Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

03-06-2022 | S.I. :Expanding Telehealth Opportunities in Neurodevelopmental Disorders

Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder

Auteurs: Lucy Fell, Brett Goshe, Lara Traeger, Giselle Perez, Dorothea Iannuzzi, Elyse Park, Karen Kuhlthau, Christina Luberto

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2022

Abstract

Teenage siblings of children with autism spectrum disorder (ASD) are at risk of worse mental health outcomes than their peers, yet there have been few interventions focused on improving their psychosocial wellbeing. This study explored the acceptability of an 8-session virtual group mind-body resiliency intervention for teen siblings of children with ASD. We used mixed methods to assess quantitative and qualitative survey results. Participants reported that the intervention had the right amount of sessions (88%), structure (74%), and duration (89%). Most participants felt comfortable during sessions (74%), found it helpful to learn mind-body exercises (74%), and that the intervention helped in coping with stress (71%). Though participants were satisfied with the opportunity to meet peers, they desired more social connection.

vorige artikel Efficacy of PEERS® for Adolescents via Telehealth Delivery

volgende artikel Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19

Althoff, C. E., Dammann, C. P., Hope, S. J., & Ausderau, K. K. (2019). Parent-Mediated Interventions for Children With Autism Spectrum Disorder: A Systematic Review. American Journal of Occupational Therapy, 73(3), 7303205010p1–7303205010p13. https://doi.org/10.5014/ajot.2019.030015CrossRef

American Psychiatric Association (2018). What Is Autism Spectrum Disorder? https://www.psychiatry.org/patients-families/autism/what-is-autism-spectrum-disorder

American Psychological Association (2018). Stress in America: Generation Z. Stress in America™ Survey

Anderson, M., & Jiang, J. (2018, May 31). Teens, Social Media & Technology 2018. Pew Research Center: Internet, Science & Tech. https://www.pewresearch.org/internet/2018/05/31/teens-social-media-technology-2018/

Ayala, G. X., & Elder, J. P. (2011). Qualitative methods to ensure acceptability of behavioral and social interventions to the target population. Journal of Public Health Dentistry, 71(Suppl 1), 69–79. https://doi.org/10.1111/j.1752-7325.2011.00241.xCrossRef

Bentenuto, A., Mazzoni, N., Giannotti, M., Venuti, P., & de Falco, S. (2021). Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109, 103840. https://doi.org/10.1016/j.ridd.2020.103840CrossRefPubMed

Brouzos, A., Vassilopoulos, S. P., & Tassi, C. (2017). A Psychoeducational Group Intervention for Siblings of Children With Autism Spectrum Disorder. The Journal for Specialists in Group Work, 42(4), 274–298. https://doi.org/10.1080/01933922.2017.1350230CrossRef

Calkins, H. (2021). Online therapy is here to stay.Https://Www.Apa.Org. https://www.apa.org/monitor/2021/01/trends-online-therapy

Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A. L., Sandercock, P., Spiegelhalter, D., & Tyrer, P. (2000). Framework for design and evaluation of complex interventions to improve health. BMJ, 321(7262), 694–696. https://doi.org/10.1136/bmj.321.7262.694CrossRefPubMedPubMedCentral

Caspi, J. (2012). Sibling Aggression: Assessment and Treatment. aspx?direct=true&db=nlebk&AN=390307&site=eds-live&scope=site: Springer Publishing Company. https://login.treadwell.idm.oclc.org/login?url=https://search.ebscohost.com/login.

Czajkowski, S. M., Powell, L. H., Adler, N., Naar-King, S., Reynolds, K. D., Hunter, C. M. … Charlson, M. E. (2015). From ideas to efficacy: The ORBIT model for developing behavioral treatments for chronic diseases. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 34(10), 971–982. https://doi.org/10.1037/hea0000161CrossRef

Donaldson, A. L. (2015). Siblings of Children with ASD: Promoting Social Communication. Perspectives on Language Learning and Education, 22(1), 31–38. https://doi.org/10.1044/lle22.1.31CrossRef

Fish, J., Brimson, J., & Lynch, S. (2016). Mindfulness Interventions Delivered by Technology Without Facilitator Involvement: What Research Exists and What Are the Clinical Outcomes? Mindfulness, 7(5), 1011–1023. https://doi.org/10.1007/s12671-016-0548-2CrossRefPubMedPubMedCentral

Gettings, S., Franco, F., & Santosh, P. J. (2015). Facilitating support groups for siblings of children with neurodevelopmental disorders using audio-conferencing: A longitudinal feasibility study. Child and Adolescent Psychiatry and Mental Health, 9(1), 8. https://doi.org/10.1186/s13034-015-0041-zCrossRefPubMedPubMedCentral

Granat, T., Nordgren, I., Rein, G., & Sonnander, K. (2012). Group intervention for siblings of children with disabilities: A pilot study in a clinical setting. Disability and Rehabilitation, 34(1), 69–75. https://doi.org/10.3109/09638288.2011.587087CrossRefPubMed

Griffith, G. M., Hastings, R. P., & Petalas, M. A. (2014). Fathers’ and mothers’ ratings of behavioral and emotional problems in siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1230–1235. https://doi.org/10.1007/s10803-013-1969-6CrossRefPubMed

Hafstad, G. S., Sætren, S. S., Wentzel-Larsen, T., & Augusti, E. M. (2020). Longitudinal Change in Adolescent Mental Health During the COVID-19 Outbreak – A Prospective Population-Based Study of Teenagers in Norway (SSRN Scholarly Paper ID 3727297). Social Science Research Network. https://doi.org/10.2139/ssrn.3727297

Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687CrossRefPubMed

Iannuzzi, D., Fell, L., Luberto, C., Goshe, B. M., Perez, G., Park, E. … Traeger, L. (2021). Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-05135-0CrossRefPubMed

Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism. Autism, 24(6), 1468–1481. https://doi.org/10.1177/1362361320908979CrossRefPubMed

Koukouriki, E. (2021). Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk. European Psychiatry, 64(S1), S636–S636. https://doi.org/10.1192/j.eurpsy.2021.1689CrossRefPubMedCentral

Kuhlthau, K. A., Luberto, C. M., Traeger, L., Millstein, R. A., Perez, G. K., Lindly, O. J. … Park, E. R. (2020). A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial. Journal of Autism and Developmental Disorders, 50(7), 2513–2526. https://doi.org/10.1007/s10803-019-03976-4CrossRefPubMedPubMedCentral

Leedham, A. T., Thompson, A. R., & Freeth, M. (2020). A thematic synthesis of siblings’ lived experiences of autism: Distress, responsibilities, compassion and connection. Research in Developmental Disabilities, 97, 103547. https://doi.org/10.1016/j.ridd.2019.103547CrossRefPubMed

Liang, Z., Mazzeschi, C., & Delvecchio, E. (2021). The Impact of Parental Stress on Italian Adolescents’ Internalizing Symptoms during the COVID-19 Pandemic: A Longitudinal Study. International Journal of Environmental Research and Public Health, 18(15), 8074. https://doi.org/10.3390/ijerph18158074CrossRefPubMedPubMedCentral

Lovell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49–50, 226–234. https://doi.org/10.1016/j.ridd.2015.11.023

Luberto, C., Perez, G., Millstein, R. A., Lindly, O. J., Chad-Friedman, E., Kuhlthau, K. A., & Park, E. R. (2020). Acceptability of an online mind-body intervention for parenting stress: Mixed-methods results from a randomized controlled trial. Global Advances in Health and Medicine, 9, 0534

Lucas-Thompson, R. G., Broderick, P. C., Coatsworth, J. D., & Smyth, J. M. (2019). New Avenues for Promoting Mindfulness in Adolescence using mHealth. Journal of Child and Family Studies, 28(1), 131–139. https://doi.org/10.1007/s10826-018-1256-4CrossRefPubMed

Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years- Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States. MMWR Surveillance Summary 2020. 69(No. SS-4), 1–12. https://doi.org/10.15585/mmwr.ss6904a1

Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with Children Who Have Autism Spectrum Disorders: Stress and Support. Exceptional Children, 77(1), 7–36. https://doi.org/10.1177/001440291007700101CrossRef

Meyer, K. A., Ingersoll, B., & Hambrick, D. Z. (2011). Factors Influencing Adjustment in Siblings of Children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 5(4), 1413–1420. https://doi.org/10.1016/j.rasd.2011.01.027CrossRef

Mizrach, H., Goshe, B., Park, E. R., Recklitis, C., Greer, J., Chang, Y. … Perez, G. K. (2021). Bounce Back Study Protocol: Randomized Waitlist-Control Trial of a Web-Based Stress-Management and Resiliency Program for Adolescent and Young Adult Cancer Survivors. JMIR- Research Protocols, November

Onken, L. S., Carroll, K. M., Shoham, V., Cuthbert, B. N., & Riddle, M. (2014). Reenvisioning Clinical Science: Unifying the Discipline to Improve the Public Health. Clinical Psychological Science: A Journal of the Association for Psychological Science, 2(1), 22–34. https://doi.org/10.1177/2167702613497932CrossRef

Park, E. R., Mutchler, J. E., Perez, G., Goldman, R. E., Niles, H., Haime, V. … Pirl, W. F. (2017). Coping and resiliency enhancement program (CARE): A pilot study for interpreters in cancer care. Psycho-Oncology, 26(8), 1181–1190. https://doi.org/10.1002/pon.4137CrossRefPubMed

Park, E. R., Traeger, L., Vranceanu, A. M., Scult, M., Lerner, J. A., Denninger, B. H., J., & Fricchione, G. L. (2013). The development of a patient-centered program based on the relaxation response: The Relaxation Response Resiliency Program (3RP). Psychosomatics, 54(2), 165–174. https://doi.org/10.1016/j.psym.2012.09.001CrossRefPubMed

Pavlopoulou, G., Wood, R., & Papadopoulos, C. (2020). Impact of Covid-19 on the experiences of parents and family carers of autistic children and young people in the UK. UCL Institute of Education: London, UK. [Report]. UCL Institute of Education. https://www.ucl.ac.uk/ioe/

Perez, G. K., Walsh, E. A., Quain, K., Abramson, J. S., & Park, E. R. (2020). A virtual resiliency program for lymphoma survivors: Helping survivors cope with post-treatment challenges. Psychology & Health, 36(11), 1352–1367. https://doi.org/10.1080/08870446.2020.1849699

Pizarro-Ruiz, J. P., & Ordóñez-Camblor, N. (2021). Effects of Covid-19 confinement on the mental health of children and adolescents in Spain. Scientific Reports, 11(1), 11713. https://doi.org/10.1038/s41598-021-91299-9CrossRefPubMedPubMedCentral

Plante, W. (2020). Helping siblings of children with behavioral health disorders weather the COVID-19 storm. The Brown University Child and Adolescent Behavior Letter, 36(11), 1–6. https://doi.org/10.1002/cbl.30500CrossRefPubMedCentral

Redquest, B. K., Tint, A., Ries, H., & Lunsky, Y. (2021). Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID-19 pandemic. Journal of Intellectual Disability Research, 65(1), 1–10. https://doi.org/10.1111/jir.12793CrossRefPubMed

Roberts, R. M., Ejova, A., Giallo, R., Strohm, K., Lillie, M., & Fuss, B. (2015). A controlled trial of the SibworkS group program for siblings of children with special needs. Research in Developmental Disabilities, 43–44, 21–31. https://doi.org/10.1016/j.ridd.2015.06.002CrossRefPubMed

Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019). Functioning Among Typically Developing Siblings of Individuals with Autism Spectrum Disorder: A Meta-Analysis. Clinical Child and Family Psychology Review, 22(2), 172–196. https://doi.org/10.1007/s10567-018-0269-2CrossRefPubMed

Shivers, C. M., McGregor, C., & Hough, A. (2017). Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome: Autism. https://doi.org/10.1177/1362361317722432

Siller, M., & Morgan, L. (2018). Systematic Review of Research Evaluating Parent-Mediated Interventions for Young Children with Autism: Years 2013 to 2015. In M. Siller & L. Morgan (Eds.), Handbook of Parent-Implemented Interventions for Very Young Children with Autism (pp. 1–21). Springer International Publishing. https://doi.org/10.1007/978-3-319-90994-3_1

Smith, K. A., Gehricke, J. G., Iadarola, S., Wolfe, A., & Kuhlthau, K. A. (2020). Disparities in Service Use Among Children With Autism: A Systematic Review. Pediatrics, 145(Supplement 1), S35–S46. https://doi.org/10.1542/peds.2019-1895GCrossRefPubMed

Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal of Developmental Disabilities, 11(1), 77–88

Taylor, C. B., Fitzsimmons-Craft, E. E., & Graham, A. K. (2020). Digital technology can revolutionize mental health services delivery: The COVID-19 crisis as a catalyst for change. International Journal of Eating Disorders, 53(7), 1155–1157. https://doi.org/10.1002/eat.23300CrossRefPubMed

Tudor, M. E., & Lerner, M. D. (2015). Intervention and support for siblings of youth with developmental disabilities: A systematic review. Clinical Child and Family Psychology Review, 18(1), 1–23. https://doi.org/10.1007/s10567-014-0175-1CrossRefPubMed

Wartella, E., Rideout, V., Montague, H., Beaudoin-Ryan, L., & Lauricella, A. (2016). Teens, Health and Technology: A National Survey. Media and Communication, 4(3), 13–23. https://doi.org/10.17645/mac.v4i3.515CrossRef

Watson, L., Hanna, P., & Jones, C. J. (2021). A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry, 26(3), 734–749. https://doi.org/10.1177/13591045211007921CrossRefPubMedPubMedCentral

Wheeler, M. (2021). (n.d.). Sibling Perspectives: Guidelines for Parents. Autism Society. Retrieved August 19, from https://www.autism-society.org/living-with-autism/autism-and-your-family/siblings/

Zhang, C., Ye, M., Fu, Y., Yang, M., Luo, F., Yuan, J., & Tao, Q. (2020). The Psychological Impact of the COVID-19 Pandemic on Teenagers in China. Journal of Adolescent Health, 67(6), 747–755. https://doi.org/10.1016/j.jadohealth.2020.08.026CrossRef

Titel: Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder
Auteurs: Lucy Fell
Brett Goshe
Lara Traeger
Giselle Perez
Dorothea Iannuzzi
Elyse Park
Karen Kuhlthau
Christina Luberto
Publicatiedatum: 03-06-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05500-7

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 12/2022

Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers

A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy

Preliminary Validation and Feasibility of the Autism Detection in Early Childhood-Virtual (ADEC-V) for Autism Telehealth Evaluations in a Hospital Setting

Trends in Geographic Access to Board Certified Behavior Analysts Among Children with Autism Spectrum Disorder, 2018–2021

Pivotal Response Treatment (PRT) - Parent Group Training for Young Children with Autism Spectrum Disorder: A Qualitative Study on Perspectives of Parents

Utility of Diagnostic Classification for Children 0–5 to Assess Features of Autism: Comparing In-person and COVID-19 Telehealth Evaluations