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Journal of Autism and Developmental Disorders

Gepubliceerd in:

28-09-2018 | Original Paper

It’s a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder

Auteurs: Jennifer L. Hillman, Connie M. Anderson

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2019

Abstract

We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their “greatest challenges and joys” as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents’ stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents’ coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents’ wisdom included patience and insight. Recommendations to support these caregivers are provided.

vorige artikel Parental Perceptions of the Nature of the Relationship Children with Autism Spectrum Disorders Share with Their Canine Companion

volgende artikel Internalizing Symptoms Mediate the Relation Between Acute Pain and Autism in Adults

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Titel: It’s a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder
Auteurs: Jennifer L. Hillman
Connie M. Anderson
Publicatiedatum: 28-09-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-018-3761-0

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