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Current patient-reported measures (PROMs) do not specifically address radiotherapy (RT) related inconvenience. We conducted, as per guidelines of the European Organization for Research and Treatment of Cancer (EORTC), the initial (issue generation) phase of development of a RT inconvenience PROM. Specifically, we aimed to develop a conceptual framework for RT inconvenience and generate a comprehensive list of issues pertaining to it.
We reviewed existing PROMs and literature and gathered qualitative and quantitative data from consumers and health professionals, in order to generate a comprehensive list of issues pertaining to RT inconvenience. A framework for the consideration of RT inconvenience was defined and used to ensure all possible issues were explored and to list the issues into conceptual domains.
Qualitative data from 26 consumers and 30 health professionals, and quantitative data from 1191 consumers and 253 health professionals resulted in the identification of 38 issues grouped into five conceptual domains: (1) inconvenience of RT opportunity, (2) inconvenience of decision-making, (3) inconvenience of treatment, (4) inconvenience of side effects, and (5) inconvenience of follow-up.
This list of RT inconvenience issues will, in future work, be operationalized into a set of items for pretesting and then large-scale field testing as per the EORTC guidelines.
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Sundaresan, P., Stockler, M., & Milross, C. (2015). What is access to radiation therapy (RT)? A conceptual frame work and review of influencing factors. Australian Health Review. doi: 10.1071/AH14262.
European Organization for Research and Treatment of Cancer. (2011). EORTC group for research into Quality of life Brussels: EORTC. http://groups.eortc.be/qol/index.htm.
Functional Assessment of Chronic Illness Therapy (FACIT). (2011). http://www.facit.org.
Johnson, C., Aaronson, N., Blazeby, J.M., Bottomley, A., Fayers, P., Koller, P., et al. (2011). Guidelines for developing questionnaire modules. EORTC Quality of Life Group [Internet]. http://groups.eortc.be/qol/sites/default/files/archives/guidelines_for_developing_questionnaire-_final.pdf.
Berry, L. L., Seiders, K., & Grewal, D. (2002). Understanding service convenience. Journal of Marketing, 66, 1–17. CrossRef
Brod, M., Hammer, M., Christensen, T., Lessard, S., & Bushnell, D. M. (2009). Understanding and assessing the impact of treatment in diabetes: The Treatment-Related Impact Measures for Diabetes and Devices (TRIM-Diabetes and TRIM-Diabetes Device). Health and Quality of Life Outcomes, 7, 83. CrossRefPubMedPubMedCentral
Functional Assessment of Chronic Illness Therapy (FACIT). (2010). FACIT-TS-BTCSQ: Bone treatment convenience and satisfaction questionnaire. http://www.facit.org/FACITOrg/Questionnaires.
- Phase 1 in the development of a patient-reported measure to quantify perceived inconvenience of radiotherapy: generation of issues
C. G. Milross
M. R. Stockler
D. S. J. Costa
M. T. King
- Springer International Publishing