emotional and behavioral problems in mild to moderate prematures at (pre-)school age. Early Human Development, 87(10), 705–709. CrossRefPubMed Ketharanathan, N., Lee, W., & de Mol, A. C. (2011). Health-related quality of life, emotional and behavioral problems in mild to moderate prematures at (pre-)school age. Early Human Development, 87(10), 705–709. CrossRefPubMed
33.
go back to reference Rautava, L., Hakkinen, U., Korvenranta, E., Andersson, S., Gissler, M., Hallman, M., et al. (2009). Health-related quality of life in 5-year-old very low birth weight infants. The Journal of Pediatrics, 155(3), 338–343.e1–3. CrossRef Rautava, L., Hakkinen, U., Korvenranta, E., Andersson, S., Gissler, M., Hallman, M., et al. (2009). Health-related quality of life in 5-year-old very low birth weight infants. The Journal of Pediatrics, 155(3), 338–343.e1–3. CrossRef
34.
go back to reference Beaudoin, S., Tremblay, G. M., Croitoru, D., Benedetti, A., & Landry, J. S. (2013). Healthcare utilization and health-related quality of life of adult survivors of preterm birth complicated by bronchopulmonary dysplasia. Acta Paediatrica, 102(6), 607–612. CrossRefPubMed Beaudoin, S., Tremblay, G. M., Croitoru, D., Benedetti, A., & Landry, J. S. (2013). Healthcare utilization and health-related quality of life of adult survivors of preterm birth complicated by bronchopulmonary dysplasia. Acta Paediatrica, 102(6), 607–612. CrossRefPubMed
35.
go back to reference Mendez Rubio, I., Lazaro de Mercado, P., Carbonell Estrany, X., & Figueras Aloy, J. (2010). Quality of life of preterm infants and admissions due to respiratory infections. Anales de Pediatría (Barcelona), 73(3), 121–131. CrossRef Mendez Rubio, I., Lazaro de Mercado, P., Carbonell Estrany, X., & Figueras Aloy, J. (2010). Quality of life of preterm infants and admissions due to respiratory infections. Anales de Pediatría (Barcelona), 73(3), 121–131. CrossRef
36.
go back to reference Saigal, S. (2013). Quality of life of former premature infants during adolescence and beyond. Early Human Development, 89(4), 209–213. CrossRefPubMed Saigal, S. (2013). Quality of life of former premature infants during adolescence and beyond. Early Human Development, 89(4), 209–213. CrossRefPubMed
37.
go back to reference World Health Organization. (1995). The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef World Health Organization. (1995). The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef
38.
go back to reference Rutter, M., & Sroufe, L. A. (2000). Developmental psychopathology: Concepts and challenges. Development and Psychopathology, 12(3), 265–296. CrossRefPubMed Rutter, M., & Sroufe, L. A. (2000). Developmental psychopathology: Concepts and challenges. Development and Psychopathology, 12(3), 265–296. CrossRefPubMed
39.
go back to reference Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17(6), 895–913. CrossRefPubMed Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17(6), 895–913. CrossRefPubMed
40.
go back to reference Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211. CrossRefPubMedPubMedCentral Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211. CrossRefPubMedPubMedCentral
41.
go back to reference Horsman, J., Furlong, W., Feeny, D., & Torrance, G. (2003). The Health Utilities Index (HUI ®): Concepts, measurement properties and applications. Health and Quality of Life Outcomes, 1(1), 54. CrossRefPubMedPubMedCentral Horsman, J., Furlong, W., Feeny, D., & Torrance, G. (2003). The Health Utilities Index (HUI ®): Concepts, measurement properties and applications. Health and Quality of Life Outcomes, 1(1), 54. CrossRefPubMedPubMedCentral
42.
go back to reference Costet, N., Le Gales, C., Buron, C., Kinkor, F., Mesbah, M., Chwalow, J., et al. (1998). French cross-cultural adaptation of the Health Utilities Indexes Mark 2 (HUI2) and 3 (HUI3) classification systems: Clinical and Economic Working Groups. Quality of Life Research, 7(3), 245–256. CrossRefPubMed Costet, N., Le Gales, C., Buron, C., Kinkor, F., Mesbah, M., Chwalow, J., et al. (1998). French cross-cultural adaptation of the Health Utilities Indexes Mark 2 (HUI2) and 3 (HUI3) classification systems: Clinical and Economic Working Groups. Quality of Life Research, 7(3), 245–256. CrossRefPubMed
43.
go back to reference McHorney, C. A., Ware, J. E, Jr, & Raczek, A. E. (1993). The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31(3), 247–263. CrossRefPubMed McHorney, C. A., Ware, J. E, Jr, & Raczek, A. E. (1993). The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31(3), 247–263. CrossRefPubMed
44.
go back to reference Hemingway, H., Stafford, M., Stansfeld, S., Shipley, M., & Marmot, M. (1997). Is the SF-36 a valid measure of change in population health? Results from the Whitehall II Study. British Medical Journal, 315(7118), 1273–1279. CrossRefPubMedPubMedCentral Hemingway, H., Stafford, M., Stansfeld, S., Shipley, M., & Marmot, M. (1997). Is the SF-36 a valid measure of change in population health? Results from the Whitehall II Study. British Medical Journal, 315(7118), 1273–1279. CrossRefPubMedPubMedCentral
45.
go back to reference Failde, I., & Ramos, I. (2000). Validity and reliability of the SF-36 Health Survey Questionnaire in patients with coronary artery disease. Journal of Clinical Epidemiology, 53(4), 359–365. CrossRefPubMed Failde, I., & Ramos, I. (2000). Validity and reliability of the SF-36 Health Survey Questionnaire in patients with coronary artery disease. Journal of Clinical Epidemiology, 53(4), 359–365. CrossRefPubMed
46.
go back to reference Fekkes, M., Theunissen, N. C., Brugman, E., Veen, S., Verrips, E. G., Koopman, H. M., et al. (2000). Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1-5-year-old children. Quality of Life Research, 9(8), 961–972. CrossRefPubMed Fekkes, M., Theunissen, N. C., Brugman, E., Veen, S., Verrips, E. G., Koopman, H. M., et al. (2000). Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1-5-year-old children. Quality of Life Research, 9(8), 961–972. CrossRefPubMed
47.
go back to reference Raat, H., Landgraf, J. M., Oostenbrink, R., Moll, H. A., & Essink-Bot, M. L. (2007). Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Quality of Life Research, 16, 445–460. CrossRefPubMed Raat, H., Landgraf, J. M., Oostenbrink, R., Moll, H. A., & Essink-Bot, M. L. (2007). Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Quality of Life Research, 16, 445–460. CrossRefPubMed
48.
go back to reference Klassen, A. F., Lee, S. K., Raina, P., Chan, H., Matthew, D., & Brabyn, D. (2002). Reliability and validity of the Infant Toddler Quality of Life questionnaire. Quality of Life Research, 11, 684. Klassen, A. F., Lee, S. K., Raina, P., Chan, H., Matthew, D., & Brabyn, D. (2002). Reliability and validity of the Infant Toddler Quality of Life questionnaire. Quality of Life Research, 11, 684.
49.
go back to reference Raat, H., Botterweck, A. M., Landgraf, J. M., Hoogeveen, W. C., & Essink-Bot, M. L. (2005). Reliability and validity of the short form of the Child Health Questionnaire for Parents (CHQ-PF28) in large random school based and general population samples. Journal of Epidemiology and Community Health, 59, 75–82. CrossRefPubMedPubMedCentral Raat, H., Botterweck, A. M., Landgraf, J. M., Hoogeveen, W. C., & Essink-Bot, M. L. (2005). Reliability and validity of the short form of the Child Health Questionnaire for Parents (CHQ-PF28) in large random school based and general population samples. Journal of Epidemiology and Community Health, 59, 75–82. CrossRefPubMedPubMedCentral
50.
go back to reference Apajasalo, M., Rautonen, J., Holmberg, C., Sinkkonen, J., Aalberg, V., Pihko, H., et al. (1996). Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D). Quality of Life Research, 5(6), 532–538. CrossRefPubMed Apajasalo, M., Rautonen, J., Holmberg, C., Sinkkonen, J., Aalberg, V., Pihko, H., et al. (1996). Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D). Quality of Life Research, 5(6), 532–538. CrossRefPubMed
51.
go back to reference Henrich, G., & Herschbach, P. (2000). Questions on Life Satisfaction (FLZ M): A short questionnaire for assessing subjective quality of life. European Journal of Psychological Assessment, 16(3), 150–159. CrossRef Henrich, G., & Herschbach, P. (2000). Questions on Life Satisfaction (FLZ M): A short questionnaire for assessing subjective quality of life. European Journal of Psychological Assessment, 16(3), 150–159. CrossRef
52.
go back to reference Bullinger, M., Brutt, A. L., Erhart, M., & Ravens-Sieberer, U. (2008). Psychometric properties of the KINDL-R questionnaire: Results of the BELLA study. European Child and Adolescent Psychiatry, 17(Suppl 1), 125–132. CrossRefPubMed Bullinger, M., Brutt, A. L., Erhart, M., & Ravens-Sieberer, U. (2008). Psychometric properties of the KINDL-R questionnaire: Results of the BELLA study. European Child and Adolescent Psychiatry, 17(Suppl 1), 125–132. CrossRefPubMed
53.
go back to reference Manificat, S., Dazord, A., Langue, J., Danjou, G., Bauche, P., Bovet, F., et al. (2000). Evaluation de la qualité de vie du nourrisson et du très jeune enfant: Validation d’un questionnaire. Étude multicentrique européenne. Archives de Pédiatrie, 7(6), 605–614. CrossRef Manificat, S., Dazord, A., Langue, J., Danjou, G., Bauche, P., Bovet, F., et al. (2000). Evaluation de la qualité de vie du nourrisson et du très jeune enfant: Validation d’un questionnaire. Étude multicentrique européenne. Archives de Pédiatrie, 7(6), 605–614. CrossRef
54.
go back to reference Feeny, D., Furlong, W., & Barr, R. D. (1998). Multiattribute approach to the assessment of health-related quality of life: Health utilities index. Medical and Pediatric Oncology, Suppl, 1, 54–59. CrossRef Feeny, D., Furlong, W., & Barr, R. D. (1998). Multiattribute approach to the assessment of health-related quality of life: Health utilities index. Medical and Pediatric Oncology, Suppl, 1, 54–59. CrossRef
55.
go back to reference Riley, A. W., Forrest, C. B., Rebok, G. W., Starfield, B., Green, B. F., Robertson, J. A., et al. (2004). The child report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 221–231. CrossRefPubMed Riley, A. W., Forrest, C. B., Rebok, G. W., Starfield, B., Green, B. F., Robertson, J. A., et al. (2004). The child report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 221–231. CrossRefPubMed
56.
go back to reference Riley, A. W., Forrest, C. B., Starfield, B., Rebok, G. W., Robertson, J. A., & Green, B. F. (2004). The parent report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 210–220. CrossRefPubMed Riley, A. W., Forrest, C. B., Starfield, B., Rebok, G. W., Robertson, J. A., & Green, B. F. (2004). The parent report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 210–220. CrossRefPubMed
57.
go back to reference Badia, X., Herdman, M., & Dipstat, M. R. (2001). Feasibility and validity of the VAS and TTO for eliciting general population values for temporary health status: A comparative study. Health Services and Outcomes Research Methodology, 2(1), 51–65. CrossRef Badia, X., Herdman, M., & Dipstat, M. R. (2001). Feasibility and validity of the VAS and TTO for eliciting general population values for temporary health status: A comparative study. Health Services and Outcomes Research Methodology, 2(1), 51–65. CrossRef
58.
go back to reference Park, E. Y., & Choi, Y. I. (2014). Rasch analysis of the London Handicap Scale in stroke patients: A cross-sectional study. Journal of Neuroengineering and Rehabilitation, 11, 114. CrossRefPubMedPubMedCentral Park, E. Y., & Choi, Y. I. (2014). Rasch analysis of the London Handicap Scale in stroke patients: A cross-sectional study. Journal of Neuroengineering and Rehabilitation, 11, 114. CrossRefPubMedPubMedCentral
59.
go back to reference Jenkinson, C., Mant, J., Carter, J., Wade, D., & Winner, S. (2000). The London Handicap Scale: A re-evaluation of its validity using standard scoring and simple summation. Journal of Neurology, Neurosurgery and Psychiatry, 68(3), 365–367. CrossRefPubMedPubMedCentral Jenkinson, C., Mant, J., Carter, J., Wade, D., & Winner, S. (2000). The London Handicap Scale: A re-evaluation of its validity using standard scoring and simple summation. Journal of Neurology, Neurosurgery and Psychiatry, 68(3), 365–367. CrossRefPubMedPubMedCentral
60.
go back to reference Harwood, R. H., Gompertz, P., & Ebrahim, S. (1994). Handicap one year after a stroke: Validity of a new scale. Journal of Neurology, Neurosurgery and Psychiatry, 57(7), 825–829. CrossRefPubMedPubMedCentral Harwood, R. H., Gompertz, P., & Ebrahim, S. (1994). Handicap one year after a stroke: Validity of a new scale. Journal of Neurology, Neurosurgery and Psychiatry, 57(7), 825–829. CrossRefPubMedPubMedCentral
61.
go back to reference Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial: A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310. CrossRefPubMed Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial: A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310. CrossRefPubMed
62.
go back to reference Solans, M., Pane, S., Estrada, M. D., Serra-Sutton, V., Berra, S., Herdman, M., et al. (2008). Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease-specific instruments. Value in Health, 11(4), 742–764. CrossRefPubMed Solans, M., Pane, S., Estrada, M. D., Serra-Sutton, V., Berra, S., Herdman, M., et al. (2008). Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease-specific instruments. Value in Health, 11(4), 742–764. CrossRefPubMed
63.
go back to reference Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45. CrossRefPubMed Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45. CrossRefPubMed
Metagegevens
Titel
Quality of life of individuals born preterm: a systematic review of assessment approaches
Auteurs
Martina Estevam Brom Vieira
Maria Beatriz Martins Linhares
Publicatiedatum
01-09-2016
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-016-1259-9