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Journal of Autism and Developmental Disorders

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22-07-2021 | Original Paper

The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia

Auteurs: Emma K. Baker, Sheena Arora, David J. Amor, Perrin Date, Meagan Cross, James O’Brien, Chloe Simons, Carolyn Rogers, Stephen Goodall, Jennie Slee, Chris Cahir, David E. Godler

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2023

Abstract

The study characterised differences in costs associated with raising a child between four rare disorders and examined the associations between these costs with clinical severity. Caregivers of 108 individuals with Prader-Willi, Angelman (AS), Chromosome 15q Duplication and fragile X (FXS) syndromes completed a modified Client Services Receipt Inventory and participants completed intellectual/developmental functioning and autism assessments. AS incurred the highest yearly costs per individual ($AUD96,994), while FXS had the lowest costs ($AUD33,221). Intellectual functioning negatively predicted total costs, after controlling for diagnosis. The effect of intellectual functioning on total costs for those with AS was significantly different to the other syndromes. The study highlights the significant costs associated with these syndromes, particularly AS, linked with severity of intellectual functioning.

vorige artikel Longitudinal Examination of Sleep Problems and Symptom Severity in Children with Autism Spectrum Disorder

volgende artikel Psychometric Assessment of the Eyberg Child Behavior Inventory in Children with Autism in Community Settings

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Titel: The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia
Auteurs: Emma K. Baker
Sheena Arora
David J. Amor
Perrin Date
Meagan Cross
James O’Brien
Chloe Simons
Carolyn Rogers
Stephen Goodall
Jennie Slee
Chris Cahir
David E. Godler
Publicatiedatum: 22-07-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05193-4

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