Introduction
Skin picking disorder (SPD) or excoriation disorder was first included in the Diagnostic and Statistical Manual (DSM-5) in 2013 (American Psychiatric Association [APA],
2013) and in the International Classification of Diseases (ICD-11; World Health Organization [WHO],
2023) it is newly introduced as a subtype of body-focused repetitive behaviors (BFRBs). SPD involves recurrent picking of one’s own skin leading to skin lesions. This behavior is accompanied by unsuccessful attempts to decrease or stop picking (WHO,
2023). Lifetime prevalence according to DSM-5 is 1.4% (APA,
2013). However, prevalence estimates in other studies are somewhat higher. In a systematic review by Farhat and colleagues (
2023) on SPD with 19 studies including 38,038 individuals, SPD prevalence estimate was to be as high as 3.35%. With picking behavior leading to visible skin damage and scarring, not surprisingly, individuals affected by SPD report strong psychosocial impairment, e.g., disgust, shame and psychosocial avoidance (Anderson & Clarke,
2019; Tucker et al.,
2011).
Despite this detrimental impact of skin picking, more than half of the participants in two different studies reported that they had not been seeking any help for their picking behavior (
n = 393, 52% [Tucker et al.,
2011];
n = 74, 56% [Gallinat et al.,
2019a]). Commonly reported reasons for not seeking help included doubts about severity (
n = 44, 60%), insecurity on who to turn to (
n = 34, 46%), doubts about whether doctors/therapists may have expert knowledge on SPD (
n = 31, 42%), and embarrassment (
n = 30, 40.5%; Gallinat et al.,
2019a). In order to provide convenient access to help and to overcome barriers to treatment (e.g., stigma and shame; Asplund et al.,
2022; Bower & Gilbody,
2005), five internet-based interventions targeting skin picking have been recently developed. Each showed positive effects on symptomatology related to SPD (Asplund et al.,
2022; Flessner et al.,
2007; Gallinat et al.,
2019b; Moritz et al.,
2012; Mehrmann et al.,
2023).
In an uncontrolled trial Flessner et al. (
2007) investigated the efficacy of an internet-based interactive self-help program (“stoppicking.com”). The program included three modules: assessment (e.g., awareness training; 3–5 weeks), intervention (coping skills to reduce picking, stimulus-control) and maintenance (e.g., relapse prevention; accessed when a goal was met for four consequent weeks). The participants (
n = 313) used the program on average for 11.7 weeks (
SD = 12.3), and 4% (
n = 15) reached the maintenance module. Forty-three percent (
n = 159) reported at least two post-intervention data points (e.g., during the intervention module) and their symptomatology decreased significantly pre- to post-assessment. Moritz et al. (
2012) compared the feasibility and efficacy of two 4-week self-help interventions (habit reversal training [HRT] vs. “Decoupling” [DC]) for SPD-affected participants (
n = 70). The HRT-manual was a 5-page pdf document helping participants to (1) identify triggers, (2) explain HRT and (3) how to implement the competing response into daily life. The DC-manual was similarly structured except for offering explanations on “decoupling” instead of HRT, which instructed the participants to change the maladaptive behavior into a resembling movement of picking, without damaging the skin. Completion rate was 89% at post-assessment with a significant stronger positive symptom reduction pre- to post-assessment in the HRT-group compared to the DC-group. Gallinat et al. (
2019b) investigated the efficaciousness of a 12-week internet-based self-help intervention (“SaveMySkin”) for SPD for individuals with self-reported SPD (
n = 64) in comparison to a waitlist control group (
n = 69). The program contained psychoeducation, training of self-management skills, a daily supportive monitoring system, and dermatological/psychological counseling via online chat. Completion rate was 65.4% at post-assessment with a significant positive symptom reduction pre- to post-assessment (
d = .67) compared to the waitlist control group. Asplund et al. (
2022) investigated the effectiveness of a 10-week therapist-guided internet-delivered behavioral therapy for patients in a routine psychiatric setting with eighteen SPD and seven hair-pulling affected individuals. Traditional behavioral interventions (e.g., HRT) and acceptance-based techniques (e.g., mindfulness) were included represented in 10 modules. Participants on average completed 7.2/10 modules (
SD = 3.5,
range 1–10) and 64% (
n = 16) completed at least six of the 10 modules, which entailed the core components of treatment. SPD-affected participants experienced a positive symptom reduction pre- to post-assessment (
d = 1.75), which remained significant at 12-month follow-up (
d = 1.2). Finally, Mehrmann et al. (
2023) investigated the efficacy of an online-based self-help program (“Knibbelstopp”) for 43 skin picking affected individuals with a multiple baseline design. The CBT-based program included three parts (psychoeducation and awareness training, strategies against picking [e.g., HRT, stimulus control], and relapse prevention). Completion rate was 58% (
n = 25) at post-assessment with a significant positive symptom reduction pre- to post-assessment and throughout a 6-month follow-up.
In summary, several effective online programs have been developed, however, a substantial number of participants seem to discontinue participation of these programs early (i.e., before completion of all treatment modules). Some studies documented the reasons provided by participants for discontinuing the treatment. These reasons included factors such as heavy workloads and worsening of other mental health issues unrelated to the treatment itself (Asplund et al.,
2022). Other reasons mentioned were infrequent access to the internet, early reduction in symptoms, and financial costs associated with the program (Flessner et al.,
2007). Lack of motivation, increased life stress, exacerbation of mental or physical problems, and insufficient social support were also reported as additional reasons for discontinuation (Mehrmann et al.,
2023). Two of the studies compared completers vs. non-completers and both did find only few differences with regard to background variables or questionnaire scores at pre-assessment. In one study, non-completers were found to be older than completers (Moritz et al.,
2012), while the other study reported a higher rate of comorbidity among non-completers (Mehrmann et al.,
2023).
High attrition rates (dropouts) are a common issue among internet-based self-guided interventions for physical or mental health topics (Cavanagh,
2010). According to a systematic review by Donkin et al. (
2011) half of 69 e-therapy interventions (
n = 33; 48%) reported on adherence and examined the relationship between adherence and outcome. In a study conducted by Linardon and Fuller-Tyszkiewicz (
2020), which analyzed 70 randomized controlled trials (RCTs) of smartphone-delivered interventions for mental health problems, the mean meta-analytic attrition rate was found to be 24.1% at short-term follow-up (≤ 8 weeks) and 35.5% at long-term follow-up (> 8 weeks). In most studies, the number of logins from participants measured adherence. However, research has shown that the number of completed modules is the most significant factor in determining outcomes in psychological health interventions (Donkin et al.,
2011).
Considering the potential significance of impaired adherence and attrition, Beatty and Binnion (
2016) examined potential predictors of adherence and reported reasons for discontinuation in psychological online interventions. Significant predictors for high adherence were found to be female gender, higher treatment expectancy/credibility and the presence of guidance or therapist support (Beatty & Binnion,
2016). Negative predictors were not having enough time, dissatisfaction with program content, perceiving the content as impersonal, and computer difficulties (Beatty & Binnion,
2016). The findings regarding age, baseline symptom severity, control group allocation, and numerous other assessed predictors were inconclusive or insufficient (Beatty & Binnion,
2016). Interestingly, the authors also looked at motivation and readiness to change as well as self-efficacy/self-confidence (Beatty & Binnion,
2016). In two of seven studies, that assessed motivation-related characteristics, motivation/readiness to engage in therapy significantly predicted adherence (Al-Asadi et al.,
2014; Postel et al.,
2010). Motivation/intention to complete treatment was assessed in four studies, and out of these, two studies found significant associations between these variables and adherence (Strecher et al.,
2008; Wojtowicz et al.,
2013). From the four studies that examined self-efficacy or self-confidence to predict adherence (Al-Asadi et al.,
2014; El Alaoui et al.,
2015; Hebert et al.,
2010; Wagner et al.,
2015), only one found that “self-directedness”, or taking responsibility for one’s own choices and having confidence in solving problems, positively predicted adherence (Wagner et al.,
2015).
In summary, although some research has examined predictors for adherence and attrition in internet-based self-guided programs (Beatty & Binnion,
2016; Linardon & Fuller-Tyszkiewicz,
2020), results are mixed, and more research is needed. Moreover, there is a lack of research looking at the consequences of discontinuing self-help treatment before completion.
Research on negative side effects of undergoing psychotherapy has gained importance in the past decade (Linden,
2013). While we know much about participants who complete online-interventions, little is known about effects of dropping out of one of the many offered internet-based self-guided interventions and the influence this may have for the individual.
Thus, we conducted a study to investigate possible changes of early withdrawal from an internet-based self-help program for skin picking disorder that may influence further help-seeking behavior and/or adherence to an intervention. Specifically, we considered two variables to be especially promising given that previous research demonstrated for both variables the potential to positively impact treatment outcomes. First, self-efficacy, which represents the confidence in one’s ability to produce a desired outcome by their behavior (Bandura,
1997), may increase the ability to engage with an individually satisfactory behavior change (e.g., Meyerbröcker et al.,
2022). Second, motivation to change, defined by Miller and Rollnick (
2012) as the probability that a person will start, remain, or adhere to an intervention (DiClemente and Prochaska,
1998) has also been shown to be linked to more favorable treatment outcomes (e.g., Heider et al.,
2021). Additionally, our aim was to replicate our previous finding regarding the effectiveness of our self-help program (Mehrmann et al.,
2023).
Hypotheses
The online self-help program “Knippelstopp” reduces Skin Picking symptomatology measured at post-assessment (H1) with a lasting positive effect at 9-month follow-up (H2). This decrease in symptomatology arguably depends on adherence to the online intervention. Participants, who use the intervention as intended (access at least seven chapters within 12 weeks; further referred to as completers) should report less symptomatology at post-assessment compared to non-completers (who access less than seven chapters within 12 weeks; H3). Moreover, we expect completers to experience an increase of SP-related self-efficacy (SP-SE), and only a small decrease in SP-related motivation to change (SP-MtC), whereas non-completers report a weaker increase in SP-SE and relatively larger decrease in SP-MtC measured at post-assessment (H4). Finally, with an exploratory analysis, we examine possible predictors for adherence (H5).
Discussion
Early withdrawal from internet-based self-guided mental health interventions is common (Donkin et al.,
2011; Linardon & Fuller-Tyszkiewicz,
2020), and it might be an under-recognized negative consequence with the provision of these tools. Therefore, we examined the effects of discontinuing an internet-based self-help program for SPD. We implemented an effective program, with a significant reduction on skin picking symptomatology at post-assessment (H1) lasting throughout the follow-up period for all participants regardless of their progress in the program (H2). As hypothesized,
completers of the program experienced a stronger symptom reduction at post-assessment compared to
non-completers (H3). In addition, completing the program at post-assessment also resulted in higher general self-efficacy and skin picking related self-efficacy compared to non-completion (H4). Being able to change one’s own problem behavior by implementing suggestions or exercises from the online program may have improved the participants confidence to deal with difficult behavior changes.
Moreover, the non-completers experienced a stronger decrease in picking related motivation to change compared to completers at post-assessment (H4). In the exploratory analysis, we found only one predictor for adherence, namely skin picking related motivation to change (H5). However, this predictor was able to explain only a small proportion of 2.4% of the variance within the present sample.
These results suggest that the decision to discontinue the skin picking program may reduce skin picking related self-efficacy and skin picking related motivation to change, at least within the 12-week timeframe following program initiation. Notably, completers reported significant higher skin picking related motivation to change compared to non-completers from the first assessment onward.
The decrease of picking related motivation to change in the non-completer group may have several different reasons. Both groups reported significantly less symptomatology at post-assessment compared to pre-assessment. Thus, the reduction of symptomatology may be one reason for this comparable decrease in MtC and participants could have decided to discontinue the program participation due to the behavior change achieved at that moment. Lamentably, we do not know anything about the reasons why participants discontinued program usage and cannot rule out external (e.g., workload, life-events), internal (early reduction in symptoms, worsening of other health issues) or program-related aspects (e.g., technical issues, dissatisfaction with the content etc.). Nevertheless, it's important to recognize that many detrimental chronic behaviors, like skin picking, demand persistent motivation and effort even after effectively altering related behaviors, with the aim of maintaining personal achievements. Thus, the capacity to uphold elevated self-efficacy and the motivation to change may remain crucial for sustaining the progress achieved.
The adherence rate of 52% observed in this study for the online program is relatively high compared to adherence rates reported in other internet-based self-guided interventions for SPD, which have ranged from 11 to 57% (Asplund et al.,
2022; Flessner et al.,
2007; Gallinat et al., 2019b; Moritz et al.,
2012; Mehrmann et al.,
2023). Similar to the findings of Moritz et al. (
2012) and Mehrmann et al. (
2023)
completers and
non-completers did not differ on any variable at pre-assessment, except for skin picking related motivation to change. In contrast to the findings on age (Moritz et al.,
2012) and comorbidity (Mehrmann et al.,
2023) we did not find any difference regarding age or comorbidity. However, we assessed BFRB-comorbidity and not general comorbidity and used only a proxy (HADS-D) in order to estimate general comorbidity.
This was one of the first studies to focus on self-efficacy and motivation to change for an SP-intervention. Similarly, Al-Asadi et al. (
2014) found completers of a web-based intervention for problem drinkers to report higher treatment readiness (subscale; TCU Motivation for Treatment scale; De Weert-Van Oene et al.,
2002) compared to non-completers. Likewise, Al-Asadi et al. (
2014) found decreased odds of formally withdrawing from a self-guided and therapist-assisted treatment programs for anxiety disorders for those who were prepared to make changes or were already making changes to improve their mental health. Only one of four studies in the systematic review by Beatty and Binnion (
2016) found self-directedness (i.e., taking responsibility for one’s own choices and having confidence in solving problems) to positively predict adherence to a bulimia self-guided program (Wagner et al.,
2015). Arguably, self-efficacy may represent a relevant personal trait increasing the likelihood of a positive treatment outcome rather than predicting adherence.
Several limitations should be considered when interpreting our study. Firstly, only self-reported symptomatology was assessed and was not verified by a clinician. However, we expected individuals to be interested and motivated in participating in such a potentially time-consuming online-intervention to experience true impairment due to their picking behavior. We did not include a waitlist control group. Hence, no intention to treat analysis was possible. Since we were interested in possible side effects of (non-)adherence, it appeared most efficient to include all interested individuals in a naturalistic trial. One great limitation may be the assessment of progress in the program, which determined the group allocation of completers and non-completers. Due to data privacy guidelines of the learning management system, we were not able to track time spent online with the program or number of chapters accessed. We were only able to track which part participants had access to (I, II or III) and had to rely on self-information of participants about the chapters they were currently working on at each assessment. Note, however, that we observed some inconsistency between the self-reported information and online access. In such cases, we contacted the participants to ask about the chapter they were truly currently working on and corrected this information. There is also no information on how thoroughly participants worked with the program and whether they implemented changes into their daily life. However, monitoring program usage more closely, would somewhat contradict the notion of conducting a naturalistic study.
Unlike the results reported for SP symptomatology, we did not present any findings for the follow-up assessments of SE (self-efficacy) and MtC (motivation to change). While we collected information on program progress at each follow-up assessment, we deemed it inappropriate to compare completers and non-completers at the post-assessment for the Follow-up assessments. Some participants initially classified as non-completers at the post-assessment continued using the program beyond the 12-week period and would subsequently have to be reclassified as completers. This mixing of recent and non-recent completers during the follow-up assessments would have made it difficult to make valid assumptions about the follow-up period.
Since our goal is to provide the program free of charge on the internet, continuous supervision of participants will not be feasible. Consequently, we were mostly interested in examining side effects of a self-guided program without much interference from investigators interested in study-results. Nowadays, many self-guided programs for mental health issues are offered on the internet and it is therefore important, to be aware of possible adverse outcomes for participants. When considering the effects of participants discontinuing program use one should not only examine symptom reductions, but also effects on other aspects such as self-efficacy and motivation to change.
In summary, we provided participants with an effective internet-based cognitive-behavioral self-help intervention for skin picking disorder. We examined the impact of early withdrawal from the program (attrition) and observed that non-completers experienced less symptom reduction, lower treatment-oriented self-efficacy, and decreased treatment motivation. These negative effects of non-adherence must be taken into consideration when providing self-guided mental health interventions on the internet. Treatment providers should address these negative effects, and the wide availability of online interventions should be approached with caution.