Swipe om te navigeren naar een ander artikel
The online version of this article (doi:10.1007/s11136-016-1258-x) contains supplementary material, which is available to authorized users.
Goals are an important basis for patients’ cognitive appraisal processes underlying quality-of-life (QOL) assessment because they are the foundation to one’s frame of reference. We sought to identify the best of six goal delineation items and relevant themes for two new versions of the QOL Appraisal Profile: an interview tool using a subset of the best open-ended goal delineation items, and a shorter close-ended version for use in survey research.
This is a secondary analysis of longitudinal data (n = 1126) of participants in the North American Research Committee on Multiple Sclerosis (MS) registry. The open-ended data were coded by at least two trained coders with moderately high inter-rater agreement. There were 31 themes reflecting goal content such as health, interpersonal, independence, mental health, and financial themes. Descriptive statistics identified most prevalent themes. Reliability analysis (alpha, item-total correlations) and hierarchical linear modeling identified the best goal items.
Based on these qualitative and quantitative analyses, Solve (item 2) is the best single item because it is clear anchor for about a third of the goal themes, and explains the most variance in outcomes and demographic characteristics, suggesting that it taps into and reveals diversity in the sample. The next best items are Accomplish and Maintain (items 1 and 4), which are useful in tapping into and revealing diversity among people reporting cognitive deficits (Accomplish), and demographic factors (both Accomplish and Maintain items).
The goal delineation items identified as best performers in this study will be used to develop a shorter open-ended version of the QOL Appraisal Profile, and an entirely close-ended version of the QOL Appraisal Profile for use in more standard survey research settings. These tools will enable coaching patients in medical decision making as well as investigations of appraisal and response shift in QOL research.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Supplementary material 1 (PDF 88 kb)11136_2016_1258_MOESM1_ESM.pdf
Ryff, C. D. (1989). Beyond Ponce de Leon and life satisfaction: New directions in quest of successful ageing. International Journal of Behavioral Development, 12(1), 35–55. CrossRef
Emmons, R. A. (1986). Personal strivings: An approach to personality and subjective well-being. Journal of Personality and Social Psychology, 51(5), 1058. CrossRef
Palys, T. S., & Little, B. R. (1983). Perceived life satisfaction and the organization of personal project systems. Journal of Personality and Social Psychology, 44(6), 1221. CrossRef
Klinger, E., Barta, S. G., & Maxeiner, M. E. (1980). Motivational correlates of thought content frequency and commitment. Journal of Personality and Social Psychology, 39(6), 1222. CrossRef
Campbell, A., Converse, P. E., & Rodgers, W. L. (1976). The quality of American life. New York: Russell Sage Foundation.
Rollnick, S., & Miller, W. R. (1995). What is motivational interviewing? Behavioural and Cognitive Psychotherapy, 23(04), 325–334. CrossRef
Messer, S. B., & McWilliams, N. (2007). Insight in psychodynamic therapy: Theory and assessment. In L. G. Castonguay & C. Hill (Eds.), Insight in psychotherapy (pp. 9–29). American Psychological Association: Washington, DC. CrossRef
Zimmerman, B. J., Bandura, A., & Martinez-Pons, M. (1992). Self-motivation for academic attainment: The role of self-efficacy beliefs and personal goal setting. American Educational Research Journal, 29(3), 663–676. CrossRef
Saajanaho, M., et al. (2016). Mobility limitation and changes in personal goals among older women. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 71(1), 1–10. CrossRef
Nie, Y., & Liem, G. A. D. (2013). Extending antecedents of achievement goals: The double-edged sword effect of social-oriented achievement motive and gender differences. Learning and Individual Differences, 23, 249–255. CrossRef
Gushue, G. V., & Whitson, M. L. (2006). The relationship of ethnic identity and gender role attitudes to the development of career choice goals among black and Latina girls. Journal of counseling psychology, 53(3), 379. CrossRef
Morganstern, B. A., et al. (2011). The psychological context of quality of life: a psychometric analysis of a novel idiographic measure of bladder cancer patients’ personal goals and concerns prior to surgery. Health and Quality of Life Outcomes, 9(10), 1.
Rapkin, B. D., Schwartz, C. E., & Sprangers, M. A. G. (2000). Personal goals and response shifts: understanding the impact of illness and events on the quality of life of people living with AIDS 8400. In C. E. Schwartz & M. A. G. Sprangers (Eds.), Adaptation to changing health: Response shift in quality- of- life research (pp. 53–71). Washington, DC: American Psychological Association. CrossRef
Duda, J., & Whitehead, J. (1998). Measurement of goal perspectives in the physical domain. In: J. L. Duda (Ed.), Advances in sport and exercise psychology measurement (pp. 21–48).
Kiresuk, T. J., Smith, A., & Cardillo, J. E. (2014). Goal attainment scaling: Applications, theory, and measurement. New York: Psychology Press.
Malec, J. F., Smigielski, J. S., & DePompolo, R. W. (1991). Goal attainment scaling and outcome measurement in postacute brain injury rehabilitation. Archives of Physical Medicine and Rehabilitation, 72(2), 138–143. PubMed
O’Boyle, C. A. (1994). The schedule for the evaluation of individual quality of life (SEIQoL). International Journal of Mental Health, 23(3), 3–23. CrossRef
Rapkin, B. D., et al. (1994). Development of the idiographic functional status assessment: A measure of the personal goals and goal attainment activities of people with AIDS. Psychology and Health., 9, 111–129. CrossRef
NMSS. (2005). Multiple sclerosis information sourcebook. New York, NY: Information Resource Center and Library of the National Multiple Sclerosis Society.
Cutter, G. R., et al. (1999). Development of a multiple sclerosis functional composite as a clinical trial outcome measure. Brain, 122, 101–112. CrossRef
NARCOMS. (2013). North American Research Committee on Multiple Sclerosis (NARCOMS) Registry. http://narcoms.org/.
Hays, R. D., Sherbourne, C. D., Mazel, R. M., & User’s Manual for the Medical Outcome Study (MOS). (1995). Core measures of health-related quality of life. Santa Monica, CA: RAND.
Sullivan, J. J. L., Edgley, K., & Dehoux, E. (1990). A survey of multiple sclerosis. Part 1: Perceived cognitive problems and compensatory strategy use. Canadian Journal of Rehabilitation, 4, 99–105.
Ryff, C. D. (1989). Happiness is everything, or is it? Explorations on the meaning of psychological well-being. Journal of Personality and Social Psychology, 57, 1069–1081. CrossRef
Rapkin, B. D., et al. (2011). User manual for the quality of life appraisal profile. Concord, MA: DeltaQuest Foundation Inc.
Bobinski, J., & Lipinski, M. (2009). EORTC risk tables—A new diagnostic tool in urology. Pol Merkur Lekarski, 27(162), 524–528. PubMed
Corp., I., (2012). IBM SPSS Statistics for Windows. Armonk, NY: IBM Corp.
Stata 13, (2013). College Station, TX: StataCorp LP.
Matthews, W. B. (Ed.). (1991). McAlpine’s multiple sclerosis (2nd ed.). New York: Churchill Livingstone.
- Refining a Web-based goal assessment interview: item reduction based on reliability and predictive validity
Carolyn E. Schwartz
Bruce D. Rapkin
- Springer International Publishing