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Journal of Autism and Developmental Disorders

Gepubliceerd in:

03-06-2022 | Original Paper

The Quality of Life for Children with Autism Spectrum Disorder Scale: Factor Analysis, MIMIC Modeling, and Cut-Off Score Analysis

Auteurs: Laura C. Chezan, Jin Liu, Erik Drasgow, Ruyi Ding, Alexandro Magana

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2023

Abstract

Our purpose in this study was to further examine the psychometric properties of the Quality of Life for Children with Autism Spectrum Disorder (QOLASD-C) scale. We first investigated the factor structure and the internal consistency of the scale. The bifactor model showed good fit and strong reliability. Second, we used multiple-indicators multiple-causes (MIMIC) modeling to examine the associations between demographic variables and the QOLASD-C dimensions. Results showed differences on overall QOL based on age, race/ethnicity, and autism spectrum disorder severity, but no relationships with gender. All demographic variables were associated with one or all three subscales (i.e., interpersonal relationships, self-determination, emotional well-being) of the QOLASD-C. Third, an optimal cut-off score of 37 was identified. Implications for research and practice are discussed.

vorige artikel Attention Allocation During Exploration of Visual Arrays in ASD: Results from the ABC-CT Feasibility Study

volgende artikel Construct Validity of the Autism Classification System of Functioning: Social Communication (ACSF:SC) Across Childhood and Adolescence

Although many self-advocates with autism often prefer the use of identity-first language, some individuals with autism and professionals in the field of education prefer the use of person-first language. The authors adopt person-first language in this study because this term focuses on the person first as an individual and, thus, highlights their unique combination of abilities and experiences while acknowledging the terminology preference of some individuals with autism, of their families, and of practitioners in the field of education.

Arias, V. B., Gomez, L. E., Moran, M. L., Alcedo, M. A., Monsalve, A., & Fontanil, Y. (2018). Does quality of life differ for children with autism spectrum disorder and intellectual disability compared to children without autism? Journal of Autism and Developmental Disorders, 48, 123–136. https://doi.org/10.1007/s10803-017-3289-8CrossRefPubMed

Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D. (2018). A systematic review of quality of life of adults on the autism spectrum. Autism, 22(7), 774–783. https://doi.org/10.1177/1362361317714988CrossRefPubMed

Baldwin, S., Costley, D., & Warren, A. (2014). Employment activities and experiences of adults with high-functioning autism and Asperger’s disorder. Journal of Autism and Developmental Disorders, 44, 2440–2449. https://doi.org/10.1007/s10803-014-2112-zCrossRefPubMed

Bargiela, S., Steward, R., & Mandy, W. (2016). The experiences of late-diagnosed women with autism spectrum conditions: An investigation of the female autism phenotype. Journal of Autism and Developmental Disorders, 46(10), 3281–3294. https://doi.org/10.1007/s10803-016-2872-8CrossRefPubMedPubMedCentral

Barker, C., Pistrang, N., & Elliott, R. (1994a). Research methods in clinical and counseling psychology. Wiley.

Barker, S., Barron, N., McFarland, B. H., & Bigelow, D. A. (1994b). A community ability scale for chronically mentally Ill consumers: Part I. Reliability and validity. Community Mental Health Journal, 30(4), 363–383. https://doi.org/10.1007/bf02207489CrossRefPubMed

Bauminger, N. (2002). The facilitation of social-emotional understanding and social interaction in high-functioning children with autism: Intervention outcomes. Journal of Autism and Developmental Disorders, 32(4), 283–298. https://doi.org/10.1023/A:1016378718278CrossRefPubMed

Bauminger, N., & Schulman, C. (2003). The development and maintenance of friendship in high-functioning children with autism: Maternal perceptions. Autism, 7(1), 81–97. https://doi.org/10.1177/1362361303007001007CrossRefPubMed

Biggs, E. E., & Carter, E. W. (2016). Quality of life for transition-age youth with autism or intellectual disability. Journal of Autism and Developmental Disorders, 46, 190–204. https://doi.org/10.1007/s10803-015-2563-xCrossRefPubMed

Billstedt, E., Gillberg, I. C., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism, 15, 7–20. https://doi.org/10.1177/1362361309346066CrossRefPubMed

Bonett, D. G. (2002). Sample size requirements for testing and estimating coefficient alpha. Journal of Educational and Behavioral Statistics, 27(4), 335–340. https://doi.org/10.3102/10769986027004335CrossRef

Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80–85. https://doi.org/10.1111/j.1475-3588.2006.00432.xCrossRefPubMed

Cabrera-Nguyen, P. (2010). Author guidelines for reporting scale development and validation results in the Journal of the Society for Social Work and Research. Journal of the Society for Social Work and Research, 1(2), 99–103. https://doi.org/10.5243/jsswr.2010.8CrossRef

Cannella, H. I., O’Reilly, M. F., & Lancioni, G. E. (2005). Choice and preference assessment research with people with severe to profound developmental disabilities: A review of the literature. Research in Developmental Disabilities, 26(1), 1–15. https://doi.org/10.1016/j.ridd.2004.01.006CrossRefPubMed

Chen, F. F., West, S. G., & Sousa, K. H. (2006). A comparison of bifactor and second-order models of quality of life. Multivariate Behavioral Research, 41(2), 189–225.CrossRefPubMed

Chezan, L. C., Liu, J., Cholewicki, J. M., Drasgow, E., Ding, R., & Warman, A. (2022). A psychometric evaluation of the quality of life for children with autism spectrum disorder scale. Journal of Autism and Developmental Disorders, 52, 1536–1552. https://doi.org/10.1007/s10803-021-05048-yCrossRefPubMed

Chiang, H., & Wineman, I. (2014). Factors associated with quality of life in individuals with autism spectrum disorders: A review of the literature. Research in Autism Spectrum Disorder, 8, 978–986. https://doi.org/10.1016/j.rasd.2014.05.003CrossRef

Chiang, H., Cheung, Y. K., Li, H., & Tsai, L. Y. (2013). Factors associated with participation in employment for high school leavers with autism. Journal of Autism and Developmental Disorders, 43, 1832–1842. https://doi.org/10.1007/s10803-012-1732-2CrossRefPubMed

Cholewicki, J., Drasgow, E., & Chezan, L. C. (2019). Parental perception of quality of life for children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 31, 575–592. https://doi.org/10.1007/s10882-019-09660-wCrossRef

Claes, C., Van Hove, G., van Loon, J., Vandevelde, S., & Schalock, R. L. (2010). Quality of life measurement in the field of intellectual disabilities: Eight principles for assessing quality of life-related personal outcomes. Social Indicators Research, 98, 61–72. https://doi.org/10.1007/s11205-009-9517-7CrossRef

Comrey, A. L., & Lee, H. B. (1992). A first course in factor analysis (2nd ed.). Academic Press.

Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015). The health status of adults on the autism spectrum. Autism, 19(7), 814–823. https://doi.org/10.1177/1362361315577517CrossRefPubMed

Cummins, R. (1997). Comprehensive quality of life questionnaire-intellectual disability. Deakin University.

Dardas, L. A., & Ahmad, M. M. (2014). Validation of the World Health Organization’s quality of life questionnaire with parents of children with autistic disorder. Journal of Autism and Developmental Disorders, 44, 2257–2263. https://doi.org/10.1007/s10803-014-2110-1CrossRefPubMed

DiStefano, C., & Morgan, G. (2011). Examining classification criteria: A comparison of three cut score methods. Psychological Assessment, 23(2), 354–363. https://doi.org/10.1037/a0021745CrossRefPubMed

DiStefano, C., Ene, M., & Leighton, E. (2016). Teacher ratings of child behavior in preschool: A MIMIC investigation of the BESS TRS-P. Psychological Assessment, 28(8), 1015–1019. https://doi.org/10.1037/pas0000218CrossRefPubMed

DiStefano, C., Liu, J., & Burgess, Y. (2017). Investigating the structure of the pediatric symptoms checklist in the preschool setting. Journal of Psychoeducational Assessment, 35(5), 494–505. https://doi.org/10.1177/0734282916647648CrossRef

Downs, J., Jacoby, P., Leonard, H., Epstein, A., Murphy, N., Davis, E., Reddihough, D., Whitehouse, A., & Williams, K. (2019). Psychometric properties of the quality of life inventory-disability (QI-disability) measure. Quality of Life Research, 28, 783–794. https://doi.org/10.1007/s11136-018-2057-3CrossRefPubMed

Egilson, S. T., Olafsdottir, L. B., Leosdottir, T., & Saemundsen, E. (2017). Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports. Autism, 21(2), 133–141. https://doi.org/10.1177/1362361316630881CrossRefPubMed

Erez, A. B. H., & Gal, E. (2020). Quality of life: A universal or a disability specific concept? Canadian Journal of Occupational Therapy, 87(1), 4–11. https://doi.org/10.1177/0008417419831552CrossRef

Fombonne, E. (2005). The changing epidemiology of autism. Journal of Applied Research in Intellectual Disabilities, 18(4), 281–294. https://doi.org/10.1111/j.1468-3148.2005.00266.xCrossRef

Galiana, L., Oliver, A., Sancho, P., & Tomás, J. M. (2015). Dimensionality and validation of the Dispositional Hope Scale in a Spanish sample. Social Indicators Research, 120(1), 297–308. https://doi.org/10.1007/s11205-014-0582-1CrossRef

Gignac, G. E. (2008). Higher-order models versus direct hierarchical models: Gas superordinate or breadth factor? Psychology Science, 50(1), 21–43.

Glascoe, F. P. (2005). Screening for developmental and behavioral problems. Mental Retardation and Developmental Disabilities Research Reviews, 11(3), 173–179. https://doi.org/10.1002/mrdd.20068CrossRefPubMed

Gomez, L. E., Alcedo, M. A., Arias, B., Fontanil, Y., Arias, V. B., Monsalve, A., & Verdugo, M. A. (2016). A new scale for the measurement of quality of life in children with intellectual disabilities. Research in Developmental Disabilities, 53–54, 399–410. https://doi.org/10.1016/j.ridd.2016.03.005CrossRefPubMed

Gorsuch, R. L. (1983). Factor analysis (2nd ed.). Erlbaum.

Hancock, G. R., & Mueller, R. O. (2001). Rethinking construct reliability within latent variable systems. In R. Cudeck, S. du Toit, & D. Sörbom (Eds.), Structural equation modeling: Present and future—a Festschrift in honor of Karl Jöreskog (pp. 195–216). Scientific Software International.

Howlin, P., & Matiagi, I. (2017). Autism spectrum disorder: Outcomes in adulthood. Current Opinion in Psychiatry, 30(2), 69–76. https://doi.org/10.1097/YCO.0000000000000308CrossRefPubMed

Hu, L., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1–55. https://doi.org/10.1080/10705519909540118CrossRef

Hull, L., Mandy, W., Lai, M.-C., Baron-Cohen, S., Allison, C., Smith, P., et al. (2019). Development and validation of the camoufaging autistic traits questionnaire (CAT-Q). Journal of Autism and Developmental Disorders, 49(3), 819–833. https://doi.org/10.1007/s10803-018-3792-6CrossRefPubMed

Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapelle, Y., Otbrebski, W., & Schalock, R. L. (2005). Cross-cultural study of person-centered quality of life domains and indicators: A replication. Journal of Intellectual Disability Research, 49(10), 734–739. https://doi.org/10.1111/j.1365-2788.2005.00742.xCrossRefPubMed

Joreskog, K. G., & Goldberger, A. S. (1975). Estimation of a model with multiple indicators and multiple causes of a single latent variable. Journal of the American Statistical Association, 70(351a), 631–639. https://doi.org/10.1080/01621459.1975.10482485CrossRef

Kamio, Y., Inada, N., & Koyama, T. (2013). A nationwide survey on quality of life and associated factors of adults with high-functioning autism spectrum disorders. Autism, 17(1), 15–26. https://doi.org/10.1177/1362361312436848CrossRefPubMed

Kamp-Becker, I., Schröder, J., Muehlan, H., Remschidt, H., Becker, K., & Bachmann, C. J. (2011). Health-related quality of life in children and adolescents with autism spectrum disorder. Zietschrift Fur Kinder Judenpsychiatrei Und Psychotherapie, 39(2), 13–31. https://doi.org/10.1024/1422-4917/a000098CrossRef

Kanfiszer, L., Davies, F., & Collins, S. (2017). ‘I was just so different’: The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships. Autism, 21(6), 661–669. https://doi.org/10.1177/1362361316687987CrossRefPubMed

Kapp, S. K. (2018). Social support, well-being, and quality of life among individuals on the autism spectrum. Pediatrics, 141(4), S362–S368. https://doi.org/10.1542/peds.2016-4300NCrossRefPubMed

Keith, K. D., & Schalock, R. L. (1994). The measurement of quality of life in adolescence: The quality of student life questionnaire. The American Journal of Family Therapy, 22, 83–87. https://doi.org/10.1080/01926189408251300CrossRef

Keith, K. D., & Schalock, R. L. (2016). People speaking for themselves. In R. L. Schalock & K. D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of people with intellectual disabilities (pp. 35–49). American Association on Intellectual and Developmental Disabilities.

Khanna, R., Jariwala-Parikh, K., West-Strum, D., & Mahabaleshwarkar, R. (2014). Health-related quality of life and its determinants among adults with autism. Research in Autism Spectrum Disorders, 8(3), 157–167. https://doi.org/10.1016/j.rasd.2013.11.003CrossRef

Kim, S. Y., & Bottema-Beutel, K. (2019). A meta regression analysis of quality of life correlates in adults with ASD. Research in Autism Spectrum Disorders, 63, 23–33. https://doi.org/10.1016/j.rasd.2018.11.004CrossRef

Kline, R. B. (2015). Principles and practice of structural equation modeling (4th ed.). The Guilford Press.

Kose, S., Erermis, S., Ozturk, O., Ozbaran, B., Demiral, N., Bildik, T., & Aydin, C. (2013). Health related quality of life in children with autism spectrum disorders: The clinical and demographic related factors in Turkey. Research in Autism Spectrum Disorders, 7(2), 213–220. https://doi.org/10.1016/j.rasd.2012.09.009CrossRef

Kuhlthau, K., Orlich, F., Hall, T. A., Sikora, D., Kovacs, E. A., Delahaye, J., & Clemons, T. E. (2010). Health-related quality of life in children with autism spectrum disorders: Results from the autism treatment network. Journal of Autism and Developmental Disabilities, 40, 721–729. https://doi.org/10.1007/s/10803-009-0921-2CrossRef

Lai, M., Lombardo, M. V., Pasco, G., Ruigrok, A. N. V., Wheelwright, S. J., Sadek, S. A., Chakrabarti, B., MRC AIMS Consortium, & Baron-Cohen, S. (2011). A behavioural comparison of male and female adults with high functioning autism spectrum conditions. PLoS ONE, 6(6), e20835. https://doi.org/10.1371/journal.pone.0020835CrossRefPubMedPubMedCentral

Laugeson, E. A., & Ellingsen, R. (2014). Social skills training for adolescents and adults with autism spectrum disorder. In F. R. Volkmar, B. Reichow, & J. C. McPartland (Eds.), Adolescents and adults with autism spectrum disorders (pp. 61–87). Springer.CrossRef

Liu, J., Burgess, Y., DiStefano, C., Pan, F., & Jiang, N. (2020). Validating the pediatric symptoms checklist–17 in the preschool environment. Journal of Psychoeducational Assessment, 38(4), 460–474. https://doi.org/10.1177/0734282919828234CrossRef

Locke, J., Ishijima, E. H., & Kasari, C. (2010). Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Education Needs, 10, 74–81. https://doi.org/10.1111/j.1471-3802.2010.01148.xCrossRef

Mason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018). Predictors of quality of life for autistic adults. Autism Research, 11(8), 1138–1147. https://doi.org/10.1002/aur.1965CrossRefPubMedPubMedCentral

Mattejat, F., & Remschmidt, H. (2006). ILK Inventar zur Erfassung der Lebensqualita¨t bei Kindern und Jugendlichen. [assessment instrument]. Bern.

McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2018). Enhancing the validity of a quality of life measure for autistic people. Journal of Autism and Developmental Disorders, 48(5), 1596–1611. https://doi.org/10.1007/s10803-017-3402-zCrossRefPubMed

Moran, M. L., Hagiwara, M., Raley, S. K., Alsaeed, A. H., Shogren, K. A., Qian, X., Gomez, L. E., & Alcedo, M. A. (2021). Self-determination of students with autism spectrum disorder: A systematic review. Journal of Developmental and Physical Disabilities, 33, 887–908. https://doi.org/10.1007/s10882-020-09779-1CrossRef

Muthén, L. K., & Muthén, B. O. (1998–2014). Mplus, v.7.2. Muthén & Muthén.

Muthén, L. K., & Muthén, B. O. (2017). Mplus: Statistical Analysis with Latent Variables: User’s Guide (Version 8). Authors.

Myers, D. C. (2003). 19 close relationships and quality of life. In D. Kahneman, E. Diener, & N. Schwartz (Eds.), Well-being: Foundations of hedonic psychology (pp. 374–391). Russell Sage Foundation.

Nima, A. A., Cloninger, K. M., Lucchese, F., Sikstrom, S., & Garcia, D. (2020). Validation of a general subjective well-being factor using classical test theory. PeerJ, 8(8), e8183. https://doi.org/10.7717/peerj.9193CrossRef

Nuske, H. J., Hedley, D., Woollacott, A., Thomson, P., Macari, S., & Dissanayake, C. (2017). Developmental delays in emotion regulation strategies in preschoolers with autism. Autism Research, 10(11), 1808–1822. https://doi.org/10.1002/aur.1827CrossRefPubMed

Oakley, B. F. M., Tillman, J., Ahmad, J., Crawley, D., San Jose Caceres, A., Holt, R., Charman, T., Banaschewski, T., Buitelaar, J., Simonoff, E., Murphy, D., Loth, E., the EU-AIMS LEAP Group. (2021). How do core autism traits and associated symptoms related to quality of life? Findings from the Longitudinal European Autism Project. Autism, 25(2), 389–404. https://doi.org/10.1177/1362361320959959CrossRefPubMed

Provenzani, U., Fusar-Poli, L., Brondino, N., Damiani, S., Vercesi, M., Meyer, N., Rocchetti, M., & Politi, P. (2019). What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials. Autism, 24(2), 274–284. https://doi.org/10.1177/1362361319854641CrossRefPubMed

Quinn, H. (2014). Bifactor models, explained common variance (ECV), and the usefulness of scores from unidimensional item response theory analyses. University of North Carolina.

Reise, S. P., Bonifay, W. E., & Haviland, M. G. (2013). Scoring and modeling psychological measures in the presence of multidimensionality. Journal of Personality Assessment, 95(2), 129–140. https://doi.org/10.1080/00223891.2012.725437CrossRefPubMed

Renty, J. O., & Roeyers, H. (2006). Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism, 10(5), 511–524. https://doi.org/10.1177/1362361306066604CrossRefPubMed

Riley, A. W., Robertson, J., Forrest, C. B., Green, B., Rebok, G., & Starfield, B. (2001). Manual for the child health and illness profile-child edition (CHIP-CE). The Johns Hopkins University.

Rodriguez, A., Reise, S. P., & Haviland, M. G. (2016a). Applying bifactor statistical indices in the evaluation of psychological measures. Journal of Personality Assessment, 98(3), 223–237. https://doi.org/10.1080/00223891.2015.1089249CrossRefPubMed

Rodriguez, A., Reise, S. P., & Haviland, M. G. (2016b). Evaluating bifactor models: Calculating and interpreting statistical indices. Psychological Methods, 21(2), 137–150. https://doi.org/10.1037/met0000045CrossRefPubMed

Saldana, D., Alvarez, R. M., Lobaton, S., Lopez, A. M., Moreno, M., & Roiano, M. (2009). Objective and subjective quality of life in adults with autism spectrum disorders in southern Spain. Autism, 13(3), 303–316. https://doi.org/10.1177/1362361309103792CrossRefPubMed

Schalock, R. L., & Alonso, M. A. V. (2002). Handbook on quality of life for human service practitioners. American Association on Mental Retardation.

Schalock, R. L., Keith, K. D., Verdugo, M. A., & Gomez, L. E. (2011). Quality of life model development and use in the field of intellectual disability. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disabilities: From theory to practice. Springer.

Schieve, L. A., Gonzalez, V., Boulet, S. L., Visser, S. N., Rice, C. E., Van Naarden Braun, K., & Boyle, C. A. (2012). Concurrent medical conditions and health care use and needs among children with learning and behavioral developmental disabilities, National Health Interview Survey, 2006–2010. Research in Developmental Disabilities, 33(2), 467–476. https://doi.org/10.1016/j.ridd.2011.10.008CrossRefPubMed

Sheldrick, R. C., Neger, E. N., Shipman, D., & Perrin, E. C. (2012). Quality of life of adolescents with autism spectrum disorders: Concordance among adolescents’ self-reports, parents’ reports, and parents’ proxy reports. Quality of Life Research, 21(1), 53–57. https://doi.org/10.1007/s11136-011-9916-5CrossRefPubMed

Shipman, D. L., Sheldrick, R. C., & Perrin, E. C. (2011). Quality of life in adolescents with autism spectrum disorders: Reliability and validity of self-reports. Journal of Developmental and Behavioral Pediatrics, 32(2), 85–89. https://doi.org/10.1097/DBP.0b013e318203e558CrossRefPubMed

Shogren, K. A., Palmer, S. B., Wehmeyer, M. L., Williams-Diehm, K., & Little, T. D. (2012). Effect of intervention with the self-determined learning model of instruction on access and goal attainment. Remedial and Special Education, 33(5), 320–330. https://doi.org/10.1177/0741932511410072CrossRefPubMed

Shogren, K. A., Shaw, L. A., Raley, S. K., & Wehmeyer, M. L. (2018). Exploring the effect of disability, race-race/ethnicity, and socioeconomic status on scores on the self-determination inventory: Student report. Exceptional Children, 85(1), 10–27. https://doi.org/10.1177/0014402918782150CrossRef

Singer, J. (1999). Why can’t you be normal for once in your life? From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability discourse (pp. 57–59). Open University Press.

Stucky, B. D., & Edelen, M. O. (2014). Using hierarchical IRT models to create unidimensional measures from multidimensional data. In S. P. Reise & D. A. Revicki (Eds.), Handbook of item response theory modeling: Applications to typical performance assessment (pp. 183–206). Routledge/Taylor & Francis Group.

Swets, J. A. (1996). Signal detection theory and ROC analysis in psychology and diagnosis: Collected papers. Lawrence Erlbaum.

Tabachnick, B. G., & Fidell, L. S. (2013). Using multivariate statistics (6th ed.). Pearson.

Tavernor, L., Barron, E., Rodgers, J., & McConachie, H. (2013). Finding out what matters: Validity of quality of life measurement in young people with ASD. Child Care, Health, and Development, 39(4), 592–601. https://doi.org/10.1111/j.1365-2214.2012.01377.xCrossRefPubMed

Thompson, M. S., & Green, S. B. (2013). Evaluating between-group differences in latent variable means. In G. Hancock & R. O. Mueller (Eds.), Structural equation modeling: A second course (2nd ed., pp. 163–218). Information Age.

Tilford, J. M., Payakachat, N., Kovacs, E., Pyne, J. M., Brouwer, W., Nick, T. G., Bellando, J., & Kuhlthau, K. A. (2012). Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: A comparison of generic instruments. PharmacoEconomics, 30, 661–679. https://doi.org/10.2165/11597200-000000000-00000CrossRefPubMedPubMedCentral

Tillmann, J., Ashwood, K., Absoud, M., Bölte, S., Bonnet-Brilhault, F., Buitelaar, J. K., Calderoni, S., Calvo, R., Canal-Bedia, R., Canitano, R., DeBildt, A., Gomot, M., Hoekstra, P. J., Kaale, A., McConachie, H., Murphy, D. G., Narzisi, A., Oosterning, J., Pejovic-Milovancevic, M., … Charman, T. (2018). Evaluating sex and age differences in ADI-R and ADOS scores in a large European multisite sample of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(7), 2490–2505. https://doi.org/10.1007/s10803-018-3510-4CrossRefPubMedPubMedCentral

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. https://doi.org/10.1111/j.1469-7610.2010.02295.xCrossRefPubMed

Travis, L. T., & Sigman, M. (1998). Social deficits and interpersonal relationships in autism. Mental Retardation and Developmental Disabilities Research Reviews, 4, 65–72.CrossRef

van Heijst, B. F. C., & Geurts, H. M. (2015). Quality of life in autism across the life span: A meta-analysis. Autism, 19(2), 158–167. https://doi.org/10.1177/1362361313517053CrossRefPubMed

Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQLTM 4.0: Reliability and validity of the pediatric quality of life inventoryTM version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.CrossRefPubMed

Walsh, E., Holloway, J., & Lydon, H. (2017). An evaluation of a social skills intervention for adults with autism spectrum disorder and intellectual disabilities preparing for employment in Ireland: A pilot study. Journal of Autism and Developmental Disorders, 48, 1727–1741. https://doi.org/10.1007/s10803-017-3441-5CrossRef

Ware, J. E., Kosinski, M., & Keller, S. D. (1996). A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34(3), 220–233.CrossRefPubMed

Watkins, M. W. (2017). The reliability of multidimensional neuropsychological measures: From alpha to omega. The Clinical Neuropsychologist, 31(6–7), 1113–1126. https://doi.org/10.1080/13854046.2017.1317364CrossRefPubMed

Wehmeyer, M. L., Shogren, K. A., Zager, D., Smith, T. E. C., & Simpson, R. (2010). Research-based principles and practices for educating students with autism: Self-determination and social interactions. Education and Training in Autism and Developmental Disabilities, 45(4), 475–486.

White-Koning, M., Grandjean, H., Colver, A., & Arnaud, C. (2008). Parent and professional reports of the quality of life of children with cerebral palsy and associated intellectual impairment. Developmental Medicine and Child Neurology, 50(8), 618–624. https://doi.org/10.1111/j.1469-8749.2008.03026.xCrossRefPubMed

Williams, Z. J., & Gotham, K. O. (2021). Assessing general and autism-relevant quality of life in autistic adults: A psychometric investigation using item response theory. Autism Research, 14(8), 1633–1644. https://doi.org/10.1002/aur.2519CrossRefPubMedPubMedCentral

World Health Organization. (1998). Development of the World Health Organization WHOQOLBREF quality of life assessment. Psychological Medicine, 28(3), 551–558. https://doi.org/10.1017/S0033291798006667CrossRef

Worthington, R., & Whittaker, T. (2006). Scale development research: A content analysis and recommendations for best practices. Counseling Psychologist, 34, 806–838. https://doi.org/10.1177/0011000006288127CrossRef

Yovanoff, P., & Squires, J. (2006). Determining cutoff scores on a developmental screening measure: Use of receiver operating characteristics and item response theory. Journal of Early Intervention, 29(1), 48–62. https://doi.org/10.1177/105381510602900104CrossRef

Yuan, J., Li, M., & Lu, K. (2021). Racial/ethnic disparities in the prevalence and trends of autism spectrum disorder in US children and adolescents. JAMA Network, 4(3), e210771. https://doi.org/10.1001/jamanetworkopen.2021.0771CrossRefPubMedCentral

Zhang, D., Landmark, L., Grenwelge, C., & Montoya, L. (2010). Culturally diverse parents’ perspectives on self-determination. Education and Training in Autism and Developmental Disabilities, 45(2), 175–186.

Titel: The Quality of Life for Children with Autism Spectrum Disorder Scale: Factor Analysis, MIMIC Modeling, and Cut-Off Score Analysis
Auteurs: Laura C. Chezan
Jin Liu
Erik Drasgow
Ruyi Ding
Alexandro Magana
Publicatiedatum: 03-06-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05610-2

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