Swipe om te navigeren naar een ander artikel
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Health-related quality of life (HRQoL) may be helpful in identifying children at risk of developing adjustment problems. Few studies have focused on HRQoL among children of ill or substance abusing parents despite their considerable risk status. In the present study, we used the KIDSCREEN-27 to assess self-reported HRQoL in children and adolescents living in families with parental illness, or substance dependence. First, we tested whether the factor structure of the KIDSCREEN-27 was replicated in this population of children. Next, we examined differences in HRQoL according to age, gender, and type of parental illness. Finally, we compared levels of HRQoL in our sample to a normative reference population.
Two hundred and forty-six children and adolescents aged 8–17 years and their ill parents participated. The construct validity of the KIDSCREEN-27 questionnaire was examined by confirmatory factor analysis (CFA). T-tests and ANOVA were used to test differences in HRQoL levels according to age, gender, and parental patient groups, and for comparisons with reference population.
The KIDSCREEN-27 fit the theoretical five-factor model of HRQoL reasonably well. Boys and younger children reported significantly greater well-being on physical well-being, psychological well-being, and peers and social support, compared to girls and older children. Younger children also reported significantly greater well-being at school than did older children. There were no significant differences in HRQoL between groups of children living with different type of parental illness. The children in our sample reported their physical well-being significantly lower than the reference population.
The KIDSCREEN-27 questionnaire appears to work satisfactorily among children of ill or substance abusing parents.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Barkmann, C., Romer, G., Watson, M., Schulte-Markwort, M. (2007). Parental physical illness as a risk for psychosocial maladjustment in children and adolescents: Epidemiological findings from a national survey in Germany. Psychosomatics: Journal of Consultation Liaison Psychiatry, 48, 476–481. CrossRef
Berg-Nielsen, T. S., & Wichstrom, L. (2012). The mental health of preschoolers in a Norwegian population-based study when their parents have symptoms of borderline, antisocial, and narcissistic personality disorders: At the mercy of unpredictability. Child and Adolescent Psychiatry and Mental Health, 6, 19. CrossRef
Bogosian, A., Moss-Morris, R., & Hadwin, J. (2010). Psychosocial adjustment in children and adolescents with a parent with multiple sclerosis: A systematic review. Clinical Rehabilitation, 24, 789–801. CrossRef
Christoffersen, M. N., & Soothill, K. (2003). The long-term consequences of parental alcohol abuse: A cohort study of children in Denmark. Journal of Substance Abuse Treatment, 25, 107–116. CrossRef
Connell, A. M., & Goodman, S. H. (2002). The association between psychopathology in fathers versus mothers and children’s internalizing and externalizing behavior problems: A meta-analysis. Psychological Bulletin, 128, 746–773. CrossRef
Diareme, S., Tsiantis, J., Kolaitis, G., Ferentinos, S., Tsalamanios, E., Paliokosta, E., et al. (2006). Emotional and behavioural difficulties in children of parents with multiple sclerosis: A controlled study in Greece. European Child & Adolescent Psychiatry, 15, 309–318. CrossRef
Evans, S., Keenan, T. R., & Shipton, E. A. (2007). Psychosocial adjustment and physical health of children living with maternal chronic pain. Journal of Paediatrics and Child Health, 43, 262–270. CrossRef
Jeppesen, E., Bjelland, I., Fossa, S. D., Loge, J. H., Sorebo, O., & Dahl, A. A. (2014). Does a parental history of cancer moderate the associations between impaired health status in parents and psychosocial problems in teenagers: A HUNT study. Cancer Medicine, 3, 919–926. CrossRef
Kelley, M. L., & Fals-Stewart, W. (2004). Psychiatric disorders of children living with drug-abusing, alcohol-abusing, and non-substance-abusing fathers. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 621–628. CrossRef
Krattenmacher, T., Kuhne, F., Halverscheid, S., Wiegand-Grefe, S., Bergelt, C., Romer, G., et al. (2014). A comparison of the emotional and behavioral problems of children of patients with cancer or a mental disorder and their association with parental quality of life. Journal of Psychosomatic Research, 76, 213–220. CrossRef
Osborne, C., & Berger, L. M. (2009). Parental substance abuse and child well-being: A consideration of parents’ gender and coresidence. Journal of Family Issues, 30, 341–370. CrossRef
Ramchandani, P., & Psychogiou, L. (2009). Paternal psychiatric disorders and children’s psychosocial development. The Lancet, 374, 646–653. CrossRef
Razaz, N., Nourian, R., Marrie, R. A., Boyce, W. T., & Tremlett, H. (2014). Children and adolescents adjustment to parental multiple sclerosis: A systematic review. BMC Neurology, 14, 107. CrossRef
Sieh, D., Meijer, A., Oort, F., Visser-Meily, J., & Van der Leij, D. (2010). Problem behavior in children of chronically ill parents: A meta-analysis. Clinical Child and Family Psychology Review, 13, 384–397. CrossRef
Visser, A., Huizinga, G. A., Hoekstra, H. J., Van Der Graaf, W. T., Klip, E. C., Pras, E., et al. (2005). Emotional and behavioural functioning of children of a parent diagnosed with cancer: A cross-informant perspective. Psychooncology, 14, 746–758. CrossRef
The KIDSCREEN Group Europe. (2006). The KIDSCREEN Questionnaires—Quality of life questionnaires for children and adolescents. Handbook. Lengerich: Pabst Science Publishers.
Coker, T. R., Elliott, M. N., Wallander, J. L., Cuccaro, P., Grunbaum, J. A., Corona, R., et al. (2011). Association of family stressful life-change events and health-related quality of life in fifth-grade children. Archives of Pediatrics and Adolescent Medicine, 165, 354–359. CrossRef
Krattenmacher, T., Kuhne, F., Ernst, J., Bergelt, C., Romer, G., & Moller, B. (2012). Parental cancer: Factors associated with children’s psychosocial adjustment-A systematic review. Journal of Psychosomatic Research, 72, 344–356. CrossRef
Mayo, N. E. (2015). Dictionary of Quality of Life and Health Outcomes Measurement. 1st ed. International Society for Quality of Life Research, 3.
Bot, M., de Leeuw den Bouter, B., & Adriaanse, M. (2011). Prevalence of psychosocial problems in Dutch children aged 8–12 years and its association with risk factors and quality of life. Epidemiology and Psychiatric Sciences, 20, 357–365. CrossRef
Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., et al. (2007). The KIDSCREEN-27 quality of life measure for children and adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 16, 1347–1356. CrossRef
Ravens-Sieberer, U., Erhart, M., Gosch, A., & Wille, N. (2008). Mental health of children and adolescents in 12 European countries—Results from the European KIDSCREEN Study. Clinical Psychology & Psychotherapy, 15, 154–163. CrossRef
Wallander, J. L., & Koot, H. M. (2016). Quality of life in children: A critical examination of concepts, approaches, issues, and future directions. Clinical Psychology Review, 45, 131–143. CrossRef
Sun, R. C. F., & Shek, D. T. L. (2013). Longitudinal influences of positive youth development and life satisfaction on problem behaviour among adolescents in Hong Kong. Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, 114(3), 1171–1197. CrossRef
Berra, S., Tebe, C., Esandi, M. E., & Carignano, C. (2013). Reliability and validity of the KIDSCREEN-52 questionnaire to measure health related quality of life in the 8 to 18 year-old Argentinean population. Archivos Argentinos de Pediatria, 111, 29–35. PubMed
Palacio-Vieira, J., Villalonga-Olives, E., Valderas, J., Espallargues, M., Herdman, M., Berra, S., et al. (2008). Changes in health-related quality of life (HRQoL) in a population-based sample of children and adolescents after 3 years of follow-up. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 17, 1207–1215. CrossRef
World Health Organization. Health statistics and information systems; WHOQOL: Measuring quality of life. Retrieved from http://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/.
Wallander, J. L., Schmitt, M., & Koot, H. M. (2001). Quality of life measurement in children and adolescents: Issues, instruments, and applications. Journal of Clinical Psychology, 57, 571–585. CrossRef
Detmar, S., Bruil, J., Ravens-Sieberer, U., Gosch, A., & Bisegger, C. (2006). The use of focus groups in the development of the KIDSCREEN HRQL questionnaire. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 15, 1345–1353. CrossRef
Robitail, S., Ravens-Sieberer, U., Simeoni, M.-C., Rajmil, L., Bruil, J., Power, M., et al. (2007). Testing the structural and cross-cultural validity of the KIDSCREEN-27 Quality of Life Questionnaire. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 16, 1335–1345. CrossRef
Gotze, H., Ernst, J., Brahler, E., Romer, G., & von Klitzing, K. (2015). Predictors of quality of life of cancer patients, their children, and partners. Psychooncology, 24, 787–795. CrossRef
Giannakopoulos, G., Dimitrakaki, C., Pedeli, X., Kolaitis, G., Rotsika, V., Ravens-Sieberer, U., et al. (2009). Adolescents’ wellbeing and functioning: relationships with parents’ subjective general physical and mental health. Health and Quality of Life Outcomes, 7, 100. CrossRef
Cavallo, F., Zambon, A., Borraccino, A., Raven-Sieberer, U., Torsheim, T., & Lemma, P. (2006). Girls growing through adolescence have a higher risk of poor health. Quality of Life Research, 15, 1577–1585. CrossRef
Meade, T., & Dowswell, E. (2015). Health-related quality of life in a sample of Australian adolescents: Gender and age comparison. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation. https://doi.org/10.1007/s11136-015-1033-4. CrossRef
Michel, G., Bisegger, C., Fuhr, D. C., & Abel, T. (2009). Age and gender differences in health-related quality of life of children and adolescents in Europe: A multilevel analysis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 18, 1147–1157. CrossRef
Bisegger, C., Cloetta, B., von Rueden, U., Abel, T., & Ravens-Sieberer, U. (2005). Health-related quality of life: gender differences in childhood and adolescence. Soz Praventivmed, 50, 281–291. CrossRef
Kuhne, F., Krattenmacher, T., Bergelt, C., Ernst, J. C., Flechtner, H. H., Fuhrer, D., et al. (2012). Parental palliative cancer: Psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service. BMC Palliative Care, 11, 21. CrossRef
Dittrich, K., Fuchs, A., Bermpohl, F., Meyer, J., Führer, D., Reichl, C., et al. (2018). Effects of maternal history of depression and early life maltreatment on children’s health-related quality of life. Journal of Affect Disordorders, 1, 280–288. CrossRef
Comiskey, C. M., Milnes, J., & Daly, M. (2017). Parents who use drugs: The well-being of parent and child dyads among people receiving harm reduction interventions for opiate use. Journal of Substance Use, 22, 206–210 CrossRef
Tebes, J., Kaufman, J., Adnopoz, J., & Racusin, G. (2001). Resilience and family psychosocial processes among children of parents with serious mental disorders. Journal of Child and Family Studies, 10(1), 115–136. CrossRef
Berg-Nielsen, T. S., Vikan, A., & Dahl, A. A. (2002). Parenting related to child and parental psychopathology: A descriptive review of the literature. Clinical Child Psychology and Psychiatry, 7, 529–552. CrossRef
Johnson, J. G., Cohen, P., Kasen, S., Ehrensaft, M. K., & Crawford, T. N. (2006). Associations of parental personality disorders and axis I disorders with childrearing behavior. Psychiatry: Interpersonal and Biological Processes, 69, 336–350. CrossRef
Laulik, S., Chou, S., Browne, K. D., & Allam, J. (2013). The link between personality disorder and parenting behaviors: A systematic review. Aggression and Violent Behavior, 18, 644–655. CrossRef
Stein, A., Ramchandani, P., Murray, L. (2008). Impact of parental psychiatric disorder and physical illness. In M. Rutter, D. Bishop, D. Pine, S. Scott, J. Stevenson, E. Taylor, & A. Thapar (Eds.), Rutter’s child and adolescent psychiatry (5th ed., pp 407–420) xv, 1230 pp. London: Wiley. ( Reprinted 2010).
Lander, L., Howsare, J., & Byrne, M. (2013). The impact of substance use disorders on families and children: From theory to practice. Social Work in Public Health, 28, 194–205. CrossRef
Europe, T. K. G. (2006). The KIDSCREEN questionnaires: Quality of life questionnaires for children and adolescents. Lengerich: Pabst Science Publishers.
Ruud, T. B. B., Faugli, A., Amlund Hagen, K., Hellmann, A., Hilsen, M., Kallander, E. K., et al. (2015). Barn som pårørende—-Resultater fra en multisenterstudie. Lørenskog: Akershus universitetssykehus HF.
Andersen, J. R., Natvig, G. K., Haraldstad, K., Skrede, T., Aadland, E., & Resaland, G. K. (2016). Psychometric properties of the Norwegian version of the Kidscreen-27 questionnaire. Health and Quality of Life Outcomes, 14, 58. CrossRef
Munthén, L. K. (1998–2015). MBO: Mplus User’s Guide. Seventh edition. Los Angeles, CA: Munthén & Munthén.
Schermelleh-Engel, K., Moosbrugger, H., & Müller, H. (2003). Evaluating the fit of structural equation models: Tests of significance and descriptive goodness-of-fit Measures. Methods of psychological research online, 8, 23–74.
Ogden, T., & Hagen, K. A. (2014). Adolescent mental health: Prevention and intervention. New York: Taylor & Francis Group.
Benjet, C., & Hernandez-Guzman, L. (2001). Gender differences in psychological well-being of Mexican early adolescents. Adolescence, 36, 47–65. PubMed
Kayed, N. S., Jozefiak, T., Rimehaug, T., Tjelflaat, T., Brubakk, A. M., & Wickstrom, L. (2015). Resultater fra forskningsprosjektet psykisk helse hos barn og unge i barnevernsinstitusjoner. Trondheim: Norwegian University of Science and Technology.
- Health-related quality of life (HRQoL) in children of ill or substance abusing parents: examining factor structure and sub-group differences
Kristine Amlund Hagen
Ellen K. Kallander
- Springer International Publishing
Quality of Life Research
An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - An Official Journal of the International Society of Quality of Life Research
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649