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Journal of Autism and Developmental Disorders

Gepubliceerd in:

09-06-2022 | Original Paper

Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism

Auteurs: Kyle Sterrett, Maira Tafolla Magaña, Amanda Gulsrud, Tanya Paparella, Connie Kasari

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2023

Abstract

Addressing factors that make it more likely for families to attrite from early intervention trials will allow researchers to ensure that families reap the full benefits of participation. This study was an analysis of 78 children (Mage = 18.38 months, SD = 5.78) at risk for autism participating in a university-based randomized controlled trial of two 8-week long early intervention programs. Overall, attrition through 8-weeks was low, approximately 13%, however by the one-year follow-up attrition rates were approximately 50%. The most consistent predictor of attrition was the distance that families had to travel to the university. These data highlight the importance of providing services and support (e.g., financial and logistic) during follow-up to families to maximize their participation. Clincaltrials.gov Identifier: NCT01874327, 6/11/2013.

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Boyd, B. A., Stahmer, A. C., Odom, S. L., Wallisch, A., & Matheis, M. (2021). It’s time to close the research to practice gap in autism: The need for implementation science. Autism. Advance Online Publication. https://doi.org/10.1177/13623613211064422

Bradshaw, J., Trumbull, A., Stapel-Wax, J., Gillespie, S., George, N., Saulnier, C. … Wetherby, A. (2020). Factors associated with enrollment into a clinical trial of caregiver-implemented intervention for infants at risk for autism spectrum disorder. Autism, 24(7), 1874–1884. https://doi.org/10.1177/1362361320928829CrossRefPubMedPubMedCentral

Bricker, D., & Waddell, M. (2002). Curriculum for Birth to Three Years. Assessment, Evaluation, and Programming System for Infants and Children (AEPS). Paul H. Brookes Publishing Co., PO Box 10624, Baltimore, MD 21285-0624 (Stock no. 5648)

Carr, T., & Lord, C. (2016). A pilot study promoting participation of families with limited resources in early autism intervention. Research in Autism Spectrum Disorders, 2, 87–96. https://doi.org/10.1016/j.rasd.2016.02.003CrossRefPubMedPubMedCentral

Carr, T., Shih, W., Lawton, K., Lord, C., King, B., & Kasari, C. (2016). The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder. Autism, 20(6), 643–652. https://doi.org/10.1016/j.rasd.2016.02.003CrossRefPubMed

Cook, T. D., Campbell, D. T., & Shadish, W. (2002). Experimental and quasi-experimental designs for generalized causal inference. Boston, MA: Houghton Mifflin

Crnic, K. A., & Booth, C. L. (1991). Mothers’ and fathers’ perceptions of daily hassles of parenting across early childhood. Journal of Marriage and the Family, 1042–1050. https://psycnet.apa.org/doi/10.2307/353007

Fernandez, M. A., & Eyberg, S. M. (2009). Predicting treatment and follow-up attrition in parent–child interaction therapy. Journal of Abnormal Child Psychology, 37(3), 431–441. https://doi.org/10.1007/s10802-008-9281-1CrossRefPubMed

Fernandez, M. A., Butler, A. M., & Eyberg, S. M. (2011). Treatment outcome for low socioeconomic status African American families in parent-child interaction therapy: A pilot study. Child & Family Behavior Therapy, 33(1), 32–48. https://doi.org/10.1080/07317107.2011.545011CrossRef

Ford, J. G., Howerton, M. W., Lai, G. Y., Gary, T. L., Bolen, S., Gibbons, M. C., & Bass, E. B. (2008). Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review. Cancer: Interdisciplinary International Journal of the American Cancer Society, 112(2), 228–242. https://doi.org/10.1002/cncr.23157CrossRef

Fuller, E. A., & Kaiser, A. P. (2020). The effects of early intervention on social communication outcomes for children with autism spectrum disorder: A meta-analysis. Journal of Autism and Developmental Disorders, 50(5), 1683–1700. https://doi.org/10.1007/s10803-019-03927-zCrossRefPubMedPubMedCentral

Green, J., Charman, T., Pickles, A., Wan, M. W., Elsabbagh, M., Slonims, V. … Johnson, M. H. (2015). Parent-mediated intervention versus no intervention for infants at high risk of autism: A parallel, single-blind, randomised trial. The Lancet Psychiatry, 2(2), 133–140. https://doi.org/10.1016/S2215-0366(14)00091-1CrossRefPubMedPubMedCentral

Green, J., Pickles, A., Pasco, G., Bedford, R., Wan, M. W., Elsabbagh, M. … Johnson, M. (2017). Randomised trial of a parent-mediated intervention for infants at high risk for autism: Longitudinal outcomes to age 3 years. Journal of Child Psychology and Psychiatry, 58(12), 1330–1340. https://doi.org/10.1111/jcpp.12728CrossRefPubMed

Hackworth, N. J., Matthews, J., Westrupp, E. M., Nguyen, C., Phan, T., Scicluna, A. … Nicholson, J. M. (2018). What influences parental engagement in early intervention? Parent, program and community predictors of enrolment, retention and involvement. Prevention Science, 19(7), 880–893. https://doi.org/10.1007/s11121-018-0897-2CrossRefPubMedPubMedCentral

Hampton, L. H., Kaiser, A. P., & Fuller, E. A. (2020). Multi-component communication intervention for children with autism: A randomized controlled trial. Autism, 24(8), 2104–2116. https://doi.org/10.1177/1362361320934558CrossRefPubMed

Hock, R., Kinsman, A., & Ortaglia, A. (2015). Examining treatment adherence among parents of children with autism spectrum disorder. Disability and Health Journal, 8(3), 407–413. https://doi.org/10.1016/j.dhjo.2014.10.005CrossRefPubMed

Iadarola, S., Levato, L., Harrison, B., Smith, T., Lecavalier, L., Johnson, C. … Scahill, L. (2018). Teaching parents behavioral strategies for autism spectrum disorder (ASD): Effects on stress, strain, and competence. Journal of Autism and Developmental Disorders, 48(4), 1031–1040. https://doi.org/10.1007/s10803-017-3339-2CrossRefPubMed

Ingersoll, B., & Berger, N. I. (2015). Parent engagement with a telehealth-based parent-mediated intervention program for children with autism spectrum disorders: Predictors of program use and parent outcomes. Journal of Medical Internet Research, 17(10), e227. https://doi.org/10.2196/jmir.4913CrossRefPubMedPubMedCentral

Ingoldsby, E. M. (2010). Review of interventions to improve family engagement and retention in parent and child mental health programs. Journal of Child and Family Studies, 19(5), 629–645. https://doi.org/10.1007/s10826-009-9350-2CrossRefPubMedPubMedCentral

Johnson, C. P., Myers, S. M., & the Council on Children with Disabilities. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215. https://doi.org/10.1542/peds.2007-2361CrossRefPubMed

Kasari, C., Gulsrud, A., Paparella, T., Hellemann, G., & Berry, K. (2015). Randomized comparative efficacy study of parent-mediated interventions for toddlers with autism. Journal of Consulting and Clinical Psychology, 83(3), 554–563. https://doi.org/10.1037/a0039080CrossRefPubMedPubMedCentral

Kasari, C., Lawton, K., Shih, W., Barker, T. V., Landa, R., Lord, C. … Senturk, D. (2014). Caregiver-mediated intervention for low-resourced preschoolers with autism: An RCT. Pediatrics, 134(1), e72–e79. https://doi.org/10.1542/peds.2013-3229CrossRefPubMedPubMedCentral

Kasari, C., Gulsrud, A., Shire, S., & Strawbridge, C. (2021). The JASPER Model for Children with Autism Promoting Joint Attention, Symbolic Play, Engagement, and Regulation. New York, NY: Guilford Press

Kazdin, A. E., Holland, L., & Crowley, M. (1997). Family Experience of barriers to treatment and premature termination from child therapy. Journal of Consulting and Clinical Psychology, 65(3), 453. https://doi.org/10.1037/0022-006X.65.3.453CrossRefPubMed

Kazdin, A. E., & Mazurick, J. L. (1994). Dropping out of child psychotherapy: distinguishing early and late dropouts over the course of treatment. Journal of Consulting and Clinical Psychology, 62(5), 1069. https://doi.org/10.1037/0022-006X.62.5.1069CrossRefPubMed

Landa, R. J. (2018). Efficacy of early interventions for infants and young children with, and at risk for, autism spectrum disorders. International Review of Psychiatry, 30(1), 25–39. https://doi.org/10.1080/09540261.2018.1432574CrossRefPubMed

Lara, P. N. Jr., Higdon, R., Lim, N., Kwan, K., Tanaka, M., Lau, D. H., & Lam, K. S. (2001). Prospective evaluation of cancer clinical trial accrual patterns: identifying potential barriers to enrollment. Journal of Clinical Oncology, 19(6), 1728–1733. https://doi.org/10.1200/JCO.2001.19.6.1728CrossRefPubMed

Luyster, R., Gotham, K., Guthrie, W., Coffing, M., Petrak, R., Pierce, K. … Lord, C. (2009). The Autism Diagnostic Observation Schedule—Toddler Module: A new module of a standardized diagnostic measure for autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(9), 1305–1320. https://doi.org/10.1007/s10803-009-0746-zCrossRefPubMedPubMedCentral

Monteiro, S. A., Dempsey, J., Broton, S., Berry, L., Goin-Kochel, R. P., & Voigt, R. G. (2016). Early intervention before autism diagnosis in children referred to a regional autism clinic. Journal of Developmental & Behavioral Pediatrics, 37(1), 15–19. https://doi.org/10.1097/dbp.0000000000000241CrossRef

Moore, T. R., & Symons, F. J. (2011). Adherence to treatment in a behavioral intervention curriculum for parents of children with autism spectrum disorder. Behavior Modification, 35(6), 570–594. https://doi.org/10.1177/0145445511418103CrossRefPubMed

Mullen, E. M. (1995). Mullen scales of early learning (pp. 58–64). Circle Pines, MN: AGS

Nilsen, P., & Bernhardsson, S. (2019). Context matters in implementation science: a scoping review of determinant frameworks that describe contextual determinants for implementation outcomes. BMC health services research, 19(1), 1–21. https://doi.org/10.1186/s12913-019-4015-3CrossRef

Nock, M. K., & Ferriter, C. (2005). Parent management of attendance and adherence in child and adolescent therapy: A conceptual and empirical review. Clinical Child and Family Psychology Review, 8(2), 149–166. https://doi.org/10.1007/s10567-005-4753-0CrossRefPubMed

Odom, S. L., Hall, L. J., & Suhrheinrich, J. (2020). Implementation science, behavior analysis, and supporting evidence-based practices for individuals with autism. European Journal of Behavior Analysis, 21(1), 55–73. https://doi.org/10.1080/15021149.2019.1641952CrossRefPubMed

Ogden, T., & Fixsen, D. (2014). Implementation science: A brief overview and a look ahead. Zeitschrift für Psychologie, 222, 4–11. https://psycnet.apa.org/doi/10.1027/2151-2604/a000160CrossRef

Ogston-Nobile, P. L. (2014). The division of family work among fathers and mothers of children with an autism spectrum disorder: Implications for parents and family functioning. [Doctoral dissertation, Virginia Commonwealth University]. https://www.proquest.com/docview/1539542663?pqorigsite=gscholar&fromopenview=true

Pellecchia, M., Nuske, H. J., Straiton, D., McGhee Hassrick, E., Gulsrud, A., Iadarola, S. … Stahmer, A. C. (2018). Strategies to engage underrepresented parents in child intervention services: A review of effectiveness and co-occurring use. Journal of Child and Family Studies, 27(10), 3141–3154. https://doi.org/10.1007/s10826-018-1144-yCrossRef

Phares, V., Lopez, E., Fields, S., Kamboukos, D., & Duhig, A. M. (2005). Are fathers involved in paediatric psychology research and treatment? Journal of Pediatric Psychology, 30, 631–643. https://doi.org/10.1093/jpepsy/jsi050CrossRefPubMed

Pickard, K. E., Kilgore, A. N., & Ingersoll, B. R. (2016). Using community partnerships to better understand the barriers to using an evidence-based, parent‐mediated intervention for autism spectrum disorder in a medicaid system. American Journal of Community Psychology, 57(3–4), 391–403. https://doi.org/10.1002/ajcp.12050CrossRefPubMed

Rogers, S. J., Estes, A., Vismara, L., Munson, J., Zierhut, C., Greenson, J. … Talbott, M. (2019). Enhancing low-intensity coaching in parent implemented Early Start Denver Model intervention for early autism: A randomized comparison treatment trial. Journal of Autism and Developmental Disorders, 49(2), 632–646. https://doi.org/10.1007/s10803-018-3740-5CrossRefPubMed

Rovane, A. K., Hock, R. M., & January, S. A. A. (2020). Adherence to behavioral treatments and parent stress in families of children with ASD. Research in Autism Spectrum Disorders, 77, 101609. https://doi.org/10.1016/j.rasd.2020.101609CrossRef

Sacrey, L. A. R., Zwaigenbaum, L., Bryson, S., Brian, J., Smith, I. M., Roberts, W. … Garon, N. (2021). Screening for behavioral signs of autism spectrum disorder in 9-month-old infant siblings. Journal of autism and developmental disorders, 51(3), 839–848. https://doi.org/10.1007/s10803-020-04371-0CrossRefPubMed

Seibert, J. M., Hogan, A. E., & Mundy, P. C. (1982). Assessing interactional competencies: The early social-communication scales. Infant Mental Health Journal, 3(4), 244–258. https://doi.org/10.1002/1097-0355(198224)3:4<244::AID-IMHJ2280030406>3.0.CO;2-RCrossRef

Snell-Johns, J., Mendez, J. L., & Smith, B. H. (2004). Evidence-based solutions for overcoming access barriers, decreasing attrition, and promoting change with underserved families. Journal of Family Psychology, 18(1), 19. https://doi.org/10.1037/0893-3200.18.1.19CrossRefPubMed

Trembath, D., Gurm, M., Scheerer, N. E., Trevisan, D. A., Paynter, J., Bohadana, G., & Iarocci, G. (2019). Systematic review of factors that may influence the outcomes and generalizability of parent-mediated interventions for young children with autism spectrum disorder. Autism Research, 12(9), 1304–1321. https://doi.org/10.1002/aur.2168CrossRefPubMed

Ungerer, J. A., & Sigman, M. (1981). Symbolic play and language comprehension in autistic children. Journal of the American Academy of Child Psychiatry, 20(2), 318–337. https://doi.org/10.1016/S0002-7138(09)60992-4CrossRefPubMed

Werba, B. E., Eyberg, S. M., Boggs, S. R., & Algina, J. (2006). Predicting outcome in parent-child interaction therapy: Success and attrition. Behavior Modification, 30(5), 618–646. https://doi.org/10.1177/0145445504272977CrossRefPubMed

Wetherby, A. M., Guthrie, W., Woods, J., Schatschneider, C., Holland, R. D., Morgan, L., & Lord, C. (2014). Parent-implemented social intervention for toddlers with autism: an RCT. Pediatrics, 134(6), 1084–1093. https://doi.org/10.1542/peds.2014-0757CrossRefPubMedPubMedCentral

Titel: Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism
Auteurs: Kyle Sterrett
Maira Tafolla Magaña
Amanda Gulsrud
Tanya Paparella
Connie Kasari
Publicatiedatum: 09-06-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05616-w

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