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Gepubliceerd in:

01-04-2014

Self-disclosure of serostatus by youth who are HIV-positive: a review

Auteurs: Candace A. Thoth, Christy Tucker, Matthew Leahy, Sunita M. Stewart

Gepubliceerd in: Journal of Behavioral Medicine | Uitgave 2/2014

Abstract

Self-disclosure of serostatus by youth who are HIV-positive has been considered an important objective for preventing transmission and can have positive outcomes including enhancement of social support. This paper reviews the literature on self-disclosure. Several findings are consistent with the literature in adults, including the influence of gender, lower likelihood of disclosure in casual sexual relationships, and the identified barriers of rejection and stigma. Important areas of difference include youth’s expressed needs for communication skills and the significant role of the family in influencing the decision to disclose. The findings raise questions about the relationship between disclosure and safe sexual practices in adolescents and moderate the concept of universal psychological gain from disclosure. The implications from the findings are reviewed, including the individual balance of risk versus benefit, practitioner strategies that might influence this balance and enhance the likelihood of positive outcomes following disclosure, and future research directions are discussed.

vorige artikel Differential medication nonadherence and illness beliefs in co-morbid HIV and type 2 diabetes

volgende artikel Body affects mind? Preoperative behavioral and biological predictors for postoperative symptoms in mental health

Abramowitz, S., Koenig, L. J., Chandwani, S., Orban, L., Stein, R., Lagrange, R., et al. (2009). Characterizing social support: Global and specific social support experiences of HIV-infected youth. AIDS Patient Care and STDs, 23, 323–330.PubMedCrossRef

Adejumo, A. O. (2011). Perceived HIV stigmatization, HIV/AIDS cognition and personality as correlates of HIV self-disclosure among people living in Ibadan, Nigeria. Gender & Behavior, 9, 3854–3869.

Bakeera-Kitaka, S., Nabukeera-Barungi, N., Nostlinger, C., Addy, K., & Colebunders, R. (2008). Sexual risk reduction needs of adolescents living with HIV in a clinical care setting. AIDS Care, 20, 426–433.PubMedCrossRef

Batterham, P., Rice, E., & Rotheram-Borus, M. J. (2005). Predictors of serostatus disclosure to partners among young people living with HIV in the pre- and post-HAART eras. AIDS and Behavior, 9, 281–287.PubMedCrossRef

Battles, H. B., & Wiener, L. S. (2002). From adolescence through young adulthood: Psychosocial adjustment associated with long-term survival of HIV. Journal of Adolescent Health, 30, 161–168.PubMedCrossRef

Birungi, H., Obare, F., Mugisha, J. F., Evelia, H., & Nyombi, J. (2009). Preventive service needs of young people perinatally infected with HIV in Uganda. AIDS Care, 21, 725–731.PubMedCrossRef

Brown, L. K., Lourie, K. J., & Pao, M. (2000). Children and adolescents living with HIV and AIDS: A review. Journal of Child Psychology and Psychiatry, 41, 81–96.PubMedCrossRef

Centers for Disease Control. (2007). CDC surveillance report. CDC Website http://www.cdc.gov/hiv/topics/surveillance/resources/slides/adolescents/index.htm. Accessed 25 March 2012.

Centers for Disease Control. (2012). HIV in the United States: At a glance. CDC website http://www.cdc.gov/hiv/resources/factsheets/PDF/HIV_at_a_glance.pdf. Accessed 25 March 2012.

Chaudoir, S. R., & Fisher, J. D. (2010). The disclosure processes model: Understanding disclosure decision making and postdisclosure outcomes among people living with a concealable stigmatized identity. Psychological Bulletin, 136, 236–256.PubMedCentralPubMedCrossRef

Chaudoir, S. R., Fisher, J. D., & Simoni, J. M. (2011). Understanding HIV disclosure: A review and application of the disclosure processes model. Social Science and Medicine, 72, 1618–1629.PubMedCrossRef

Christianson, M., Lalos, A., & Johansson, E. E. (2008). The law of communicable diseases act and disclosure to sexual partners among HIV-positive youth. Vulnerable Children and Youth Studies, 3, 234–242.CrossRef

Ciccarone, D. H., Kanouse, D. E., Collins, R. L., Miu, A., Chen, J. L., Morton, S. C., et al. (2003). Sex without disclosure of positive HIV serostatus in a US probability sample of persons receiving medical care for HIV infection. American Journal of Public Health, 93, 949–954.PubMedCentralPubMedCrossRef

D’Angelo, L. J., Abdalian, S. E., Sarr, M., Hoffman, N., & Belzer, M. (2001). Disclosure of serostatus by HIV infected youth: The experience of the REACH study. Journal of Adolescent Health, 29, 72–79.PubMedCrossRef

Dempsey, A., MacDonell, K. E., Naar-King, S., & Lau, C. (2012). Patterns of disclosure among youth who are HIV-positive: A multisite study. Journal of Adolescent Health, 50, 315–317.PubMedCentralPubMedCrossRef

Denison, J. A., McCauley, A. P., Dunnett-Dagg, W. A., Lungu, N., & Sweat, M. D. (2008). The HIV testing experiences of adolescents in Ndola, Zambia: Do families and friends matter? AIDS Care, 20, 101–105.PubMedCrossRef

Derlega, V. J., Winstead, B. A., Oldfield, I. E., & Barbee, A. P. (2003). Close relationships and social support in coping with HIV: A test of sensitive interaction systems theory. AIDS and Behavior, 7, 119–129.PubMedCrossRef

Dindia, K., & Allen, M. (1992). Sex differences in self-disclosure: A meta-analysis. Psychological Bulletin, 112, 106–124.PubMedCrossRef

Elliott-DeSorbo, D. K., Martin, S., & Wolters, P. L. (2009). Stressful life events and their relationship to psychological and medical functioning in children and adolescents with HIV infection. Journal of Acquired Immune Deficiency Syndromes, 52, 364–370.PubMedCentralPubMedCrossRef

Fernet, M., Wong, K., Richard, M., Otis, J., Levy, J. J., Lapointe, N., et al. (2011). Romantic relationships and sexual activities of the first generation of youth living with HIV since birth. AIDS Care, 23, 293–300.CrossRef

Finger, J. L., Clum, G. A., Trent, M. E., & Ellen, J. M. (2012). Desire for pregnancy and risk behavior in young HIV-positive women. AIDS Patient Care and STDs, 26, 173–180.PubMedCentralPubMedCrossRef

Forsberg, A. D., King, G., Delaronde, S. R., & Geary, M. K. (1996). Hemophilia behavioral evaluation intervention project committee. maintaining safer sex behaviours in HIV-infected adolescents with haemophilia. AIDS Care, 8, 629–640.PubMedCrossRef

Geary, M. K., King, G., & Forsberg, A. D. (1996). Issues of disclosure and condom use in adolescents with hemophilia and HIV. Hemophilia behavioral evaluative intervention project staff. Pediatric AIDS and HIV Infection, 7, 418–423.PubMed

Gillard, A., Witt, P. A., & Watts, C. E. (2011). Outcomes and processes at a camp for youth with HIV/AIDS. Qualitative Health Research, 21, 1508–1526.PubMedCrossRef

Glick, S. N., & Golden, M. R. (2010). Persistence of racial differences in attitudes towards homosexuality in the United States. Journal of Acquired Immunodeficiency Syndromes, 55, 516–523.CrossRef

Holstad, M.M., Diiorio, C., Kelley, M.E., Resnicow, K., & Sharma, S. (2010). Group motivational interviewing to promote adherence to antiretroviral medications and risk reduction behaviors in HIV infected women. AIDS Behavior. Retrieved from www.ncbi.nlm.nih.gov/pubmed.

Hosek, S. G., Harper, G. W., & Domanico, R. (2000). Psychological and social difficulties of adolescents living with HIV: A qualitative analysis. Journal of Sex Education and Therapy, 25, 269–276.

Lam, P. K., Naar-King, S., & Wright, K. (2007). Social support and disclosure as predictors of mental health in HIV-positive youth. AIDS Patient Care and STDs, 21, 20–29.PubMedCrossRef

Lee, B., & Oberdorfer, P. (2009). Risk-taking behaviors among vertically HIV-infected adolescents in northern Thailand. Journal of the International Association of Physicians in AIDS Care, 8, 221–228.PubMedCrossRef

Lee, M., Rotheram-Borus, M., & O’Hara, P. (1999). Disclosure of serostatus among youth living with HIV. AIDS and Behavior, 3, 33–40.CrossRef

Leonard, A., Markham, C., Bui, T., Shegog, R., & Paul, M. (2010). Lowering the risk of secondary HIV transmission: Insights from HIV-positive youth and health care providers. Perspectives on Sexual and Reproductive Health, 42, 110–116.PubMedCentralPubMedCrossRef

Marks, G., Bundek, N. I., Richardson, J. L., Ruiz, M. S., Maldonado, N., & Mason, H. R. C. (1992). Self-disclosure of HIV infection: Preliminary results for a sample of Hispanic men. Health Psychology, 11, 300–306.PubMedCrossRef

Marks, G., Richardson, J. L., & Crepaz, N. (2002). Are HIV care providers talking with patients about safer sex disclosure? A multi-clinic assessment. AIDS, 16, 1953–1957.PubMedCrossRef

Mayfield, A. E., Rice, D., Flannery, D., & Rotheram-Borus, M. J. (2008). HIV disclosure among adults living with HIV. AIDS Care, 20, 80–92.CrossRef

Mellins, C. A., Brackis-Cott, E., Dolezal, C., & Abrams, E. J. (2004). The role of psychosocial and family factors in adherence to antiretroviral treatment in human immunodeficiency virus-infected children. He Peiatric Infectious Disease Journal, 23, 1035–1041.CrossRef

Michaud, P., Suris, J., Thomas, R. L., Kahlert, C., Rudin, C., & Cheaseaux, J. (2009). To say or not to say: A qualitative study on the disclosure of their condition by human immunodeficiency virus—Positive adolescents. Journal of Adolescent Health, 44, 356–362.PubMedCrossRef

National Alliance of State and Territorial AIDS Directors (NASTAD). (2011). Understanding state departments of health and corrections collaboration: a summary of survey findings—part II and strategic guidance towards ending criminalization-related stigma and discrimination. Washington, D.C.: NASTAD. Retrieved January 6, 2012 from http://www.nastad.org/Docs/021036_NASTAD%20Decriminalization%20Packet.pdf.

O’Brien, M. E., Richardson-Alston, G., Ayoub, M., Magnus, M., Peterman, T. A., & Kissinger, P. (2003). Prevalence and correlates of HIV serostatus disclosure. Sexually Transmitted Diseases, 3, 731–735.CrossRef

Obermeyer, C. M., Baijal, P., & Pegurri, E. (2011). Facilitating HIV disclosure across diverse settings: A review. American Journal of Public Health, 101, 1011–1023.PubMedCentralPubMedCrossRef

Orban, L. A., Stein, R., Koenig, L. J., Conner, L. C., Rexhouse, E. L., Lewis, J. V., et al. (2010). Coping strategies of adolescents living with HIV: Disease-specific stressors and responses. AIDS Care, 22, 420–430.PubMedCrossRef

Parsons, J. T., Butler, R., Kocik, S., Norman, L., & Nuss, R. (1998). The role of the family system in HIV risk reduction: youths with hemophilia and HIV infection and their parents. Adolescent hemophilia behavioral intervention evaluation project (HBIEP) study group. Journal of Pediatric Psychology, 23, 57–65.PubMedCrossRef

Pennebaker, J. W. (1997). Writing about emotional experiences as a therapeutic process. Psychological Science, 8, 162–166.CrossRef

Pennebaker, J. W., Barger, S. D., & Tiebut, J. (1989). Disclosure of traumas and health among Holocaust survivors. Psychosomatic Medicine, 51, 577–589.PubMed

Petersen, I., Bhana, A., Myeza, N., Alicea, S., John, S., Holst, H., et al. (2010). Psychosocial challenges and protective influences for socio-emotional coping of HIV+ adolescents in South Africa: A qualitative investigation. AIDS Care, 22, 970–978.PubMedCentralPubMedCrossRef

Pugatch, D., Bennett, L., & Patterson, D. (2002). HIV medication adherence in adolescents: A qualitative study. Journal of HIV/AIDS Prevention & Education for Adolescents & Children, 5, 9–29.CrossRef

Rice, E., Batterham, P., & Rotheram-Borus, M. J. (2006). Unprotected sex among youth living with HIV before and after the advent of highly active antiretroviral therapy. Perspectives on Sexual and Reproductive Health, 38, 162–167.PubMedCrossRef

Rongkavilit, C., Naar-King, S., Chuenyam, T., Wang, B., Wright, K., & Phanuphak, P. (2007). Health risk behaviors among HIV-infected youth in Bangkok. Thailand. Journal of Adolescent Health, 40, e1–e8.

Rongkavilit, C., Wright, K., Chen, X., Naar-King, S., Chuenyam, T., & Phanuphak, P. (2010). HIV stigma, disclosure and psychosocial distress among Thai youth living with HIV. International Journal of STD and AIDS, 21, 126–132.PubMedCrossRef

Schackman, B. R., Gebo, K. A., Walensky, R. P., Losina, E., Muccio, T., Sax, P. E., et al. (2007). The lifetime cost of current human immunodeficiency virus care in the United States. Medical Care, 14, 990–997.

Sherman, B. F., Bonanno, G. A., Wiener, L. S., & Battles, H. B. (2000). When children tell their friends they have AIDS: Possible consequences for psychological well-being and disease progression. Psychosomatic Medicine, 62, 238–247.PubMed

Simoni, J. M., Demas, P., Mason, H., Drossman, J. A., & Davis, M. L. (2000). HIV disclosure among women of African descent: Associations with coping, social support, and psychological adaptation. AIDS and Behavior, 4, 147–158.CrossRef

Stein, M. D., Freedberg, K. A., Sullivan, L. M., Savetsky, J., Levenson, S. M., Hingson, R., et al. (1998). Disclosure of HIV-positive status to partners. Archives of Internal Medicine, 158, 253–257.PubMedCrossRef

Sturdevant, M. S., Belzer, M., Weissman, G., Friedman, L. B., Sarr, M., & Muenz, L. R. (2001). The relationship of unsafe sexual behavior and the characteristics of sexual partners of HIV infected and HIV uninfected adolescent females. Journal of Adolescent Health, 29, 64–71.PubMedCrossRef

Stutterheim, S. E., Bos, A. E. R., Pryor, J. B., Brands, R., Liebregts, M., & Schaalma, H. P. (2011). Psychological and social correlates of HIV status disclosure: The significance of stigma visibility. AIDS Education and Prevention, 23, 382–392.PubMedCrossRef

Travers, R., & Paoletti, D. (1999). Responding to the support needs of HIV positive lesbian, gay and bisexual youth. Canadian Journal of Human Sexuality, 4, 271–283.

UNAIDS. (2008) Report on the Global AIDS Epidemic. http://www.unaids.org/report.html. Accessed 1 June 2010.

Wiener, L. S., & Battles, H. B. (2006). Untangling the web: A close look at diagnosis disclosure among HIV-infected adolescents. Journal of Adolescent Health, 38, 307–309.PubMedCrossRef

Wise, D. L. (2008). Criminal penalties for non-disclosure of HIV-positive status: Effects on HIV testing rates and incidence. (PhD Dissertation), University of Missouri, Kansas City.

World Health Organization. (2003). Gender dimensions of HIV status disclosure to sexual partners: rates barriers and outcomes. http://www.who.int/gender/documents/en/genderdimensions.pdf. Accessed 10 June 2010.

Titel: Self-disclosure of serostatus by youth who are HIV-positive: a review
Auteurs: Candace A. Thoth
Christy Tucker
Matthew Leahy
Sunita M. Stewart
Publicatiedatum: 01-04-2014
Uitgeverij: Springer US
Gepubliceerd in: Journal of Behavioral Medicine / Uitgave 2/2014
Print ISSN: 0160-7715
Elektronisch ISSN: 1573-3521
DOI: https://doi.org/10.1007/s10865-012-9485-2

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