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Journal of Autism and Developmental Disorders

Gepubliceerd in:

02-09-2020 | Original Paper

Parent Training for Youth with Autism Served in Community Settings: A Mixed-Methods Investigation Within a Community Mental Health System

Auteurs: Diondra Straiton, Barb Groom, Brooke Ingersoll

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2021

Abstract

Parent training programs focus on parent knowledge and/or skill development regarding strategies to improve child outcomes. Parent training programs are considered evidenced-based treatments for autism spectrum disorder (ASD). Yet little is known about parent training use for youth with ASD served in community settings. This mixed methods project examined parent training for Medicaid-enrolled youth with ASD under age 21. Data were obtained from Medicaid claims for 879 youth and surveys from 97 applied behavior analysis (ABA) providers. Open-ended survey items were analyzed with content analysis. Results demonstrated that the frequency of parent training was low and providers’ conceptualization of parent training was inconsistent with evidence-based models. Providers are largely unaware of evidence-based components (i.e., modeling, caregiver practice with feedback) and use them infrequently. Implications for increasing parent training in community settings are discussed.

vorige artikel Parent–Teacher Disagreement on Ratings of Behavior Problems in Children with ASD: Associations with Parental School Involvement Over Time

volgende artikel Development of the Social Motor Function Classification System for Children with Autism Spectrum Disorders: A Psychometric Study

Because the literature on parent training typically utilizes the term “parent” to refer to all types of caregivers, the term “parent” has been used herein for consistency, with recognition that this term is being used to refer to any biological, legal, familial or non-familial primary caregiver.

“Family training” is the term used in the community mental health system.

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Washington: American Psychiatric Pub.CrossRef

Barton, E. E., & Fettig, A. (2013). Parent-implemented interventions for young children with disabilities: A review of fidelity features. Journal of Early Intervention, 35(2), 194–219. https://doi.org/10.1177/1053815113504625.

Bearss, K., Burrell, T. L., Stewart, L., & Scahill, L. (2015). Parent training in autism spectrum disorder: What’s in a name? Clinical Child and Family Psychology Review, 18(2), 170–182. https://doi.org/10.1007/s10567-015-0179-5.CrossRefPubMedPubMedCentral

Brookman-Frazee, L., & Koegel, R. L. (2004). Using parent/clinician partnerships in parent education programs for children with autism. Journal of Positive Behavior Interventions, 6(4), 195–213. https://doi.org/10.1177/10983007040060040201.CrossRef

Carter, A. S., Messinger, D. S., Stone, W. L., Celimli, S., Nahmias, A. S., & Yoder, P. (2011). A randomized controlled trial of Hanen’s ‘more than words’ in toddlers with early autism symptoms. Journal of Child Psychology and Psychiatry, 52(7), 741–752. https://doi.org/10.1111/j.1469-7610.2011.02395.x.CrossRefPubMed

Casagrande, K. A., & Ingersoll, B. R. (2017). Parent-mediated interventions for social communication in young children with ASD. In J. B. Leaf (Ed.), Handbook of social skills and autism spectrum disorder: Assessment, svention (pp. 285–312). Berlin: Springer. https://doi.org/10.1007/978-3-319-62995-7_17CrossRef

Hardan, A. Y., Gengoux, G. W., Berquist, K. L., Libove, R. A., Ardel, C. M., Phillips, J., et al. (2015). A randomized controlled trial of Pivotal Response Treatment Group for parents of children with autism. Journal of Child Psychology and Psychiatry, 56(8), 884–892.CrossRef

Hume, K., Bellini, S., & Pratt, C. (2005). The usage and perceived outcomes of early intervention and early childhood programs for young children with autism spectrum disorder. Topics in Early Childhood Special Education, 25(4), 195–207. https://doi.org/10.1177/02711214050250040101.CrossRef

Iadarola, S., Levato, L., Harrison, B., Smith, T., Lecavalier, L., Johnson, C., et al. (2018). Teaching parents behavioral strategies for autism spectrum disorder (ASD): Effects on stress, strain, and competence. Journal of Autism and Developmental Disorders, 48(4), 1031–1040. https://doi.org/10.1007/s10803-017-3339-2.CrossRefPubMed

Ingersoll, B., & Dvortcsak, A. (2019). Teaching social communication to children with autism and other developmental delays (2-book set), second edition: The project ImPACT guide to and the project ImPACT manual for parents (Vol. 2). New York: The Guilford Press.

Ingersoll, B., Straiton, D., & Caquias, N. R. (2020). The role of professional training experiences and manualized programs in ABA providers’ use of parent training with children with autism. Behavior Therapy, 51(4), 588–600. https://doi.org/10.1016/j.beth.2019.09.004.CrossRefPubMed

Ingersoll, B., Wainer, A. L., Berger, N. I., Pickard, K. E., & Bonter, N. (2016). Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: A pilot RCT. Journal of Autism and Developmental Disorders, 46(7), 2275–2284. https://doi.org/10.1007/s10803-016-2755-z.CrossRefPubMed

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6.CrossRefPubMed

Kasari, C., Gulsrud, A. C., Wong, C., Kwon, S., & Locke, J. (2010). Randomized controlled caregiver mediated joint engagement intervention for toddlers with autism. Journal of Autism and Developmental Disorders New York, 40(9), 1045–1056. https://doi.org/10.1007/s10803-010-0955-5.CrossRef

Kasari, C., Gulsrud, A., Paparella, T., Hellemann, G., & Berry, K. (2015). Randomized comparative efficacy study of parent-mediated interventions for toddlers with autism. Journal of Consulting and Clinical Psychology, 83(3), 554–563. https://doi.org/10.1037/a0039080.CrossRefPubMedPubMedCentral

Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 26(3), 347–359. https://doi.org/10.1007/BF02172479.CrossRefPubMed

Koegel, R. L., Schreibman, L., Britten, K. R., Burke, J. C., & O’Neill, R. E. (1982). A comparison of parent training to direct child treatment. In R. L. Koegel, A. Rincover, & A. L. Egel (Eds.), Educating and understanding autistic children. London: College-Hill Press.

Mayan, M. J. (2016). Essentials of qualitative inquiry. Routledge. https://doi.org/10.4324/9781315429250.CrossRef

Nadeem, E., Gleacher, A., & Beidas, R. S. (2013). Consultation as an implementation strategy for evidence-based practices across multiple contexts: Unpacking the black box. Administration and Policy in Mental Health and Mental Health Services Research, 40(6), 439–450. https://doi.org/10.1007/s10488-013-0502-8.CrossRefPubMed

National Autism Center. (2015). Findings and conclusions: National standards project, phase 2. Randolph: National Autism Center.

Palinkas, L. A., Horwitz, S. M., Chamberlain, P., Hurlburt, M. S., & Landsverk, J. (2011). Mixed-methods designs in mental health services research: A review. Psychiatric Services, 62(3), 255–263. https://doi.org/10.1176/ps.62.3.pss6203_0255.CrossRefPubMed

Pickard, K. E., Kilgore, A. N., & Ingersoll, B. R. (2016). Using community partnerships to better understand the barriers to using an evidence-based, parent-mediated intervention for autism spectrum disorder in a Medicaid system. American Journal of Community Psychology, 57(3–4), 391–403. https://doi.org/10.1002/ajcp.12050.CrossRefPubMed

Powell, B. J., McMillen, J. C., Proctor, E. K., Carpenter, C. R., Griffey, R. T., Bunger, A. C., et al. (2012). A Compilation of strategies for implementing clinical innovations in health and mental health. Medical Care Research and Review, 69(2), 123–157. https://doi.org/10.1177/1077558711430690.CrossRefPubMed

Reid, D. H., & Parsons, M. B. (1995). Motivating human service staff: Supervisory strategies for maximizing work effort and work enjoyment. Morganton: Habilitative Management Consultants.

Rogers, S. J., Estes, A., Lord, C., Vismara, L., Winter, J., Fitzpatrick, A., et al. (2012). Effects of a brief early start denver model (ESDM)–based parent intervention on toddlers at risk for autism spectrum disorders: A randomized controlled trial. Journal of the American Academy of Child & Adolescent Psychiatry, 51(10), 1052–1065. https://doi.org/10.1016/j.jaac.2012.08.003.CrossRef

Ruppert, T., Machalicek, W., Hansen, S. G., Raulston, T., & Frantz, R. (2016). Training parents to implement early interventions for children with autism spectrum disorders. In R. Lang, T. B. Hancock, & N. N. Singh (Eds.), Early intervention for young children with autism spectrum disorder (pp. 219–256). Berlin: Springer. https://doi.org/10.1007/978-3-319-30925-5_8CrossRef

Rush, D. D., & Shelden, M. L. (2011). the early childhood coaching handbook. Baltimore: Brookes Publishing Company.

Scahill, L., Bearss, K., Lecavalier, L., Smith, T., Swiezy, N., Aman, M. G., et al. (2016). Effect of parent training on adaptive behavior in children with autism spectrum disorder and disruptive behavior: Results of a randomized trial. Journal of the American Academy of Child & Adolescent Psychiatry, 55(7), 602–609.e3. https://doi.org/10.1016/j.jaac.2016.05.001.CrossRef

Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., et al. (2020). Evidence-based practices for children, youth, and young adults with Autism. Journal of Autism and Developmental Disorders, 45, 1951.

Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829. https://doi.org/10.1007/s10803-006-0208-9.CrossRefPubMed

Vaismoradi, M., Jones, J., Turunen, H., & Snelgrove, S. (2016). Theme development in qualitative content analysis and thematic analysis. Journal of Nursing Education and Practice, 6(5), 100. https://doi.org/10.5430/jnep.v6n5p100.CrossRef

Vaismoradi, M., Turunen, H., & Bondas, T. (2013). Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing & Health Sciences, 15(3), 398–405. https://doi.org/10.1111/nhs.12048.CrossRef

Ward-Horner, J., & Sturmey, P. (2012). Component analysis of behavior skills training in functional analysis. Behavioral Interventions, 27(2), 75–92. https://doi.org/10.1002/bin.1339.CrossRef

Wetherby, A. M., Guthrie, W., Woods, J., Schatschneider, C., Holland, R. D., Morgan, L., et al. (2014). Parent-implemented social intervention for toddlers with autism: An RCT. Pediatrics, 134(6), 1084–1093. https://doi.org/10.1542/peds.2014-0757.CrossRefPubMedPubMedCentral

Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., et al. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: A comprehensive review. Journal of Autism and Developmental Disorders, 45(7), 1951–1966. https://doi.org/10.1007/s10803-014-2351-z.CrossRefPubMed

Wyatt Kaminski, J., Valle, L. A., Filene, J. H., & Boyle, C. L. (2008). A meta-analytic review of components associated with parent training program effectiveness. Journal of Abnormal Child Psychology, 36(4), 567–589. https://doi.org/10.1007/s10802-007-9201-9.CrossRef

Titel: Parent Training for Youth with Autism Served in Community Settings: A Mixed-Methods Investigation Within a Community Mental Health System
Auteurs: Diondra Straiton
Barb Groom
Brooke Ingersoll
Publicatiedatum: 02-09-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04679-x

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