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Gepubliceerd in: Quality of Life Research 3/2016

14-09-2015 | Special Section: PROs in Non-Standard Settings (by invitation only)

Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population

Auteurs: Alison M. Llewellyn, Suzanne M. Skevington

Gepubliceerd in: Quality of Life Research | Uitgave 3/2016

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Abstract

Purpose

We conducted an evaluation to find out how a novel quality of life (QoL) intervention containing guided individualized feedback was appraised. The importance of QoL was matched with QoL assessment for each subjective dimension, using graphical feedback. We examined whether this information was acceptable, feasible and valued beyond the clinical context, among the community.

Methods

Using a mixed-methods cross-sectional design, the intervention was piloted with 129 participants from communities and registered in primary care. WHOQOL-BREF and WHOQOL Importance scores were graphically matched by dimension. Results were inspected and interpreted with directed guidance to identify good and poor QoL. We report the post-intervention evaluation of feedback, including qualitative themes. Follow-up interviews among those expecting feedback to be helpful explored potential self-management and healthcare uses.

Results

After feedback, 65 % reported changes in thoughts and perceptions of QoL, often describing insights as self-affirming. Goals or expectations changed for 34 %, and motivation to change was reported. Over 50 % evaluated the feedback as helpful in the short term or for the future. Follow-up interviews endorsed the value of the feedback and its usefulness in sharing with a healthcare professional (92 %), suggesting it would facilitate professionals’ understandings of patients and enable health advice to be targeted.

Conclusions

The benefits of using this novel feedback can be extended to the general population, as directed guidance aids interpretation, thereby saving health service costs. This complex pilot intervention needs testing in a blinded fully randomized controlled trial. Beyond independent self-management, graphs could be used during clinical decision-making.
Voetnoten
1
Gathering exact age data was not approved by the NHS Ethics committee.
 
Literatuur
1.
go back to reference Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D. V., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient–physician communication: A randomized controlled trial. JAMA, 288(23), 3027–3034. CrossRefPubMed Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D. V., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient–physician communication: A randomized controlled trial. JAMA, 288(23), 3027–3034. CrossRefPubMed
2.
go back to reference Hilarius, D. L., Kloeg, P. H., Gundy, C. M., & Aaronson, N. K. (2008). Use of health-related quality-of-life assessments in daily clinical oncology nursing practice. Cancer, 113(3), 628–637. CrossRefPubMed Hilarius, D. L., Kloeg, P. H., Gundy, C. M., & Aaronson, N. K. (2008). Use of health-related quality-of-life assessments in daily clinical oncology nursing practice. Cancer, 113(3), 628–637. CrossRefPubMed
3.
go back to reference Santana, M. J., Feeny, D., Johnson, J. A., McAlister, F. A., Kim, D., Weinkauf, J., et al. (2010). Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. Quality of Life Research, 19(3), 371–379. CrossRefPubMed Santana, M. J., Feeny, D., Johnson, J. A., McAlister, F. A., Kim, D., Weinkauf, J., et al. (2010). Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. Quality of Life Research, 19(3), 371–379. CrossRefPubMed
4.
go back to reference Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724. CrossRefPubMed Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724. CrossRefPubMed
5.
go back to reference Takeuchi, E. E., Keding, A., Awad, N., Hofmann, U., Campbell, L. J., Selby, P. J., et al. (2011). Impact of patient-reported outcomes in oncology: A longitudinal analysis of patient–physician communication. Journal of Clinical Oncology, 29(21), 2910–2917. CrossRefPubMed Takeuchi, E. E., Keding, A., Awad, N., Hofmann, U., Campbell, L. J., Selby, P. J., et al. (2011). Impact of patient-reported outcomes in oncology: A longitudinal analysis of patient–physician communication. Journal of Clinical Oncology, 29(21), 2910–2917. CrossRefPubMed
6.
go back to reference Velikova, G., Keding, A., Harley, C., Cocks, K., Booth, L., Smith, A. B., et al. (2010). Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. European Journal of Cancer, 46(13), 2381–2388. CrossRefPubMed Velikova, G., Keding, A., Harley, C., Cocks, K., Booth, L., Smith, A. B., et al. (2010). Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. European Journal of Cancer, 46(13), 2381–2388. CrossRefPubMed
7.
go back to reference Marshall, S., Haywood, K. L., & Fitzpatrick, R. (2006). Impact of patient-reported outcome measures on routine practice: A structured review. Journal of Evaluation in Clinical Practice, 12, 559–568. CrossRefPubMed Marshall, S., Haywood, K. L., & Fitzpatrick, R. (2006). Impact of patient-reported outcome measures on routine practice: A structured review. Journal of Evaluation in Clinical Practice, 12, 559–568. CrossRefPubMed
8.
go back to reference Jacobs, J., van de Lisdonk, E., Smeele, I., van Weel, C., & Grol, R. (2001). Management of patients with asthma and COPD: Monitoring quality of life and the relationship to subsequent GP interventions. Family Practice, 18(6), 574–580. CrossRefPubMed Jacobs, J., van de Lisdonk, E., Smeele, I., van Weel, C., & Grol, R. (2001). Management of patients with asthma and COPD: Monitoring quality of life and the relationship to subsequent GP interventions. Family Practice, 18(6), 574–580. CrossRefPubMed
9.
go back to reference Detmar, S. B., Aaronson, N. K., Wever, L. D. V., Muller, M., & Schornagel, J. H. (2000). How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality-of-life issues. Journal of Clinical Oncology, 18(18), 3295–3301. PubMed Detmar, S. B., Aaronson, N. K., Wever, L. D. V., Muller, M., & Schornagel, J. H. (2000). How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality-of-life issues. Journal of Clinical Oncology, 18(18), 3295–3301. PubMed
11.
go back to reference Gutteling, J. J., Darlington, A.-S. E., Janssen, H. L. A., Duivenvoorden, H. J., Busschbach, J. J. V., & Man, R. A. (2008). Effectiveness of health-related quality-of-life measurement in clinical practice: A prospective, randomized controlled trial in patients with chronic liver disease and their physicians. Quality of Life Research, 17, 195–205. PubMedCentralCrossRefPubMed Gutteling, J. J., Darlington, A.-S. E., Janssen, H. L. A., Duivenvoorden, H. J., Busschbach, J. J. V., & Man, R. A. (2008). Effectiveness of health-related quality-of-life measurement in clinical practice: A prospective, randomized controlled trial in patients with chronic liver disease and their physicians. Quality of Life Research, 17, 195–205. PubMedCentralCrossRefPubMed
12.
go back to reference Bossola, M., Murri, R., Onder, G., Turriziani, A., Fantoni, M., & Padua, L. (2010). Research physicians’ knowledge of health-related quality of life and perception of its importance in daily clinical practice. Health and Quality of Life Outcomes, 23(8), 43. CrossRef Bossola, M., Murri, R., Onder, G., Turriziani, A., Fantoni, M., & Padua, L. (2010). Research physicians’ knowledge of health-related quality of life and perception of its importance in daily clinical practice. Health and Quality of Life Outcomes, 23(8), 43. CrossRef
13.
go back to reference Skevington, S. M., Day, R., Chisholm, A., & Trueman, P. (2005). How much do doctors use quality of life information in primary care? Testing the trans-theoretical model of behaviour change. Quality of Life Research, 14, 911–922. CrossRefPubMed Skevington, S. M., Day, R., Chisholm, A., & Trueman, P. (2005). How much do doctors use quality of life information in primary care? Testing the trans-theoretical model of behaviour change. Quality of Life Research, 14, 911–922. CrossRefPubMed
14.
go back to reference Nurbai, M. (2000). Practice nurse perspectives on the use of quality of life information and assessment in routine practice. Bath: University of Bath. Nurbai, M. (2000). Practice nurse perspectives on the use of quality of life information and assessment in routine practice. Bath: University of Bath.
15.
go back to reference Santana, M. J., Haverman, L., Absolom, K., Takeuchi, E., Feeny, D., Grootenhuis, M., et al. (2015). Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of Life Research, 24(7), 1707–1718. CrossRefPubMed Santana, M. J., Haverman, L., Absolom, K., Takeuchi, E., Feeny, D., Grootenhuis, M., et al. (2015). Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of Life Research, 24(7), 1707–1718. CrossRefPubMed
16.
go back to reference De Wit, M., De Waal, H., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., et al. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being—A randomized controlled trial. Diabetes Care, 31(8), 1521–1526. PubMedCentralCrossRefPubMed De Wit, M., De Waal, H., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., et al. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being—A randomized controlled trial. Diabetes Care, 31(8), 1521–1526. PubMedCentralCrossRefPubMed
17.
go back to reference Llewellyn, A., & Skevington, S. (2015). Using guided individualised feedback to review self-reported quality of life in health and its importance. Psychology & Health, 30(3), 301. CrossRef Llewellyn, A., & Skevington, S. (2015). Using guided individualised feedback to review self-reported quality of life in health and its importance. Psychology & Health, 30(3), 301. CrossRef
18.
go back to reference Skevington, S. M., & O’Connell, K. A. (2004). Can we identify the poorest quality of life? Assessing the importance of quality of life using the WHOQOL-100. Quality of Life Research, 13(1), 23–34. CrossRefPubMed Skevington, S. M., & O’Connell, K. A. (2004). Can we identify the poorest quality of life? Assessing the importance of quality of life using the WHOQOL-100. Quality of Life Research, 13(1), 23–34. CrossRefPubMed
19.
go back to reference Llewellyn, A. M. (2012). Understanding quality of life: Investigating the effects of individualised feedback on wellbeing. Bath: University of Bath. Llewellyn, A. M. (2012). Understanding quality of life: Investigating the effects of individualised feedback on wellbeing. Bath: University of Bath.
20.
go back to reference Carver, C. S., & Scheier, M. F. (1982). Control theory—A useful conceptual framework for personality-social, clinical and health psychology. Psychological Bulletin, 92(1), 111–135. CrossRefPubMed Carver, C. S., & Scheier, M. F. (1982). Control theory—A useful conceptual framework for personality-social, clinical and health psychology. Psychological Bulletin, 92(1), 111–135. CrossRefPubMed
21.
go back to reference Carver, C. S., & Scheier, M. F. (1998). On the self-regulation of behaviour. Cambridge, UK: Cambridge University Press. CrossRef Carver, C. S., & Scheier, M. F. (1998). On the self-regulation of behaviour. Cambridge, UK: Cambridge University Press. CrossRef
22.
go back to reference The WHOQOL Group. (1995). The World Health Organization Quality Of Life Assessment (WHOQOL): Position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef The WHOQOL Group. (1995). The World Health Organization Quality Of Life Assessment (WHOQOL): Position paper from the World Health Organization. Social Science and Medicine, 41(10), 1403–1409. CrossRef
23.
go back to reference Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13(2), 299–310. CrossRefPubMed Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13(2), 299–310. CrossRefPubMed
24.
go back to reference Donovan, J., & Saunders, C. (2005). Key issues in the analysis of qualitative data in health services research. In A. Bowling & S. Ebrahim (Eds.), Handbook of health research methods. Maidenhead, UK: Open University Press. Donovan, J., & Saunders, C. (2005). Key issues in the analysis of qualitative data in health services research. In A. Bowling & S. Ebrahim (Eds.), Handbook of health research methods. Maidenhead, UK: Open University Press.
26.
go back to reference Sprangers, M. A. G., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48(11), 1507–1515. CrossRefPubMed Sprangers, M. A. G., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48(11), 1507–1515. CrossRefPubMed
27.
go back to reference Conner, M., & Norman, P. (2005). Predicting health behaviour: Research and practice with social cognition models (2nd ed.). Maidenhead, UK: Open University Press. Conner, M., & Norman, P. (2005). Predicting health behaviour: Research and practice with social cognition models (2nd ed.). Maidenhead, UK: Open University Press.
28.
go back to reference Boyce, M. B., Browne, J. P., & Greenhalgh, J. (2014). The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: A systematic review of qualitative research. BMJ Quality & Safety, 23(6), 508–518. CrossRef Boyce, M. B., Browne, J. P., & Greenhalgh, J. (2014). The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: A systematic review of qualitative research. BMJ Quality & Safety, 23(6), 508–518. CrossRef
29.
go back to reference Rosenbloom, S. K., Victorson, D. E., Hahn, E. A., Peterman, A. H., & Cella, D. (2007). Assessment is not enough: A randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice. Psycho-Oncology, 16(12), 1069–1079. CrossRefPubMed Rosenbloom, S. K., Victorson, D. E., Hahn, E. A., Peterman, A. H., & Cella, D. (2007). Assessment is not enough: A randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice. Psycho-Oncology, 16(12), 1069–1079. CrossRefPubMed
30.
go back to reference Sheeran, P. (2002). Intention-behavior relations: A conceptual and empirical review. European Review of Social Psychology, 12, 1–36. CrossRef Sheeran, P. (2002). Intention-behavior relations: A conceptual and empirical review. European Review of Social Psychology, 12, 1–36. CrossRef
31.
go back to reference Baile, W. F., Palmer, J. L., Bruera, E., & Parker, P. A. (2011). Assessment of palliative care cancer patients’ most important concerns. Supportive Care in Cancer, 19(4), 475–481. CrossRefPubMed Baile, W. F., Palmer, J. L., Bruera, E., & Parker, P. A. (2011). Assessment of palliative care cancer patients’ most important concerns. Supportive Care in Cancer, 19(4), 475–481. CrossRefPubMed
32.
go back to reference da Rocha, N. (2011). Evaluation of quality of life and importance given to spirituality/religiousness/personal beliefs (SRPB) in adults with and without chronic health conditions. Revista de psiquiatria clínica, 38(1), 19–23. da Rocha, N. (2011). Evaluation of quality of life and importance given to spirituality/religiousness/personal beliefs (SRPB) in adults with and without chronic health conditions. Revista de psiquiatria clínica, 38(1), 19–23.
33.
go back to reference Molzahn, A., Skevington, S. M., Kalfoss, M., & Schick Makaroff, K. (2010). The importance of facets of quality of life to older adults: An international investigation. Quality of Life Research, 19(2), 293–298. CrossRefPubMed Molzahn, A., Skevington, S. M., Kalfoss, M., & Schick Makaroff, K. (2010). The importance of facets of quality of life to older adults: An international investigation. Quality of Life Research, 19(2), 293–298. CrossRefPubMed
34.
go back to reference Molzahn, A., Kalfoss, M., Skevington, S. M., & Schick Makaroff, K. (2011). Comparing the importance of different aspects of quality of life to older adults across diverse cultures. Age and Ageing, 40(2), 192–199. CrossRefPubMed Molzahn, A., Kalfoss, M., Skevington, S. M., & Schick Makaroff, K. (2011). Comparing the importance of different aspects of quality of life to older adults across diverse cultures. Age and Ageing, 40(2), 192–199. CrossRefPubMed
35.
go back to reference Snyder, C. F., Blackford, A. L., Aaronson, N. K., Detmar, S. B., Carducci, M. A., Brundage, M. D., et al. (2011). Can patient-reported outcome measures identify cancer patients’ most bothersome issues? Journal of Clinical Oncology, 29(9), 1216–1220. CrossRefPubMed Snyder, C. F., Blackford, A. L., Aaronson, N. K., Detmar, S. B., Carducci, M. A., Brundage, M. D., et al. (2011). Can patient-reported outcome measures identify cancer patients’ most bothersome issues? Journal of Clinical Oncology, 29(9), 1216–1220. CrossRefPubMed
Metagegevens
Titel
Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population
Auteurs
Alison M. Llewellyn
Suzanne M. Skevington
Publicatiedatum
14-09-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 3/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1132-2

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