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The online version of this article (https://doi.org/10.1007/s10803-017-3394-8) contains supplementary material, which is available to authorized users.
Most evidence-based autism spectrum disorder (ASD) interventions are tested with primarily White, mid-upper class, English-speaking populations, despite the increase in Latino children with ASD in early intervention programs throughout the United States. Unfortunately, interventions that are incongruent with a target population’s culture may be relatively ineffective. This mixed-methods study explored how culturally appropriate, feasible, and acceptable Latino caregivers perceived intervention models, strategies, and targets. Survey data were compared for 28 Latino and 27 non-Latino White parents of young children with ASD. Further, 20 Latino caregivers participated in focus groups to describe their challenges, perspectives and preferences for intervention strategies and models, and unmet needs from providers. These findings underscore the need for culturally modified interventions for Latino children and families.
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ATLAS.ti7. Version 7.5.12. [Computer software] (2017). Berlin, Scientific Software Development.
Bailey, D., Raspa, M., Olmsted, M., Novak, S., Sam, A., Humphreys, B., & Nelson, R. … Guillen, C. (2011). Development and psychometric validation of the family outcomes survey-revised. Journal of Early Intervention, 33(6), 6–23. CrossRef
Baranek, G., Watson, L., Turner-Brown, L., Field, S., Crais, E., Wakeford, L., … Reznick, J. (2015). Preliminary efficacy of adapted responsive teaching for infants at risk of autism spectrum disorder in a community sample. Autism Research and Treatment, 2015, 1–16. CrossRef
Bender, D. E., Harbour, C., Thorp, J., & Morris, P. (2001). Tell me what you mean by “Si”: Perceptions of quality of prenatal care among immigrant Latina women. Qualitative Health Research, 11(6), 780–794. PubMed
Blanche, E., Diaz, J., Barretto, T., & Cermak, S. (2015). Caregiving experiences of Latino families with children with autism spectrum disorder. The American Journal of Occupational Therapy, 69(5), p1–11. CrossRef
Borrego, J., Anhalt, K., Terao, S., Vargas, E., & Urquiza, A. (2006). Parent-child interaction therapy with a Spanish-speaking family. Cognitive and Behavioral Practice, 13, 121–133. CrossRef
Buzhardt, J., Rusinko, L., Heitzman-Powell, L., Trevino-Maack, S., & McGrath, A. (2015). Exploratory evaluation and initial adaptation of a parent training program for Hispanic families of children with autism. Family Process, 55(1), 1–16.
Carlson, V., & Harwood, R. (2003). Attachment, culture and the caregiving system: The cultural patterning of everyday experiences among Anglo and Puerto Rican mother-infant pairs. Infant Mental Health Journal, 24(1), 53–73. CrossRef
Fischer, C., Harvey, E., & Driscoll, P. (2009). Parent-centered parenting values among Latino immigrant mothers. Journal of Family Studies, 15, 296–308. CrossRef
Fontil, L., & Petrakos, H. (2015). Transition to school: The experiences of Canadian and immigrant famlies of children with autism spectrum disorders. Psychology in the Schools, 52, 773–788. CrossRef
Garcia, E., Breslau, J., Hansen, R., & Miller, E. (2012). Unintended consequences: An ethnographic narrative case series exploring language recommendations for bilingual families of children with autistic spectrum disorders. Jounral of Medical Speech-Language Pathology, 20(2), 10–16.
Gorman, J., & Baiter, L. (1997). Culturally sensitive parent education: A critical review of quantitative research. Review of Education Research, 67(3), 339–369. CrossRef
Haack, L. M., Gerdes, A. C., & Lawton, K. E. (2014). Conducting research with Latino families: Examination of strategies to improve recruitment, retention, and satisfaction with an at-risk and underserved population. Journal of Child and Family Studies, 23(2), 410–421. CrossRef
Harwood, R., Leyendecker, B., Carlson, V., Asencio, M., & Miller, A. (2002). Parenting among Latino families in the U.S. In M. Bornstein (Ed.), Handbook of parenting: Vol. 4: Social conditions and applied parenting (2nd edn., pp. 21–46). Mahwah, NJ: Lawrence Erlbaum Associates Publishers.
Harzing, A.-W. (2006). Response styles in cross-national survey research. International Journal of Cross Cultural Management, 6(2), 243–266. CrossRef
Hwa-Froelich, D., & Vigil, D. (2004). Three aspects of cultural influence on communication: A literature review. Communication Disorders Quarterly, 25(3), 107–118. CrossRef
Iland, E., Weiner, I., & Murawski, W. (2012). Obstacles faced by Latina mothers of children with autism. Californian Journal of Health Promotion, 10, 25–36.
Johnson, T., Shavitt, S., Holbrook, A. (2011). Survey response styles across cultures. In Matsumoto, D. & van de Vijver, F. (Eds.), Cross-cultural research methods in psychology (pp. 130–175). Cambridge: Cambridge University Press.
King, S., King, G., & Rosenbaum, P. (2004). Evaluating health service delivery to children with chronic conditions and their families: development of a refined measure of processes of care. Children’s Health Care, 33, 35–57. CrossRef
Koegel, R., Schreibman, L., Britten, K., Burke, J., & O’Neill, R. (1982). A comparison of parent training to direct child treatment. In R. Koegel, A. Rincover & A. Egel (Eds.), Educating and understanding autistic children (pp. 260–279). Houston: College Hill Press.
Lopez, K. (2014). Sociocultural perspectives of Latino children with autism spectrum disorder. Best Practices in Mental Health, 10(2), 15–31.
Mahoney, G., & Perales, F. (2003). Using relationship-focused intervention to enhance the social-emotional functioning of young children with autism spectrum disorders. Topics in Early Childhood Special Education, 23(2), 77–89. CrossRef
Moustakas, C. (1994). Phenomenological Research Methods. Thousand Oaks, California: Sage Publications, Inc.
Patterson, S., Smith, V., & Mirenda, P. (2011). A systematic review of training programs for parents of children with autism spectrum disorders: Single subject contributions. Autism, 16, 498–522. CrossRef
R Core Team (2015). R: A language and environment for statistical computing. R Foundation for Statistical Computing, Vienna, https://www.R-project.org/.
Rodriguez, M., Davis, M., Rodriguez, J., & Bates, S. (2006). Observed parenting practices of first-generation Latino families. Journal of Community Psychology, 34(2), 133–148. CrossRef
Rodriquez, B., & Olswang, L. (2003). Mexican-Ameircan and Anglo-American mothers’ beliefs and values about child rearing, education, and lanugage impairment. American Journal of Speech-Language Pathology, 12, 452–462. CrossRef
Rogers, S., Estes, A., Lord, C., Vismara, L., Winter, J., Fitzpatrick, A., … Dawson, G. (2012). Effects of a brief early start Denver model (ESDM)-based parent intervention on toddlers at risk for autism spectrum disorders: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 51, 1052–1065. CrossRefPubMedPubMedCentral
Rogers, S., & Vismara, L. (2014). Interventions for infants and toddlers at risk for autism spectrum disorder. In F. Volkmar, S. Rogers, R. Paul & K. Pelphry (Eds.), Handbook of autism and pervasive developmental disorders (4th edn., pp. 739–765). Hoboken: Wiley.
Saint-Germain, M., Bassford, T., & Montano, G. (1993). Surveys and focus croups in health research with older Hispanic women. Qualitative Health Research, 3, 341–367. CrossRef
Sam, A. & AFIRM Team. (2015). AFIRM Modules. Chapel Hill, NC: National Professional Development Center on Autism Spectrum Disorder, FPG Child Development Center, University of North Carolina. Retrieved from http://afirm.fpg.unc.edu.
Technical Assistance and Dissemination Network (2011). Historical state-level IDEA data files. Retrieved on 2/8/16 from http://tadnet.public.tadnet.org/pages/712.
U.S. Census Bureau, Current Population Survey, Annual Social and Economic Supplement, 2013.
Vigil, D., & Hwa-Froelich, D. (2004). Interaction styles in minority caregivers: Implications for intervention. Communication Disorders Quarterly, 25(3), 119–126. CrossRef
Windham, G. C., Smith, K. S., Rosen, N., Anderson, M. C., Grether, J. K., Coolman, R. B., … Bingham, A. (2012). Observed parenting practices of first-generation Latino families. Journal of Autism and Developmental Disorders, 43(2), 1–16.
Woods, J., & Wetherby, A. (2003). Early identification of and intervention for infants and toddlers who are at risk for autism spectrum disorder. Language Speech and Hearing Services in Schools, 34(3), 180–193. CrossRef
Zayas, L., & Rojas-Flores, L. (2002). Learning from Latino parents: Combining etic and emic approaches to designing interventions. In J. Contreras & K. Kerns (Eds.), Latino children and families in the United States: Cureent research and future directions (pp. 233–249). Westport, CT: Praeger Publishers/Greenwood Publishing Group.
Zayas, L., & Solari, F. (1994). Early childhood socializations in hispanic families: Context, culture, and practice implications. Professional Psychology: Research and Practice, 25(3), 200–206. CrossRef
Zetlin, A., Padron, M., & Wilson, S. (1996). The experience of five Latin American families with the special education system. Education and Training in Mental Retardation and Developmental Disabilities, 31(1), 22–28.
- In Search of Culturally Appropriate Autism Interventions: Perspectives of Latino Caregivers
Linda R. Watson
- Springer US