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01-03-2016 | Special Section: PROs in Non-Standard Settings (by invitation only) | Uitgave 3/2016

Quality of Life Research 3/2016

Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany

Tijdschrift:
Quality of Life Research > Uitgave 3/2016
Auteurs:
D. Barthel, K. I. Fischer, S. Nolte, C. Otto, A. -K. Meyrose, S. Reisinger, M. Dabs, U. Thyen, M. Klein, H. Muehlan, T. Ankermann, O. Walter, M. Rose, U. Ravens-Sieberer
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Electronic supplementary material

The online version of this article (doi:10.​1007/​s11136-015-1219-9) contains supplementary material, which is available to authorized users.
For the Kids-CAT Study Group
D. Barthel and K. Fischer have shared first authorship.

Abstract

Purpose

To describe the implementation process of a computer-adaptive test (CAT) for measuring health-related quality of life (HRQoL) of children and adolescents in two pediatric clinics in Germany. The study focuses on the feasibility and user experience with the Kids-CAT, particularly the patients’ experience with the tool and the pediatricians’ experience with the Kids-CAT Report.

Methods

The Kids-CAT was completed by 312 children and adolescents with asthma, diabetes or rheumatoid arthritis. The test was applied during four clinical visits over a 1-year period. A feedback report with the test results was made available to the pediatricians. To assess both feasibility and acceptability, a multimethod research design was used. To assess the patients’ experience with the tool, the children and adolescents completed a questionnaire. To assess the clinicians’ experience, two focus groups were conducted with eight pediatricians.

Results

The children and adolescents indicated that the Kids-CAT was easy to complete. All pediatricians reported that the Kids-CAT was straightforward and easy to understand and integrate into clinical practice; they also expressed that routine implementation of the tool would be desirable and that the report was a valuable source of information, facilitating the assessment of self-reported HRQoL of their patients.

Conclusions

The Kids-CAT was considered an efficient and valuable tool for assessing HRQoL in children and adolescents. The Kids-CAT Report promises to be a useful adjunct to standard clinical care with the potential to improve patient–physician communication, enabling pediatricians to evaluate and monitor their young patients’ self-reported HRQoL.

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