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Gepubliceerd in:

hoofdstuk lezen eerste hoofdstuk lezen

2021 | OriginalPaper | Hoofdstuk

11. Zorg voor het gezin

Auteurs : Esther van Dinteren, Prof. dr. Maretha de Jonge

Gepubliceerd in: Autisme bij kinderen

Uitgeverij: Bohn Stafleu van Loghum

Samenvatting

In dit hoofdstuk over zorg voor het gezin gaat het over de niet geringe impact van het opgroeien van een kind met autisme op ouders en broertjes en zusjes. Uit onderzoek blijkt dat ouders van kinderen met autisme veelal kampen met stress, angst en depressieve klachten. Er zijn verschillende factoren van invloed op deze psychische problemen. In dit hoofdstuk bespreken we deze factoren en kijken we wat er nodig is om ouders en broers/zussen te ondersteunen om de kans op psychische klachten te verlagen en de kwaliteit van leven te vergroten.

vorige hoofdstuk Psycho-educatie

volgende hoofdstuk Aanpassen van de omgeving ter bevordering van ontwikkeling

Altiere, M. J., & Von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of intellectual & developmental disability, 34(2), 142–152. https://doi.org/10.1080/13668250902845202. CrossRef

Bonis, S. (2016) Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153–163.

Bourke-Taylor, H. M., Lee, D. A., Tirlea, L., Joyce, K., Morgan, P., & Haines, T. P. (2021). Interventions to improve the mental health of mothers of children with a disability: Systematic review, meta-analysis and description of interventions. Journal of Autism and Developmental Disorders, https://doi.org/10.1007/s10803-020-04826-4. Advance online publication. https://doi.org/10.1007/s10803-020-04826-4.

Byrne, G., Ghráda, Á. N., O’Mahony, T., & Brennan, E. (2020). A systematic review of the use of acceptance and commitment therapy in supporting parents. Psychology and psychotherapy, e12282. Advance online publication. https://doi.org/10.1111/papt.12282.

De la Iglesia, M., & Olivar, J. S. (2015). Risk factors for depression in children and adolescents with high functioning autism spectrum disorders. The Scientific World Journal, 2015. https://doi.org/10.1155/2015/127853.

Estes, A., Swain, D. M., & MacDuffie, K. E. (2019). The effects of early autism intervention on parents and family adaptive functioning. Pediatric Medicine (Hong Kong, China), 2, 21. https://doi.org/10.21037/pm.2019.05.05.

Fernańdez-Alcántara, M., García-Caro, M. P., Pérez-Marfil, M. N., Hueso-Montoro, C., Laynez-Rubio, C., & Cruz-Quintana, F. (2016). Feelings of loss and grief in parents of children diagnosed with autism spectrum disorder (ASD). Research in Developmental Disabilities, 55, 312–321. https://doi.org/10.1016/j.ridd.2016.05.007. CrossRefPubMed

Frantz, R., Hansen, S.G. & Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5, 58–77 https://doi-org.proxy.library.uu.nl/10.1007/s40489-017-0123-3.

Fuentes, J., Hervás, A., Howlin, P., & (ESCAP ASD Working Party), (2020). ESCAP practice guidance for autism: A summary of evidence-based recommendations for diagnosis and treatment. European Child and Adolescent Psychiatry. https://doi.org/10.1007/s00787-020-01587-4. Advance online publication. CrossRefPubMed

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology: JFP: Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 24(4), 449–457. https://doi.org/10.1037/a0019847.

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y. CrossRefPubMed

Hill-Chapman, C. R., Herzog, T. K., & Madura, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34, 1498–1504. CrossRef

Keirse, M. (2017). Helpen bij verlies en verdriet (pag. 207–221). Tielt: Lannoo nv.

Leedham, A. T., Thompson, A. R., & Freeth, M. (2020). A thematic synthesis of siblings’ lived experiences of autism: Distress, responsibilities, compassion and connection. Research in Developmental Disabilities, 97. https://doi.org/10.1016/j.ridd.2019.103547. CrossRefPubMed

Legg, H., & Tickle, A. (2019). UK parents’ experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence. Autism: The international journal of research and practice, 23(8), 1897–1910. https://doi.org/10.1177/1362361319841488. CrossRef

Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., et al. (2020). Autism spectrum disorder. Nature reviews. Disease primers, 6(1), 5. https://doi.org/10.1038/s41572-019-0138-4. CrossRefPubMed

Papadopoulos, C., Lodder, A., Constantinou, G., & Randhawa, G. (2019). Systematic review of the relationship between autism stigma and informal caregiver mental health. Journal of Autism and Developmental Disorders, 49(4), 1665–1685. https://doi.org/10.1007/s10803-018-3835-z. CrossRefPubMed

Poslawsky, I. E., Naber, F. B., Bakermans-Kranenburg, M. J., Van Daalen, E., Van Engeland, H., & Van IJzendoorn, M. H. (2015). Video-feedback Intervention to promote positive parenting adapted to autism (VIPP-AUTI): A randomized controlled trial. Autism: The international journal of research and practice, 19(5), 588–603. https://doi.org/10.1177/1362361314537124.

Ridderinkhof, A., De Bruin, E. I., Blom, R., & Bögels, S. M. (2018). Mindfulness-based program for children with autism spectrum disorder and their parents: Direct and long-term improvements. Mindfulness, 9(3), 773–791. https://doi.org/10.1007/s12671-017-0815-x. CrossRefPubMed

Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents’ experiences of affiliate stigma when caring for a child with Autism Spectrum Disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183. https://doi.org/10.1016/j.pedn.2020.09.002. CrossRefPubMed

Schnabel, A., Youssef, G. J., Hallford, D. J., Hartley, E. J., McGillivray, J. A., Stewart, M., et al. (2020). Psychopathology in parents of children with autism spectrum disorder: A systematic review and meta-analysis of prevalence. Autism: The International Journal of Research and Practice, 24(1), 26–40. https://doi.org/10.1177/1362361319844636. CrossRef

Vivanti, G., & Nuske, H. J. (2017). Autism, attachment, and social learning: Three challenges and a way forward. Behavioural Brain Research, 325(Pt B), 251–259. https://doi.org/10.1016/j.bbr.2016.10.025. CrossRefPubMed

Worden, J. W. (1992). Verdriet en rouw. Gids voor hulpverleners en therapeuten. Amsterdam/Lisse: Swets & Zeitlinger.

Titel: Zorg voor het gezin
Auteurs: Esther van Dinteren
Prof. dr. Maretha de Jonge
Uitgeverij: Bohn Stafleu van Loghum
Boek: Autisme bij kinderen
Print ISBN: 978-90-368-2664-8

Elektronisch ISBN: 978-90-368-2665-5

Copyright: 2021
DOI: https://doi.org/10.1007/978-90-368-2665-5_11

Bohn Stafleu van Loghum

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