Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 4/2011

01-05-2011 | Brief Communication

Validation of pediatric Functional Assessment of Cancer Therapy: patient version 2 of “brain tumor survivor” for grade school patients aged 7–12 years

Auteurs: Heejung Yoo, Young-Shin Ra, Hyeon-Jin Park, Jin-Shei Lai, David Cella, Hee-Young Shin, Dong-Seok Kim, Woo-Chul Kim, Yong-Soon Shin

Gepubliceerd in: Quality of Life Research | Uitgave 4/2011

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Background

We evaluated the reliability and validity of the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivor version 2.0 (pedsFACT-BrS; patient version for grade school children aged 7–12 years).

Methods

After translating and cross-culturally adapting it into Korean, the psychometric properties of the pedsFACT-BrS were evaluated in 148 childhood brain tumor survivors (mean age, 9.67 years). Pre-testing was performed in 25 patients.

Results

The pedsFACT-BrS showed good symptom coverage and overall user comprehension. Internal consistency was acceptable, with Cronbach’s α coefficients ranging from 0.70 to 0.92. The pedsFACT-BrS also demonstrated good convergent and divergent validities when correlated with the Revised Children’s Manifest Anxiety Scale and Kovacs’ Children’s Depression Scale. The pedsFACT-BrS showed good known-group validity and effectively differentiated between clinically distinct patient groups (patient vs. control groups, and among patients having different Karnofsky scores), but offered only partial discrimination of physical well-being (PWB) scores when patients were grouped by treatment type.

Conclusions

Our results indicate that this instrument is reliable and valid and can be used to evaluate the quality of life of Korean childhood brain tumor survivors.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Literatuur
1.
go back to reference Chien, L. Y., Lo, L. H., Chen, C. J., Chen, Y. C., Chiang, C. C., & Chao, Y. M. Y. (2003). Quality of life among primary caregivers of Taiwanese children with brain tumor. Cancer Nursing, 26, 305–311. PubMedCrossRef Chien, L. Y., Lo, L. H., Chen, C. J., Chen, Y. C., Chiang, C. C., & Chao, Y. M. Y. (2003). Quality of life among primary caregivers of Taiwanese children with brain tumor. Cancer Nursing, 26, 305–311. PubMedCrossRef
2.
go back to reference Lai, J. S., Cella, D., Tomita, T., Bode, R. K., Newmark, M., & Goldman, S. (2007). Developing a health-related quality of life instrument for childhood brain tumor survivors. Child Nervous System, 23, 47–57. CrossRef Lai, J. S., Cella, D., Tomita, T., Bode, R. K., Newmark, M., & Goldman, S. (2007). Developing a health-related quality of life instrument for childhood brain tumor survivors. Child Nervous System, 23, 47–57. CrossRef
3.
go back to reference Sloan, J. A., Frost, M. H., Berzon, R., Duck, A., Guyatt, G., Moinpour, C., et al. (2006). The clinical significance of quality of life assessments in oncology: a summary for clinicians. Supportive Care in Cancer, 14, 988–998. PubMedCrossRef Sloan, J. A., Frost, M. H., Berzon, R., Duck, A., Guyatt, G., Moinpour, C., et al. (2006). The clinical significance of quality of life assessments in oncology: a summary for clinicians. Supportive Care in Cancer, 14, 988–998. PubMedCrossRef
4.
go back to reference Clarke, S. A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in pediatric clinical trials: A systematic review. Health and quality of Life Outcomes, 2, 66. PubMedCrossRef Clarke, S. A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in pediatric clinical trials: A systematic review. Health and quality of Life Outcomes, 2, 66. PubMedCrossRef
5.
go back to reference Palmer, S. N., Meeske, K. A., Katz, E. R., Burwinkle, T. M., & Varni, J. W. (2007). The PedsQL™ brain tumor module: Initial and validity. Pediatric Blood & Cancer, 49, 287–293. CrossRef Palmer, S. N., Meeske, K. A., Katz, E. R., Burwinkle, T. M., & Varni, J. W. (2007). The PedsQL™ brain tumor module: Initial and validity. Pediatric Blood & Cancer, 49, 287–293. CrossRef
6.
go back to reference Robitail, S., Simeoni, M. C., Erhart, M., Ravens-Sieberer, U., Bruil, J., Auquier, P., et al. (2006). Validation of the European proxy KIDSCREEN-52 pilot test health-related QOL questionnaire’s first results. Journal of Adolescent Health, 39, 596. PubMedCrossRef Robitail, S., Simeoni, M. C., Erhart, M., Ravens-Sieberer, U., Bruil, J., Auquier, P., et al. (2006). Validation of the European proxy KIDSCREEN-52 pilot test health-related QOL questionnaire’s first results. Journal of Adolescent Health, 39, 596. PubMedCrossRef
7.
go back to reference Tao, M. L. (2005). Quality of life assessment in pediatric brain tumor patients and survivors: Lessons learned and challenged to face. Journal of Clinical Oncology, 23, 5424–5426. PubMedCrossRef Tao, M. L. (2005). Quality of life assessment in pediatric brain tumor patients and survivors: Lessons learned and challenged to face. Journal of Clinical Oncology, 23, 5424–5426. PubMedCrossRef
8.
go back to reference Bhat, S. R., Goodwin, T., Burwinkle, T. M., Lansdale, M. F., Dahl, G. V., Huhn, S. L., et al. (2005). Profile of daily life in children with brain tumors: An assessment of health-related quality of life. Journal of Clinical Oncology, 23, 5493–5500. PubMedCrossRef Bhat, S. R., Goodwin, T., Burwinkle, T. M., Lansdale, M. F., Dahl, G. V., Huhn, S. L., et al. (2005). Profile of daily life in children with brain tumors: An assessment of health-related quality of life. Journal of Clinical Oncology, 23, 5493–5500. PubMedCrossRef
9.
go back to reference Gurney, J. G., Smith, M. A., & Bunin, G. R. (1999). CNS and miscellaneous intracranial and intraspinal neoplasms. In L. A. G. Ries, M. A. Smith, J. G. Gurney, et al. (Eds.), Cancer incidence and survival among children and adolescents: United States SEER program 1975–1995 (pp. 51–63). Bethesda, MD: National Institute of Cancer, SEER program. Gurney, J. G., Smith, M. A., & Bunin, G. R. (1999). CNS and miscellaneous intracranial and intraspinal neoplasms. In L. A. G. Ries, M. A. Smith, J. G. Gurney, et al. (Eds.), Cancer incidence and survival among children and adolescents: United States SEER program 1975–1995 (pp. 51–63). Bethesda, MD: National Institute of Cancer, SEER program.
10.
go back to reference Korean Central Center Registry. (2003). 2002 Annual report of the Korea central cancer registry (pp. 107–112). Republic of Korea: Ministry of Health and Welfare. Korean Central Center Registry. (2003). 2002 Annual report of the Korea central cancer registry (pp. 107–112). Republic of Korea: Ministry of Health and Welfare.
11.
go back to reference Cella, D. (1997). Manual of the functional assessment of chronic illness therapy (FACIT scales). Evanston, IL: Center on outcomes, research and education (CORE), Evanston Northwestern Healthcare and Northwestern University. Cella, D. (1997). Manual of the functional assessment of chronic illness therapy (FACIT scales). Evanston, IL: Center on outcomes, research and education (CORE), Evanston Northwestern Healthcare and Northwestern University.
12.
go back to reference Bonomi, A. E., Cella, D. F., Hahn, E. A., Bjordal, K., Sperner-Unterweger, B., Gangeri, L., et al. (1996). Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research, 5, 309–320. PubMedCrossRef Bonomi, A. E., Cella, D. F., Hahn, E. A., Bjordal, K., Sperner-Unterweger, B., Gangeri, L., et al. (1996). Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research, 5, 309–320. PubMedCrossRef
13.
go back to reference Reynolds, C. R., & Richmond, B. O. (1978). What I think and feel: A revised measure of children’s manifest anxiety. Journal of Abnormal and Child Psychology, 2, 271–280. CrossRef Reynolds, C. R., & Richmond, B. O. (1978). What I think and feel: A revised measure of children’s manifest anxiety. Journal of Abnormal and Child Psychology, 2, 271–280. CrossRef
14.
go back to reference Choi, J. S., & Cho, S. C. (1990). Assessment of anxiety in children reliability and validity of revised children’s manifest anxiety scale. Korean Journal of Neuropsychiatric Association, 29, 691–702. Choi, J. S., & Cho, S. C. (1990). Assessment of anxiety in children reliability and validity of revised children’s manifest anxiety scale. Korean Journal of Neuropsychiatric Association, 29, 691–702.
15.
go back to reference Kovacs, M. (1983). The children’s depression inventory: A self-rated depression scale for school aged youngsters. Unpublished manuscript. University of Pittsburgh. Kovacs, M. (1983). The children’s depression inventory: A self-rated depression scale for school aged youngsters. Unpublished manuscript. University of Pittsburgh.
16.
go back to reference Cho, S. C., & Lee, Y. S. (1990). Development of the Korean form of the Kovacs’ children’s depression inventory. Korean Journal of Neuropsychiatric Association, 29, 943–956. Cho, S. C., & Lee, Y. S. (1990). Development of the Korean form of the Kovacs’ children’s depression inventory. Korean Journal of Neuropsychiatric Association, 29, 943–956.
17.
go back to reference Gartstein, M. A., Short, A. D., Vannatta, K., & Noll, R. B. (1999). Psychosocial adjustment of children with chronic illness: An evaluation of three models. Developmental and Behavioral Pediatrics, 20, 157–163. Gartstein, M. A., Short, A. D., Vannatta, K., & Noll, R. B. (1999). Psychosocial adjustment of children with chronic illness: An evaluation of three models. Developmental and Behavioral Pediatrics, 20, 157–163.
18.
go back to reference Cella, D. F., Bonomi, A. E., Lloyd, S. R., Tulsky, D. S., Kaplan, E., & Bonomi, P. (1995). Reliability and validity of the Functional Assessment of Cancer Therapy-Lung (FACT-L) quality of life instrument. Lung Cancer, 12, 199–220. PubMedCrossRef Cella, D. F., Bonomi, A. E., Lloyd, S. R., Tulsky, D. S., Kaplan, E., & Bonomi, P. (1995). Reliability and validity of the Functional Assessment of Cancer Therapy-Lung (FACT-L) quality of life instrument. Lung Cancer, 12, 199–220. PubMedCrossRef
19.
go back to reference Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297–334. CrossRef Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297–334. CrossRef
20.
go back to reference Marinozzi, A., Martinelli, N., Panascì, M., Cancilleri, F., Franceschetti, E., Vincenzi, B., et al. (2009). Italian translation of the Manchester-Oxford foot questionnaire, with re-assessment of reliability and validity. Quality of Life Research, 18, 923–927. PubMedCrossRef Marinozzi, A., Martinelli, N., Panascì, M., Cancilleri, F., Franceschetti, E., Vincenzi, B., et al. (2009). Italian translation of the Manchester-Oxford foot questionnaire, with re-assessment of reliability and validity. Quality of Life Research, 18, 923–927. PubMedCrossRef
21.
go back to reference Nunally, J. C., & Bernstein, I. R. (1994). Psychometric theory (3rd ed.). New York: MacGraw-Hill. Nunally, J. C., & Bernstein, I. R. (1994). Psychometric theory (3rd ed.). New York: MacGraw-Hill.
22.
go back to reference Yeh, C. H., & Hung, L. C. (2003). Construct validity of newly developed QOL assessment instrument for child and adolescent CA patients in Taiwan. Psychooncology, 12, 345–356. PubMedCrossRef Yeh, C. H., & Hung, L. C. (2003). Construct validity of newly developed QOL assessment instrument for child and adolescent CA patients in Taiwan. Psychooncology, 12, 345–356. PubMedCrossRef
23.
go back to reference Yeh, C. H., Hung, L. C., & Cha, K. Y. (2004). The quality of life for cancer children (QOLCC) for Taiwanese children with cancer (Part II): Feasibility, cross-informants variance and clinical validity. Psycho-oncology, 13, 171–176. PubMedCrossRef Yeh, C. H., Hung, L. C., & Cha, K. Y. (2004). The quality of life for cancer children (QOLCC) for Taiwanese children with cancer (Part II): Feasibility, cross-informants variance and clinical validity. Psycho-oncology, 13, 171–176. PubMedCrossRef
24.
go back to reference Russell, K. M. W., Hudson, M., Long, A., & Phipps, S. (2006). Assessment of health-related quality of life in children with cancer. Cancer, 106, 2267–2274. PubMedCrossRef Russell, K. M. W., Hudson, M., Long, A., & Phipps, S. (2006). Assessment of health-related quality of life in children with cancer. Cancer, 106, 2267–2274. PubMedCrossRef
Metagegevens
Titel
Validation of pediatric Functional Assessment of Cancer Therapy: patient version 2 of “brain tumor survivor” for grade school patients aged 7–12 years
Auteurs
Heejung Yoo
Young-Shin Ra
Hyeon-Jin Park
Jin-Shei Lai
David Cella
Hee-Young Shin
Dong-Seok Kim
Woo-Chul Kim
Yong-Soon Shin
Publicatiedatum
01-05-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 4/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9786-2