Top

Gepubliceerd in:

25-02-2023 | Original Paper

Family Functioning and Health-Related Quality of Life in Parents of Children with Mental Illness

Auteurs: Madeline Reed, Chloe Bedard, Christopher M. Perlman, Dillon T. Browne, Mark A. Ferro

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 11/2023

Abstract

Previous research suggests that family dysfunction may be related to lower health-related quality of life (HRQoL) in parent caregivers, but it is unknown if this association exists in the context of child mental illness. Therefore, the objectives of this study were to compare HRQoL between parent caregivers and Canadian population norms using the Short Form 36 Health Survey (SF-36); examine associations between family functioning and parental HRQoL; and investigate whether child and parental factors moderate associations between family functioning and parental HRQoL. Cross-sectional data were collected from children receiving mental healthcare at a pediatric hospital and their parents (n = 97). Sample mean SF-36 scores were compared to Canadian population norms using t-tests and effect sizes were calculated. Multiple regression was used to evaluate associations between family functioning and parental physical and mental HRQoL, adjusting for sociodemographic and clinical covariates. Proposed moderators, including child age, sex, and externalizing disorder, and parental psychological distress, were tested as product-term interactions. Parents had significantly lower physical and mental HRQoL versus Canadian norms in most domains of the SF-36, and in the physical and mental component summary scores. Family functioning was not associated with parental physical HRQoL. However, lower family functioning predicted lower parental mental HRQoL. Tested variables did not moderate associations between family functioning and parental HRQoL. These findings support the uptake of approaches that strive for collaboration among healthcare providers, children, and their families (i.e., family-centered care) in child psychiatry settings. Future research should explore possible mediators and moderators of these associations.

vorige artikel The Role of Informal Sources of Help In Young People’s Access To, Engagement With, And Maintenance In Professional Mental Health Care—A Scoping Review

volgende artikel Exploring the Perceived Impact of Parental PTSD on Parents and Parenting Behaviours—A Qualitative Study

Aarti, R., Kumar, R., & Varghese, A. (2019). Depression and quality of life in family caregivers of individuals with psychiatric illness. International Journal Of Community Medicine And Public Health, 6(2), 715–720. https://doi.org/10.18203/2394-6040.ijcmph20190196.CrossRef

Azman, A., Jamir Singh, P. S., & Sulaiman, J. (2019). The mentally ill and their impact on family caregivers: A qualitative case study. International Social Work, 62(1), 461–471. https://doi.org/10.1177/0020872817731146.CrossRef

Bell, J. M. (2013). Family nursing is more than family centered care. Journal of Family Nursing, 19(4), 411–417. https://doi.org/10.1177/1074840713512750.CrossRefPubMed

Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12(3), 463–472. https://doi.org/10.1177/0265407595123009.CrossRef

Biederman, J., Faraone, S. V., Mick, E., Williamson, S., Wilens, T. E., Spencer, T. J., Weber, W., Jetton, J., Kraus, I., Pert, J., & Zallen, B. (1999). Clinical correlates of ADHD in females: Findings from a large group of girls ascertained from pediatric and psychiatric referral sources. Journal of the American Academy of Child and Adolescent Psychiatry, 38(8), 966–975. https://doi.org/10.1097/00004583-199908000-00012.CrossRefPubMed

Biederman, J., Milberger, S., Faraone, S. V., Kiely, K., Guite, J., Mick, E., Ablon, S., Warburton, R., & Reed, E. (1995). Family-environment risk factors for attention-deficit hyperactivity disorder: A test of Rutter’s indicators of adversity. Archives of General Psychiatry, 52(6), 464–470. https://doi.org/10.1001/archpsyc.1995.03950180050007.CrossRefPubMed

Browne, D. T., Plamondon, A., Prime, H., Puente-Duran, S., & Wade, M. (2015). Cumulative risk and developmental health: an argument for the importance of a family-wide science. Wiley Interdisciplinary Reviews: Cognitive Science, 6(4), 397–407. https://doi.org/10.1002/wcs.1349.CrossRefPubMed

Byles, J., Byrne, C., Boyle, M. H., & Offord, D. R. (1988). Ontario child health study: reliability and validity of the general functioning subscale of the McMaster Family Assessment Device. Family Process, 27(1), 97–104. https://doi.org/10.1111/j.1545-5300.1988.00097.x.CrossRefPubMed

Cappe, E., Bolduc, M., Rougé, M. C., Saiag, M. C., & Delorme, R. (2017). Quality of life, psychological characteristics, and adjustment in parents of children with attention-deficit/hyperactivity disorder. Quality of Life Research, 26(5), 1283–1294. https://doi.org/10.1007/s11136-016-1446-8.CrossRefPubMed

Chazan, R., Borowski, C., Pianca, T., Ludwig, H., Rohde, L. A., & Polanczyk, G. (2011). Do phenotypic characteristics, parental psychopathology, family functioning, and environmental stressors have a role in the response to methylphenidate in children with attention-deficit/hyperactivity disorder?: A naturalistic study from a developing country. Journal of Clinical Psychopharmacology, 31(3), 309–317. https://doi.org/10.1097/JCP.0b013e318217b4df.CrossRefPubMed

Chen, V. C. H., Yeh, C. J., Lee, T. C., Chou, J. Y., Shao, W. C., Shih, D. H., Chen, C. I., & Lee, P. C. (2014). Symptoms of attention deficit hyperactivity disorder and quality of life of mothers of school-aged children: The roles of child, mother, and family variables. Kaohsiung Journal of Medical Sciences, 30(12), 631–638. https://doi.org/10.1016/j.kjms.2014.09.001.CrossRefPubMed

Contopoulos-Ioannidis, D. G., Karvouni, A., Kouri, I., & Ioannidis, J. P. A. (2009). Reporting and interpretation of SF-36 outcomes in randomised trials: systematic review. BMJ, 338(7687), 152–154. https://doi.org/10.1136/bmj.a3006.CrossRef

Crowe, A., & Lyness, K. P. (2014). Family functioning, coping, and distress in families with serious mental illness. The Family Journal, 22(2), 186–197. https://doi.org/10.1177/1066480713513552.CrossRef

Cummings, E. M., DeArth-Pendley, G., Du Rocher Schudlich, T., & Smith, D. A. (2001). Parental depression and family functioning: Toward a process-oriented model of children’s adjustment. In S. R. H. Beach (Ed.), Marital and family processes in depression: A scientific foundation for clinical practice (pp. 89–110). American Psychological Association. https://doi.org/10.1037/10350-005.

Cussen, A., Sciberras, E., Ukoumunne, O. C., & Efron, D. (2012). Relationship between symptoms of attention-deficit/hyperactivity disorder and family functioning: A community-based study. European Journal of Pediatrics, 171(2), 271–280. https://doi.org/10.1007/s00431-011-1524-4.CrossRefPubMed

Dey, M., Paz Castro, R., Haug, S., & Schaub, M. P. (2019). Quality of life of parents of mentally-ill children: A systematic review and meta-analysis. Epidemiology and Psychiatric Sciences, 28(5), 563–577. https://doi.org/10.1017/S2045796018000409.CrossRefPubMed

Doherty, A. M., & Gaughran, F. (2014). The interface of physical and mental health. Social Psychiatry and Psychiatric Epidemiology, 49(5), 673–682. https://doi.org/10.1007/s00127-014-0847-7.CrossRefPubMed

Dol, M., McDonald, E., & Ferro, M. A. (2020). Psychometric properties of the CESD, STAI-T, and PSS among parents of children with mental illness. Journal of Family Studies, 1–17. https://doi.org/10.1080/13229400.2020.1837208.

Doran, C. M., & Kinchin, I. (2019). A review of the economic impact of mental illness. Australian Health Review, 43(1), 43–48. https://doi.org/10.1071/AH16115.CrossRefPubMed

Douma, M., Maurice-Stam, H., Gorter, B., Krol, Y., Verkleij, M., Wiltink, L., Scholten, L., & Grootenhuis, M. A. (2021). Online psychosocial group intervention for parents: Positive effects on anxiety and depression. Journal of Pediatric Psychology, 46(2), 123–134. https://doi.org/10.1093/jpepsy/jsaa102.CrossRefPubMed

Duncan, L., Georgiades, K., Wang, L., Van Lieshout, R. J., MacMillan, H. L., Ferro, M. A., Lipman, E. L., Szatmari, P., Bennett, K., Kata, A., Janus, M., & Boyle, M. H. (2018). Psychometric evaluation of the Mini International Neuropsychiatric Interview for Children and Adolescents (MINI-KID). Psychological Assessment, 30(7), 916–928. https://doi.org/10.1037/pas0000541.CrossRefPubMed

Epstein, N. B., Baldwin, L. M., & Bishop, D. S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9(2), 171–180. https://doi.org/10.1111/j.1752-0606.1983.tb01497.x.CrossRef

Falkov, A. (2012). The family model handbook: An integrated approach to supporting mentally ill parents and their children. Sussex: Pavilion.

Farivar, S. S., Cunningham, W. E., & Hays, R. D. (2007). Correlated physical and mental health summary scores for the SF-36 and SF-12 Health Survey, V.1. Health and Quality of Life Outcomes, 5, 54 https://doi.org/10.1186/1477-7525-5-54.CrossRefPubMedPubMedCentral

Fattori, A., Neri, L., Bellomo, A., Vaggi, M., & Mencacci, C., the ILDE Study Group. (2017). Depression severity and concentration difficulties are independently associated with HRQOL in patients with unipolar depressive disorders. Quality of Life Research, 26(9), 2459–2469. https://doi.org/10.1007/s11136-017-1595-4.CrossRefPubMed

Ferro, M. A., Lipman, E. L., Van Lieshout, R. J., Boyle, M. H., Gorter, J. W., MacMillan, H. L., Gonzalez, A., & Georgiades, K. (2019). Mental–physical multimorbidity in youth: Associations with individual, family, and health service use outcomes. Child Psychiatry and Human Development, 50(3), 400–410. https://doi.org/10.1007/s10578-018-0848-y.CrossRefPubMed

Foroughe, M., Stillar, A., Goldstein, L., Dolhanty, J., Goodcase, E. T., & Lafrance, A. (2019). Brief emotion focused family therapy: An intervention for parents of children and adolescents with mental health issues. Journal of Marital and Family Therapy, 45(3), 410–430. https://doi.org/10.1111/jmft.12351.CrossRefPubMed

Goodyer, I. M., Herbert, J., Tamplin, A., Secher, S. M., & Pearson, J. (1997). Short-term outcome of major depression: II. Life events, family dysfunction, and friendship difficulties as predictors of persistent disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 36(4), 474–480. https://doi.org/10.1097/00004583-199704000-00009.CrossRefPubMed

Gutiérrez-Maldonado, J., Caqueo-Urízar, A., & Kavanagh, D. J. (2005). Burden of care and general health in families of patients with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 40(11), 899–904. https://doi.org/10.1007/s00127-005-0963-5.CrossRefPubMed

Hamilton, E., & Carr, A. (2016). Systematic review of self-report family assessment measures. Family Process, 55(1), 16–30. https://doi.org/10.1111/famp.12200.CrossRefPubMed

Hays, R. D., & Reeve, B. B. (2008). Measurement and modeling of health-related quality of life. In J. Killewo, H. K. Heggenhougen, & S. R. Quah (Eds.), Epidemiology and Demography in Public Health (pp. 195–205). https://doi.org/10.1016/B978-012373960-5.00336-1.

Hodge, C. J., Duerden, M. D., Layland, E. K., Lacanienta, A., Goates, M. C., & Niu, X. M. (2017). The association between family leisure and family quality of life: A meta-analysis of data from parents and adolescents. Journal of Family Theory and Review, 9(3), 328–346. https://doi.org/10.1111/jftr.12202.CrossRef

Högberg, C., Billstedt, E., Björck, C., Björck, P. O., Ehlers, S., Gustle, L. H., Hellner, C., Höök, H., Serlachius, E., Svensson, M. A., & Larsson, J. O. (2019). Diagnostic validity of the MINI-KID disorder classifications in specialized child and adolescent psychiatric outpatient clinics in Sweden. BMC Psychiatry, 19, 142 https://doi.org/10.1186/s12888-019-2121-8.CrossRefPubMedPubMedCentral

Holtom-Viesel, A., & Allan, S. (2014). A systematic review of the literature on family functioning across all eating disorder diagnoses in comparison to control families. Clinical Psychology Review, 34(1), 29–43. https://doi.org/10.1016/j.cpr.2013.10.005.CrossRefPubMed

Hopman, W. M., Towheed, T., Anastassiades, T., Tenenhouse, A., Poliquin, S., Berger, C., Joseph, L., Brown, J. P., Murray, T. M., Adachi, J. D., Hanley, D. A. & Papadimitropoulos, E. (2000). Canadian normative data for the SF-36 health survey. CMAJ, 163(3), 265–271. https://www.cmaj.ca/content/163/3/265.full.

Hsiao, Y. J. (2016). Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: Roles of parental stress, children’s performance, medical support, and neighbor support. Research in Autism Spectrum Disorders, 23, 122–130. https://doi.org/10.1016/j.rasd.2015.10.008.CrossRef

Huang, Y. P., Chang, M. Y., Chi, Y. L., & Lai, F. C. (2014). Health-related quality of life in fathers of children with or without developmental disability: the mediating effect of parental stress. Quality of Life Research, 23, 175–183. https://doi.org/10.1007/s11136-013-0469-7.CrossRefPubMed

Hubbard, A. A., McEvoy, P. M., Smith, L., & Kane, R. T. (2016). Brief group psychoeducation for caregivers of individuals with bipolar disorder: A randomized controlled trial. Journal of Affective Disorders, 200, 31–36. https://doi.org/10.1016/j.jad.2016.04.013.CrossRefPubMed

Jeyagurunathan, A., Sagayadevan, V., Abdin, E., Zhang, Y. J., Chang, S., Shafie, S., Rahman, R. F. A., Vaingankar, J. A., Chong, S. A., & Subramaniam, M. (2017). Psychological status and quality of life among primary caregivers of individuals with mental illness: A hospital based study. Health and Quality of Life Outcomes, 15, 106 https://doi.org/10.1186/s12955-017-0676-y.CrossRefPubMedPubMedCentral

Joh, J. Y., Kim, S., Park, J. L., & Kim, Y. P. (2013). Relationship between family adaptability, cohesion and adolescent problem behaviors: Curvilinearity of circumplex model. Korean Journal of Family Medicine, 34(3), 169–177. https://doi.org/10.4082/kjfm.2013.34.3.169.CrossRefPubMedPubMedCentral

Johnson, B. H. (2000). Family-centered care: facing the new millennium. Interview by Elizabeth Ahmann. Pediatric Nursing, 26(1), 87–90.PubMed

Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems and Health, 29(3), 232–252. https://doi.org/10.1037/a0025341.CrossRefPubMed

Johnston, C., & Mash, E. J. (2001). Families of children with attention-deficit/hyperactivity disorder: Review and recommendations for future research. Clinical Child and Family Psychology Review, 4(3), 183–207. https://doi.org/10.1023/A:1017592030434.CrossRefPubMed

Kandemir, H., Kiliç, B. G., Ekinci, S., & Yüce, M. (2014). An evaluation of the quality of life of children with ADHD and their families. Alpha Psychiatry, 15(3), 265–271. https://doi.org/10.5455/apd.46202.CrossRef

Keitner, G. I., Heru, A. M., & Glick, I. D. (2009). Clinical manual of couples and family therapy. American Psychiatric Publishing Inc.

Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. https://doi.org/10.1007/s10803-010-1140-6.CrossRefPubMed

Kim, J., Kim, H., Park, S., Yoo, J., & Gelegjamts, D. (2021). Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia. Journal of Applied Research in Intellectual Disabilities, 34(2), 507–515. https://doi.org/10.1111/jar.12814.CrossRefPubMed

Kousha, M., Attar, H. A., & Shoar, Z. (2016). Anxiety, depression, and quality of life in Iranian mothers of children with autism spectrum disorder. Journal of Child Health Care, 20(3), 405–414. https://doi.org/10.1177/1367493515598644.CrossRefPubMed

Lee, G. K., Lopata, C., Volker, M. A., Thomeer, M. L., Nida, R. E., Toomey, J. A., Chow, S. Y., Smerbeck, A. M., & Smerbeck, A. M. (2009). Health-related quality of life of parents of children with high-functioning autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24(4), 227–239. https://doi.org/10.1177/1088357609347371.CrossRef

Leng, A., Xu, C., Nicholas, S., Nicholas, J., & Wang, J. (2019). Quality of life in caregivers of a family member with serious mental illness: Evidence from China. Archives of Psychiatric Nursing, 33(1), 23–29. https://doi.org/10.1016/j.apnu.2018.08.010.CrossRefPubMed

Limbers, C. A., Ripperger-Suhler, J., Boutton, K., Ransom, D., & Varni, J. W. (2011). A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL. Journal of Attention Disorders, 15(5), 392–402. https://doi.org/10.1177/1087054709356191.CrossRefPubMed

MacKean, G., Spragins, W., L’Heureux, L., Popp, J., Wilkes, C., & Lipton, H. (2012). Advancing family-centred care in child and adolescent mental health: A critical review of the literature. Healthcare Quarterly, 15(Spec No 4), 64–75. https://doi.org/10.12927/hcq.2013.22939.CrossRefPubMed

Martín, J., Padierna, A., Aguirre, U., González, N., Muñoz, P., & Quintana, J. M. (2013). Predictors of quality of life and caregiver burden among maternal and paternal caregivers of patients with eating disorders. Psychiatry Research, 210(3), 1107–1115. https://doi.org/10.1016/j.psychres.2013.07.039.CrossRefPubMed

McDonald, E., Whitney, S., Horricks, L., Lipman, E. L., & Ferro, M. A. (2021). Parent-child agreement on the Mini International Neuropsychiatric Interview for Children and Adolescents (MINI-KID). J Can Acad Child Adolesc Psychiatry, 30(4), 264–272.PubMedPubMedCentral

McDowell, I. (2006). Measuring health: a guide to rating scales and questionnaires. Oxford University Press.

Mendenhall, A. N., & Mount, K. (2011). Parents of children with mental illness: Exploring the caregiver experience and caregiver-focused interventions. Families in Society, 92(2), 183–190. https://doi.org/10.1606/1044-3894.4097.CrossRef

Meng, N., Chen, J., Cao, B., Wang, F., Xie, X., & Li, X. (2021). Focusing on quality of life in the family caregivers of patients with schizophrenia from the perspective of family functioning: A cross-sectional study. Medicine, 100(5), e24270 https://doi.org/10.1097/MD.0000000000024270.CrossRefPubMedPubMedCentral

Mental Health Commission of Canada. (2010). Together We Can. https://www.mentalhealthcommission.ca/sites/default/files/Diversity_Together_We_Can_ENG_0_1.pdf.

Minuchin, S. (1974). Families & family therapy. Harvard U. Press.

Modanloo, S., Rohani, C., Shirinabadi Farahani, A., Vasli, P., & Pourhosseingholi, A. (2019). General family functioning as a predictor of quality of life in parents of children with cancer. Journal of Pediatric Nursing, 44, e2–e8. https://doi.org/10.1016/j.pedn.2018.08.013.CrossRefPubMed

Mosby, C. V. (2009). Mosby’s medical dictionary. (8th ed.). Mosby Elsevier.

Murphy, Y. E., & Flessner, C. A. (2015). Family functioning in paediatric obsessive compulsive and related disorders. British Journal of Clinical Psychology, 54(4), 414–434. https://doi.org/10.1111/bjc.12088.CrossRefPubMed

Okun, A., Stein, R. E. K., Bauman, L. J., & Silver, E. J. (1996). Content validity of the Psychiatric Symptom Index, CES-Depression Scale, and State-Trait Anxiety Inventory from the perspective of DSM-IV. Psychological Reports, 79(3), 1059–1069. https://doi.org/10.2466/pr0.1996.79.3.1059.CrossRefPubMed

Olasoji, M., Maude, P., & McCauley, K. (2017). Not sick enough: Experiences of carers of people with mental illness negotiating care for their relatives with mental health services. Journal of Psychiatric and Mental Health Nursing, 24(6), 403–411. https://doi.org/10.1111/jpm.12399.CrossRefPubMed

Oltean, I. I., Perlman, C., Meyer, S., & Ferro, M. A. (2020). Child mental illness and mental health service use: Role of family functioning (family functioning and child mental health). Journal of Child and Family Studies, 29(9), 2602–2613. https://doi.org/10.1007/s10826-020-01784-4.CrossRef

Park, M., Giap, T.-T.-T., Lee, M., Jeong, H., Jeong, M., & Go, Y. (2018). Patient- and family-centered care interventions for improving the quality of health care: A review of systematic reviews. International Journal of Nursing Studies, 87, 69–83. https://doi.org/10.1016/j.ijnurstu.2018.07.006.CrossRefPubMed

Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. https://doi.org/10.1177/014662167700100306.CrossRef

Regan, K. M., Curtin, C., & Vorderer, L. (2017). Paradigm shifts in inpatient psychiatric care of children: Approaching child- and family-centered care. Journal of Child and Adolescent Psychiatric Nursing, 30(4), 186–194. https://doi.org/10.1111/jcap.12193.CrossRefPubMed

Ribé, J. M., Salamero, M., Pérez-Testor, C., Mercadal, J., Aguilera, C., & Cleris, M. (2018). Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. International Journal of Psychiatry in Clinical Practice, 22(1), 25–33. https://doi.org/10.1080/13651501.2017.1360500.CrossRefPubMed

Richardson, M., Cobham, V., McDermott, B., & Murray, J. (2013). Youth mental illness and the family: parents’ loss and grief. Journal of Child and Family Studies, 22(5), 719–736. https://doi.org/10.1007/s10826-012-9625-x.CrossRef

Rodríguez-Sanchez, E., Pérez-Pẽaranda, A., Losada-Baltar, A., Pérez-Arechaederra, D., Gámez-Marcos, M. Á., Patino-Alonso, M. C., & García-Ortiz, L. (2011). Relationships between quality of life and family function in caregiver. BMC Family Practice, 12, 19 https://doi.org/10.1186/1471-2296-12-19.CrossRefPubMedPubMedCentral

Sales, E. (2003). Family burden and quality of life. Quality of Life Research, 12(Suppl 1), 33–41. https://doi.org/10.1023/A:1023513218433.CrossRefPubMed

Sheehan, D. V., Sheehan, K. H., Shytle, R. D., Janavs, J., Bannon, Y., Rogers, J. E., Milo, K. M., Stock, S. L., & Wilkinson, B. (2010). Reliability and validity of the Mini International Neuropsychiatric Interview for Children and Adolescents (MINI-KID. The Journal of Clinical Psychiatry, 71(3), 313–326. https://doi.org/10.4088/JCP.09m05305whi.

Sin, J., Gillard, S., Spain, D., Cornelius, V., Chen, T., & Henderson, C. (2017). Effectiveness of psychoeducational interventions for family carers of people with psychosis: A systematic review and meta-analysis. Clinical Psychology Review, 56, 13–24. https://doi.org/10.1016/j.cpr.2017.05.002.CrossRefPubMed

Smetanin, P., Stiff, D., Briante, C., Adair, C. E., Ahmad, S., & Khan, M. (2011). The life and economic impact of major mental illnesses in Canada: 2011 to 2041. RiskAnalytica, on behalf of the Mental Health Commission of Canada. https://www.mentalhealthcommission.ca/sites/default/files/MHCC_Report_Base_Case_FINAL_ENG_0_0.pdf

Spielberger, C. D., Gonzalez-Reigosa, F. E., Martinez-Urrutia, A. N., Natalicio, L., & Natalicio, D. S. (1971). Development of the Spanish edition of the State-Trait Anxiety Inventory. Interamerican. Journal of Psychology, 5(3-4), 145–158.

Tanner, J. A., Hensel, J., Davies, P. E., Brown, L. C., Dechairo, B. M., & Mulsant, B. H. (2020). Economic burden of depression and associated resource use in Manitoba, Canada. Canadian Journal of Psychiatry, 65(5), 338–346. https://doi.org/10.1177/0706743719895342.CrossRefPubMed

Thunyadee, C., Sitthimongkol, Y., Sangon, S., Chai-Aroon, T., & Hegadoren, K. M. (2015). Predictors of depressive symptoms and physical health in caregivers of individuals with schizophrenia. Nursing & Health Sciences, 17(4), 412–419. https://doi.org/10.1111/nhs.12205.CrossRef

Vadher, S., Desai, R., Panchal, B., Vala, A., Ratnani, I. J., Rupani, M. P., & Vasava, K. (2020). Burden of care in caregivers of patients with alcohol use disorder and schizophrenia and its association with anxiety, depression and quality of life. General Psychiatry, 33(4), 1–9. https://doi.org/10.1136/gpsych-2020-100215.CrossRef

Verma, P. K., Walia, T. S., Chaudhury, S., & Srivastava, S. (2019). Family psychoeducation with caregivers of schizophrenia patients: Impact on perceived quality of life. Industrial Psychiatry Journal, 28(1), 19–23. https://doi.org/10.4103/ipj.ipj_2_19.CrossRefPubMedPubMedCentral

Wang, J., Mansfield, A. K., Zhao, X., & Keitner, G. (2013). Family functioning in depressed and non-clinical control families. International Journal of Social Psychiatry, 59(6), 561–569. https://doi.org/10.1177/0020764012445260.CrossRefPubMed

Ware, J. E., & Sherbourne, C. (1992). The MOS 36-Item Short-Form Health Survey (SF-36): I. Conceptual Framework and Item Selection. Medical Care, 30(6), 473–483.CrossRefPubMed

Ware, J. E., Snow, K. K., Kosinski, M., Gandek, B. (1993). SF-36 Health Survey: Manual and Interpretation Guide. The Health Institute, New England Medical Center.

Wiens, K., Bhattarai, A., Pedram, P., Dores, A., Williams, J., Bulloch, A., & Patten, S. (2020). A growing need for youth mental health services in Canada: Examining trends in youth mental health from 2011 to 2018. Epidemiology and Psychiatric Sciences. https://doi.org/10.1017/S2045796020000281.

Wong, D. F. K., Lam, A. Y. K., Chan, S. K., & Chan, S. F. (2012). Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: Roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health and Quality of Life Outcomes, 10, 15 https://doi.org/10.1186/1477-7525-10-15.CrossRefPubMedPubMedCentral

Wu, M. S., Hamblin, R., Nadeau, J., Simmons, J., Smith, A., Wilson, M., Eken, S., Small, B., Phares, V., & Storch, E. A. (2018). Quality of life and burden in caregivers of youth with obsessive-compulsive disorder presenting for intensive treatment. Comprehensive Psychiatry, 80, 46–56. https://doi.org/10.1016/j.comppsych.2017.08.005.CrossRefPubMed

Xiang, Y. T., Luk, E. S., & Lai, K. Y. (2009). Quality of life in parents of children with attention-deficit-hyperactivity disorder in Hong Kong. Australian & New Zealand Journal of Psychiatry, 43(8), 731–738. https://doi.org/10.1080/00048670903001968.CrossRef

Yesufu-Udechuku, A., Harrison, B., Mayo-Wilson, E., Young, N., Woodhams, P., Shiers, D., Kuipers, E., & Kendall, T. (2015). Interventions to improve the experience of caring for people with severe mental illness: Systematic review and meta-analysis. British Journal of Psychiatry, 206(4), 268–274. https://doi.org/10.1192/bjp.bp.114.147561.CrossRef

Zelman, J. J., & Ferro, M. A. (2018). The Parental Stress Scale: Psychometric Properties in Families of Children With Chronic Health Conditions. Family Relations, 67(2), 240–252. https://doi.org/10.1111/fare.12306.CrossRef

Zendjidjian, X., Richieri, R., Adida, M., Limousin, S., Gaubert, N., Parola, N., Lançon, C., & Boyer, L. (2012). Quality of life among caregivers of individuals with affective disorders. Journal of Affective Disorders, 136(3), 660–665. https://doi.org/10.1016/j.jad.2011.10.011.CrossRefPubMed

Titel: Family Functioning and Health-Related Quality of Life in Parents of Children with Mental Illness
Auteurs: Madeline Reed
Chloe Bedard
Christopher M. Perlman
Dillon T. Browne
Mark A. Ferro
Publicatiedatum: 25-02-2023
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 11/2023
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-023-02556-6

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 11/2023

Children’s Dopaminergic Genotype is Associated with Maternal Reports of Household Chaos during Middle Childhood

Are Fathers More Important? The Positive Association Between the Parent-Child Relationship and Left-Behind Adolescents’ Subjective Vitality

Fathers of Adult Children with Autism: Examination of Caregiver Burden, Social Support, and Quality of Life

With a Little Help from My Friends: Profiles of Perceived Social Support and Their Associations with Adolescent Mental Health

Family Stigma and Community Participation of Arab Children and Youth with Disabilities

Caregiving Interactions and Behaviors in the Care of Children with Rare Genetic or Undiagnosed Conditions