Top

Journal of Autism and Developmental Disorders

Tip

Swipe om te navigeren naar een ander artikel

24-08-2022 | Original Paper

Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD)

Auteurs: Anne Kazak, Alejandra Perez Ramirez, Michele A. Scialla, Melissa A. Alderfer, Carrie Sewell-Roberts, Diane Treadwell-Deering

Gepubliceerd in: Journal of Autism and Developmental Disorders

Abstract

Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups with providers, and feedback from caregivers. The PAT-ASD is consistent with the original PAT, with new items reflecting core behavioral manifestations of ASD and parent and family challenges associated with chronicity. The PAT-ASD was implemented in a four-month pilot and was completed online by 59% of families. Although further testing of its validity is necessary, the PAT-ASD is a promising means of assessing family psychosocial risk for families of children with ASD.

The red flag items were those related to suicidality, having been the victim of crime, abuse or domestic violence, or reporting an unstable living arrangement. Other red flags included a serious medical problem in caregiver(s) and a child or sibling who wanders. Two family beliefs, “This is a disaster” and “It’s my fault my child has ASD” were also categorized as red flags.

Using data from the electronic health record at our institution, the race/ethnicity, and patient age and gender are comparable to the broader patient population treated at this AC.

Alderfer, M., Mougianis, I., Barakat, L., Beele, D., DiTaranto, S., Hwang, W. T., Reilly, A., & Kazak, A. (2009). Family psychosocial risk, distress and service utilization in pediatric cancer: Predictive validity of the Psychosocial Assessment Tool. Cancer, 115, 4339–4349 CrossRefPubMed

Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood amongparents of children with ASD: A longitudinal replication. Journal of autism and developmental disorders, 39(2), 350–362 CrossRefPubMed

Bonis, S. (2016). Stress and parents of children with autism: A review. Issues in Mental Health Nursing, 37, 153–163 CrossRefPubMed

Brewer, A. (2018). “We were on our own”: Mothers’ experiences navigating the fragmented system of professional care for autism. Social Science & Medicine, 215, 61–68. https://doi.org/10.1016/j.socscimed.2018.08.039 CrossRef

Crerand, C. E., Kapa, H. M., Litteral, J., Pearson, G. D., Eastman, K., & Kirschner, R. E. (2018). Identifying psychosocial risk factors among families of children with craniofacial conditions: Validation of the psychosocial assessment tool–craniofacial version. The Cleft Palate-Craniofacial Journal, 55(4), 536–545. doi: https://doi.org/10.1177/1055665617748010 CrossRefPubMed

Cousino, M., Schumacher, J., Rea, K., Eder, S., Zamberlin, M., Jordan, J., & Fredericks, E. (2018). Psychosocial functioning in pediatric heart transplant recipients and their families. Pediatric transplantation. e13110

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of autsim and developmental disorders, 38(7), 1278 CrossRef

Elo, S., & Kyngas, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115. doi: https://doi.org/10.1111/j.1365-2648.2007.04569.x CrossRefPubMed

Ernst, M., Gardner, M., Mara, C., Delot, E., Fechner, P., Fox, M., Rutter, M., Speiser, P., Vilain, E., Weidler, E., Sandberg, D., & The DSD-Translational Research Network Leadership Group and Psychosocial Workgroup. (2018). and. Psychosocial screening in disorders/differences in sex development: Psychometric evaluation of the Psychosocial Assessment Tool (PAT). Hormone Research in Pediatrics, DOI: https://doi.org/10.1159/000496114

Gunty, A. (2021). Rethinking resilience in families of chidlren with autism spectrum disorders. Couple and Family Psychology: Research and Practice, 10, 87–102 CrossRef

Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O’Neal, L., & REDCap Consortium. (2019). The REDCap consortium: Building an international community of software platform partners. Journal of Biomedical Informatics, 95, 103208 CrossRefPubMedPubMedCentral

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3),629–642. https://doi.org/10.1007/s10803-012-1604-y

Kazak, A. E. (2006). Pediatric Psychosocial Preventative Health Model (PPPHM): Research, practice, and collaboration in pediatric family systems medicine. Families Systems & Health, 24(4), 381–395. doi: https://doi.org/10.1037/1091-7527.24.4.381 CrossRef

Kazak, A. E., Chen, F. F., Hwang, W. T., Askins, M. A., Vega, G., Kolb, E. A., Reilly, A., & Barakat, L. P. (2020). Stability and change in family psychosocial risk over 6 months in pediatric cancer and its association with medical and psychosocial healthcare utilization. Pediatric Blood & Cancer, 67(2), e28051. doi: https://doi.org/10.1002/pbc.28051 CrossRef

Kazak, A. E., Hwang, W. T., Chen, F. F., Askins, M. A., Carlson, O., Argueta-Ortiz, F., & Barakat, L. P. (2018). Screening for family psychosocial risk in pediatric cancer: Validation of the Psychosocial Assessment Tool (PAT) Version 3. Journal of Pediatric Psychology, 43(7), 737–748. doi: https://doi.org/10.1093/jpepsy/jsy012 CrossRefPubMed

Kazak, A. E., Schneider, S., Didonato, S., & Pai, A. L. (2015). Family psychosocial risk screening guided by the Pediatric Psychosocial Preventative Health Model (PPPHM) using the Psychosocial Assessment Tool (PAT). Acta Oncologica, 54(5), 574–580. doi: https://doi.org/10.3109/0284186X.2014.995774 CrossRefPubMed

Law, E. F., Powers, S. W., Blume, H., & Palermo, T. M. (2019). Screening Family and Psychosocial risk in pediatric migraine and tension-type headache: Validation of the Psychosocial Assessment Tool (PAT). Headache: The Journal of Head and Face Pain, 59(9), 1516–1529. doi: https://doi.org/10.1111/head.13599 CrossRef

Lord, C., et al. (2022). The Lancet Commission on the future of care and clinical resarch in autism. The Lancet, 399, 271–334 CrossRef

Navot, N., Jorgenson, A. G., Stoep, V., Toth, A., K., & Webb, S. J. (2016). Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder. Autism, 20(5), 605–615 CrossRefPubMed

Pai, A. L., Patiño-Fernández, A. M., McSherry, M., Beele, D., Alderfer, M. A., Reilly, A. T., Hwang, W. T., & Kazak, A. E. (2008). The Psychosocial Assessment Tool (PAT2.0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 33(1), 50–62. doi: https://doi.org/10.1093/jpepsy/jsm053 CrossRefPubMed

Phan, T. L., Chen, F., Pinto, T., Cox, A., Robbins, C., J., & Kazak, A. (2018). Impact of psychosocial risk on attrition and weight outcomes among families seeking treatment for obesity. Journal of Pediatrics, 198, 110–116 CrossRefPubMed

Raza, S., Sacrey, L. A. R., Zwaigenbaum, L., et al. (2020). Relationship Between Early Social-Emotional Behavior and Autism Spectrum Disorder: A High-Risk Sibling Study. Journal of Autism and Developmental Disorders, 50, 2527–2539. https://doi.org/10.1007/s10803-019-03977-3 CrossRefPubMed

Rogge, N., & Janssen, J. (2019). The Economic costs of autism spectrum disorder: A Literature review. Journal of Autism and Developmental Disorders, 49(7), 2873–2900. https://doi.org/10.1007/s10803-019-04014-z CrossRefPubMed

Samsell, B., Lothman, K., Samsell, E., & Ideiski, R. (2022). Parents’ experiences of caring for a child with Autism Spectrum Disorder in the United States: A systematic review and metasynthesis of qualitative evidence. Families Systems and Health, 40, 93–104 CrossRef

Verma, R., Mehdian, Y., Sheth, N., et al. (2020). Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study. BMJ Paediatrics Open, 4, e000671. doi: https://doi.org/10.1136/bmjpo-2020-000671 CrossRefPubMedPubMedCentral

Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative health research, 18(8), 1075–1083 CrossRefPubMed

Titel: Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD)
Auteurs: Anne Kazak
Alejandra Perez Ramirez
Michele A. Scialla
Melissa A. Alderfer
Carrie Sewell-Roberts
Diane Treadwell-Deering
Publicatiedatum: 24-08-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05713-w

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen